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Topic: Ixempra

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Aug 31, 2018 02:43PM

SheliaMarie wrote:

After failing Kisqali/aromasin, abraxane and halaven, I’ve now begun my journey with Ixempra. I get treatments once every 3 weeks.

Tuesday was my first tx - in between meltdowns (due to report of progression), I slept a lot. Until that night. I was up all night long. I’m sure it was the steroids in the premeds.

Wednesday was a good day. Again, I slept a lot, but felt pretty good when I was awake.

Thursday I woke up with the “I think a train hit me” muscle aches. Other than that and a slight headache, all was okay.

Today - we’ll, the muscle aches seem better, still have a headache, feeling some discomfort in my hip joints, but worse than that is my throat is sore and I have achiness in my ears.

I realize this isn’t a common chemo (according to lack of topic on this forum), but I would love to hear from anyone who has, is or will be experienced/ing Ixempra

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Aug 31, 2018 03:23PM MuddlingThrough wrote:

Hi Shelia, this link is to a thread that just started this week and in it, Daniel has a link to an older one. Maybe there's something helpful to you.

https://community.breastcancer.org/forum/8/topics/866909?page=1#idx_2

Diagnosed stage 4, de novo. It was quite a shock. Dx 1/4/2018, IDC, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 3/28/2018 Femara (letrozole) Targeted Therapy 3/28/2018 Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Aug 31, 2018 03:58PM SheliaMarie wrote:

Thanks, muddling. I read through all of those. One hasn’t had activity in over a year, and the other is regarding skin mets so I was hoping to attract newer and more generalized activity. It just doesn’t seem right to have so few of us on this particular chemo 😕

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Aug 31, 2018 04:18PM MuddlingThrough wrote:

Just wanted to make sure you read what was there. I had never heard of it before. I really hope it works for you and that others who are on this will chime in here.

Diagnosed stage 4, de novo. It was quite a shock. Dx 1/4/2018, IDC, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 3/28/2018 Femara (letrozole) Targeted Therapy 3/28/2018 Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Sep 18, 2018 10:12PM SheliaMarie wrote:

Second dose of ixempra today. Hair has been falling out in large quantities. I didn’t even know I had that much! It hasn’t been growing out for long. Oh, well. Let’s see how this cycle goes..

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Sep 20, 2018 08:21AM SheliaMarie wrote:

I had my second ixempra infusion Tuesday. Not sure how I’ve felt this far though. Yesterday CVS refused to fill my pain rx. They said it was too soon and I should have plenty. WTH do they know?? I was so embarrassed, and PISSED. I've never dreamed I would be labeled a "seeker". But there you have it. Of course my onc nurse called them and had it pushed through, but the emotional draining was real. I laid down for a nap at 430 yesterday afternoon and woke up at 735 this morning. Hoping today is a better day.

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Sep 20, 2018 09:09AM - edited Sep 20, 2018 11:10AM by Daniel86

Thank you for sharing and chronicling your experience with this drug. It might not be largely used but some might benefit from reading this in the future.

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Sep 20, 2018 10:12AM SheliaMarie wrote:

I hope to be able to help someone in the future. I wish there were more of us now, though. Support systems are help so much

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Sep 26, 2018 04:46PM Daniel86 wrote:

How are things on Ixempra? Hope you haven't run into any more problems with CVS.

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Sep 26, 2018 06:46PM SheliaMarie wrote:

After a call from my onc RN, no more issues :)

After the steroid high and then crash on days 2 & 3, the flu like aches started again on day 4. This time I had an awful headache along with the generalized achiness, sore throat and earache. Not severe, but constant and sharp more so than dull. I’m wondering if it was the neulasta that caused the headache? It hasn’t completely resolved yet. But overall today (day 8) has been a good day.

On good days I think “I can do this and have a decent life”, but on bad days I think “I can’t live like this! This is no life!” So I guess I keep taking it day by day. Right this moment I really want to march into the kitchen and whapmy husband. He’s so LOUD. And he never listens to anything! But that’s another topic. Thank you for checking.

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Sep 28, 2018 06:04PM proudtospin wrote:

hi, i have been on lxempra now for my 4th infusion. My onco says it is fairly new. I am continuing on witn xeloda which cleared mets to my liver. Hoping this drug works to clear or improve my bone mets

Glad to see someone else on the drug, my side effects are some nausea mostly




iris Dx 6/2008, DCIS, Stage 0, ER+ Dx 2/2017, Left, Stage IV, metastasized to bone/liver, Grade 3, 1/1 nodes, ER+, HER2+
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Oct 15, 2018 09:16PM Sue2009 wrote:

I started on Ixempra 2 weeks ago, my SE’s were very similar to SheilaMarie’s. I still have hair, but read that may start falling out after next dose. My dr said he was starting me on lower dose. I have been having mild h/a, ears full of fluid, sore throat & tongue pain. My hips hurt more than before & my liver is in pain. I sleep 12 hrs at a time. I use a fentanyl patch, which helps keep pain under control. Sue

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Oct 16, 2018 12:47PM SheliaMarie wrote:

Oh, sue, the hip pain! I’ve “gotten used to” my back pain (as much as one can!), but the hip pain is new. I had my third treatment last week and this time I continued steroids for 5 days and added in a muscle relaxer so I was a bit more able to participate in life. I still had the sore throat, sore tongue, ear ache, fatigue and general yuckiness though. So glad to finally see someone else on this treatment! I hope we can be helpful and supportive of each other throughout Smile

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Oct 31, 2018 05:31PM SheliaMarie wrote:

Unfortunately I’m moving in. Ixempra kept my lymph nodes and spine stable, but now I have two spots in my left lung. Time to try Xeloda.

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Surgery 7/10/2008 Lumpectomy: Left Chemotherapy 8/7/2008 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Radiation Therapy 1/1/2009 Whole-breast: Breast, Lymph nodes Surgery 2/1/2009 Prophylactic ovary removal Hormonal Therapy 2/15/2009 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/24/2017, IDC, Stage IV, metastasized to bone/other, 1/1 nodes, ER+/PR-, HER2- Targeted Therapy 5/25/2017 Kisqali Hormonal Therapy 5/25/2017 Aromasin (exemestane) Chemotherapy 4/10/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/10/2018 Halaven (eribulin) Radiation Therapy 6/18/2018 External: Chest wall Chemotherapy 8/26/2018 Ixempra (ixabepilone) Dx 10/30/2018, IDC, Stage IV, metastasized to lungs Dx 11/7/2018, IDC, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Radiation Therapy 11/12/2018 External: Bone Chemotherapy 11/12/2018 Xeloda (capecitabine)
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Oct 31, 2018 05:42PM Daniel86 wrote:

sorry to hear that SheliaMarie. If its of any consolation, everything I have read so far about Xeloda and its effect on cancer is way better than Ixempra.

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Nov 26, 2018 05:01PM Sue2009 wrote:

I had 3 rd dose of Ixempra, which was 2nd full dose. Hair is gone, muscles ache a lot. Left foot going numb, which is throwing off my balance. Tongue hurts & throat is sore, ear issues have resolved. Brian fog is present. White counts ok, Hgb down to 8.5. Asking for blood transfusion from family member is like jumping thru hoops. I am requesting transfusion because I get short of breath & dizzy w/exertion. No lung mets, just liver. Sue

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Dec 15, 2018 11:25PM Sue2009 wrote:

Well TM’s going up, stopping this terrible drug. Losing hope that anything else will work. Short of breath just walking to bathroom. Sue

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