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Topic: calling all t1A (> 1 mm but < 6 mm) sisters who are HER2+

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2012 03:59AM - edited Apr 23, 2014 11:29PM by dancetrancer

dancetrancer wrote:

I decided to start this thread to help others who may end up in this "grey" area and are struggling to make a decision about chemo/Herceptin or not.  Current national guidelines do not recommend treatment for our stage.  Treatment is only considered for 6 mm and up HER2+ sisters.  HOWEVER, some docs do still treat t1A sisters, which makes for a very confusing and stressful decision making process for t1A gals.  I thought we could run an ongoing list of sisters, sharing our decision making process, recommendations, etc.  I will be keeping an informal poll and will update it as we go along.  So far, here is what I found:

  • 6 had no treatment (no Herceptin; some had chemo without Herceptin) and recurred with METS (one dx 2004, one 2007, one 2009, two 2010; one 2012)
  • 7 had no treatment with dx ranging from 2007 to 2012.  One has had a local recurrence 3 years after diagnosis. All others have had no recurrence yet. 
  • 29 have had treatment or are currently undergoing tx; 1 had a local recurrence after tx (ranging 2008 to 2012) 

This is completely unscientific, I know, as there likely is bias b/c women who are more aggressive about treatment may be more likely to frequent these boards, but, I still find the data helpful.  

Of the treated group:
12 had taxol plus Herceptin
12 had TCH
1 refused chemo but doc agreed to Herceptin only

1 had chemo only recommended, no Herceptin

2 had AC-TH

1 had  FECX4 with Herceptin 

 If you reply, please share the size of your IDC, year you were diagnosed, your age (if you are ok with that), Grade of IDC, ER/PR status, recommendations you received from MD's, decision you made, and treatment (if tx'd) you had.  Also note if you have had a recurrence or not. Oh and also if you don't mind sharing, tell us if you are in the USA or another country.  I am interested in seeing if there is a trend for treatment or no treatment based upon country.  

Thank you, I will update the numbers as we move along.   

P.S.  Edited to add an important point made by Beesie in this thread, so that newbies don't freak out when they see whatever numbers happen to be above:   "those who have problems tend to stay on the board longer or return to the board or search out the board when they do have problems. For example, judging by the women here, one would think that the recurrence rate and rate of mets (generally, not just HER2+) is much higher than it actually is. There are thousands of women who've popped in here for a short while, completed their treatment and then, because they don't have a recurrence, are never seen again. It's generally only the women who have a recurrence who return. It makes sense, but it means that the numbers will be skewed to those who have a recurrence vs. those who've happily moved on with their lives and have no further problems." 

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Mar 2, 2017 03:14PM Rosamond wrote:

Welcome, Robin1234!

Yes, it can be confusing, but the good news is that you won't have rads, there is no known systemic spread, and you DO have options.

I was 49 when diagnosed and am 3 1/2 years out. 5cm DCIS and 2 IDC areas - 1 was 1.6mm and the other was 3mm, although it could have all been one 4.6 as 3mm were removed in a MRI biopsy. Mine were 90% reactive to E, minimally reactive to P, and highly amplified for HER2/neu with negative nodes and no signs of spread. I opted for tamoxifen only as both the first and second opinions agreed, and the first was provided at a teaching hospital that conferenced my case. I sometimes wonder if I should have had Herceptin, but I think tamoxifen is probably highly effective against the 90% estrogen reactivity. I also take IP6 as a supplement to boost its effects, as there is some research to support that.

My advice would be to go and get that second opinion and perhaps a third, weigh the options, and then proceed. Many women on this particular thread have chosen to do chemo and Herceptin. Less of us have chosen no treatment after surgery, tamoxifen only, rads only, or Herceptin only, but I think there are likely more women who've done those things amongst the general population of women who've had similar happen to them, if that makes sense.

