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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

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Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Sep 21, 2015 11:45PM 3-16-2011 wrote:

Amie, I so admire. your strength. I often think of our emtional life. like muscles in our body. You have built up many muscles that no doubt. have served you well, but the letting go muscle and accepting help muscles dont get exercised often. Most. likely because your are a strong woman and a. nuturing. mother. I am sending your family thoughts of peace.

Annie and Marilyn and others dealing with pain I am right there with you. This week I am working on letting the pain meds work for me and taking small doses three times a day. This dose help me live life with less crankiness and tears. I am working on the assumption that it is SE not progression. because scans have been good this spring and summer.

Have a good week all

3-16-2011 Dx 3/16/2011, IDC, 2cm, Stage IIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Chemotherapy 5/3/2011 AC + T (Taxol) Surgery 10/18/2011 Prophylactic ovary removal Radiation Therapy 11/10/2011 Surgery 10/10/2012 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Dx 11/5/2014, Stage IV, ER+/PR+ Hormonal Therapy 1/1/2015 Aromasin (exemestane) Targeted Therapy 10/15/2015 Afinitor (everolimus)
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Sep 22, 2015 01:04AM KiwiCatMom wrote:

Wow Amie, I'm also hoping you'll let others help. I know how hard it is (I'm a control freak too), but I also know from the times I have been allowed to help someone that giving my time, money, etc., actually probably helps me more than it helps them. People desperately want to help and this gives them a way to do it and it's win-win - you get the help you need and they get to feel good about themselves! One of the best moments I've had in my life was helping two young women (19 year old twins) with cerebrial palsy get their first apartment! That was 12 years ago and it still makes me feel good. So, look at it as doing something nice for others by letting them do something nice for you.

Wishing you good luck with the MRI Marilyn. I also have pain in odd places and it's all from side effects.

Annie - sorry you're having such a tough time with Celebrex. I went to the GP today because I have chronic nausea and the trots, so we're trying to figure it out. However, we're on roof water (from a tank) and think that may be the issue since my husband doesn't take Celebrex and has the same problems. I take Omeprazole twice a day. And Celebrex is much easier on my tummy that another arthritis med I was on. But as we know, everyone is different.

3-16: Glad you have the pain meds sorted out. Living with chronic pain makes me cranky too.

Hugs to all,

Terre


Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/19/2006 Lumpectomy: Left Hormonal Therapy 12/10/2006 Radiation Therapy 12/15/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/19/2013 Femara (letrozole) Radiation Therapy 2/19/2013 Bone
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Sep 22, 2015 06:30AM Lindalou wrote:


Marilyn- Good luck with the lumbar MRI and hope that you find it it is the meds causing you have pain.

My dh's MRI came back zero which is what it should show after prostate cancer surgery. We'll take it.

I got my shingles injection last week and got a mild case of shingles. Mostly fever, blisters on my arm and side, but not many and not much pain with it, mostly itching. MO said he sees cancer patients that get shingles all the time from the shot, due to our weakened immune system. We are a lucky group!





Linda Dx 11/1/2007, ILC, Left, Stage IIB, Grade 3, ER+/PR+, HER2- Dx 8/2009, Stage IV, metastasized to bone Dx 5/13/2014 Targeted Therapy 4/21/2017 Ibrance (palbociclib) Chemotherapy 10/2/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 10/23/2017 Xeloda (capecitabine) Radiation Therapy External: Bone Radiation Therapy External: Bone Surgery Mastectomy: Left, Right Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy External: Bone Radiation Therapy Bone
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Sep 22, 2015 01:16PM LindaE54 wrote:

Keetmom - I'm at a loss for words - my heartfelt prayers for you. Accept all the help offered and ask if you need to. And we're here for you.

Annie - Damn for short lived. Hope you get answers quickly.

Terre - I would trade my constipation for your trots LOL. Feel better soon (and hubby).

Lindalou - Woohoo good news for your hubby! I guess I was lucky, no reaction whatsoever after shingles vaccine in August.

Dune - how are you?

Hugs all around.

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/19/2013 External: Bone Hormonal Therapy 12/30/2013 Femara (letrozole) Hormonal Therapy 5/28/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/29/2014 External: Bone Radiation Therapy 8/28/2014 External: Bone Hormonal Therapy 9/25/2014 Femara (letrozole) Radiation Therapy 12/14/2014 External: Bone Hormonal Therapy 2/17/2017 Faslodex (fulvestrant) Chemotherapy 5/15/2017 Taxol (paclitaxel) Radiation Therapy 6/5/2017 External: Bone Chemotherapy 10/3/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Sep 22, 2015 01:42PM cjanet wrote:

Hugs to everyone.

Keetmom, I don't know what to say. You and your family are in my thoughts and prayers. I agree with the others, let people help you. It's good for everyone. Praying for strength and peace for you and your family.

Annie and LindaE I hope you both feel better soon.

Lindalou-ugh, sorry about shingles. Yes, we cancer girls have all the fun, don't we?

Still dealing w pain but managing. Having some issues w hubby accepting help. I tend to be a talker about everything and he resents the invasion of his privacy. But when I'm not feeling well and I want company not sure how to avoid having them come to our house? I am just so exhausted and need some purely positive support, which really I get from you guys but I need an in person hug too!


