Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Laying on the floor alone for three hours is not a little thing. You are right to get something to help you sooner. I pray daily for you living alone and going through all this without help. My DH put a squeeze horn by the toilet as that is where I usually pass out. But I usually have someone around; either my DH or my DD asleep downstairs (she works nights.) This way I don't need shout. I don't have a life alert yet as I am not quite there, but it is a good idea. You are doing a good job advocating for yourself and handling all you do.
Re: Bone Mets Thread
thank you. The Tamoxifen is to kill the cancer and my oncologist said it will help with pain. He did mention possible radiation if pain does not stop. It’s only been 4 days now. Arimidex made my joints hurt which is why I was happy when I was taken off it after 5 years. I was good for about 4 years until this. I am on Dilaudid for pain which I am feeling relief from finally. Encouraging that radiation took your pain away. I will talk to my Dr. the 23rd about it as I don’t want to be on pain medication forever. Thank you. And Happy Holidays.
xsuzx
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl I am looking into the cheapest life alert there is. Still recovering from really bad cold and voice just starting to come back after foolishly screaming for help for an hour. I need to get more serious about exercise, just exhausted all of the time. Thankfully was physically unhurt.
I signed up for lifeline here in Canada, 43 bucks a month, cancelled all streaming channels not in use. Can use my vpn to stream shows or watch them the next day for free. Only kept youtube and free stuff. Made the mistake of telling SIL and she went off saying I should have gone through my disability. Told her I prefer to start right away. I am using the card that handles the rent, internet and mobile so I am unconcerned about paying extra but I will look into the disability thing when feeling better. Just wanted to start a service to feel safe at home sooner as opposed to later.. Have to stop being cranky when people want me to look into something else. It is immature on my part and stop calling if a minor fall happens, I will have service to help me with that. When I feel better I will look into it.
I get grumpy but realize that I bring it on myself when I tell them about a fall, if I can take care of it myself, I should do so, realize I do not need to run things by people all the, am 54 years old. Unless in hospital, no need to report every bruise, just causes me and them hassle. Budget is easily figured out by stopping the mcdonalds or other stuff, I get credit monthly as rewards for paying the rent, internet and mobile phone, can get 40 to 45 dollars monthly. That easily pays the lifeline charge. Oh well, that is life, I accidentally shredded my disability statement, will need to wait until end of month to get looking into whether the lifeline can be covered by disability.
On a good note, planning some air fryer pizza, add some lentils pre crisped to the top and extra cheese, later going to heat up a hamburger in a mini grill then take it to a frypan and add cheese and taco seasoning and lentils or something else, I will see.
Laundry and sweeping and a tidying of house is in order. Need to get more boxes in order too, ready for taking out on Thursday.
I do hope everyone has a good day and in pockets for all people.
Re: Mourning the person I was
Thanks Mods. I'm teary reading your message. Just knowing I'm not alone in feeling this way is helpful. Hoping for better days. I would love to join the online support group and webinar. I'll keep a look out.
Re: Bone Mets Thread
This is the latest update on my condition:
The most recent PET scan showed disease progression and recurrence in the same tibia. The scan also showed uptake in that area as well as in three other lymph nodes.
My doctor decided to change my current treatment (Kisqali and Faslodex) and gave me several possible treatment options and scenarios. He said everything depends on the biopsy. He wanted to perform a biopsy to obtain enough tissue for genetic testing.
After consulting the radiologist, it was confirmed that the areas showing progression cannot provide enough tissue for a proper biopsy — they cannot obtain three cores as my doctor requested. They can only perform a fine needle aspiration, which would provide cells only, just enough to determine the type of the new cancer.
Because it is difficult to reach a suitable area for a proper biopsy, I refused to undergo it.
So my doctor decided to change my treatment to Afinitor + Exemestane.
Now I am moving to a new treatment and I don’t know how my body will react to it. This worries me, because I was able to tolerate Kisqali for a year and three months without major issues, aside from the continuous stomach pain.
I am not fully convinced about changing the treatment, because my doctor previously told me that if progression appears only in the bones, we could give radiotherapy and continue the same treatment. I don’t understand why he is pushing me to change it now — he is worried about the rising tumor markers.
I also cannot risk continuing alone on the same treatment and fear further progression.
I remained stuck in this confusion and lack of conviction, but I will start the new treatment and see what happens.
