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Re: My Husband, My Life, My Love, My Family, My Cancer
Also, it is the mental acuity. I used to be able to multi-task- at work I could talk to a co-worker, answer a phone, and do a task, all at once. Now, I find that if I am working on something I have to give it 100% of my concentration. Like concentrating is hard work. I watch Jeopardy and I may know the answer, but I am slow to respond. And sometimes it really is like a mental fog rolling in. I can feel the beginnings of it, and I rush to finish my task before it takes over.
Sometimes I wonder if it is the lack of hormones, since we shut down our hormones when we are on our treatments for HR+ MBC. Like we are speeding up the aging process. But, also, most of our targeted therapies have fatigue as a side effect too. Lynparza does.
Like I said before, fatigue is subjective. There is no test for fatigue like a lab value or a scan. They cannot "see" our level of fatigue. So when we tell others of our fatigue, they can choose to believe us or not. They do not really know what we are feeling.
It makes for a lonely life.
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish I'm so sorry to hear that DH is so ill with covid. That's quite a fever for an adult, glad you have a close eye on him. I will pray the fever breaks today and he starts to feel better each day. Sheesh a fracture at L1, that's terrible and yes painful too!Frustrating you trying to keep moving and doing simple everyday things but wind up with a fracture. Our bodies have taken a beating from treatment and still do, awful. I always have admired your strength and attitude. Sending prayers and strength for you, Dh and family .
I loved the description of your mountain life it sounds like it was wonderful. You have a big heart and gave/give all your animals a great home.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
I nap every single day at noon. I get up around 8 and have a cup of coffee. I’m ok until around noon. Then I’m useless. I’m pretty much useless anyway. My DH takes care of me and I am thankful for this wonderful man. Fatigue is awful and I mean even if only to go to fridge for some water and ice. Like walking through syrup. Getting to shower has become a planned event. It’s basically torture. Muscle aches back aches. Leg pain neuropathy in my feet and fingers. It’s not a pleasant thing to deal with. Each disease is different and effects us each differently, I see those commercials and I shake my head and think. I just don’t think so. There is no way I’m jogging. No way I’m going to be teaching a full class of kids. I do think I can sit on one place for maybe a few hours but then must move a lot during , then I have to lay down. Take pressure off my spine. Those commercials aren’t realistic. I have had family say Ive seen commercials for that. Those people were running with their dogs. I said yeah and they are paid actors not actual patients. It makes me mad and sad because no wonder Candy is getting denied if that’s how we are being perceived in the public eye for MBC. It’s way off.
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight In your pocket for treatment today and I hope you get to enjoy a nice lunch.
Mara Glad you found an easier way to wash bulky items. They are so darn heavy especially when wet! Your persistence is always so admirable.
Shana Hope you slept better last night and find some energy today.
Goldens, Mel & Mae These pups are the best , so darn adorable! I love to see all the pets..keep the pics rolling.
Wishing all a peaceful day.
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Theo is sooo cute🥰.
Mae - we need a pic of your furkids🐾🐾.
Re: My Husband, My Life, My Love, My Family, My Cancer
Shana - I'd like to hear from others too, and will be very curious to see any responses. Thanks for posting about this; it's really important.
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl I had several days of extreme fatigue at the full dose of my current chemo and did eventually get a dose reduction because of it. Now I only have a few bad days, which are manageable. I think it’s normal on occasion but if it’s too much, talk to your MO. I didn’t need to suffer as long as I did. Also, if the problem isn’t your meds, could you have picked up a virus?
illimae
Re: My Husband, My Life, My Love, My Family, My Cancer
CONSTANT OVERWHELMING FATIQUE & LACK OF ENERGY
Today I showered, folded some wash fed the dogs, did some general straightening up. I just felt so tired I felt I wanted to give in to the feeling, lay down in on the bed with a blanket, started reading, and I just can’t keep my eyes open., I’m so frustrated that I feel like this all the time, I did a little painting yesterday but every day is always exhausting. Ladies, Is it normal to feel this way with MBC treatment? Please post your own experiences and feelings about this subject. I’m so tired it’s even tough focusing on typing.🥱😴🩵I’m so tired of being so tired all the time.
