Best Of
Re: PREDICT: Updated Breast Cancer "Survival Calculator" Tool
It is interesting. I put all my info in and 92% like me will live to 10 years. I suppose i would like to see if genetic mutations play a part. My cancer was removed 2.5 years ago. 93 without chemo. Interesting, as more drugs need to be added as they said. I had Lynparza and Herceptin and Perjeta infusions 18 times for one year. How much does that factor in for my survival and does it? All the therapies, as there as so many treatments being offered in 2024 will make this more valuable for people like me. My genetics and possibly pills like Lynparza led me to MDS in late 2023. A bone marrow transplant in April.
Who knows what my years possible are now?
katg
Re: My Husband, My Life, My Love, My Family, My Cancer
tougholdcrow - what an insightful post. Thank you for your time and words.🥰
Our dear Bella turned 14 yesterday. We are in awe because we had 2 of her half-sisters along with her for a while. Both half sisters were taken by hemangiosarcoma (the most common cancer in goldens) one just before turning ten the other just after turning ten. Obviously Ms Bella has different genes for which we are extremely grateful. She is a smaller size golden and has a puppy face so everyone is shocked at her age. She is such a diva - she must have a fresh bowl of water whenever she wants a drink🤣
Re: Bone Mets Thread
Hello everyone. I am starting my third month on exemestane after we found a mutation from a blood biopsy. First dose didn’t go so well, but I started taking my antihistamine an hour before dinner and then took my pill in the middle of a fairly large meal, and it is going better. I really hate getting used to a new med, but this one is pretty bearable. I imagine a scan in a month or so will tell the tale.
Staying positive is a challenge for me too. I have gotten into watching soap operas and fun shows like Gilmore Girls. My husband.is partially retired, so when we are in the city, we go to movies or eat out at our favorite places - and we visit family who live there - Minneapolis. At night we get into serial dramas on streaming services. I try not to read anything medical at night.
in the winter, we have been spending the cold months in Florida. That has helped so far. I love the cancer center down there. They are so upbeat.
I follow politics pretty closely, but lately that has been anxiety provoking. I want to get back to more walking. My husband keeps reminding me to keep my posture straight. Some days feel defeating and some days I feel pretty good!
My appetite has been not great, but I seem to always love the sweets. A good casserole always looks good to me too. A hunk of meat or fish just turn me away.
Sending hugs to those awaiting scans or results. It is a day by day process, this walk we walk, isn’t it? I get in bed at night, snuggle into my pillow, smile and think that I am healed. Thinking positive! If I feel troubled, I pray for my loved ones and the problems they face. It is the best I can do. Bless each one of you. Our challenges are only different than the challenges of others. I am so glad we have each other to talk to.
gigil
Re: My Husband, My Life, My Love, My Family, My Cancer
Carol, good thinking to review your trust. I should too. And I need to look into getting a DNR for a fella friend I help.
Scans monday. Bone scan shows nothing new. Yay. Still waiting on ct report.
The weather is starting to get Scarry. Heat hadn't been too bad here. But the humidity is too too much for me. I just realized it's one of my meds SE. We've been getting rain all spring. Downpours. Flooding isn't too bad, usually.
gailmary
Re: My Husband, My Life, My Love, My Family, My Cancer
Another Seattleite here. No AC and it seems like 1000 degrees out there. Going lake swimming today
AJ
Re: My Husband, My Life, My Love, My Family, My Cancer
Seconding three tree on the heat wave. I’m among the many in Seattle without air conditioning and the fan barely cuts it. I instantly remembered what “close” feels like. I’m working hard to stay hydrated.
wren44
Re: My Husband, My Life, My Love, My Family, My Cancer
I've spent the last few months reading everyone's stories here, from their first posts to sometimes their last, sometimes their disappearance, sometimes their ongoing lives. I'm a writer (as we all are here), so I'm truly engaged in reading these stories, especially as my own fate is unfolding. Sometimes these stories are comforting, sometimes hair-raising. All are memorable. I was deeply touched by those we've lost here, a woman whose little dog chased butterflies in her garden, a singer who wrote for a French opera magazine, a wit who rewrote the words to Huey Lewis's "I Want a New Drug," and so many many more. Their lives are remembered here. Mothers and grandmothers and men and single women and lesbians and worried husbands and army veterans and teachers and businesspeople. Young and old. Rich and poor. People from all over the world talking to one another not just about breast cancer research but about their suddenly altered lives. I was amazed to find that some 115 people posting here right now have survived past 5 years, about half of those over 7, a good number over 10. Many people I read about lost their lives after a mighty struggle of 5, 8, 10, 12 years. The numbers here are far better than the reported statistics. And many were lost, cut down, facing much pain and heart-ache, some writing about their final moments here. I have to think that the community you have created here has helped people immensely, whether psychologically or physically or both.
tougholdcrow
Re: Starting Radiation October 2019
petite1: Glad your trip to Lake Wales was good. One day I'll explore central FL.
mocame: It's okay to vent since we both understand what you are going through. Sorry about your experiences with Ebay. I couldn't sell anything but I guess that's better than selling and then having to offer refunds and deal with post office and that stuff all the time. The thing I hate worse than that is taking all the photos and then uploading them so that the buyer can see all angles. I know you are frustrated with you taking all those photos and the people decide it's not what they want.
I so would love to retire. I'm still thinking seriously about selling my house. I am so worried that something will go wrong when I'm gone. And, I'm paying mortgage for most of the year and I'm not even able to live there. Not sure where I'll go though. I'd like to keep FL as my home base—whatever that means.
kamboka
Re: Bone Mets Thread
Hello beautiful friends. I finally then with the radiation I only have some tiredness and doctor thinks everything went well, I’ll have MRI on August for confirmation.
My insurance denied Enhertu as first line IV chemotherapy, onc decide to put me on GemCarbo, anyone had or have this combo? Side effects?? Positive stories??? Thanks 🙏
Sending you big hugs 🤗
Re: My Husband, My Life, My Love, My Family, My Cancer
goldens Love the fun facts! Wow good for your sil, my brain stinks anymore with concentrating on reading. Short spurts and word puzzles to keep my brain somewhat sharp lol.
I definitely can't live without AC! As much as I would rather be in fresh air the humidity is just overwhelming at times. Plus my body doesn't regulate the heat the way it used to.
gailmary Happy to hear bone scan looked good, fingers crossed for CT!!
Mara Love the election post, make me chuckle…so true!. I
Carol Looking forward to your next blog always love your titles too. You have a gift to express your thoughts. Hope you are feeling ok.
sfcakes Hope the probiotic is helping.
Tanya Hope this is a better week for you and your mouth is healing well.
Well I'm back to limbo but better than a definite bone met. CT shows mixed lesion on T-3, PET and MR it's not demonstrated. So we play the wait and see game until next CT in Sept. Will try to just enjoy the summer and put progression thoughts aside.
Hi to all here and in everyone's pocket for all needs this week and always. Hugs.
cookie54