Re: Afinitor/Aromasin
Hi All. I wanted to pass on the report from my latest scan especially as it is good news. I have not heard directly from my oncologist yet, but if I read it correctly everything has improved. The three tumors in my spine have resolved and the ones in my liver have improved and most are not clearly apparent on the current exam. The others in nodes, etc., have also improved. There are some new suspicions in my lungs but the tech reports it is probably inflammation. It looks like A/A is working for me for now.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Yikes Gir!! Ihate when I’ve fallen. Scary and it hurts (ouch) Do you have that thingy to wear around your neck? Mine sits on my DH’s desk and I do wear it when he goes out, but he won’t leave me for long and I wear it while he’s gone. If mine would go off he would know, they would call him.
@goldensrbest I love your snow doggy picture. Thanks for sharing. My little pug boys will not go out in the rain r snow. Maybe because the ar so low to the ground and small. The years our kids were growing up we had Great Danes, labs both black & yellow and English Bull dogs over the years. The all loved the snow, but never the pugs🖤🤎💛🩶🤍🐾🐾🐾🐾🐾……love each one of them so much,, and so saddened by each loss. the 2 that I have now never leave my side. I can’t imagine my life without them.
@intolight God bless firefighters! have a wonderful time. and by the way I always watch all the fire dept tv shows.🚒. I love them.
Re: My Husband, My Life, My Love, My Family, My Cancer
@goldensrbest Watching dogs in the snow just reminds me of being a younger person and loving the snow. Miss tobogganing . Mariah looks happy in the snow for sure. I will give some thought to the type of service I am looking for and their place in my budget. I have time as I am unable to talk yet.
I really enjoyed the chicken thighs and lentils. The chicken thighs were honey and garlic and just sprayed the air fryer lightly, dumped the lentils in then chicken, took around 20 mins. Nothing burned either but it was quite delicious. I love the crispy lentils.
I am looking at watches, I may also look at a second phone on a less expensive plan as an emergency phone, will look for best option for. It would live in my pants pocket. I do have life alert calling but I still have no voice so will be pointless. I do not have a ton of disposable cash to put down on something. Still thinking less expensive smart watch that uses bluetooth to make and receive calls as I am never without phone when I go out and in house, would be able to call 911 as needed. I will see what fits, no need to commit to anything anyway yet.
Got the smart watch, it can make calls through bluetooth and I do have my phone with me or nearby at all times. This should give me more protection. Also need to keep eyes on things that may trip me up in house too. Need to watch feet. It is a budget smart watch but only need it rarely. Not going to sign up for anything else currently.
Re: Birads 5 with calcification
how are you ladies doing? I read this whole thread this evening. Recently diagnosed and enjoyed your supportive words to each other!
Re: how about drinking?
Good Morning, Loungettes! Happy Saturday! I'm beginning to feel like things are going to be alright with Mom. She's sounding more like her old self on the phone, and when she asked if there were any more moves coming up and I told her she was where she is going to be permanently, she actually said "Good. I like it here." She's been going to programs and spending time in the common areas and chatting with the other residents. One of the staff calls her a social butterfly. She's gained 8 pounds. I've been able to listen to what she does complain about (and complaining is a bit of a long-time activity for her) and not feel like whatever it is I need to fix ASAP or that it's my fault she's in that situation. I suspect that getting to know the staff is helping with that. I've been reminding Mom that it takes time to get to know the staff and for the staff to get to know her, but I forgot that it takes time for me to get to know the staff and learn to trust them, too.
Some good old-fashioned Arctic air has arrived, temps are below the donut overnights, just getting into the double digits during the day. The big chaise has become my favorite place to hang out, and the puppers seem to have the same opinion. I love having enough space in the chaise for all three of us to be comfortable. Zoe, however, has decided that instead of lying beside me or across my feet/legs that she prefers curl up on top of the back of the chair, with her butt resting on my shoulder. It must be the weirdest looking position, I wish I could get a pic.
Carole--Love hearing about your Mom "graduating" from Hospice care! Just goes to show that treating the symptoms and quality of life is as, or even more important that treating a disease or condition. And you are right, family shouldn't hover while someone is adjusting to a new setting. I wish Mom didn't have so many appointments during the first couple of weeks she was there, she hardly spent any daytime in the facility. I've rescheduled some of her December appointments so that she is not going out more than once a week.
Morning, Minus
Morning, Teka!
Holly Jolly Christmas Citrus Cocktail
Ingredients
• ▢2 ounces vodka
• ▢1/2 ounce St. Germain (elderflower liquor)
• ▢1/3 cup fresh squeezed clementine or blood orange juice
• ▢ginger beer, for topping
• ▢pomegranate arils, for topping
• ▢1 sprig fresh thyme or mint
Instructions
Fill a cocktail glass with ice. Add the vodka, elderflower liquor (if using), and clementine juice. Top with ginger beer. Add the pomegranates and thyme or mint. Enjoy!
From
