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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 31, 2012 03:07AM by Jac53

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

This is an easily readable Bone Mets Q&As from the Bone & Cancer Foundation:  http://www.boneandcancerfoundation.org/pdfs/Breast_Cancer_Q+A.pdf

Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Posts 26281 - 26310 (26,389 total)

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Sep 24, 2021 11:25AM Sunshine99 wrote:

emac877, have you tried the "Mules" or "Clogs" made by Easy Spirit? They slip on, so no bending down to tie them. I wear them all the time and have never felt unsteady in them. When my hip pain got so bad that I couldn't tie my laced shoes any more, I tried these.

I got them on Amazon and will try to post a link, if I'm allowed or if anyone is interested.

It's a tough choice about the traveling, prairiesea. I totally get it. Lately, I've had a "hankering" to see a couple of friends from my long past. We worked at a summer camp together. I think you'll know what's right for you. I don't want to have any regrets about that I didn't do.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Sep 24, 2021 12:46PM prairiesea wrote:

All good reminders, as usual PatGMc. Thanks for the reminder to be joyful. I'm so sorry to hear about the violence in your nearby grocery store....it is very saddening to think of the pain that likely produced that and even more the pain that it is causing.

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Sep 24, 2021 02:17PM prairiesea wrote:

And thanks sunshine. Yes, in the absence of much help from oncologist's office, I think I've arrived at a plan that steers a course between what he seems to be expecting and what makes sense to me. He and I can hash it out Monday.

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Sep 25, 2021 06:06AM - edited Sep 25, 2021 06:49AM by star2017

Best wishes, prairiesea. I hope you are able to enjoy your time while still taking care of your health.


Does anyone have experience with a PET showing small uptake where a CT showed no lesion? The MO wasn't concerned (and she's usually not one to shy away from bad news; has a very direct approach) and attributes it to perhaps inflammation, but I am worried a new lesion is forming despite my new treatments.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/17/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/29/2017 AC + T (Taxol) Surgery 4/18/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy 6/19/2019 Arimidex (anastrozole) Dx 5/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy Verzenio Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant)
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Sep 26, 2021 11:41AM beth1965 wrote:

Wow leaned over to pick up my coffee and my rib broke felt it brake what a strange feeling Then the excruating spasms started there next it i guess that happens. This was not fun at all as i am sure many of you already know. Hoping i am done breaking anything at least for awhile i need a break from breaks

I guess my rib was fractured from slipping on blueberris a few weeks ago so it snapped quite easy.

At least i know this area had a reason it was hurting and may not be progression doctor was worried about.. Not thrilled to have another broken rib but at least the first broken one is almost healed and maybe as i said i just got hurt from falling not specifically because of mets in that spot other than the bone being weak from the mets


Looking for hope Dx 1/18/2012, ILC, Left, 6cm+, Stage IIIC, Grade 3, 17/29 nodes, ER+/PR-, HER2- Surgery 2/14/2012 Mastectomy: Left, Right Chemotherapy 3/6/2012 AC + T (Taxol) Radiation Therapy 8/13/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/19/2012 Arimidex (anastrozole) Dx 8/8/2021, ILC, Stage IV, metastasized to bone Hormonal Therapy 8/20/2021 Faslodex (fulvestrant)
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Sep 26, 2021 11:52AM Iwrite wrote:

Beth,

Sounds painful! Hope you heal quickly and get through the coming months with no further breaks. Who knew blueberries could hurt us!


