Best Of
Re: Are you having surgery in June 2025? Let's gather here to support one another!
Hi. I had a lumpectomy and sentinel node dissection on 6/4. I was feeling better every day and started back working remotely and now i'm exhausted and feel like i'm getting a cold. I am worried I didn't give myself enough time. I am waiting on pathology results and oncotype, and am a little nervous about that.
kc28
Re: How long have you been Stage IV?
I’ve been Stage Four de novo for almost nine years. Hr+ Her2 low with Mets to the liver. Still on Ibrance, changed from Letrozole to Exemestane just recently to see if it could help some of my joint issues. Usually just read the boards but haven’t responded in awhile. 🩷Kate from Alabama
Re: Can we have a forum for "older" people with bc?
Happy anniversary Carole. I hope you all enjoy your dinner.
I think I wasted a good portion of the day. A gf called and I was on the phone for an hour or more. It was the gf who had uterine cancer, her chemo is done and she’s on to rads. She’s a talker on a good day, but add in brain fog and we were jumping all over the place.
Another gf called, she’s had a Polish neighbor who has lived there 30 years. He was picked up by ICE on his way to work. Crazy morning.
We’re going to a Red Sox game tomorrow on a bus trip with another couple. It should be fun. My only concern is my foot. Fear of it getting stepped on, and of the bus dropping us off far away - I’ve never been to Fenway, but anticipate a lot of walking
I can’t remember if I’ve already said - a gf’s younger sister died. She had cervical cancer and had just finished her 5th chemo treatment days before. All seemed to be going good, then the obit said died suddenly. Now her wake is Tuesday; another gf’s cousin wake is Monday. I’m sending out more sympathy cards than bday cards. Sad state, but I guess I’m at that stage of life.
Everyone sounds like we’re doing ok. Enjoy the weekend!
cindyny
Re: ER-, PR-, Her2+ Roll call
Hello ladies!
I had my appointment with the oncologist yesterday. Everything was fine — the tumor marker remains low and stable, and the doctor said my bloodwork is perfect; she even printed it out for me to take home 🤩 I no longer have any nutritional deficiencies, everything looks great. My heart is still strong. It’s always such a relief.
My next appointment is in 3 months, which is when I’ll finish Herceptin. After that appointment, I’ll start having check-ups every 2 months for a while; as I understood it, that’s because the risk of recurrence is higher once I stop taking Herceptin. I hope everything keeps going well for all of us!
As for my hair, the doctor did say it’s indeed growing very slowly, and I do have areas with low density (on the crown of my head). However, she wants to wait another 3 months to see whether this is still my body recovering from the toxicity or if it’s actually a real problem. According to my oncologist, I can’t really compare myself to most people, because I had AC chemo plus dose-dense docetaxel (which you call Taxotere), and that’s the most aggressive regimen there is for hair and eyebrows. Based on the usual pattern, at this point (8 months post-chemo — already??) I should have more than 3 inches of growth, but I have about 1, and it’s thin. So we’ll wait and see.
@grammie2 I’m sure the fluid retention will improve now that you’ve finished Phesgo, but we need to be patient because the body can take quite a while to get back to normal. Little by little you’ll start seeing improvements! As for minoxidil, my oncologist says it doesn’t work miracles either and that it’s a bit too harsh for now. Basically, she wants me to wait a bit longer. But of course, we always want to solve problems as quickly as possible. I’ve also read conflicting things about minoxidil — some people say it really works, and others say they don’t see much improvement. If I were you, I’d also wait a bit longer to let your body detox.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@kbl Im so sorry about that my dear. What youre going thru cant be easy and I continue to pray you get painless days and nights in as much as is possible. Youre a shining light on how to manage the MBC journey. Big hugs
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@Rosebessie Thank you, Rose. I tried upping a dosage of a medication for the second time, and it throws me over the top of nonfunctional. I didn’t take it today. It will take a few days. Sadly, it does help with my breathing, but I just can’t do it.
Hope you’re doing well.
kbl
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Trump did this. Elon Musk did this. Republicans did this.
A part of me didn't want to have to put this in here and experience the pain over again, but then on the off chance some of the right people would see it.
Re: Can we have a forum for "older" people with bc?
Yesterday was my yearly pap, uneventful. Only thinking to switch drs because she’s about 84. Because I have no problems it’s not in the forefront but I debate it internally.
I picked up GN and got her to class. Then I ran to BJ’s, walked my foot off, and they didn’t have any q-tips in the store. My 2 items took me 45 minutes! Muscle along my left shin was screaming at me.
As I got home I grabbed my items and noticed a dusting on the “purple” seat cushion - picked it up to dust it off and saw 2 cards I should have mailed days ago. UGH! Backed out of my driveway and went up to the post office. One sympathy card and a bday card.
After a rest, I went to a local garage for a car inspection. They got me in without an appointment, then had bad news for me. I needed 2 new tires. I yi yi, $485 later I was on my way.
Trying to get a car purchased for my nephew. Today was told they’re (seller is SIL of my BIL, her dad passed) turning in the plates because insurance expires at midnight; when previously, it was staying on so we could drive it the 3.5 hrs to get it here. I need to call my insurance company to ask for help. We can’t use a transport dolly, it’s an all wheel drive Subaru. Note to self - I won’t do this again. No good deed goes unpunished.
It’s been hot & humid. I’m still of little use with my foot. I’ve watered some things but can’t get around well. One day at a time. HA!
cindyny
Re: Didn't have a clean margin, go back in and re-excise?
Thank you for the advice truly appreciate it :) yes, according to pathology I have a positive node which did show on MRI prior to surgery, along with poor response to my neo adjuvant therapy as well as positive for lymphatic/vascular involvement. The team advised a re-excision and ALD because of the results from pathology and they believe that is the best course moving forward along with doing targeted therapy, radiation and PT. I trust my team with their plans as they are the professionals, but just want to make sure that it is truly the right path for me. I due plan on getting a second opinion. When I did my MRI prior to surgery it showed shrinkage of the tumor and that my node was clear, but its not what pathology showed after surgery. Hoping and praying that second surgery will be better and will be clear.