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HER2 Positive-anyone 10 years out?

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Comments

  • mistyeyes
    mistyeyes Member Posts: 581
    edited October 2022

    Thanks for posting.


  • formydaughter
    formydaughter Member Posts: 121
    edited December 2022

    I’m 9 years out. Was declared “cured” after 5 yrs. Just got dx of recurrence. Triple positive. Either stage three or four pending pet scan results. I can’t believe this in part. But I was feeling that something wasn’t right. It’s on the same side as my first cancer despite bilateral mastectomy it came back This came with a simultaneous onset of diffuse, cutaneous, systemic sclerosis, also known as scleroderma. my scleroderma was triggered by the Covid vaccine booster. It is a type that commonly coincides with active malignancy. So we went to have a baseline scan to make sure all was good, and it was not. The Covid vaccine made my immune system go so crazy it’s attacking my body, trying to kill me in nearly every system with the scler derma, and apparently let cancer back in

  • mistyeyes
    mistyeyes Member Posts: 581
    edited December 2022

    formydaughter - I am so sorry, my heart dropped to my stomach reading everything you are going through. I got the covid vaccine, but have not gotten any of the boosters. My daughter in law has developed Myocarditis from the covid booster. This is a scary time we are living through. I am hoping that you will do fine with whatever treatment you receive. I have said a prayer for you.



  • sydneybased
    sydneybased Member Posts: 27

    Hi all, I'm 13 years out (from surgery) this coming October. Love to all those who supported me on this board in 2010-2012 and all those who have been diagnosed since. Stay strong xxx

  • denny123
    denny123 Member Posts: 1,553

    sydney-congrats! I am 21 years, 8 months of MBC de novo. I was Her2+++ until about 7 years ago when I turned into Her2- Somatic.

    Denise

  • denise-g
    denise-g Member Posts: 353
    edited October 2023

    Just had my 12 year checkup and all is well. Diagnosed in October 2011, Her2++++, 6 cm tumor, 9 positive nodes, only was able to have 3 months of Herceptin as it severely damaged my heart.

    I am a grateful every day. In my wildest dreams I never thought I would be here 12 years later.

    I still suffer from heart failure as a result of Herceptin and A/C chemo, but I am doing so much better with great treatment. Do have your heart checked. Problems from these drugs can show up years later.

    The PTSD never goes away, but it certainly does get better!! Sending prayers, hope, courage, and strength to all of you!!

  • margareteleanor
    margareteleanor Member Posts: 2

    I am more than 13 years out from the frightening diagnostic mammogram that started the ball rolling. I started chemo on my kid’s 11th birthday. Since then, I’ve been with her for high school and college graduation and I now I have the privilege of watching her make the big decision on buying her first house! Now I have hair again and my husband has less, but I appreciate having him more. Every day isn’t sunshine & roses, but every day is a blessing. In our house, we’re HUGE fans of Herceptin and we still have a magnet framed picture of Dr. Dennis Slamon hanging on our fridge.

    Science is a good thing, y’all! It works!

  • specialk
    specialk Member Posts: 9,261

    I was on vacation last month when I passed 13 years, totally forgot about it. Realized about a week later. Like you, margareteleanor, I was in California a number of years ago and passed the Genentech facility in the car, rolled down the window and yelled THANK YOU!!! So much appreciation for bringing Herceptin to the market.

    formydaughter - I am so sorry to read of your recurrence, it is a sobering reminder of how much of this is random. Thinking of you, and wishing you the best.

  • cowgirl13
    cowgirl13 Member Posts: 782

    I was 14 years out in June and all is well.

  • greenbean2468
    greenbean2468 Member Posts: 21

    Thank you all! I'm coming to the end of my year of HP and my mind goes to worrying about it coming back. Sharing your number of years after treatment gives me a lot of hope. This board has helped me so much this last year. I wish you all happy, healthy days. 💕

  • denny123
    denny123 Member Posts: 1,553

    Margareteleanor….my oncologist went to medical school with Dr. Slamon!!!!!

