My Husband, My Life, My Love, My Family, My Cancer

Mel, sweet looking in both pictures and a little bit of dapper in the second photo post grooming.

I am unsure what I want to do today, got another throw blanket coming. Will get rid of the one huge fleece blanket and am able to properly wash the rest which is lovely. Panda spinner is great but for the everyday, the portable washer is great. Got a back up for 60.00, small so would be good for stuff I would hand wash. My hands do get sore when handwashing, arrives tomorrow. Since I have been eating through fridge and freezer mostly, realized that groceries are unnecessary at this point anyway.

Got my paper shredder, no idea what took so long to get one, can shred up the confidential mail which is good, flyers still go in recycle bin. I do have a massive amount of cardboard from Amazon as of late. Just collecting in a blue bag, will put out in recycle bin later.

Edit: The meal consisted of lentils, beans and beefless ground. Cheese sauce was the cheese packet from KD, put in 1/4 cup milk and tbsp of butter combined much as I could, heated for 1 min in microwave and added some shredded cheese. Meanwhile the lentils, beans and beefless ground put in a sprayed frypan, started on high, turned down, added the cheese sauce which I added taco seasoning to. Stirred around for a few minutes and plated. Added a bit of salt. No other ingredients need. I will simply say it was delicious, I loved it. The cheese sauce with the KD pack, milk and butter with that hit of taco seasoning was delicious as well, loved it a lot. I can use the KD pasta part with different flavours. This meal was overall nutritious and even had 1/4 cup of milk to drink, no dishes will be calling and need to complete first load of laundry.

@illimae those two little black faces are precious. They mus give you so much healing uplifting vibes. They remind me of my two little pug brothers🥰

@micmel I just love that photo of Theo. It;s so professional looking against the black background.🐾🩵

@threetree Hi girl, In your pocket Thursday for your. Zometa shot. Yep those shots are rough. I get the Fasoldex and Xgeva all at once too. Once they hit you a day later it lasts almost all month.!

@intolight ..Sending gentle hugs as you go for your shot.(((💞)))

CONSTANT OVERWHELMING FATIQUE & LACK OF ENERGY

Today I showered, folded some wash fed the dogs, did some general straightening up. I just felt so tired I felt I wanted to give in to the feeling, lay down in on the bed with a blanket, started reading, and I just can’t keep my eyes open., I’m so frustrated that I feel like this all the time, I did a little painting yesterday but every day is always exhausting. Ladies, Is it normal to feel this way with MBC treatment? Please post your own experiences and feelings about this subject. I’m so tired it’s even tough focusing on typing.🥱😴🩵I’m so tired of being so tired all the time.

@intolight yes that’ why I asked the above question to everyone. It just seems like every day it’s something like what you just described,

@threetree Thank you for responding to my Question. I hope others here post and describe wha they are feeling regarding this overpowering fatique and lack of energy.

Ladies, Is it normal to feel this way with MBC treatment? Please post your own experiences and feelings about this subject. I’m so tired it’s even tough focusing on typing.

🥱😴🩵

I’m so tired of being so tired all the time.

Good morning all. Yes fatigue murders me. I stay up until 2 or 3 a.m. and then sleep in until noon time. I have stopped feeling guilty about it. 45 yrs. of taking care of the house, family and worked many hours for 25 yrs., well I've earned it. However, I am OCD, so I make my bed, rubbing the wrinkles out. I put my clothes up that DD is laundering for me. I vacuum the areas we use daily. DD takes care of her side. It's so hot and muggy and close, plus mosqitoes outside, that I limit that time to watering potted plants. By the time I'm done, I'm exhausted. A kind of fatigue difficult to explain but I'll try anyway. It's a painful, hit the wall kind of fatigue. Recharging batteries sometimes just doesn't work. Muddle thru somehow. I make all my appts. in the afternoon to try to get some proper rest.

As for Covid, poor DH is really sick. 104 fever, can't talk and can't get out of bed. I keep track of his O2 levels and warned him if the fever doesn't break soon, he'll need further medical attention. It's hard to be in a house of 5 and keep isolated, but we are doing are best. Poor Pigeon and Minnie are missing their walks in the early morning. I can't walk them, so DH does and now that he's sick, I feel bad for them.

Last scan showed pathological fracture on the L1. It's very painful and frankly I know when it happened. I was bending over to reload the bird feeders. It runs pain down backside, buttocks, top of legs and in the private areas. Will talk to MO about returning to RO for treatment. Meantime, I'm being careful not to lift anything over a kleenex and to stifle my coughs.

I loved seeing all the pups having the best life. I miss the days of our rescuing. At our most limit, we had 7 dogs and 5 cats. Lived in the mountains, huge fenced yard and the cats use to follow me on trail blazing. They had their own cat condo DS built that gave them access to the outside and inside. I miss my babies. In pockets for all your needs.

Also, it is the mental acuity. I used to be able to multi-task- at work I could talk to a co-worker, answer a phone, and do a task, all at once. Now, I find that if I am working on something I have to give it 100% of my concentration. Like concentrating is hard work. I watch Jeopardy and I may know the answer, but I am slow to respond. And sometimes it really is like a mental fog rolling in. I can feel the beginnings of it, and I rush to finish my task before it takes over.

Sometimes I wonder if it is the lack of hormones, since we shut down our hormones when we are on our treatments for HR+ MBC. Like we are speeding up the aging process. But, also, most of our targeted therapies have fatigue as a side effect too. Lynparza does.

Like I said before, fatigue is subjective. There is no test for fatigue like a lab value or a scan. They cannot "see" our level of fatigue. So when we tell others of our fatigue, they can choose to believe us or not. They do not really know what we are feeling.

It makes for a lonely life.

Candy, I am with you, pacing ourselves is all we can do. For example, I know I cannot handle the heat, have not tried to walk outside, if I need to go somewhere, Paratransit is the way. Do bit of housework at a time an a quick vacuum and dust to my small apartment. The only chore I really enjoy now is laundry.

Oh Candy, I hate that question. Are you depressed? But of course I get mad and let them figure it out. They have no clue why all the prescriptions.

I'll try to remember and politely/cheerfully answer 'Of course, who wouldn't be."

Cancer aside there's tons of shit going on in this world and I only see it getting worse.

It's raining! I love rain.

Today finds me doing more laundry, in regular washer today. I do love the portable washer but not needed right now. Filled up softener bottle. I use 50 percent vinegar, 50 percent water for 2L and another 200 of the actual softener for the scent, softens clothes without the feeling of softener sticking to them. Want to wear the capris in there.

I have Herceptin which is fine with me, pickup at 1100, might bring an umbrella since it is supposed to rain today, that is fine. Will have a simple breakfast of eggs and hashbrowns, will cook up hashbrowns in the breville and spray a plate and microwave eggs. Should eat by 900 am as will be putting some make up on for my trip out.

I hope everyone has a good day, in pockets as needed. In my own pocket to not whine about how tired I am, want to replace the tired thought with I'll be glad when the Herceptin is over. Had weird dreams that woke me so sleep was not as deep as usual, what I got was OK when I was asleep.