Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
I get it, threetree. One would think that after all the scans we have (me 6+ years at scans every 3-4 months), we would have LESS anxiety. But, for me, it is the opposite, as I think "sometime I am going to get worse" and "is this the time?". Thinking of you now. ❤️
Re: My Husband, My Life, My Love, My Family, My Cancer
Thanks so much, Mel. I know everyone here gets it, so I unload here of course. If I could join you in magic wanding everyone here, I sure would! It's what we all need. Hug back.
Re: My Husband, My Life, My Love, My Family, My Cancer
Getting some serious scanxiety here, as Monday is my day. I just hate this part of it all and have no real way to handle it. I think it gets worse each time, because I feel like, as time goes by, the odds that I'll have a bad scan go up. I suppose there's an equal argument the other way, but my brain can't find it.
Re: Ibrance (Palbociclib)
@Greatly blessed we understand ! DivineMrsM gave you good advice. I have scans on Wednesday June 5th so we are in this boat together. You've had stable disease for 40 cycles which is really great and is a good indication that your scans will be fine. However , I also get scan anxiety every time. I'm in your pocket , let us know how it goes .
@brutersmom - sorry about your stressful week and wonky blood test results ! I agree with your assessment that they aren't too far off "normal". Your anc is honestly great but I can't remember how long you've been off ibrance or if this was after 1 week off ? My urea nitrogen is often slightly high if I have had a lot of coffee and not enough water at the time of testing (so I appear dehydrated).
I came down with Covid last Tuesday . Maybe Monday ? Thought I was getting allergies …nope! Hit me like a ton of bricks . I'm on my off ibrance week so have literally been in bed for days. My oncologist called in paxlovid . Last night i started feeling much better. They are keeping my scan appts for Wednesday June 1 but I am to double mask (need clarification on this - double n95 or double surgical ? I don't think I can breath through my n95 if doubled ?) .
Hope all have a good weekend!
Re: Breaking Research News from sources other than Breastcancer.org
Morrigan - Thanks for more details re your situation and knowledge of these vaccines. I'm trying to keep something of an eye on what's going on with them.
Zen - I agree that even if some of us aren't able to benefit, it will be really nice to have something for those down the road. When Bio n Tech created their Covid vaccine, they said they also had some breast cancer things in the works that might be ready in 3-5 years. Well, that was about 3 years ago now, so I'm watching for more from them. I did see where the NHS vaccine being tested (noted in the post a couple/few above this) is connected to Bio n Tech in some way, but apparently breast cancer is not involved at this point.
Re: Breaking Research News from sources other than Breastcancer.org
"How did your trial work out! It's my understanding that the vaccines being touted these days are for triple negative and nothing for ER positive, but not totally sure. "
So far, so good. I'm 4 years out from my DMX and 2 years out from completing the trial. It was a Phase 2 trial, only 115 participants and obviously still early in the cycle, the intention was as a prevention for recurrence, not prevention for cancer at all.
My understanding is the preliminary data is very promising but, nothing has been published yet (probably in 2-3 years).
The vaccine target HER2+ breast cancer, there are quite a few vaccines in trial for Triple Negative and HER2+ but, I do agree I haven't seen much for ER+/HER-
Re: Breaking Research News from sources other than Breastcancer.org
Just saw this today…so exciting…feels like so close…
zen1028
Re: Breaking Research News from sources other than Breastcancer.org
Just hoping we have "something" out in the next 5 yrs. Not just for us but all that could be impacted in the future.
zen1028
Re: Breaking Research News from sources other than Breastcancer.org
How did your trial work out! It's my understanding that the vaccines being touted these days are for triple negative and nothing for ER positive, but not totally sure. I asked my oncologist if he thought a viable vaccine would be out there fairly soon, i.e. at a point where it could benefit me, not to mention others, and he cautioned me not to get my hopes up too much, but then added that sometimes things can change rapidly. Just more luck of the draw I guess.
Re: Breaking Research News from sources other than Breastcancer.org
There are several vaccines in clinical trials in the US for Breast Cancer, HER2+ in particular.
I participated in a trial for DC1 Vaccine, which sounds similar, they took my WBC and combined them with DC1 with the intent of teaching my immune system to target any cancer cells