We are 216,670 members in 81 forums discussing 153,768 topics.

Help with Abbreviations

Topic: Lymph node involvement?

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: Nov 30, 2018 01:22PM - edited Nov 30, 2018 01:22PM by leftshark

leftshark wrote:

Has anyone out there had lymph node involvement? I was diagnosed with IDC in October and had a bilateral mastectomy on Nov. 20.

My tumor was 6 cm and I had 9 of 15 lymph nodes involved. I had a CT scan today will have have a bone scan on Monday.

I'm terrified I'm about to die or that it's Stage 4. I'll know when the scans are back.

Has anyone else had this many lymph nodes involved? If so, how are you doing? I'm so scared.

Dx 10/26/2018, DCIS/IDC, Left, 6cm+, Stage IB, Grade 2, 9/15 nodes, ER+/PR+, HER2- Surgery 11/20/2018 Mastectomy; Reconstruction (left); Reconstruction (right)
Log in to post a reply

Page 1 of 1 (19 results)

Posts 1 - 19 (19 total)

Log in to post a reply

Nov 30, 2018 01:54PM beeline wrote:

Hi leftshark, im so sorry you’re here with us. You are at the worst part right now — waiting for all the info to come in. Once you have your results and a plan you will feel better. As you can see from my signature I also had a lot of nodes positive, 10 out of 22. Many, many of us here have. If you go to the stage 3 forum you can read lots of success stories in the 5, 10 and 15 years out threads. Lots of wome with many positive nodes are thriving years later, including one of my favourite posters whose username is “lottanodes”! Hang in there — you’ve got this!

American in NZ. Dx’d at (only?!) 42. Had to stop Taxol after #6 due to neuropathy. Hoping to do the MonarcheE trial. Dx 7/17/2018, IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 8/2/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Dx 8/21/2018, DCIS/IDC/Paget's, Right, 2cm, Stage IIIC, Grade 2, 10/22 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 9/18/2018 AC + T (Taxol) Hormonal Therapy 2/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Nov 30, 2018 02:14PM Momchichi wrote:

Hi leftshark,

Great user name! I remember the shock of the surgeon calling me with the news that 16 of my nodes had cancer, including a couple just bursting with it. And this was after neoadjuvant chemo. I felt so hopeless and scared. I’m only a year and some months out so can’t offer you long term hope (yet!!!) but I could sense the panic in your post and wanted to reach out. I echo beeline’s suggestion to seek out the stage 3 forums, I’ve saved many topics there as my favorites. Best wishes on your scans, hope you get theresults soon and it’s good news!

Diagnosed at 38, triple negative in breast, HER2 + in nodes Dx 7/19/2017, DCIS/IDC, Right, 4cm, Stage IIIC, Grade 3, 16/19 nodes, ER-/PR-, HER2+ (FISH) Chemotherapy 8/10/2017 AC Chemotherapy 9/28/2017 Taxol (paclitaxel) Surgery 1/18/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 6/24/2018 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Nov 30, 2018 05:48PM Falconer wrote:

well, my mom had many many positive nodes; not sure how many, but that was almost 25 years ago. She's now 77, grandmother of 6 and still going strong. I hope you feel confident in your doctors- she still praises her oncologist and the technician who found the cancer in the first place. Good luck to you!

Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/29/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 4, 2018 07:06PM - edited Dec 4, 2018 07:09PM by leftshark

Thank you all so much!!! My bone and CT scans came back clean. But I'm scared to let my guard down. I'm still totally freaked out that there's still cancer floating around. I should start AC-T chemo in two or three weeks before 34 radiation treatments.

I'm super confused about the stage because my oncologist wrote 1B on my chart but told be I was Stage 3. 🤪

I am so glad there are so many Stage 3 and lymph node success stories here.


