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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 22, 2012 01:09AM - edited Oct 28, 2021 12:22PM by Moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jun 7, 2021 11:57AM BigPeaches wrote:

Has anyone ever had hearing issues after Rads? I noticed when everyone started wearing masks that I had been lip reading and really couldn't hear anything out of my right ear. Finally I just saw an ENT and he said I could have permanent damage possibly due to the radiation I had on my skull. He cleaned them out and I can hear A LOT better but there is still problems on the right.

Other than that, I just passed 3 years with this metistatic mess and I'm thankful for it!

Dx 6/11/2008, IDC, Right, 2cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/17/2008 Mastectomy: Right Chemotherapy 8/18/2008 AT Targeted Therapy 8/18/2008 Herceptin (trastuzumab) Hormonal Therapy 12/31/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/27/2018, IDC, Stage IV, metastasized to bone, ER+/PR+, HER2+ Radiation Therapy 3/28/2018 External: Bone Chemotherapy 5/15/2018 Taxotere (docetaxel) Targeted Therapy 5/15/2018 Perjeta (pertuzumab) Targeted Therapy 5/15/2018 Herceptin (trastuzumab) Hormonal Therapy 8/29/2018 Arimidex (anastrozole) Hormonal Therapy 8/30/2018 Zoladex (goserelin)
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Jun 7, 2021 12:33PM NicoleRod wrote:

Thanks Moth and Snowdrop

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Jun 8, 2021 02:34PM thebar1957 wrote:

Hello fellow MBCers,

My name is Teri, 64 years old, diagnosed in 2013 with stage 1 ILC ER+Her2- and eight years later here I am with MBC. I took AIs for five years after my first diagnosis and then stopped. My onc said the cancer probably broke through when I stopped taking the AIs. I was experiencing intense pain in my legs at night and an enlarged lymph node in my left armpit after the COVID shot. The drs thought it was from the COVID shot but I disagreed as that lymph node had been bothering me for weeks before the COVID shot. The biopsy showed cancer in the lymph node and a pet scan showed cancer in my bones. So I'm on my third week of Ibrance and I received my first shots of Faslodex three weeks ago. Hardly any side effects except for aches and pains which I've had for years. I'm 64 years old, married, no kids. I have nine biological sisters and I'm the only sister with breast cancer.

Surgery 8/16/2013 Mastectomy: Left; Prophylactic mastectomy: Right
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Jun 8, 2021 03:10PM NicoleRod wrote:

Thebar...sorry to hear of your reccurance. If you haven't already you may want to join the Ibrance thread as well, it moves quickly and a lot of nice ladies in there.

As the saying goes...Welcome to the club that no one wants to be in....

Nicole

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Jun 8, 2021 06:06PM KBL wrote:

Thebar57, it was nice to meet you in the Zoom call yesterday I’m sorry you’re here for this reason but so glad you joined us.

I was the only one of five siblings to have cancer, let alone breast cancer. I’ve had it for eight years but was only diagnosed two years ago.In a matter of a few months last year, my eldest brother was diagnosed with breast cancer, and my second oldest brother was diagnosed with renal cell carcinoma and passed within three months. Things can change on a dime, and I really hope your sisters keep a watchful eye just in case.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)
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Jun 8, 2021 06:22PM Lee64 wrote:

Welcome, thebar!

Dx 11/5/2010, IDC, 3cm, Stage IIB, 2/6 nodes, ER+/PR+, HER2-
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Jun 12, 2021 08:37PM emac877 wrote:

Deamo1 - My bone mets felt like a deep dull pain. The one's I had in my back I rarely felt but if I did it was not a zap like feeling.

Nicole - I haven't interacted with Moomala, please let us know if you hear something. I always wonder about those of us who disappear from here. I like to think it's because they are feeling better and out enjoying a life where cancer doesn't try to steal the drivers seat.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Radiation Therapy 12/23/2019 External: Bone Surgery 12/31/2019 Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 12/9/2020 Aromasin (exemestane) Hormonal Therapy 6/23/2021 Faslodex (fulvestrant)
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Jun 15, 2021 06:36PM Positive2strong wrote:

just got results of mri mass on lumbar 1 I was stunned and was looking forward to celebrating 5 yrs in August.

Waiting on an appt for a biopsy. My husband has a work trip to Vegas and we would be back on Monday. I am not motivated to get ready and go.

I am so ignorant…is Mets a tumor ? Did any of you have a lumbar mass.

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jun 15, 2021 06:54PM moth wrote:

Positive2strong - fingers crossed your biopsy shows a benign result. What did the MRI actually say? It could be other things.

