Best Of

@irishlove Oh No !!!! I’m so sorry to hear about the number of family deaths so. Recently… Please give your cousin and family my. Sincerest condolences. I know you’ve been feeling poorly and the heat is brutal, my girl. Just know you are in my heart and prayers. Take some down time in the air conditioning and recover you energy. Sending. You some caring vibes and I will be in your pocket this weekend. 🌷🩵

@mkestrel As always you phots are gorgeous.🥰I was out on my front porch steps today in that hot sun arranging seashells and blue with aqua sea glass that glows in the dark and spreading it around in a clear deep glass bowel. I want to put some little succulents on the. last layer and stick a pretty fairy garden pot decoration. on top as if she’s sitting on the op of the glass container.i’ve been SLOWLY doing my flowers and have to rest each Tim I create something. Ugh get so. weak and breathless. No like the. old days when I. would be band forth all day. in. he sun. doing my gardens. People still tell me. it looks lik we got a professional landscaper in front. I want to take some pictures over the weekend and I’ll post them here, So for now my garden is my canvas, and the flowers are my color palette.🥰

@eleanora saying hi I missed you the other day. Thank for your kind words♥️

@cookie54 Stay cool in this heat wave in our area. The Jersey shoe is going to hit 100 this weekend. sure wont be going to. the beach in this heat. and wow, all the. “BENNYS” are backed up on the parkway and all the exits coming down the shore this weekend.. crazy traffic.

So all the rest of you ladies have a very nice weekend, calm peaceful and cool & comfortable. Love you all even if I didn’t get to your names🌹♥️🩵🌷

@shanagirl

So sorry to hear about the interruption of your plans. Glad you have the new date to look forward to.

@goldensrbest

onward and upward with what looks like a good recovery plan. You strength and determination inspire me.

@intolight

Please keep describing the wonderful time with your grandchildren. Your post lightened my mood considerably. I always describe my grandchildren as "human sunshine". Sounds like you are doing an awesome job creating good memories for them.

Had two hurdles to jump last week. Having a minor twinge in a front lower tooth that had a crown but had not been root canaled. Saw my regular dentist and x-rays, exam and hot/cold testing revealed no sign of decay or infection. Because I have been on Xgeva for 3 years, I have a referral to an endodontist for a second opinion.

Also had greater intestinal pain and GI issues than usual (these occur on and off with Kisqali), and finally wound up in the emergency room on Friday where blood work and a CTscan diagnosed diverticulitis. I have augmentin and a pain reliever until 6/20, with a follow-up with the gastroenterologist on 6/30. Medication definitely working - was even able to tolerate a cup of coffee this morning 😊 A little concerned that MO has told me not to start Kisqali again (I'm in my "off" week) until I finish the augmentin and have clearance from the gastro MD. She's concerned about lowering my immune system. Unfortunately, I can still have the damn faslodex shots 😫

Kind thoughts and virtual hugs to all

Eleanora

Shanagirl - so sorry you had such an awful experience while planning to join a family celebration. This disease just stinks. Hopefully the rescheduled date will find you feeling much better!

Had my follow up with the breast surgeon. She wants me to see the plastic surgeon in a month for a consult and then is sending me for an occupational therapy consult to help with preventing scar tissue. Also in a month I will be able to get fitted for a prosthesis.

Here for pocket duty for those in need and sending HUGS to all!

@shanagirl I am so, so sorry to read your horrible experience on the way to celebrate with your family. The whole reason we fight on is to spend more time with family. Faslodex is one medicine I am thankful to have stopped. I join you thinking of all the lovely ladies here and our daily struggles. Praying for sunshine in your lives.

My son's family is here and I am loving every minute. My sweet DIL helped me plant the flower pots on my deck and that brings me joy every time I see them. The only way I can handle this visit with four grandchildren under 12 is because they take day trips hiking, etc. I cannot go, so I spend that time resting so I can enjoy their presence when they are here. The three boys love Legos so my DH bought them a large Lego set of the Space Shuttle with the 747 Boeing carrier which will take them hours to complete. This provides much needed downtime. My DD, who lives with us, bought a Foosball table for her DDs Birthday last week, so the kids also are having a lot of fun downstairs. So far they have also brought out the Monopoly game and fusion beads so there is lots of activity also playing in the sprinklers, etc. Today they are hiking the Garden of the Gods, and tomorrow they will take a long hike higher up in the mountains to the Florrisant fossil beds. We shall see after that. I wish I could go just for the car ride but as Shanagirl pointed out, even short car rides are "iffy" and I can't take that chance especially with young kids in the car. These sweet kids have only known me while sick, so I do as much as possible while at home.

