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Jun 17, 2021 10:15AM
Hi, I'm new to this thread. I was diagnosed with metastatic cancer to the spine 3 months ago. It has been sort of a shocking train wreck. It was almost 3 years after first diagnosis, which was early stage and I was finally trying to move on. I had been trying hard to get in shape, etc. and lost about 40 pounds but felt like I was losing ground and kept having a back ache. I blamed it on workouts, bad chair (miserable desk job), pillow, stress, etc. Oncologist PA recommended therapy and massage but did not suggest any imaging. I went to a PT, who felt my spine and said something was really off and I should ask my doctor for an x-ray. They did a regular x-ray and didn't see much, no fractures just osteopenia. My back ache kept getting worse and I was having a lot of muscle cramps. A couple of weeks later I was sitting at work and tilted my chin down trying to stretch and felt ZAPZAPZAP down both legs and my toes started to go numb (Lhermitte sign). I was having a little denial issue because I have had to meet max out of pocket 5 years in a row, so I didn't go to the ER. I went to PCP the next day and they ordered MRI brain and lumbar spine (but not thoracic because already did the regular x-ray). Insurance caused a delay to "prior authorize," and then scheduling was delayed because of the virus, etc. Within a week I was half numb from my toes to my ribs and losing motor control of my legs. Both MRIs were negative and I was referred to a neurologist. I couldn't take it any more and went to the ER. The thoracic MRI showed T6 completely filled with tumor and severely compressing the spinal cord. There was also a pathologic fracture of 7th rib. I was taken for emergency surgery, T6 corpectomy with fusion T4-T8. I have been working hard with PT trying to recover as much function as possible, plus trying to adjust to the reality of having stage IV cancer. It's crushing.
positive2strong and everyone else here, I can relate and send you a hug.
Distraction helps me deal. I like watching explore.org cameras with all the animals doing their thing and being happy.
I would rather be hiking
12/14/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC)
3/7/2021, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC)
Femara (letrozole), Zoladex (goserelin)