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Re: My Husband, My Life, My Love, My Family, My Cancer
Tanya, coming by UPS so should be toward end of month, decided not to bother with the old one for. PIA to pump it out. Thank you. Doing more budget boosting to account for the payments as well as using interest on accounts.
Laundry being done in the wee washer, just a couple of cloths so far so that was pulled out, chores like the litter, sweeping or robot vacuum will happen as well. Building put on the heat so AC will need to be used as it is warmer than I like, I know they are following the law with when it has to be turned on. Will bring in cooler air tonight as well.
Made a couple of savings accounts for different things auto set for deductions, VPN, renters insurance and of course the new washer since it is on payments. Figure if I keep up with them, I will be easier to pay for as they come up. 1 dollar per week for renters insurance and the VPN. Cannot make too large as it would upset the budget I already have. I also have an account for skip the dishes as well, no set amount for that.
Edited, chopped up some of the baby spinach, and then a few Doritos chopped as well. Chopped the black beans, did not measure how many and mixed the beefless ground as well. Microwaved beans and beefless ground for 2 mins, added the spinach and Dorito mix and used a bit of caesar dressing and salt to bind. It was very good. Later, thinking of having egg sandwiches and cooking up some Kraft Dinner to use as meal prep so I can spoon it out to go with another meal, I will have to see.
Hoping everyone has a good day, in pockets for anyone who needs me, in my own pocket to get my budget in order and not do any unnecessary shopping for food. I've set aside a 100 budget starting for next month left on my debit card, I will be motivated to leave an amount on it so I can roll stuff over. The budget is for groceries only. If it cannot be done, that is OK but I am stubborn and eat inexpensive foods so may not be too hard to do. I will see. This is starting next month.
Re: My Husband, My Life, My Love, My Family, My Cancer
sf-cakes - thanks for sharing those photos. The moon really set the scene🌕🌕. What a fun place to visit.
Hope everyone’s weekend is pain free and peaceful.
Re: My Husband, My Life, My Love, My Family, My Cancer
Good news, the battery powered pump is working well, I will be able to do laundry and drain it out quickly as well which makes me quite happy as well as saving all the towels that I was using before. 30.00 for the battery powered pump and the 30 dollars spent on the two manual pump, still less than it would cost to have replaced the washer. I am happy currently but we will see what happens.
Re: My Husband, My Life, My Love, My Family, My Cancer
Had my 4th Zometa infusion yesterday with the IV drip (thank goodness they had some sodium chloride available for me, given the shortage), along with the drawn out 45 minute time frame, and I'm at least not having all the chills, body aches, and fever that I had before. I am super lightheaded and dizzy though, and feeling rather faint sitting here at the computer. Woke up at around 3 am and couldn't get back to sleep - not at all normal for me. My blood pressure is on the low side, but not alarmingly so. Maybe after I eat, I won't be so dizzy and lethargic. I'd just like to finally have one of these with the "no side effects" that many don't seem to get after that first infusion. Ugh! Such an unpleasant drug with questionable efficacy.
Re: My Husband, My Life, My Love, My Family, My Cancer
Mel - I am so feeling for you! OK now, in no way at all am I trying to invalidate or "pooh-pooh" here what you are feeling; I get it, and it's real for sure. At the same time, are you taking an anti-estrogen drug? I imagine that you are. I took Letrozole for awhile and now have fulvestrant. Those darn things can make everything I experience 50 times more emotional than they would be for me under normal circumstances, and I am "naturally" a very emotional person. I can cry and get bummed very, very easily. There's no question you have experienced more than usual or "fair" amount of loss this last year and your emotional response to all of this is very understandable and moving. Just wondering if you have considered whether any anti estrogen drugs are making this any worse for you than it might be "normally". Not that it would make any difference, as "it is what it is" and we have to take these drugs and experience life events as always. Again, I know that for me these anti-estrogens cause exponentially more deep and sad feelings than normal for me, and knowing that about myself can help on a certain level. You know what's going on with you, of course, but I just wanted to throw this out there in case it resonates on any level at all with you. Sometimes just knowing an additional piece of information, possibility, etc. can help us with insight and understanding. Does this make any sense? Please know that my heart is with you and I really wish there was something that I, or someone else here, could do to help you wade through all of this in a better way. Hugs and peaceful thoughts for you!
Re: My Husband, My Life, My Love, My Family, My Cancer
malleemiss Congrats on stable as usual we love positive news!
Mara Agree, not a fan of laundromats, hope your new pump lives up to it's hype.
threetree Sorry you're dealing with such fatigue, it just stinks! Glad you're able to find joy in your day with the Fall foliage and are managing to get out for walks. I feel nature helps my mental health status and I hope it continues to lift you up.
sondraf Happy to hear you have a good plan developing to make life a bit easier. Yes, probably overthinking your parent's stay, they just want to be with you! Although we all do relate with your feelings.
tougholdcrow Ugh sorry scan got delayed, yep saline shortage everywhere. Hope they find an alternative and reschedule you soon!
intolight Glad to hear your have oncology PT set up and I hope it improves your stability. I am also interested in this, as I didn't know Onc PT existed. Fingers crossed that you continue to feel well after your infusions.