(And I went with left shark because my left boob failed me, just like the left shark failed Katy Perry in the Super Bowl halftime show. 😂)

Dx 10/26/2018, DCIS/IDC, Left, 6cm+, Stage IB, Grade 2, 9/15 nodes, ER+/PR+, HER2- Surgery 11/20/2018 Mastectomy; Reconstruction (left); Reconstruction (right)
Log in to post a reply

Dec 4, 2018 07:54PM PebblesV wrote:

Hi leftshark - yes, I have (or had) cancer in 2 sentinel nodes, had a good cry when I learned of that, and am going through treatment right now and so far doing fine, and actually pretty upbeat now that I have a plan of action. Honestly the hardest part for me was waiting for the results of the CT scan and bone scan, and it was a huge relief when they came back clean - I'm so glad they've come back clean for you too! I took every silver lining I could see after the positive lymph nodes, and clean CT scans and bone scans are a huge silver lining.

Mine was also a confusing stage. The pathologists write mine down as stage 1B because my tumor was 1.7cm (less than 2cm) and then my surgeon told them to change it to stage 2B because of the lymph nodes! Honestly, all it means is it's early stage. The best thing is that you (a) have a plan of action to conquer this and (b) there are a LOT of success stories out there, on these forums and in general!

Regarding radiation - I am going through it now and just completed 25 out of 30 sessions, and I'm FINE! My skin has held up really well - I put 100% pure aloe vera gel (from Fruit of the Earth) on in the morning and evening and Miaderm immediately after radiation treatment. Definitely look up Miaderm when it's time for your radiation!

Dx 9/7/2018, IDC, Right, 1cm, Stage IIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- (FISH) Surgery 9/18/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 27, 2018 08:39PM Nicnnat3 wrote:

hello, glad your doing well. Well my journey just started. I was DX with idc stage 2b I believe, but my two sentinel lymph nodes were removed and tested positive for idc (a very tiny size. The 3rd node involved was in the axillery area and was negative thank god. My surgery was on 12/18. I now have to go back in for such a tiny piece on 12/31 to get clear margins. I’m not happy about that but hopefully that will be it. My surgeon and I decided to get back in there now. He didn’t think I needed a mastectomy just yet. The whole tumor and 3 nodes were removed but since it did go outside of the breast I now have to have chemo to make sure nothing is floating around. I already knew I need radiation but chemo I’m really scared. I’m doing a Pet scan soon and I’m so nervous. I know as long as the Pet is clear I can focus on the treatment plan they will have for me soon. Do you think there’s actually a high chance they will find It elsewhere? I pray they didn’t. My anxiety is through the roof making it so difficult. I don’t feel right and I don’t know if it’s just from being stressed for the last 2 weeks or is it the cancer?? I’m scared of doing chemo. Was it that bad for you? How long and how often did you get it? Any input you can give me I would appreciate it. Thank you so much
Dx 12/7/2018, DCIS/IDC, Right, Stage IIB, ER+/PR+, HER2- Chemotherapy 1/27/2019 AC
Log in to post a reply

Dec 27, 2018 08:42PM Anna-33 wrote:

I had 9 positive nodes... Diagnosed two years ago.

Dx 3/1/2017, IDC, Left, 3cm, Stage IIIA, Grade 3, 8/25 nodes, ER+/PR-, HER2-
Log in to post a reply

Dec 27, 2018 09:20PM Nicnnat3 wrote:

sounds like your doing well?

Dx 12/7/2018, DCIS/IDC, Right, Stage IIB, ER+/PR+, HER2- Chemotherapy 1/27/2019 AC
Log in to post a reply

Dec 27, 2018 09:20PM Nicnnat3 wrote:

what kind of treatment did you have?

Dx 12/7/2018, DCIS/IDC, Right, Stage IIB, ER+/PR+, HER2- Chemotherapy 1/27/2019 AC
Log in to post a reply

Dec 29, 2018 05:40PM Anna-33 wrote:

Is it me you are asking? I had 4xEC (epirubicinecyclofosphsmide), 12 taxols, 15 rads, aromasin, zoladex, zometa and Ibrance. I am NED.