Between every two pines is a doorway to a new world. John Muir Dx 11/2/2015, ILC, Both breasts, 6cm+, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 11/5/2015 Femara (letrozole) Targeted Therapy 11/11/2015 Ibrance (palbociclib)
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Sep 26, 2021 12:12PM beth1965 wrote:

This is one of my paintings i named "Looking for Hope " - hope you dont mind me sharing - i usually just share in art area but this one means so much to me its different - its the picture in my avatar i and its a reminder to me to keep hoping and relates to this post

Met my pallitive care doctor ( feel weird i even have one i dont know why i was sent one it scares me) did not like him at all he ripped every ounze of hope i had otta me in 20 minutes. He just kept saying about death and not being under illusions that i may meet my end soon. I understand all that but i told him i was still hopeful for some time as cancer doctor said she had a few things to try and seemed hopeful i may do well and i have seen many ladies here do well that are worse off than me living that i choose to keep some hope. He still did not seem to think i should feel so strongly about time and hope and should be concentrating the other way and excepting my upcoming doom. Once i make a will etc.. and plan the death stuff out whats left to concentrate on on that end I think once those things are done i will still be hoping - i pointed to my painting "Looking for Hope' and said thats me it will always be me i told the title and what it means to me - i explained to him its not right to try and take away someones hope - Hoping is my choice for me

Its just i know that everyone says you have to not be in denial and be realistic that your life is dangling and so fragile right now but i always feel having hope is not denial its just plain hoping - because truly i see many woman on this site in stage 4 puttering along and still living - well i think and HOPE this will be me -it might not be but i still choose to Hope - or hope more treatments and cures come for everyone - i choose hope - so yes this painting is me ( its really my sons eye lol but close enough lol ) Hoping

DOCTOR FIRED - definately looking for a different one, i am not a violent person but i am quite positive if i keep him i will punch him in the nose



Looking for hope Dx 1/18/2012, ILC, Left, 6cm+, Stage IIIC, Grade 3, 17/29 nodes, ER+/PR-, HER2- Surgery 2/14/2012 Mastectomy: Left, Right Chemotherapy 3/6/2012 AC + T (Taxol) Radiation Therapy 8/13/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/19/2012 Arimidex (anastrozole) Dx 8/8/2021, ILC, Stage IV, metastasized to bone Hormonal Therapy 8/20/2021 Faslodex (fulvestrant)
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Sep 26, 2021 12:44PM KBL wrote:

I’m so glad you fired him. I’m angry that he even said those things. You can live a very long time with this. He needs to get out of the field if he can’t provide hope.

I love your painting. Hope is a wonderful thing to have.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)
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Sep 26, 2021 12:50PM Sunshine99 wrote:

beth 1965, WOW! I love your painting. It says "Hope" to me, too. I'm rather shocked at your palliative care doctor. I just finished reading (again) a book by Dr. Sunita Puri, a palliative care physician. It seems that their job is first to LISTEN to you. Then they are to work with you on maintaining your QOL and not to focus on the "end". Yes, we need to think about the "what-ifs", but if the what-its aren't here yet, then let's see how to best live in the present.

If you're interested, the book is titled, "That Good Night: Life and Medicine in the Eleventh Hour". It resonated with me.

I hope you can find a palliative care doctor who is better suited to you.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Sep 26, 2021 01:28PM beth1965 wrote:

Thanks iwrite and yesdangerous blueberries lol

Thanks KBL i feel so much the same this was very hard for me especially being new to stage 4

Sunshine99 well worded that is exactly how i think it should be. Thank you i will definately look for that book i think it sounds like an interesting read

Looking for hope Dx 1/18/2012, ILC, Left, 6cm+, Stage IIIC, Grade 3, 17/29 nodes, ER+/PR-, HER2- Surgery 2/14/2012 Mastectomy: Left, Right Chemotherapy 3/6/2012 AC + T (Taxol) Radiation Therapy 8/13/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/19/2012 Arimidex (anastrozole) Dx 8/8/2021, ILC, Stage IV, metastasized to bone Hormonal Therapy 8/20/2021 Faslodex (fulvestrant)
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Sep 26, 2021 01:44PM - edited Sep 26, 2021 04:45PM by Olma61

I am with you beth1965. A quote about “denial" that I think I got from someone's post right here on BCO - “denial has given me a pretty good life so far so if I am in denial this is where I am going to stay right now" I'm paraphrasing because I can't remember the exact wording but that was the gist of it. I think we can know the odds and be realistic without giving in to complete doom and gloom.