Yes, a met is a tumor. It's a malignancy that has migrated from the original site of the cancer. My spine met is T11 (just a couple above L1)

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jun 15, 2021 11:18PM SondraF wrote:

Positive - what triggered the MRI? Was it pain in that area or was it incidental finding?

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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Jun 16, 2021 08:43AM prairiesea wrote:

Sorry to hear about your recent imaging discoveries, TheBar and Positive....hoping that biopsies and treatment go well.

I'm facing a decision between kyphoplasty and radiation to deal with ongoing bone mets back pain I wonder if anyone has experience to weigh in on. Had rads to my back when I first started treatment in April. Still having intermittent back pain, sometimes quite severe. I also had fourth compression fracture discovered in April. Wanting to slow down kyphosis and pain, I asked spine doctor (who has screwed up before so I have limited confidence but don't know how to get him out of my treatment plan) about kyphoplasty and he was enthusiastic (seemed to think that heat of the cement would even kill some of the cancer cells, which I doubt). So with my MO's blessing I'm having an MRI to assess this today, and a consult tomorrow. Meanwhile, my second opinion onc at a cancer center had recommended further radiation to deal with pain from my ribs....that has decreased but my onc here still thinks further radiation for back pain might improve QOL while the Ibrance/Letrozole slowly (hopefully) decreases tumors in my back. RO is willing to go ahead with some targeted rads (with "BBs"? which I guess are markers to better target painful places) but thinks kyphoplasty is a BAD idea because it has a very uncertain possibility of improving things and could make my already fragile back worse. I tend to find RO to be the most trustworthy of my many physicians....but MO wants me to at least get the consultation (and was glad to have an MRI for some other purpose that could also give us an early view of how treatment may be affecting spine mets....he doesn't want to order his own imaging until August).

So this is too long but, my questions are, anyone have good/bad experiences with kyphoplasty? Also, I've seen some people's Oncs have them go OFF Ibrance while having radiation. I think that starting Ibrance (at max dose) DURING radiation in April may have contributed to the extreme decline in my WBC/Neutrophil counts while on my first cycle of 125. My WBC already went down with radiation and the further decline on Ibrance caused a 3 week break and decrease in dosage between the first two cycles (just finished Cycle 2 , waiting for results from blood work done yesterday). I have planned a family trip to California in July to see our daughter who lives there and very belatedly scatter my parents ashes in the Pacific Ocean near where they used to live, and I don't want anything to get in the way of that.

I wonder: should I just wait 'til I get back for either treatment? Or, as all the doctors seem all too confident about, trust that I won't get severe neutropenia again before or while I'm in California? Sort of hoped the radiation would improve my back enough to do some longer walking/hiking than I usually can, but maybe the risks are not worth it. Maybe I should just talk to palliative care about drugs (went off all of the NSAIDs and Ibuprofen I was taking when my pain was at its worst and am not sure if it's ok to go back on them with the cancer drugs I'm taking. RO keeps pushing Tramadol but I just don't want to do opioids and have enough trouble with constipation because of anti-nausea drugs I take occasionally). Thanks for any thoughts.

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Jun 16, 2021 09:47AM - edited Jun 16, 2021 09:49AM by DivineMrsM

Prariesea, I've never had the kyphoplasty. You say you trust your RO the most of all your doctors. Your comments seem to sound like you are leaning towards getting the radiation, altho you want to get the MRI now to see what it shows.

Talking to palliative care is a good idea just to see what they say. Are you saying you use no pain meds currently? I would think NSAIDS and ibuprofen are okay to take with Ibrance. I can understand your reasons for not wanting tramadol. But NSAIDS and ibuprofen might be enough to help you have a more comfortable trip to California.

I know a lot of women worry about going off Ibrance for a time, but it is not Ibrance that is preventing bc from spreading, it is only making the hormonal drug you are taking work better. What hormonal do you take? If your white blood cell count drops, you continue with the hormonal, so you are still getting treatment.

It sounds like your goal is to take your California trip and have your pain under control. The kyphoplasty remedy sounds like it could go either way, good or bad, and that might interfere with your trip. You have a lot to consider. Keep us posted on how things are going.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Jun 16, 2021 06:06PM prairiesea wrote:

Thanks Divine. Your perspective is helpful. I take letrozole (Femara) with Ibrance. I suppose I could suggest going off Ibrance for a cycle, but having just started treatment I think Onc is going to not want to take such a long wait between cycles.

Complicated now by most recent blood results....neutrophils are way down again after 3rd week on 100 dose of Ibrance. Frustrating as it took 3 week to come back up last time. I will have to talk to them about how to work this out. Onc was so sure it wouldn't happen again, sometimes I find their over-confidence really annoying......