Dx 3/1/2017, IDC, Left, 3cm, Stage IIIA, Grade 3, 8/25 nodes, ER+/PR-, HER2-
Log in to post a reply

Dec 29, 2018 07:07PM AliceBastable wrote:

Nicnnat3, are you sure you will need chemo? If you're ER+/PR+ Her-, won't you have the oncotype test run to determine that? I think it's three positive nodes or less. I had a re-excision, one positive node, and no chemo due to oncotype of 17.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jan 7, 2019 09:55AM Aglaja wrote:

I had 6 positive nodes. I was diagnosed i September.

Dx 9/18/2018, DCIS/IDC, Left, Grade 1, 6/27 nodes, ER+/PR+, HER2-
Log in to post a reply

Jan 7, 2019 11:08AM CaliKelly wrote:

Hi, I had 8 out of 20 nodes positive AFTER neo adjuvant (before surgery) TAC chemo. Had mastectomy, on my birthday😂!, clean margins, but those pesky positive nodes😉. So, radiation, tamoxifen, now anastrazole , then another,oral, chemo called Xeloda. Reconstruction etc. All that in 2015-2017 . Now , all good😃. 1st chemo, not fun, but not as bad as I expected. Radiation, no big deal for me, I used to go to the gym right after. Xeloda, I got bad hand-foot syndrome, but really only side effect, even though it significantly affected my activities. Now I'm NED* (no evidence of disease) and doing GREAT. You'll find you can do anything you have to do, take it step by step, try to keep to your normal life as much as possible. I send you Hugs and positive thoughts!💜

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 31, 2019 05:53AM justme1964 wrote:

Ok, reading these posts making me feel a little better. me had 5 positive and PET Scan. Tomorrow, I am get my results. Of course, I am still nervous. everytime I feel a pain I start freaking.



Log in to post a reply

Jan 31, 2019 10:33AM Spookiesmom wrote:

11nodes out 7 years ago. Doing fine. Chemo, surgery, rads.

Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Jan 31, 2019 01:07PM CaliKelly wrote:

So normal to be nervous, only time I've ever had antianxiety meds! But only til I got going on treatment. Then you know what to expect and that takes away a lot of anxiety. Just try to keep life as normal as possible, take care of yourself, nutritionally, etc. Food will taste a lot different if you have to have chemo, so good to get good nutrition, so you'll be as strong and healthy as possible for chemo. Good luck, also don't feel bad, freaking out over aches and pains, I think we all do at first! I think generally if a pain lingers more than a couple of weeks, then get it checked. Keep checking in as your treatment progresses💗

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Feb 17, 2019 08:17AM - edited Feb 17, 2019 11:40AM by Moderators

trust me. I get your confusion, and your panic. You are not alone. “Hope" is what we all need when battling cancer and I would like to spread some to you. 😍

I had one lymph node positive and I did not do chemo because they took 7 more which were all clear and my oncotype score was 20. It's risky yes, but I do have an amazing product in my corner. It's called modified citrus Pectin (PectaSol-Cand it will make whatever cancer cells left in our body, sillpery. I drink it 3 times a day and that's the plan for life. After 5 years I might decrease to twice a day. It also detoxes your body of heavy metal and is a great source of fiber. I buy the largest powdered form container which is 454grams. I still freak out sometimes, but mind over matter. Stay positive and trust your body🙏🙌

Best wishes💗

Susan Spears
Log in to post a reply

Feb 17, 2019 08:40AM - edited Feb 17, 2019 08:45AM by CharSue1

This Post was deleted by CharSue1.
Susan Spears
Log in to post a reply

Feb 17, 2019 08:50AM CharSue1 wrote:

AliceBastable, 😍 I have been looking for someone like you! I too had one node positive and I too had the oncotype test which gave me a score of 20. What I don’t understand and I can’t seem to find anywhere, why when it’s in the lymph node, can you skip chemo? Trust me, best news ever but I’m just curious. I believe in my body and now that I have gotten this warning I have made many changes. I believe I have dodged a bullet and I plan on living a cancer free life style for the rest of my life. Sounds like you are on the same boat. Please share your journey with me:)

Best wishes

CharSue

Susan Spears

Page 1 of 1 (19 results)