Another “hopeful" thinker with cancer was Stephen Jay Gould. I found his essay “The Median Is Not The Message" early on in my “journey" and it resonates.

https://journalofethics.ama-assn.org/article/median-isnt-message/2013-01

Someone has to be an outlier, someone (many of us) will be on the right side of the curve - why not you, why not me?

There's time for stark realism, but why not start out with that little bit of hope.

And - lovely painting...look toward the light


10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Sep 26, 2021 03:18PM RK2020 wrote:

Oh Beth1965, that was truly a shitty experience. And that’s all I have to say about that.
KBL, Sunshine and Olma have said it so much nicer.
No hugs for you right now. Sending bone strengthening thoughts and vibes instead.

Dx 5/2016, IDC, Right, 1cm, Stage IIA, Grade 3, ER+/PR+, HER2- Dx 3/2020, IDC, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Chemotherapy AC + T (Taxol) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy External: Bone
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Sep 26, 2021 04:19PM sunnidays wrote:

Beth1965 this is a dreadful experience you have only been diagnosed a month. When I was diagnosed MBC I asked my oncologist nurse about hospice care she went to look at my file and said why would you want that, cheered me up no end. I would say my attitude is optimistic rather than one of hope or of denial.

Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
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Sep 26, 2021 04:33PM MKestrel wrote:

Beth1965 your painting is cool, and I hope your rib heals soon. I've had a couple if those and know the misery Ugh

I would rather be hiking Dx 12/14/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Dx 3/7/2021, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Targeted Therapy 9/23/2021 Verzenio Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Sep 26, 2021 04:39PM - edited Sep 27, 2021 04:00AM by sunnidays

Also, I would say it was a box-ticking exercise by the oncologist's team everyone is referred to palliative care rather than looking at each case individually. That is not denining the need for a referral to palliative care but when the referral is made, is very important I think.

Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
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Sep 26, 2021 06:33PM Katyblu wrote:

Oh beth, I’m sorry! I hope your ribs heal quickly with minimal discomfort. I’m so glad you fired that “doc”! If it’s one thing no one needs, it’s negativity and thoughtlessness. There is nothing wrong with hope and optimism! Sending happy thoughts your way.

Dx 5/3/2017, ILC, Right, 5cm, Stage IIIA, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 5/16/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 6/21/2017 AC + T (Taxotere) Dx 8/19/2021, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/10/2021 Arimidex (anastrozole) Targeted Therapy 9/10/2021 Ibrance (palbociclib) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Sep 26, 2021 07:02PM Jsniffs wrote:

Beth1965 - I LOVE your art, and I LOVE your message. So glad you fired that doctor. If there isn't hope, what is there? I hope your rib heals quickly!

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 1/14/2019 Femara (letrozole) Radiation Therapy 8/31/2019 External: Bone Dx 4/2021, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy 5/30/2021 External: Bone Hormonal Therapy 6/14/2021 Faslodex (fulvestrant) Targeted Therapy 7/31/2021 Ibrance (palbociclib)
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Sep 27, 2021 02:39PM beth1965 wrote:

Olma thank you for the link

Thank you everyone for listening to me rant abit and all your well wishes

I really appreciate your opinions and ideas and understanding it helps me to get through this

Sending hugs to all


Looking for hope Dx 1/18/2012, ILC, Left, 6cm+, Stage IIIC, Grade 3, 17/29 nodes, ER+/PR-, HER2- Surgery 2/14/2012 Mastectomy: Left, Right Chemotherapy 3/6/2012 AC + T (Taxol) Radiation Therapy 8/13/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/19/2012 Arimidex (anastrozole) Dx 8/8/2021, ILC, Stage IV, metastasized to bone Hormonal Therapy 8/20/2021 Faslodex (fulvestrant)
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Sep 28, 2021 11:14PM emac877 wrote:

