Best Of
Re: Abemaciclib Verzenio for Stage IV
Am officially off of Verzenio after a little more than 4 years. Moving on to Enhertu after a very brief time on Faslodex. If you want to ask me anything about my experience/hints with Verzenio, feel free to send me a message.
Hope we are all "Going2BeatThis" and find a treatment that controls our disease. Best of luck to everyone on this thread.
Re: Kisqali/ribociclib, Faslodex/fluvestrant & Xgeva combo - Anyone?
Hi everyone. I have been reading through all your posts for the last couple of months, and they have given me such hope and a sense of serenity in not being alone with my recent diagnosis of Bone Mets (I make a similar post on that thread too to introduce myself.) I just signed up and filled out my profile, and looks like I belong in this little treatment thread with all of you fellow "Porcupine Club" members. Definitely not a fun treatment, but much more tolerable than chemo! Hate that I needed to join this group, but I am so grateful that you are here! A burden shared is a burden lessened.
Original diagnosis 2022 ER+/PR+, Her2low, mixed Stage 1, grade 2, mastectomy, chemo, AI.
Diagnosed with Bone Mets Feb 2025, no organs.
Re: Starting Chemo June 2025? Let's support each other here!
I start Taxol and Herceptin on 6/23 I am HER+ (triple positives) I want to know if anyone is using cryotherapy: ice gloves and socks to prevent neuropathy ????
Re: Starting Chemo June 2025? Let's support each other here!
alliec1068 I start TC July 1st and am also doing cold capping. I am staying hopeful, too, that it will help me keep a great deal of my hair. I hope the insurance comes through for you soon, the waiting is stressful. Have you looked into any of the funding sources to get help with the cost of cold capping? Check out the Rapunzel Project, if not.
Re: Starting Chemo June 2025? Let's support each other here!
puggrace2018 I start Taxotere + Cytoxan on 7/1. I'm planning to use ice packs under my hands and cold socks to prevent neuropathy. I got a set of socks in a care package, they are called Natracure Cold Therapy Socks and the box says they help with side effects of chemo and neuropathy, in addition to several other issues that aren't specific to chemo treatment. I look forward to hearing how it goes for those here who are starting in late June or in July.
Will be starting chemo
I jus done my Oncotype dx test and they are recommending me do chemo. I am very scared and dont want to do it. I had a double mastectomy to help prevent the recurrence. What do you think?
ddgale70
Oncotype test and results
I just had a double mastectomy. The point was to have a lower risk of not having the cancer come back. They done a Oncotype Dx test and my score was 51. Now they are wanting me to do chemo. I am very scared and questioning rather I want to do that or not. I am 54 years old. I dont know what to do!
ddgale70
Re: More Tips (and a Shopping List) for Getting Through Chemo
Bumping for those getting ready to start. I finished chemo on November 17th of 2021.
Sending out some good vibes to all of you that are starting or getting ready to start. You CAN do this. And this thread was so helpful to me when I went through it.
kotchaj
Re: Starting Chemo June 2025? Let's support each other here!
I started TC treatments on 6/1/25. Week one was all about controlling nausea for me. So far this second week, I am seeing face rash, the need to take lots of Imodium and feeling better. How are others doing?
Re: Starting Chemo June 2025? Let's support each other here!
I start TC hopefully next week pending insurance. I will be doing cold capping and hopeful it will work to keep some of my hair.
