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Sep 28, 2021 11:54PM
Hi everyone, time has flown by and I didn't realize how much time has passed. Thanks for all your suggestions and replies SandraF, moth, emac877 cowgal. I really appreciate it.
I'm scheduled for a CT scan really soon now, and we'll see. Yes, I should keep in mind that you mentioned the bone strengthening Xgeva or Zometa.Thank you!
Yes, cowgal, haha, we definitely could use better side effects!
Also, an update: What I've found in the last few weeks where it has happened multiple times, is that after using a muscle/area too much, it gets extremely tired. I was pulling up something heavy and then after that my right rib/side was achy tired for 2 days, but then after that it seems like it has recovered. Another two times, I did more walking than usual, and my left knee was so tired, I had trouble using my left leg. But after about 2-3 days, it got back to normal and didn't have that wild deep ache anymore. Another time, I lifted something and my lower back ached for 2-3 days, during that time, I could barely go from sit-to-stand position. So strange! And because of the deep ache, those days I feel extra tired. I do have general tiredness all the time -- except for the moments I just mentioned -- there are actually some OK days, too.
After all that, it doesn't look like it's my bones, but my next scan will tell us if things have changed.
Hi, Positive2strong, I've been on it for more than 6 months! I did find it hard for the first several months but also due to shock of the MET diagnosis, I think, for me. How are you doing? Are you having some OK days?
Thanks again everyone
Currently: Ribociclib, Fulvestran, Zolodex
2016, Stage IIIB
2021, Stage IV, metastasized to bone