Topic: HER2 Positive-anyone 10 years out?

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Sep 12, 2009 05:32PM - edited Sep 12, 2009 05:34PM by tuckertwo

Posted on: Sep 12, 2009 05:32PM - edited Sep 12, 2009 05:34PM by tuckertwo

tuckertwo wrote:

Hi ladies,

I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer?  When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'.  Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had recurrences because they weren't on Herceptin.

 I would like SOME hope that this thing can be beat.....and would love to hear from anyone who has been dealing with this thing for 10 years and are still alive and kicking.


I have not put my dx in profile yet so will type it in here:

Dx: Aug 2008 50% IDC, 50% DCIS right breast only, 2.1 cm, grade 3, HER2 positive+++, ER weakly positive, PR negative, double mastectomy Sept. 2008, began TCH November 08, finish Herceptin Oct. 2009. One year NED!  

"I tell you the truth, if you have faith as small as a mustard seed...nothing will be impossible for you'. Matthew 17:20 Dx 8/27/2008, IDC, 2cm, Stage II, Grade 3, 0/8 nodes, ER-/PR-, HER2+
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Jul 24, 2022 01:13PM denny123 wrote:

Thanks Mistyeyes! I am also guilty of mis-reading. Good luck to you!

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2- Surgery 2/20/2003 Lymph node removal; Lymph node removal (Left); Lymph node removal (Right); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Latissimus dorsi flap; Reconstruction (Right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Aug 5, 2022 12:31PM mender wrote:

Hi., I have a question. I’m new here.

II finished Herceptine June 7 th

I was diagnosed 11/20, surgery 5/21.

What would be my anniversary date to figure out my survival years.

Thanks very much

Surgery 5/1/2020 Lumpectomy (Left) Surgery 5/1/2020 Lumpectomy (Left) Targeted Therapy 11/30/2020 Herceptin (trastuzumab) Chemotherapy 12/21/2020 Taxotere (docetaxel), Carboplatin (Paraplatin) Radiation Therapy 6/15/2021 Whole breast, Radiation boost: Left breast, Lymph nodes Targeted Therapy 7/1/2021 Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy 5/27/2022
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Aug 5, 2022 05:11PM mistyeyes wrote:

Mender - I am never sure how to do the dates either. If I go to the date I was diagnosed in Nov 2016 - it puts me at 5 years, so I like that date.

IDC right- Stage IIA, Grade 3,ER-,PR+,HER2+ Dx 11/15/2016, Right, PR+, HER2-
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Aug 6, 2022 06:22AM melbo wrote:

I just asked my surgeon this at my check up this week and was told they count from the date of the surgery. Of course I see my medical oncologist in a few weeks and I suspect she might say from the date of the final treatment of herceptin/Perjeta — but who knows.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/20/2020 Lumpectomy; Lumpectomy (Left); Lymph node removal; Reconstruction (Left); Reconstruction (Right) Radiation Therapy 1/31/2021 Whole breast: Breast, Lymph nodes
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Aug 6, 2022 09:44AM specialk wrote:

I have always used the surgery date because that is the date of the removal of all known cancer.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+, IHC

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