Beth1965 - I second the shock. That doctor needs to find a different specialty, perhaps hospice. Palliative care should not mean a lack of hope. If anything, it should support hope. It's very different from hospice care, which typically focuses toward the end of life. The whole point of palliative care is the understanding that you are choosing treatment and choosing to continue to fight disease with the hope of improvement. The role of palliative care should be to support the patient in pain management and making treatments more comfortable. There is a component of it that acknowledges that many patients have serious illness but end of life care is not the focus, pain management and support is. It's frustrating to me that so many in the medical field miss this and treat palliative care like hospice! (Sorry, I'm stepping off the soap box now). I fully support you firing them.

Sunshine- I have not tried Easy Spirit shoes. I have a few pair of Brooks running shoes that I wear to work and I also love my Doc Martens now that the weather is cooler. I'll have to look at the Easy Spirit. Thanks.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/11/2019 Radiation Therapy 12/23/2019 External: Bone Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 6/22/2021 Faslodex (fulvestrant)
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Sep 28, 2021 11:54PM NewDay123 wrote:

Hi everyone, time has flown by and I didn't realize how much time has passed. Thanks for all your suggestions and replies SandraF, moth, emac877 cowgal. I really appreciate it.

I'm scheduled for a CT scan really soon now, and we'll see. Yes, I should keep in mind that you mentioned the bone strengthening Xgeva or Zometa.Thank you!

Yes, cowgal, haha, we definitely could use better side effects!

Also, an update: What I've found in the last few weeks where it has happened multiple times, is that after using a muscle/area too much, it gets extremely tired. I was pulling up something heavy and then after that my right rib/side was achy tired for 2 days, but then after that it seems like it has recovered. Another two times, I did more walking than usual, and my left knee was so tired, I had trouble using my left leg. But after about 2-3 days, it got back to normal and didn't have that wild deep ache anymore. Another time, I lifted something and my lower back ached for 2-3 days, during that time, I could barely go from sit-to-stand position. So strange! And because of the deep ache, those days I feel extra tired. I do have general tiredness all the time -- except for the moments I just mentioned -- there are actually some OK days, too.

After all that, it doesn't look like it's my bones, but my next scan will tell us if things have changed.

Hi, Positive2strong, I've been on it for more than 6 months! I did find it hard for the first several months but also due to shock of the MET diagnosis, I think, for me. How are you doing? Are you having some OK days?

Thanks again everyone


Currently: Ribociclib, Fulvestran, Zolodex Dx 2016, Stage IIIB Dx 2021, Stage IV, metastasized to bone
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Sep 29, 2021 03:11AM Positive2strong wrote:

Newday

I had surgery on Sept 9 and I have been off Ibrance for more than a month. I think I will start taking it again in a week.
I have still gotten my Faslodex shots. I have no idea if anything is working.
I am trying to heal from the surgery. I am not in much pain but still walk with crutches. I am doing more each day but if I do too much I get faint.
the worst is what comes next and if the drugs will work.


Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Sep 29, 2021 04:30AM NewDay123 wrote:

Hi Postive2strong,
Sending healing and warm vibes out to you. And, fingers-crossed that the meds work for you, too. ❤️


Currently: Ribociclib, Fulvestran, Zolodex Dx 2016, Stage IIIB Dx 2021, Stage IV, metastasized to bone
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Sep 29, 2021 11:58AM Snow-drop wrote:

RK- sorry if I am late, how is the post radiation? I hope it killed those nasty cancer cells. I read somewhere in bco, that vitamin c is highly recommended after radiation, it said high dosage of vitamin c through iv help your body recover after radiation therapy. Please double check with your mo and pcp. I wish I knew this trick when I did radiation.

Positive, sending you healing vibes. Faslodex is a strong medication, for years it was used as a single therapy for MBC.