Cristina Dx 2/16/2012, IDC, 5cm, Stage IIA, 1/4 nodes, ER+/PR+, HER2- Chemotherapy 3/20/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/16/2012 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/2/2013 Reconstruction (left); Reconstruction (right) Hormonal Therapy 10/14/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/23/2015 External: Bone Hormonal Therapy 5/7/2015 Arimidex (anastrozole) Hormonal Therapy 8/5/2015 Faslodex (fulvestrant) Targeted Therapy 8/8/2015 Ibrance (palbociclib) Chemotherapy 5/31/2016 Xeloda (capecitabine) Chemotherapy 7/28/2016 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy Breast, Lymph nodes
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Sep 22, 2015 03:13PM KiwiCatMom wrote:

Great news for hubby Lindalou. bugger @ shingles however.

Cjanet - I have the same problem to an extent. Is there any chance you could have one of your friends pick you up and you could go out for a coffee? Or they could take you to their place? I'm mobile enough that I go out for coffee and don't generally bring people to the house. My husband is in such a lovely state of denial that he just doesn't want to hear about it. And he thinks it's "a private matter". At any rate, hope you find a solution because yeah, we do need hugs in real life.

LindaE - trade you for a few days at least. :) I was back to the doc yesterday and have to turn in samples and get blood tests done this morning. This tummy issue is undoubtedly better to have the constipation; however, I can't be far from a loo at any time. Makes the 70 minute train ride into town a challenge (no potties on the train). Oh well, hopefully they'll figure it out.

Annie - hope they figure your problem out soon too!

Sending hugs to all,

Terre


Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/19/2006 Lumpectomy: Left Hormonal Therapy 12/10/2006 Radiation Therapy 12/15/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/19/2013 Femara (letrozole) Radiation Therapy 2/19/2013 Bone
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Sep 22, 2015 04:45PM ChelleG wrote:

wishing there was a happy medium between the green apple quick step and the long road to Brownsville for the both of you! Miserable either way! Has anyone heard from Wendy this week? Or Dune sleeper? I may not post often, but I never forget to worry. Healing hugs all across the globe to all of you

Dx stage IV de novo 9/10/2015 with bone mets. Dx 9/10/2015, ILC/IDC, Both breasts, 2cm, Stage IV, Grade 2, ER+/PR+, HER2- Dx 9/10/2015, ILC/IDC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/16/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 22, 2015 04:48PM KiwiCatMom wrote:

Chelle - too funny. Long road to brownsville and green apple quick step. thanks for the giggle.

Dx 9/25/2006, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 10/19/2006 Lumpectomy: Left Hormonal Therapy 12/10/2006 Radiation Therapy 12/15/2006 Breast Dx 2/9/2013, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/19/2013 Femara (letrozole) Radiation Therapy 2/19/2013 Bone
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Sep 22, 2015 09:47PM annieoakley wrote:

Hello everyone, 

I spent this most gorgeous day outdoors with my eldest daughter. Probably the first day I've felt reasonably well enough to do so in a week and a half. 

3-16-2011, glad you found the right combination of meds to help make life less tearful, it's such a balancing act. 

Terre, damn the Celebrex is not being friendly to me, I've been off of it for 3 days now but I'm suppose to restart it tomorrow with double the stomach meds. Strange it took this long to affect me, I thought I was doing so well. Really noticing the pain increase since I haven't taken it. Hope your tummy issue gets sorted out quickly. 

Linda, I guess I'll have some answers when I try to take the Celebrex again tomorrow, fingers crossed that doubling up on the stomach meds helps.

ChelleG, lol at your post, either way it's a crappy situation. Unfortunately for me today it was the green apple quick step after every meal. 

Cjanet, thanks for the well wishes. Hope you get the positive support you need, sending you big hugs. 

Hugs to all of you, Annie

Surgery 5/8/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/23/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/28/2012 Surgery 2/1/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/12/2013 Prophylactic ovary removal Surgery 9/4/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/4/2014 Femara (letrozole) Radiation Therapy 12/1/2014 Bone
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Sep 22, 2015 09:51PM dunesleeper wrote:

Terre, I hope they find the cause and solution to your problem. What a misery! I have Linda's problem, and that's bad too; but there are ways of coping. At chemo today I told my nurse coordinator of a few things going on, one of which is pain in my upper belly when I bend over. She asked if it felt like bloating. Nope. Feels hard. She said what I suspected. "You're full of sh*t." lol So, I've added hot prune juice to my arsenal.

I had a rough week last week, so I got behind. Almost caught up now, though.

Had a weird thing happen last night. Over night a discoloration appeared on my finger, and it got darker through the day. It's not raised, doesn't hurt, and doesn't wash off. It got the nurse coordinator's attention too. I guess I'm going to have to get another appointment with the dermatologist. If it ain't one thing it is another. Watchagonnado?!?!?

There was no brown spot last night. This morning it was discolored. Now it looks like brown wood stain. Crazy!!!

I need to finish and put Dusty and Soebe and especially ME to bed. I got the down out for tonight. Nice.

Dx 2/7/2012, IDC, 4cm, Stage IIB, Grade 3, 1/31 nodes, ER+/PR+, HER2- Surgery 3/7/2012 Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 9/4/2012 Reconstruction (right) Dx 8/20/2014, IDC, Stage IV, Grade 3, mets, ER+/PR+, HER2- Hormonal Therapy 8/20/2014 Arimidex (anastrozole) Dx 4/17/2015, IDC, Stage IV, Grade 3, ER+/PR+, HER2- Chemotherapy 5/4/2015 Taxol (paclitaxel) Chemotherapy 7/10/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 9/1/2015 External: Bone Targeted Therapy 10/24/2015 Ibrance (palbociclib)

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