Mel I just find looking into my future so overwhelming. I also hate the thought of how my kids and DH will have to deal with my loss. As mother's we are protectors and I always have tried to soften the blow for my DD and DS especially. I don't want any of them to deal with this but obviously there is not a darn thing I can do.So yes back to the ticking time bomb sitting on our kitchen tables . It just plain STINKS! May we all find a way and the strength to live day by day. Hugs. As snow-drop said a big thank you for starting this thread and giving us all the gift of this online family❣️
snow-drop Kudos to you for advocating and pushing your MO for the opinion.Fingers crossed that you get positive news tomorrow. YES you did the right thing ! We are our own best advocate and we need to press and fight for every minute of our being!.God knows we ALL deserve it! In your pocket with an apple-cider donut tomorrow.
Hi to all here and keeping you all in my pocket for a decent day today.🍂🍁
Re: My Husband, My Life, My Love, My Family, My Cancer
Chicagoan - I remember my mother using a washboard and galvanized tub when I was a child - the bathroom sink, a washboard, and a drying rack. Then we moved to a rental house where the landlord had left the wringer you mentioned, so she used the washboard and wringer, along with the drying rack and occasional hanging outside. Within a year or so though, we got a washer and dryer and then had all that the rest of the time, of course. What memories! I would worry about clothes on a radiator though. Wouldn't that be a fire hazard? I can see putting them near a radiator to finish drying, but not directly on one.
Sondra - Sounds like you are at least getting a break - from the radiation and your parents' visit. Hope you get some good down time. I too am loving the fall colors and all that comes with it.
Tougholdcrow and Mallemiss251 - I had read a couple of days ago about how one of the hurricanes made a direct hit or something on a factory that produces IV solutions, and that is apparently at the heart of the problem. I went and got my Zometa infusion a few hours ago and I was concerned that they might not have the fluids I usually get with it. It makes my infusion side effects so much better. Well, I half expected them to tell me they didn't have it, because they need it for surgeries, etc., and my use wasn't that critical, but I lucked out. The nurse told me that they are on a "fluid conservation" routine, but all that meant for me was that they used two 250cc bags instead of one 500. That was fine with me, and I essentially got the usual, but it doesn't sound like all have been so lucky. I'm just surprised to read that the shortage has hit as far away as Australia too. Wow.
Intolight - Please keep us posted re the oncology PT. I'm really interested in how that works out. I told my oncologist that another person on this forum was going to be getting cancer specific PT and that I thought it was a good idea, and maybe my clinic could do something similar. He agreed that it was a good idea, but didn't seem to think there was anything in the works here for anything similar.
Re: My Husband, My Life, My Love, My Family, My Cancer
@tougholdcrow Sorry for all the delays. Those storms are causing problems across the country. Stay safe.
@sondraf Sounds like you are tired. Get some rest. Family visits are great but you are right they are so tiring.
@mara51506 Hang in there girl. Glad you were able to get in for your treatments and that paratransit worked well for you.
@chicagoan I wish I had enough energy to hang clothes outside. I am lucky to be able to transfer from one machine to the other. My DH does it most of the time.
I had my first oncology PT today. It sounds like they may do me some good, but we'll see. It was a bit of work trying to get all the appointments in for the next two months—twice a week. Fortunately for me I have two different offices I can go to although there are only two therapists trained specifically for oncology fatigue in each clinic so it was tricky. I won't get my excercises until next week. Today was all about baseline testing. I had my Faslodex shots and Zometa Infusion on Monday and I actually feel pretty good today. The nurse must have done everything right. This is the first time I felt this good after the treatments. And yes, they were able to flush my port with saline after. Still, tomorrow is another day. Amazing.
Re: My Husband, My Life, My Love, My Family, My Cancer
A strange problem arose today after my bone scan kept getting delayed and was finally cancelled. I couldn't get another appointment for five weeks. It turns out that there is a shortage of iv bags because of the storms. Not sure whether this is just a local phenomenon or widespread across the country.
Re: My Husband, My Life, My Love, My Family, My Cancer
Mallee, I am very happy to know you are stable.
Cookie, I hope the program was informative as well as moving for you. Yes, I can see the ticking time clock thought for a lot of us.
Irish, it is pretty cold here today but we warm up again next week. Need to look up warmer pants and a hoodie.
Well, bought the last thing for the washer, too hard to pump water out manually. Bought a 30 dollar battery operated little pump that does 2.2 gallons per minute, I will see about that claim, if it does not work than the washer will just be dried out and unused and stick the 5 gallon bucket in for normal washing and wee washer as needed for cloths with extra cycles. I have also thought about the kitchen sink to wash clothes as well on washing board. I will have to see about all that. Only thing front of mind is that I will NOT buy a new washer and do not wish to go to the laundromat and use a washer other people do, kind of a phobia for me.
I mader rice, and lentils. Put a package of taco seasoning in. Sprayed the frypan and added the premade rice and lentils. Added the taco seasoning and too much water, let it all simmer and then strained the extra water, it was good and too simple but all I felt like doing. Took immodium before and after, I never want to get caught when getting cancer meds.
I hope everyone has a good day and in pockets always for everyone here.