Sending vibes to whoever needs.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
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Sep 29, 2021 12:22PM Bmpntherd wrote:

Anyone get a bone scan after 3 months or so and have it show “pseudometastasis?” I feel great, no bone pain, normal labs, improved breathing. my recent bone scan 3 months after starting taxol shows diffuse sclerotic lesions. The CT shows sclerotic lesions but pulmonary and liver mets halved or gone. I believe that this is a known phenomenon and would continue therapy with f/u scan in 3 months. Of note, there was 3 months of failed hormonal therapy no f/u bone scan before starting chemotherapy- so i think it did spread at that point.


thanks

Chemotherapy 1/1/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/13/2014, IDC, 3cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 10/19/2014 Mastectomy: Left Dx 3/9/2021, IDC, Stage IV, metastasized to bone/liver/lungs/other, ER+/PR+, HER2- Chemotherapy 6/9/2021 Taxol (paclitaxel) Surgery Prophylactic ovary removal Targeted Therapy Verzenio Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole) Radiation Therapy External
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Sep 29, 2021 02:15PM Sadiesservant wrote:

HI Bmpntherd,

I have never heard of the term pseudometastasis but perhaps they are referring to the fact that the sclerotic mets won't disappear from the scan, even if healing.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Sep 29, 2021 02:30PM Positive2strong wrote:

snowdrop,

Thanks for info good to know about Faslodex

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Sep 30, 2021 11:09AM beth1965 wrote:

emac thank you that makes a lot of sense very good description of hospice and palitive care

Positivestrong I am new to faslodex 3 treatments in and wondering same thing about how or when do you know if it’s working. I know I have areas that still hurt and wonder if the shots are working

Snowdrop I agree that is good to know it gives me much more confidence in the faslodex treatments trying to be patient.

Looking for hope Dx 1/18/2012, ILC, Left, 6cm+, Stage IIIC, Grade 3, 17/29 nodes, ER+/PR-, HER2- Surgery 2/14/2012 Mastectomy: Left, Right Chemotherapy 3/6/2012 AC + T (Taxol) Radiation Therapy 8/13/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/19/2012 Arimidex (anastrozole) Dx 8/8/2021, ILC, Stage IV, metastasized to bone Hormonal Therapy 8/20/2021 Faslodex (fulvestrant)
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Sep 30, 2021 12:47PM - edited Sep 30, 2021 12:54PM by GoKale4320

I read somewhere that it takes 3 months minimum to see if Faslodex is working or not. Fingers crossed it works great for all of us.

I went in this morning for my first shot. I was surprised to learn that they want to do a lab before each shot appointment. I am so frustrated today over this because it takes forever to get the lab results. So a simple injection takes a couple of hours when I should be at work. I got out of labs today only because I spoke up to say that I had just had labs 2 days ago. I also have labs before the Xgeva shot (which I had last Thursday), then my regular monthly appointment with the MO so lots of labs in one week.

My other surprise today was to learn that the Faslodex shot is actually 2 shots - one in each hip. The only good news is that it didn't really hurt because the nurse sprayed me with lidocaine spray, and I had read the tip about relaxing the hip that is getting the shot.


Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Sep 30, 2021 01:55PM sunnidays wrote:

I believe it's just estrogen that fuels it and diets etc make no difference when it is MBC, maybe you would be happier with an integrative oncologist.

I am a strictly scientific evidence-based treatments.

Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
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Oct 1, 2021 12:29PM beth1965 wrote:

Gokale - Thanks for the info - 3 months sounds like a good amount of time to get in our system

Good luck to you and everyone

Looking for hope Dx 1/18/2012, ILC, Left, 6cm+, Stage IIIC, Grade 3, 17/29 nodes, ER+/PR-, HER2- Surgery 2/14/2012 Mastectomy: Left, Right Chemotherapy 3/6/2012 AC + T (Taxol) Radiation Therapy 8/13/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/19/2012 Arimidex (anastrozole) Dx 8/8/2021, ILC, Stage IV, metastasized to bone Hormonal Therapy 8/20/2021 Faslodex (fulvestrant)

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