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The tests seem neverending
Hi all. I've been on a breast "journey" for almost 2 years. I've had more mammograms and ultrasounds than I can count and it seems like they find something(s) new every time. I just had an MRI and it found even more areas that they want looked at again. It feels like I'm swimming in a sea of tests with no answers.
Does anyone have any suggestions on ways to distract myself while I go through this chain of appointments? I'm not super health anxious overall but it's getting stressful never having answers, only more questions. I'm sure some of you understand. Thanks!
cozyrad
Re: De Novo Stage IV
I just started a new discussion because I have 14 bras to donate. I was asked to give them away after my friend's mom passed.
I posted on a few of my Facebook support groups, and received only a few replies.
However, did anyone hear of STOMP? It is a site for donating mastectomy supplies that are no longer needed!!!!!! And I was also told about a site that will take used meds. I had a bottle of Lynparza that I had let expire since I didn't know what to do with them.
Anyway, I joined STOMP "Sisters of the Traveling Mastectomy Products", and am so excited. I used to run a large BC support group locally and have gotten so many donations, but didn't know what to do with them.
Denise
denny123
Re: My Husband, My Life, My Love, My Family, My Cancer
Happy birthday Goldens!
Tanya, I hope you're feeling better.
I'm sorry the triage nurse couldn't give you any new advice. Sometimes the status quo just isn't that great. Hugs.
Sondra, some days it's just okay to take a down day and stay in bed.
Two scans today, and I had to be up earlier than usual, so I'm pretty wiped out. I have the MRI results already and there are some new terms in it. I'm hoping the PET-CT results are clearer. I see my MO next Tuesday to go over them. Actually, this should 1be my first appt with his new PA, so we'll see how that goes.
seeq
Re: My Husband, My Life, My Love, My Family, My Cancer
Happy birthday, goldens! I hope it's a nice quiet, restful day.
Funny about the fatigue. My DH also noticed it and my DS commented that she could tell before my most recent progression that something was different.
Quiet day planned. Ordered some food (staples) from Amazon so I need to put that stuff away. I like the mini-saltines and get them in a pack of six. They're nice for my you-never-know-how-this-is-going-to-go-down stomach. I also ordered some precooked organic Jasmine rice. 60 seconds in the microwave and it's ready to eat.
My mouth has that mild feeling it gets when I eat too much fresh pineapple. I think it's the new med, Afinitor, but the dexamethasone mouthwash seems to help.
Carol
Re: My Husband, My Life, My Love, My Family, My Cancer
Happy Birthday Goldens.
So, I thought I would call the triage nurse since I almost passed out and was dizzy for about five minutes which has been getting worse lately. I was hoping she had some helpful words. But she said basically (my wording) because of all the crap I am taking this is going to happen and I am probably going to get worse. I am supposed to monitor myself, make sure I eat and drink water, and let my PCP know when I see him in two weeks—two days before I see my MO. So no help at all. She was telling me all the stuff I know since I have been going through this for the past eight years, but I was a little hopeful. My bad. I am not sure what I was hoping for, but should have known better. My blood sugar is good. My BP goes from high to normal within just a few minutes, and my bloodwork is "stable" in her words. So like the rest of you I just need to accept all this and let it ride. I am a "fixer" so this goes against my normal grain, but perhaps I am just having a bad week and just need to find a hole to crawl into. I just hate to keep scaring my family…
Re: The tests seem neverending
im newly diagnosed stage one. My MRI last week showed larger area than US and Mamo showed. I'm learning quickly that there are twists and turns with these journeys as more info is gathered. I guess I'm trying to be greatful that we now have tech avail to really see what's going on in order to formulate the best plan. Better to be safe. If you've not had a biopsy before it's not bad. I had 4 spots checked same time. I wish you an easy time and yes distraction is key during these difficult days. My thoughts are with you.
Re: Can we have a forum for "older" people with bc?
I had my infusion today with no problems, now hope no side effects - watch for blood in urine, stool, nosebleeds. My counselor met with me during the infusion so the time went by quickly
Re: So...whats for dinner?
What's more fun………..The main route to Phoenix has a fire burning nearby the highway. Tomorrow, a Type 1 incident management team (Type 1 teams are reserved for the most complicated incidents) will take over the management of the fire fighting efforts, so this fire is expected to be "uh-oh".
The secondary route has road closures due to blasting operations related to replacing a bridge, so traffic is being rerouted around the site via a road…..that is currently closed due to fires.
The third route just reopened after the fire moved far enough away from the roadway.
The 4th route is an extra 6 hours drive time…but there's a fire along that route as well.
I got some "on my own" tickets to fly to Phoenix from Show Low and I'll spend the night at a friend's house. The plane holds four passengers, the pilot and the co-pilot. The last time I "flew", about 15 minutes after the plane was to take off, the gate crew showed up and told us the flight was canceled. They got a bus from Phoenix to take us to the Phoenix airport. wait 4 hours for the bus, then ride for 4 hours…but there are the potential road closures.
Hopefully I won't have yet another 'war story'. :-)
eric95us
Re: how about drinking?
Good Morning, Loungettes! Happy Twofer Tuesday! I am definitely doubling up on the water intake today. It's currently 84 degrees, with a heat index to 96 due to the heat index of 66% and dew point of 72 degrees. Just plain yuck. Even the puppers are just laying around snoozing and doing nothing. Still, it's better than what my brother and his wife are dealing with today, currently 88, heat index of 100 with 69% humidity and a 76 degree dew point. They've got a heat advisory on for their area.
Carole--it's possible to have normal bone density and bone or joint deterioration simultaneously. Deterioration is the wearing and damage done by use/overuse/arthritis/injury, can and does occur with normal bone density. Low density bone deteriorates more quickly than normal density bone under stress. Good idea to start the back pain exercises as early as possible. Mom has had back issues as long as I can remember, and when she could get down on the floor and do them she managed much better.
Karen--arrgh, hate it when losing something that way! I've got bunions, too, and I hear you about them hurting when wearing shoes. I wear sandals and crocks or crock-type shoes except for dressy times, and that helps. I hope you can avoid surgery, or if not, recover very quickly. I'm glad to hear 68 is still young, I've been feeling a bit old since I retired, and I'm only 65!
Morning, Carole!
Toes in the Sand
Ingredients
- 3 oz Aged Rum (we used Cruzan Aged Dark Rum)
- 1/2 c Guava Nectar
- 1/2 c Pineapple Juice
- 1/4 c Club Soda
- Coconut Water (for ice cubes)
- Freshly Ground Nutmeg (optional)
- Pineapple Chunks (for garnish)
Instructions
- Pour coconut water into a mini ice tray and freeze until the cubes are hardened.
- Fill a mason jar with the coconut ice cubes.
- Shake all ingredients together in a cocktail shaker, then pour into the mason jar over the coconut ice cubes.
- Sprinkle with freshly ground nutmeg, them garnish with a pineapple cube and a pineapple frond.
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Re: Thickening on breast/upper chest, nothing seen on mammo or u/s
my new pcp did order the mri, bless her, today
My thickened areas ansand nipple changes with arm movement worried her I think.
Just need ins to auth the mri 🙏🙏
knit_wit