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Jun 16, 2021 09:31PM Positive2strong wrote:

all the Dr said is that I have a mass on L1 and I need a biopsy

I was stunned and didn’t know what else to ask

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jun 16, 2021 09:41PM Positive2strong wrote:

it started In Jan that when I sat down for awhile and then would get up my right leg didn’t work but once I got going I was ok

Then it just got worse with pain in my right leg when I walked. But sitting and sleeping no pain now I have some pain sleeping. I thought it was sciatic as my husband has always had back problems and then broke his neck 3 yrs ago so I do all the lifting etc

My husband insisted I see a Dr. and Of course he said I needed an mri I found a stand up MRI and I never thought this

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jun 16, 2021 09:42PM - edited Jun 18, 2021 03:32AM by Positive2strong

thank you so much for respondin

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jun 17, 2021 01:20AM sunnidays wrote:

I am not sure if this is the correct place to put this.

What is the longest someone has had bone-only mets? are there any theories or research on why some people have bone-only involvement for years, or it never moves on from bone-only involvement for some people?, or conversely why it moves on from bone very quickly for some people is it all random maybe?


Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
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Jun 17, 2021 03:09AM JoynerL wrote:

Sunnidays, I have been bone only since Feb 2017, so 4 yrs and 4 mo.

Positive2Strong, wishing you the very best!! Hang tough, girl! Thank goodness for your husband.

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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Jun 17, 2021 04:07AM DivineMrsM wrote:

sunnidays, certainly there are what are called “outliers” who live many years with metastatic breast cancer to the bone without further spread. There are other members of the forum that can explain more clearly and thoroughly than I can what some reasons are why this occurs, and when they see your question, I’m sure they will explain in better detail. For example, some women have a slower, lazier cancer.

On the other hand, yes, there is a randomness about it.

I found a lump in my breast in Dec 2010, officially diagnosed the following month metastatic to the bone and have remained that way; that makes it 10+ years so far.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Jun 17, 2021 07:15AM Positive2strong wrote:

thank you divineMrsM and Joynerl

I am waiting to get my biopsy appt

It is hard to keep negative thoughts out of my head

I drove to Vegas yesterday, sitting I have very little pain, but I barely can walk. Last night my husband got me a wheel chair to get from the car to our room.

He had a business trip here. The pain of walking makes me drown in all the what is to come and I am sick to my stomach and really can’t eat or sleep much…..this group helps me so much

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jun 17, 2021 09:30AM - edited Jun 17, 2021 09:31AM by moth

sunnidays, we don't have a good understanding of the mechanism of initial metastasis or its subsequent spread. So we just don't know why some people's cancer is very indolent and others' spreads like wildfire. Grade is definitely a factor. And while bone only is considered to be the most optimal, there are pts whose cancer progresses rapidly. I've read some oncs speculating that these were maybe not really bone only - they had undetectable visceral mets at prsentation as well. Also bone has a very good blood supply so blood transmission of the cancer can easily occur but we don't seem to know which types spread more by lymph versus by blood.

There is a study looking at the 2010-2015 SEER data set (which would be prior to CDK4/6 for hr+ and immunotherapy for tnbc - those shifted the curves slightly). You can see some of the survival curves on Table 3. Hormone status & location of mets do matter a lot. Bone only are the most favourable. So you do get a lot of outliers. https://bmccancer.biomedcentral.com/articles/10.11...



I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jun 17, 2021 10:15AM MKestrel wrote:

Hi, I'm new to this thread. I was diagnosed with metastatic cancer to the spine 3 months ago. It has been sort of a shocking train wreck. It was almost 3 years after first diagnosis, which was early stage and I was finally trying to move on. I had been trying hard to get in shape, etc. and lost about 40 pounds but felt like I was losing ground and kept having a back ache. I blamed it on workouts, bad chair (miserable desk job), pillow, stress, etc. Oncologist PA recommended therapy and massage but did not suggest any imaging. I went to a PT, who felt my spine and said something was really off and I should ask my doctor for an x-ray. They did a regular x-ray and didn't see much, no fractures just osteopenia. My back ache kept getting worse and I was having a lot of muscle cramps. A couple of weeks later I was sitting at work and tilted my chin down trying to stretch and felt ZAPZAPZAP down both legs and my toes started to go numb (Lhermitte sign). I was having a little denial issue because I have had to meet max out of pocket 5 years in a row, so I didn't go to the ER. I went to PCP the next day and they ordered MRI brain and lumbar spine (but not thoracic because already did the regular x-ray). Insurance caused a delay to "prior authorize," and then scheduling was delayed because of the virus, etc. Within a week I was half numb from my toes to my ribs and losing motor control of my legs. Both MRIs were negative and I was referred to a neurologist. I couldn't take it any more and went to the ER. The thoracic MRI showed T6 completely filled with tumor and severely compressing the spinal cord. There was also a pathologic fracture of 7th rib. I was taken for emergency surgery, T6 corpectomy with fusion T4-T8. I have been working hard with PT trying to recover as much function as possible, plus trying to adjust to the reality of having stage IV cancer. It's crushing.

positive2strong and everyone else here, I can relate and send you a hug.