  • pinkest
    pinkest Member Posts: 32

    Hello Ladies,

    18+ years after diagnosis and treatment and counting my blessings each and every day. I don't know what lies ahead, nobody does, but today I am healthy, grateful and happy to be alive.

    Wishing each and every one of you the absolute best that life has to offer.

    PinkEst

  • jenny5
    jenny5 Member Posts: 4

    Im 6 1/2 years and counting!! My body feels beat up by the covid shot tho! I wish i never took that thing!!

  • denny123
    denny123 Member Posts: 1,553

    I am one month away from 22 years after being dx'd with Stage 4 MBC de novo.

    I had the Covid booster a week okay with no problems at all, TG. I will continue to wear my mask…forever….

    Denise

  • harrow
    harrow Member Posts: 90

    Congratulations @denny123 ! That is an amazing achievement! You are an inspiration, particularly those of us who are also MBC’ers. I hope to follow in your footsteps.

  • denny123
    denny123 Member Posts: 1,553

    @harrow Thanks! Doing my best!

  • hopefaith1
    hopefaith1 Member Posts: 3

    Spreading love and strength to you all. I am checking here let you know l am 16 years Her2 survivor not a day goes by l am grateful. Sending you all hope and prayers for a cure.

  • denny123
    denny123 Member Posts: 1,553

    @hopefaith1 Yay for you! We can do this!!!!

  • hopefaith1
    hopefaith1 Member Posts: 3

    Thank you Denny123 l am one behind the scenes looking at comments and not posting l hope l made a difference here even it's one person to give them hope and that gives me a smile. Thank Denny123 you are beautiful soul like everyone else here.

  • snm
    snm Member Posts: 123

    Oh how I love those who stop by to say hello and provide their survival milestones! Grateful for the hope you all share with others. 🤗

  • hopefaith1
    hopefaith1 Member Posts: 3

    Coming in to give others hope and to live every moment. I am so grateful to be here be 16 years out. Sending you all strength and love. Her2 pr- er- diagnosis 2007

  • cowgirl13
    cowgirl13 Member Posts: 782

    I was 15 years out in June. Just amazing and I'm i good health.

  • dutchiegirl
    dutchiegirl Member Posts: 83

    I am only 5+ years out but my oncologist said that my chances of recurrence now are close to zero. Hormone negative, HER2+ breast cancer has a higher recurrence rate in the first 3 years but that drops once we hit the 5 year mark (he measures it by date of diagnosis which makes me close to 6 years out). I've been loving life and embracing a healthy existence! I'm on a survivor dragon boat team and work out on a regular basis. I rarely think about breast cancer these days. Good luck to all of you on this journey!

  • sydneybased
    sydneybased Member Posts: 27

    Hi all,

    I'm a month away from being 14 years out. Hope that all those lovely people who I shared my cancer journey with in 2010, 2011 and 2012 are all doing well. And I'm thinking about all those who have been diagnosed since and wishing you all the very best xxx.

  • aborayis
    aborayis Member Posts: 470

    Thank you all of you for your uplifting messages. I’m so grateful to each of you. ❤️

  • profbee
    profbee Member Posts: 305

    Hello, friends! I was diagnosed in March of 2011—and I'm doing great! I just wanted to pop back in here because I remember being afraid and I hope that seeing us here helps someone else. Lots of love to you all!

    16 weeks of Taxol/Lapatinib 4/2011-8/2011, BMX with TEs 8/23/2011, 4 rounds of AC ended 11/10/11, Tamoxifin started 11/25/11, Herceptin starting 11/28/11, exchange surgery on 12/19/11.Dx 3/1/2011, IDC, 2cm, Stage II, Grade 3, ER+/PR-, HER2+

  • denny123
    denny123 Member Posts: 1,553

    @profbee Yay for you! Dec 12 will be the beginning of my 23rd year of MBC de novo.

  • snm
    snm Member Posts: 123

    Wow!! You all are so inspiring and gives us hope - 23 years!!!

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