All the best!
Rosamond, my Calico cat, was a breast cancer survivor for 8 years. >^.^ Dx 6/10/2013, DCIS, 5cm, Grade 2, ER+/PR+ Dx 8/1/2013, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/7/2013 Lymph node removal: Right, Sentinel Surgery 8/14/2013 Mastectomy: Right; Reconstruction (right): Silicone implant Hormonal Therapy 9/4/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/3/2014 Reconstruction (left); Reconstruction (right)
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Mar 2, 2017 03:52PM Robin1234 wrote:

Hi Rosamond and Tresjoli2 thank you for responding. I had my 2nd opinion on February 27th and she said the samething but she also told me that that I'm in a good place with or without treatment that there is not to many women like us out there and we are in a gray area. She is worried about chemo with me because I have IBS and after my bilateral mastectomy surgery I got c diff because I was on antibiotics for 2 weeks and that's what caused it. It's all cleared up now. I asked her if she was i. My place what would she do and she said honestly I thought about went I was going over your report and I don't know what I would do if I was in your place and she your in a good place now. So I'm so confused. I do want to treat the hormones I do know that for sure.

Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 2, 2017 11:53PM - edited Mar 2, 2017 11:53PM by Tresjoli2

Robin, the truth is you MO doesn't know what to do. My MO conferred with 5 other MO's. 2 said dochemo, 2 said don't do chemo, and one said there was no way to know. It's just super rare to catch cancer so early. So I think the decision becomes a personal one. What do you feel in your heart is right for you. Because there is no wrong answer here. Hugs

Diagnosed at age 40 after going for my baseline mammogram. Dx 4/21/2015, IDC, Left, <1cm, Stage IA, 0/2 nodes, ER+/PR+, HER2+ (FISH) Dx 4/21/2015, DCIS, Left, 4cm, Stage 0, Grade 3 Surgery 5/18/2015 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 6/19/2015 Herceptin (trastuzumab) Chemotherapy 6/19/2015 Taxol (paclitaxel) Chemotherapy 8/7/2015 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 9/24/2015 Whole-breast: Breast Hormonal Therapy 10/11/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 3, 2017 02:10AM - edited Mar 6, 2017 03:42AM by Robin1234

Thank you ladies I'm glad we have a place we can talk, share, and help one another but wow this is a roller coaster. My first MO I went to see this was my experience with him: he give me 3 options and told me what he recommend that taxol + herceptin + tamoxifen so I said him if I had some time to think about it and he said yes you have time. The next day his nurse called and setting up all kinds of appts tests and chemorrhoids treatments I said to her wait he told me I had time to think about want i wanted to do and it's not even been 24 hours! She said we just like it get things started you can always cancel appointment and they went ahead and got pre approved from my insurance. I just didn't know what to make of this so that is why I went for a 2nd opinion and she was so understanding explained everything to me wrote things down answered all my questions and concerns and told me that my out come we go no matter what I decided to go home and think about it. So my 1st MO know I had a 2nd opinion and wanted me to call him and let know know what she said well I called him on the 28th of February and talked to him about what she said and wow he just got not so nice and said your taking to long to make a decision you need to make one and I thought to my self wow i just had the 2nd opinion yesterday. Then I told him her concerns and he said that why we do testing will you at least do that and get your port in at least?? I said yes I have no problem with that and never said I did. Then he said will you at least get the herceptin come on you need to get moving your running out of time!! Wow i think I've made him mad by getting a 2nd opinion or something. All I know is hot off that phone not feel good about anything and was crying. It was like I went to that 2nd opinion and she made me feel good and I took 2 steps forwards then talking to him a took 3 steps backwards. So I'm been looking at thesea boards and want to reach out to all you wonderful beautiful brave ladies. Oh and he as supposed to have his nurse call me with testing and appts here it is Friday and no one has ever called me yet. I did call my 2nd opinion office yesterday also to see if I can see herelated for treatments. I've know I want to treat the hormones and like to treat the her2 also but scared of chemo and what it will do to my ibs and the c diff I just got over 3 weeks ago. God bless all you very brave ladies.

Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 6, 2017 09:05AM joyandpiece wrote:

Hi Robin. I was in your shoes 6 months ago. After weighing my options I chose Tamoxifen without Taxol or Herceptin.

For me it came down to not wanting to put my body through the chemo for such a low chance at recurrence in my case. As of right now I am feeling great, have few side effects from Tamoxifen and have gotten back to (almost) normal life.

