Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Mel - Just saying hello and sending some hugs. Thinking of you and wishing you and yours all the best!
Re: Vaginal Atrophy solution that is working for me!
My Mo ordered Estrace for me. I use it very sparingly, only about 5 times over the past year and a half. It works well and I’m sure I would have less symptoms using it regularly but it seems too scary. supposedly it doesn’t go systemically. Wondering about using this after finishing Tamoxifen, would that be riskier due to not taking an anti hormonal
veeder14
Re: My Husband, My Life, My Love, My Family, My Cancer
Did not sleep well, just dozed a bit. Have meeting with MO today, just routine bloodwork etc.
Laundry cycle done, vacuum out drain later. Figure out where to store machines, remove from tub and then contacting property manager. Moving machines will happen tomorrow. Without much sleep, would be too hard to hoist them up, better to wait til tomorrow. Get rid of the drain issue FINALLY instead of the incessant obsessing over it.
I decided to try chipotle beans. Put in dry rice, added a bit of water. Too much water but rice was fine, put in a strainer and added extra chipotle cream, was spicier but still tasted fine. Put the extra in a container. Next time, make the rice and then put into the mild chipotle fiesta beans.
Edited, Was going to order fast food as I was starving BUT decided to use a frozen pasta meal, put some beefless ground and cheese and used queso, sour cream and ranch. Very small amounts of the dressings of course and a sprinkle of salt.
MO said bloodwork was perfect and my Echo results are also very good so pleased about that news.
Hoping everyone had a good day and in pockets for all who need me. Late in posting.
Re: groin pain could be bone Mets? What does it feel like
this was a helpful thread for me. I have groin pain that is pretty intense. My brain always goes to…is this ca. so I plan to go to pt start there and see if they can give me answers. Scans are expensive so will see if I can go without. My med onco follow up appt to bloodwork check is this week. So I will see what my dr says too.
Re: Lets Post our Daily Exercise
mcbaker: Sounds like you have a big community garden. We have a small one and are now getting yellow squash, zucchini, and 2 days ago the cucumbers started coming in.
Ruth: You always have pretty flowers.
Went to see a symphony perform the soundtrack to Harry Potter and the Goblet of Fire while watching the movie. We went last year to hear the symphony play during another HP movie. Loved it so much we decided to go back again this year. Plan to return next year for the next movie.
I received some fabulous news today. DD and her dh are expecting their first child - a boy! She told me a few weeks ago that she was pregnant but found out the sex today. They have tried for a very long time to conceive and they are over the moon. Dh and I are over the moon also! ❤️
Bottle o Tamoxifen
Dear All, (and Layne are you there?)
Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha
Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More
ashaby
Lupron, Tamoxifen and Oncotype
Hello All,
I had Stage 2A grade 3 DCIS & IDCIS Cancer. Im 42 and a Mas w/DEIP. My oncotype number was 19 with a 6% chance of recurrence however my oncologist used a tool call Exact Science RSClin tool that says given how big my tumors were (biggest tumor was 28mm) and high grade that my recurrence rate is 17% with only taking tamoxifen. Chemo would’ve only brought it down by 1-3% so my MO thought it would be best to take Lupron shots until menopause and then switch me to AI. I see other posts with women who recurrence numbers were lower than mine but prognosis were a bit worst. I have not decided on the Lupron shot as yet and haven’t spoke to my MO re it bc Im not a fan of hers. I’ve been on TMX for almost 3 weeks and I havent experience any SE…yet. I take it with a multi vitamin everyday and pray over it. I guess my question is, am I at high risk waiting to take Lupron until I feel comfortable with the idea of it? I don’t want to take Lupron and it messes up my no SE I’m having. Have any of your MO spoken to you re your recurrence #s based on the RSClin tool? I know ASCO was earlier this month, any news on new ways to suppress ovaries?
Re: Bottle o Tamoxifen
Hi All,
I’m new here. I am currently on TMX, it’s been about 3 weeks and haven’t had much SE except I have notice the mornings are rough waking up. Am I silly to believe that this will be it for SE or shoukd I expect more as time goes on? Also I’m located in NYC and want to find another MO and maybe a clinician or an integrative doctor who can talk to me about natural teas I can drink to aid with my TMX. Can anyone give me recommendations? Thx
Re: I’m on hospice - anyone else?
Chicagoan,
Thanks for asking. My pain has been well controlled since that very short period of time when the pharmacy computer system went glitchy (again, no paperwork snafus, no denial of anything!). I was in hospital for 3 weeks and despite diligent care, bed sores still developed on my very skinny butt. I really have no padding there at all. The best news is that I am no longer constipated! Despite copious amounts of assorted laxatives and prunes, nothing was working, including powerful enemas. My hospice nurse said she’d never seen anything like it. However, at 5:00 am today…success! You can believe I was doing the happy dance 😂. I think I even woke my caregiver up😉.
Hope everyone else is doing well.
PS: My neighbors visited me yesterday and they brought their 5 week old baby as well as their 2 year old. Nothing lifts the spirits like snuggling a newborn 👶🏻.
Re: Bone Mets Thread
Hi everyone. I have been reading through all your posts for the last couple of months, and they have given me such hope and a sense of serenity in not being alone with my recent diagnosis of Bone Mets. I just signed up and filled out my profile, and looks like I belong in this little diagnosis thread with all of you. I have also joined the "Porcupine Club" (Kisqali with Fulvestrant & Xgeva). Definitely not a fun treatment, but much more tolerable than chemo! Hate that I needed to join this group, but I am so grateful that you are here! A burden shared is a burden lessened.
Original diagnosis 2022 ER+/PR+, Her2low, mixed Stage 1, grade 2, mastectomy, chemo, AI.
Diagnosed with Bone Mets Feb 2025, no organs.