Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 It's funny you mention planning your funeral. I was thinking about that last night too. I wound up deciding to do nothing-let whoever is grieving me plan it. I may change my mind but that was my mood last night. I imagine my relatives will just be annoyed with all my stuff. None of them are churchy so maybe there won't even be a funeral. I'm slowly trying to get rid of things but then I get new things too. My burial plot is in northern Wisconsin, so if/when I go to hospice, I hope I can do it up there so that my body doesn't have to be transported far. I should at least write out instructions for my SIL who is currently my POA.
Re: My Husband, My Life, My Love, My Family, My Cancer
Belated Happy birthday!
Hope the day included all of the things you love most.
so sorry to hear about your sister but proud of you for taking your power back. I'm also in the accelerated arthritis club and have convinced my MO that the estrogen suppression is a big factor. Fortunately, she agreed to prescribe Celebrex, which helps reduce the pain.
how is your diverticulitis? Just went through my first experience with that and it was miserable. Had to stop Kisqali for a month because of the antibiotics. Everything back on track now, although still more tired than usual. I have been too exhausted to post very often or even read back, but improving in small steps. Surprised to read in your post that @cookie54 is on a clinical trial. How are you cookie?
In pockets for you and @threetrees biopsy results as well as @shanagirl s multiple neck and dental treatments.
Healing thoughts and virtual hugs to all.
Eleanora
eleanora
Re: STEAM ROOM FOR ANGER
@kathrynw1thasea I just wanted to say that it's shitty that all your icing was seemingly undone when that fire alarm happened... I'd be upset too. I have heard from some survivors that neuropathy can fade over time? No idea under what circumstances. I'm starting to feel neuropathy symptoms, which is really scary to me.
Today's vent is hearing about all these coworkers who get to use their paid time off for travel... I have to use mine for treatment days,I am scared to use any more than I have to until I'm done with active treatment. I can't even call in sick if I'm having a bad chemo side effects day, like today. Just feeling sorry for myself, I guess.
kks_11
Re: Are you currently (or have you been) in a Clinical Trial?
Of course! Knowledge is power. I'm not sure how strong I feel since I just faceplanted getting out of an Uber, haha, but thanks for the compliment. We're all pretty damn tough I think to be going through this!
CBL
Re: How are people with liver mets doing?
@vlnrph I am sorry to read about your struggles but understand your decision. I will be praying for your transition and that you and your family will be at peace. Sending extra hugs.
Re: How are people with liver mets doing?
@threetree - congratulations on getting through the biopsy! If I had been stuck in traffic as you were, my anxiety would have been off the charts.
Last month, I spent nearly 2 weeks in the hospital, discharged with a pair of nephrostomy tubes and bags which collect urine. The disease had progressed to peritoneal carcinomatosis. My ureters were being compressed by the tumor which impaired the kidneys’ ability to function.
I’m not pursuing further treatment and will soon be thinking about hospice. My oncologist gave me a 3-6 month prognosis so I need to begin wrapping things up. Otherwise my husband would have too much to handle. Trouble is, I’m already very low on energy…
vlnrph
Re: De Novo Stage IV
Hi Everyone! I had to write to the mods to figure out how to get to our thread. I couldn't remember the title of this thread!
How is everyone and I hope that you can find your way back here.
denny123
Re: Can we have a forum for "older" people with bc?
Cindy, what a frightful thing to come home to. I am thankful for the FD and all they do. Here's hoping your insurance company can get your neighbors to pay.
You all have encouraged me to wear my fitbit and check on my sleep which I am sure is poor, but I probably need proof.
I have a PCP appointment this afternoon. It is with a new doctor. The funny thing is, this is our first originally scheduled "get acquainted" appointment that took four months to get, but I have already seen her twice for quick med checks thanks to my oncologist' request. Strange way of doing things!
Re: Triple Negative Stage IV
@cookie54 I read in another thread your eye issue has resolved itself, but you are going for more tests. Just wanted to send you a great big hug, and lots of light to surround your way forward. ❤️🤗 I know it’s hard when one more thing needs to be looked at, ugh. It’s just the way of it, wishing you trust and patience, and kindness for yourself along the way. We are in your pockets for support.
@scgal08 i know the comments box disappeared for you on this thread.. but thought I’d give it a bump and see if it reappears for you lol.
Navelbine seems to be working, have had 2 of 3 infusions on cycle 1 - yeah team. The Mets are all shrinking a bit, the skin seems to be drying around and on the nodules, which I believe is the healing process . Will see what MOs say, as I see both of them this week, Northwell on Wednesday and then MSK on Friday.
I will miss the Aug 6 zoom though as I will be at infusion, I will be there in spirit. Love to all -Rhonda
Re: Mucinous Carcinoma of the breast
sonia…so there is no confusion….in the body of my post, I explain my primary was 90% ER positive and the recurrence is 100% ER positive. The primary was 50% PR positive. Recurrence, PR negative.
i also had PT for cording following my lumpectomy. I also had a procedure that released my frozen shoulder caused by another, unrelated issue.
Moving forward, I will not be addressing anything else regarding mucinous breast cancer. The reason being, is, as I mentioned before, there are so many gaps with respect to understanding its treatment. As Obsolete suggests, Mucinous should be looked at, as, on a spectrum. And then, there is data. Dealing with a rare subtype, often times, the only way to understand treatments is through meta analysis because there are too few diagnoses to establish statistical significance through randomized studies.
i have discussed at length with my team, my concern regarding the PR negativity, the micropapillary features, and the change from pure mucinous to IDC with Mucinous features. Have I read about the potential negative consequences of being PR negative? Of course. That said, most of the data specifically addresses the traditional types of breast cancer. There is, here and there, very small studies regarding PR negativity and Mucinous breast cancers. Most data is not statistically significant. Recently, I zeroed in on Korean study of mucinous breast cancer recurrences. If I remember correctly, I was scratching my head because two of the four were Luminal A. While the other two, were Luminal B. Again, the data is so sparse, it would be difficult to draw any conclusions….
i will repeat what I have said from the beginning of my journey, for many of us, breast cancer is a very treatable disease. Yesterday, I met with my local medical oncologist. She said, “You had a very small tumor. You had surgery to remove it. You will do well, just like before.”
Hope springs eternal.
carpe diem.