It is a very personal decision in this gray area. I would question why doctor #1 is pushing the chemo on you so vigorously. I would not be comfortable with that and would go to a different doctor if I chose chemo/herceptin. My gut feeling tells me he is concerned with his pocketbook more than your health.
"You are your own best advocate!" Age 47 at Dx Dx 8/26/2016, DCIS/IDC, Left, <1cm, Stage IA, 0/5 nodes, ER+/PR-, HER2+ (IHC) Surgery 10/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 11/17/2016 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 6, 2017 09:47AM - edited Mar 6, 2017 10:05AM by BarredOwl

I think another possible explanation for some sense of urgency may be because adjuvant chemotherapy and/or HER2-targeted therapy (if elected) should be commenced in a timely manner, following diagnosis and surgery. In this case, Robin1234 was diagnosed on November 7, 2016, had surgery on December 27, 2016, and today is March 6, 2017.

Robin1234: If you are not sure by when you need to reach a decision, please contact each of the medical oncologists that you consulted with to inquire. Be sure to remind them of your dates of diagnosis and surgery, and ask for their advice regarding by what date you should commence such treatment if you decide to elect it, as well as what steps or advance appointments would be needed before then to ensure reasonably timely commencement of treatment.

General Information re Time to Chemotherapy ("TTC") in the Adjuvant Setting:

There are various studies in this area. See for example:

Chavez-MacGregor (2016): "Delayed Initiation of Adjuvant Chemotherapy Among Patients With Breast Cancer"

http://jamanetwork.com/journals/jamaoncology/article-abstract/2474437

They concluded: "Given the results of our analysis, we would suggest that all breast cancer patients that are candidates for adjuvant chemotherapy should receive this treatment within 91 days of surgery or 120 days from diagnosis. Administration of chemotherapy within this time frame is feasible in clinical practice under most clinical scenarios, and as medical oncologists, we should make every effort not to delay the initiation of adjuvant chemotherapy."

I do not know how this guidance would be applied in the individual case, and expert advice should be obtained.

Most studies in this area are retrospective and have various limitations. In addition, the results of various studies in this area are not consistent with each other in all aspects, and there are some important differences between sub-groups (e.g., triple-negative). Thus, regarding time to chemotherapy, patients should always seek current, case-specific expert professional advice, to ensure the complete body of evidence, including the most recent and reliable data that is applicable to their particular situation and diagnosis, is considered.

Patients experiencing larger delays should not assume any window has closed and decline treatment, but should instead seek case-specific expert advice regarding initiation of treatment / the potential impact of delay.

BarredOwl

Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Mar 6, 2017 03:30PM - edited Mar 6, 2017 04:12PM by Robin1234

Thank you Joyandpiece I was thinking the samething. Hi Barredowl My 2nd opinion I just had February 27th and she told me I had 12 weeks after surgery but my first MO said at first he would like to start treatment before 6 months?? But then I called him letting him know what the 2nd MO said he said you know you have to start treatment before 12 weeks after your surgery right. I said I do now because the 2nd MO just told me that!! And my nurse navigator and fiance heard him say that too So going to see the 2nd MO Wednesday to get something started. I pray it's not to late to do anything because I know they have to do blood work and heart echo and port.

Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 7, 2017 03:38AM Dejaboo wrote:

Checking in Happy9 years out today. Very small HER2+ 1.2 mm.

No Chemo no Herceptin, No hormones, Bilateral Mastectomy

...Back then I asked for Herceptin alone- which was unheard of & it kind of made my 2 Oncos think outside of the box...Unfortunately it was unheard of...So insurance wouldnt have covered any of it. I was told it would cost me $140,000...I found out exactly 2 months after my DX that I had a hole in my heart (a PFO) that had caused a mini stroke 10 years before And would again 6 months later- before I had it repaired. In hindsight my Ejection Factor was already 50...So I couldnt/wouldnt have done it anyway

statistics are just a group of numbers looking for an argument Dx 3/7/2008, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2+
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Mar 7, 2017 06:02AM BarredOwl wrote:

Congratulations Dejaboo! Happy

BarredOwl


Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Mar 7, 2017 06:04AM - edited Mar 7, 2017 06:04AM by BarredOwl

Hi Robin1234:

I agree it would be best to start sooner, if treatment is elected. In your appointment on Wednesday, remind them of your dates of diagnosis and surgery, so that they can prioritize your appointments as possible / appropriate.