Thank you all for allowing me to indulge in my joy this week. We all know tomorrow is not promised.

Blessings!

Rose of sharon, hollyhock, and pie cherries from my tree

It sounds like everyone is having extra issues on top of everything we deal with already and I hope things improve.

So I had to switch from my husband's (expensive) work health insurance to Medicare starting June 1. I had a coupon to pay for Eliquis but apparently it can't be used on Medicare. I don't qualify for any of the extra help or manufacturer patient assistance programs so the refill is over $500!!? Ridiculous. That's unaffordable price gouging. I will ask to change treatment but I don't really want to be on Coumadin with all the extra lab checks ugh. There is a $2000 deductible with the part D so I think we're stuck. We already had to pay a high deductible max out of pocket for the other insurance. I'm really discouraged and frustrated with this. I have had DVT and PE so I have to take it twice a day. Anyway, hope all have a better day today.

Mara- Glad to read that your MRI was good!!!

Chicagoan- My eyesight is what it is; another new normal I guess. The cataract surgery healed well. The issues are 2 mainly-1. I had horrid eyesight since birth, and the change in prescription post cataract surgery/lens implant is hard to get used to. My brain is trying to adapt to something different from what it has known for 54 years. I still wear glasses, and I am ok with that, but when I take off the glasses, I cannot see my hands (or anything close up). Can your friend that only wears glasses for reading see close things i.e. her hands?? And 2. I am seeing "facets", glare, like the light is bouncing off the edge of the implants. I see my eye doctor again 6 months post surgery- October. The last time I saw her she pretty much said there is nothing to do, I just have to get used to things.

Reading along here every day. Nothing new here as far as the cancer. I see MO next month.

Shanagirl Rest up we all understand and just know we are with you.❤️

threetree Sometimes it's just all too much to absorb. Rest your body and your mind, big hugs your way.

Mara Glad your MR went smoothly, amazing that you can sleep through it.

Candy I feel the same way sometimes as I have been on 1st line MTNBC treatment since 7/2022. It's challenging some days to stay present. Fear of the known and unknown I guess.

Threetree, after 10 years, I do not worry about scans unless it says something different for me. Nothing has really changed in MRI of brain other than the mystery blood pool in my head. Of course I would be scared if something changed but overall, just go day by day.

MRI was nice yesterday, Paratransit drivers were nice driving to and from the hospital. I fell asleep during the MRI. I am quite used to the noises so I find it soothing.

Doing laundry now, finish that, complete dishes and cat area and that is about it. Resisting urges to shop for food. I do enjoy the queso cream in squeeze bottle, it does taste really good. I also tried a queso macaroni bowl as well which was very good. Today since I need to keep on eating my eggs will microwave them, let cool and chop in the cheese and anything else, heat the rice, chopped eggs and cheese together on high in melted butter and garlic stir and turn off the heat. Decide what flavour to add to them. Another meal could be eggs, cheese and a meat pie, cover with lid and just heat that up, no chopping with that and figure out seasonings. Heat in microwave for about 4 to 5 mins I think and figure out seasonings. I will see what I wish to do.

Edited, took a frozen spicy pasta, cracked two eggs on top, added some cheese and beefless ground. I heat up in the package the frozen pasta came in. Let cool a bit and will add some of the sour cream, bit of caesar dressing, queso and possibly ranch. Small amounts of each, eat whatever I can manage, can always put in the fridge as leftovers. Should be good.

I am still using the wet dry vac in the tub so will get it dried out and remove the washers, mop up the stains underneath washer, add mesh bag to the end of the laundry hose to prevent stuff coming out of the drain. I still love the suction power on it for things like the litter area etc.

I hope everyone has a good day, I am in pockets for everyone as well.