Distraction helps me deal. I like watching explore.org cameras with all the animals doing their thing and being happy.

I would rather be hiking Dx 12/14/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Dx 3/7/2021, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Targeted Therapy 9/22/2021 Verzenio Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Jun 17, 2021 11:59AM GoKale4320 wrote:

Positive 2Strong- I had a lot of pain leading up to my diagnosis. I had to ask about getting radiation and felt lucky that I could get in quickly. I had 5 sessions of radiation and it took several weeks after that to notice a big difference. During that time, I took Aleve and Tramodol for pain which helped a lot. Now I take 1 Aleve and 1 Tramodol a day. Radiation helped me regain physical ability I had lost and I am exercising again the same amount of time as before (maybe less intense, though).

MKestrel - I, too, thought I had hurt myself exercising. I waited before seeing the oncologist. If you haven’t gotten a treatment plan from your oncologist yet, I think it will be a relief to get a plan. Hopefully some radiation (there are different methods) will be scheduled.



Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Jun 17, 2021 12:33PM MKestrel wrote:

Yeah I did have 6 weeks of radiation. It does help, and I think I am going to try getting back on my bike. It takes brutal force, but I feel better if I try to keep moving.

I would rather be hiking Dx 12/14/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Dx 3/7/2021, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Targeted Therapy 9/22/2021 Verzenio Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Jun 17, 2021 06:18PM - edited Jun 18, 2021 06:40PM by Maire67

Sunnidays like Joyner I've had bone mets for 4 yr 2 mo. I did Herceptin , Kadcyla Taxol and rads in hip .spine., sacrum ,femur, acetabellum. PT after has helped be regain strength. I was blessed with a very proactive oncologist and PET scans that picked it up early. Now I'm being denied PET scans so now I get MRI no contrast.& Bone scans. Pain has been manageable. I'm very lucky. I wish you well


Dx 6/2005, ILC, Right, 5cm, Stage IIIB, metastasized to bone, 1/9 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Surgery Lymph node removal; Mastectomy Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab)
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Jun 17, 2021 07:54PM Positive2strong wrote:

thank you for sharing. I go for a ct scan Monday for my liver. I am having a hard time facing this. I hope to hear more from you.

Linda

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jun 24, 2021 10:08AM carolina_girl63 wrote:

I can't believe that I find myself back here. I was so hoping that I would not need this sight for a very long time. I just found out last week that I have a compression fracture to my T11. Turns out I have a met there and one on my right pelvis. Next week I am scheduled for a CT guided biopsy and was wondering if anyone has had one of these and can give me some insight into what is going to happen at my appointment. I'm really just reeling from this and not sure how I am feeling.

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Jun 24, 2021 10:31AM moth wrote:

Hi carolina_girl - sorry you find yourself here. I think you're the 4th of us 2017 diagnosed to have to return like this. It's awful when you first find out, really like a gut punch.

I didn't have my bone met biopsied so can't help with that but I'm sure someone will be along soon. I just wanted to wave hello.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jun 24, 2021 10:38AM GoKale4320 wrote:

Hi Carolina Girl 63 - I had a bone biopsy from the sacrum, but I am not completely sure if it was CT guided, but it probably was. Had to have been guided by something! At the hospital, they numbed the area, gave me relaxing medicine and did the Biopsy while I was still awake. It was a simple procedure for me. I was loopy afterwards and slept for several hours at home. All this did was confirm that it was hormone-driven the same as before.

I have been prescribed Ibrance, Letrozole and Xgeva. You might be prescribed something similar. The Ibrance and Letrozole are taken by pill at home. The Xgeva is a bone-building drug I get by injection once a month at the cancer center.

It's a terrible shock, I know. It took me a while to deal with this, and I think I felt better mentally once I had a plan in place. There are several different treatments available for bone mets, and many people are able to get it under control and carry on with their lives.






Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Jun 24, 2021 10:49AM NicoleRod wrote:

Carolina girl....welcome to the club that none of us want to be in. There is a silver lining in your cloud...sounds like you are Bone Mets only....try to focus on the positive...having bone mets only and no organ involovement ...is a positive... Hope things go well with scans and you get clear answers.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right

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