Best,

BarredOwl

Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Mar 11, 2017 12:35PM Rosamond wrote:

Whatever you choose, moving forward with that choice should bring you some peace, Robin1234.

CONGRATULATIONS DEJABOO!

Rosamond, my Calico cat, was a breast cancer survivor for 8 years. >^.^ Dx 6/10/2013, DCIS, 5cm, Grade 2, ER+/PR+ Dx 8/1/2013, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/7/2013 Lymph node removal: Right, Sentinel Surgery 8/14/2013 Mastectomy: Right; Reconstruction (right): Silicone implant Hormonal Therapy 9/4/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/3/2014 Reconstruction (left); Reconstruction (right)
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Mar 12, 2017 03:03AM Dejaboo wrote:

Thanks BarredOwl & Rosamond!

statistics are just a group of numbers looking for an argument Dx 3/7/2008, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2+
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Mar 12, 2017 06:49AM dancetrancer wrote:

Dejaboo - huge congratulations!!! 9 years - AWESOME!!!

Robin yes I would agree with the others; obviously if you are going to do treatment, the sooner, the better.

I was late starting my chemo (6 months post BMX), but this was because I was misdiagnosed. I would have preferred to do it sooner if I had known.

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Mar 16, 2017 11:49AM - edited Mar 25, 2017 04:28AM by Robin1234

This Post was deleted by Robin1234.
Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 17, 2017 04:16AM Germangirl16 wrote:

Hi robin! Are you doing the weekly herceptin and taxol? If so, be assured it is a relatively easy protocol to tolerate. Ask for a numbing cream for your port to apply prior to your infusion. I had no reaction to taxol, so the next 11 infusions, I only got half of the steroid dose and did well. The steroid can cause loss of sleep and make you a little hyper, plus skin issues like pimple breakouts. You can ask for the reduced dose. I also iced my hands and feet during taxol to prevent neuropathy, plus took glutamine powder 30 grams daily and vitamin b6 100mg daily. I had no neuropathy or nail issues. I continued to exercise everyday (lots of women can work throughout the treatment), eat lots of protein and drink plenty of water / fluids. I really had no other side effects except for hair loss and my red and white blood counts went down, but never to level that required treatment. I finished my 12 weeks, had 33 radiation treatments, and get herceptin every 3 weeks now. I played tennis 3 days this week, and feel great. Best of luck to you, and let us know how you're doing.

Dx 7/5/2016, IDC, Right, <1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR-, HER2+ (FISH) Chemotherapy 10/9/2016 Taxol (paclitaxel) Targeted Therapy 10/10/2016 Herceptin (trastuzumab)
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Mar 17, 2017 11:23AM - edited Mar 25, 2017 04:29AM by Robin1234

This Post was deleted by Robin1234.
Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 17, 2017 11:49AM BarredOwl wrote:

Hi Robin:

I am hoping you tolerate your treatment well!

By the way, I think the tumor size information for the IDC is incorrect in your current profile. Wasn't your tumor 2.5 mm? (i.e., less than 1 cm)

BarredOwl

Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Mar 17, 2017 12:01PM dancetrancer wrote:

Robin1234, wishing you all the best with your treatment! It seems to me that most of the women who have posted about Taxol said it wasn't too harsh. Hang in there!

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Mar 17, 2017 12:56PM Robin1234 wrote:

Hi BarredOwl thank you I didn't notice that keep until you said something ( I had 2 IDC one 2.5mm and 1.5mm) Imy praying I do well too. I seen 2 MOs and now they both are recommending chemo/herceptin and then tamoxifen. With both MOs it went to a tumor broad. I'm so nervous because I don't like taking meds. After my surgery the healing went great but they was giving me 1000MG tylenol and can to find out it was making flushed but was fine with 500mg and them I was take antibiotics for 2 weeks and then got c diff then do cotton put me on another antibiotics for 14 days and could only take it for 8 days and get had to any side affects so my doctor told me to stop it and I've been fine. I don't seen to do well with meds so that why I'm worried. Thank you dancetrancer I've heard people say that as well.

Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 17, 2017 01:27PM dancetrancer wrote:

C-diff sucks...I got it, too, when on antibiotics after surgery. Scary stuff! Glad you recovered ok from that. I am sensitive to meds, too. Listen - you do what ya gotta do. Put your head down and push through! Sending good vibes your way!

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Mar 17, 2017 01:39PM Robin1234 wrote:

Thank you dancetrancer I'm glad glad someone understand what I'm going through and yes Cdiff is not fun and some nasty stuff. I'm happy you pushed through this and doing great. I'm so happy to have the support of all you wonderful brave beautiful ladies. Thank you for the uplifting.

Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 17, 2017 01:45PM dancetrancer wrote:

Hug

I'm 5+ years out and feel fantastic. You can do this, and there is a light at the end of the tunnel.

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Mar 17, 2017 02:50PM Robin1234 wrote:

congratulations dancetrancer and many many many more years!! Yes we are strong women and can do this 😊🤗💗

Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 17, 2017 03:22PM danix5 wrote:

I had bmx and hyster/oopher. Had intestinal abscess after hyster. C-Diff after many months of antibiotics.

Dx -First time 2007

Dx- second time 2017

I was told to do TCH /rads 6 weeks five days a week, herceptin 12 months every three weeks/ AI 10 years

Second opinion - told Taxol and herceptin weekly12 weeks, rads the same/ herceptin every three after TH completed/AI 5yrs

I went with second because I have been hospitalized several times for intestine after abscess. Taxotere is very hard on intestines so to avoid those complications I went with Taxol.

Mine current infir is below but to sum it up

Triple positive high grade 3 IDC/ILC/DCIS/ADH all this in less than 1cm. I found a hard lump at the sternum area right boob. Residual tissue after mastectomies was where cancer grew.

ER + 98.8 PR + 78.8 ki-15% HER2+ high grade 3

Lymph nodes clear

Hope this helps.

Daniella


Dani 2 time BC winner😜Triple + Surgery 1/16/2008 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant Dx 1/10/2017, DCIS/ILC/IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Chemotherapy 2/23/2017 Taxol (paclitaxel) Targeted Therapy 2/23/2017 Herceptin (trastuzumab) Hormonal Therapy
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Mar 17, 2017 11:35PM dancetrancer wrote:

Daniella, you have had a rough road. Recurrence after 10 yrs despite BMX. CFS. At least you caught it and nodes were clear. Wishing you well with your treatment.

I'll say it again, CFS. Devil

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Mar 18, 2017 01:15AM danix5 wrote:

We all have it hard! Yes, CFS!!!

Thank you for your support and post

Daniell

Dani 2 time BC winner😜Triple + Surgery 1/16/2008 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant Dx 1/10/2017, DCIS/ILC/IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Chemotherapy 2/23/2017 Taxol (paclitaxel) Targeted Therapy 2/23/2017 Herceptin (trastuzumab) Hormonal Therapy
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Mar 18, 2017 03:04AM Robin1234 wrote:

Thank you danix5 I'm so sorry you got it back but I glad you caught it early. Are you in treatment now and if so how is it going? I know my MO told me I can do herceptin without chemo but no one knows if it works because they never been a study on it.

Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 18, 2017 03:12AM - edited Mar 25, 2017 04:25AM by Robin1234

This Post was deleted by Robin1234.
Dx 11/7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR- Surgery 12/26/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 12/27/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (FISH)
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Mar 25, 2017 06:36AM Dejaboo wrote:

Dani- I am sorry to see you back here :( I remember you from when I was 1st DX

statistics are just a group of numbers looking for an argument Dx 3/7/2008, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2+
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Mar 25, 2017 07:28AM JoniB wrote:

I'm a two time cancer survivor. Mine came back after 9 years NED. First time 3 mm and Her2+ and ER/PR-. Second time 4 mm and triple positive. First time no chemo or Herceptin. This time Arimidex and Herceptin without chemo. Will keep you informed!


Two time breast cancer survivor. Recurrence after 8 years. First time 3 mm ER-, PR-, HER2+. Recurrence 4mm - triple positive.

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