Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@micmel Oh I love that Theo! He is truly living a happy life by his little smile.
@mara51506 Ugh sorry you had belly upset yesterday and had to reschedule. Hope you're feeling better today. In your pocket for getting some mental relief with stable MRI results, fingers crossed.
@candy-678 Ugh this cancer crap and all the lovely SE can really wear a girl down. I'm sorry that your sister has no clue of your world and your feelings. It is so hard to sit back some days and watch or listen to other peoples "normal" world. I'm sure you think as I often do what would I feel like in my 50's in my old body? It crosses my mind then I have to let it go because that's not my reality. We get you and we are always here to listen! Big hugs♥️
@mkestrel Sorry about mixed results, hoping you can wait a bit and see before you change treatment. Either way cancer stinks and I'm waving my magic wand in the air for all here that are on this freaking roller coaster! Hugs.
Doing ok here been busy with getting mil house on the market. Also started the process of looking for a dress for my DD wedding in May. Oh what a job that is…lol Hoping to maintain stable through then and praying I have super strength to get through all the planning etc. Oh how I also miss my super sharp mind I had before all these drugs!
Hi to all here wishing everyone a good day!❣️
cookie54
Re: Side effects from aromatase inhibitor other than joint pain.
I'm so sorry your cancer came back. Hopefully this time they will find a way to help you. When I tried asking my oncologist about the gastro issues, heartburn, belching, etc. he said Anastrozole didn't cause it. I had to do my own research. While the menopause-like issues and joint pain are difficult and potentially even more harmful the longer you take this stuff I'm just really concerned that they don't mention or are even aware about some of the other SE. Seems like they just throw stuff at you and don't give you any real info. I started radiation treatments this week and, although everyone is very nice, I just feel like a piece of meat during the process. I wish they would remember we are not just breast but people with a whole body we have to be concerned about.
july31
Re: Side effects from aromatase inhibitor other than joint pain.
Hi @july31
Thx for posting this new SE thread on anastrozole. The lab is calling me in for tests, but I think it's for a baseline before Verzenio.
I will watch for elevated glucose and potassium.
I started anastrozole last week, and have hot flashes and night sweats already; the shakes. Alot of "gas" and biiiig belches,too.
(sigh) it's really frustrating, because when first dxd in October 2019, after surgery and radiation, I made it only into mid 2020 with the letrozole, then exemestane (severe allergic reaction after three days). I moved, got a new oncologist, was on tamoxifen and got SE from that! It would have been nice, had I have been able to stay on them as directed because in my case, BC came back as stage 4, I just learned, this past month. But who knows, it might not have made any difference at all. There are sooo many stories!Thank you again for your information. It's made me realize that in the least, I should go and ask the pharmacy for a "drug sheet" on this medicine.
Take care, and please keep keep us posted.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mkestrel So sorry to read about your mixed results. I also question the rapid medicine changes and what they really mean. I think I am on my last oral med with Orserdu. I will get my next scan sometime in late November so we shall see how it goes. I am not sure whether I want IV chemo after all I have been through, and I have not had the surgeries and radiation that you have had. I have never had IV chemo. It's so much to think through. My daughter asked the question " what will it gain me?" She is right. This managing cancer stuff is getting old!
Re: My Husband, My Life, My Love, My Family, My Cancer
CT showed a new lesion in the liver but the other two were smaller .. I guess I'll find out Monday if I have to change treatment or what. Kind of discouraged 😕 i know reality of it all but i was hoping to stay stable longer. The ctDNA nosedived after starting Enhertu from 95 to 0.5. now inching up again. Is slow progression really treatment failure though? None of them are cures. I'm tired of changing treatment. I'm also worried about running out of treatment options. I know that happens eventually and it not a good feeling. $&#& cancer ruining everything
In other news, I am attempting to make Tabasco sauce out of some of my peppers. Apparently you let them ferment in salt water for a week and then blend with vinegar. Anyway, a fun project. I need to start more distracting projects and somehow stop thinking about cancer 24/7. I hate it taking over my life.
mkestrel
Re: Radiation recovery
Good morning April,
I am in your pocket this morning too. I was the one who asked if your mother named you April because you were born in April. I hope that after you have the ct scan, tatooing and simulation you will think that it is a cake walk too. As for me staying at THAT hospital overnight for my lung biopsy I refuse to do it. I emailed my doctor last night and told him to find out if an imaging place near me can do it without an overnight stay, or if UCLA Westwood would do it without an overnight stay, of if he could find a pulmonologist from St, John's hospital to do it. I would be willing to stay at St. Johns overnight. He will have to semd an order and scan to the new place, so it looks like I will be in limbo till this gets set up somewhere else. Good luck today Hugs, Kate
Re: Radiation recovery
Hi everyone,I've been off the thread for a few days so I'm trying to catch up.We had 12.5 inches of snow on Sunday.It's mostly melted already though.Kate glad to hear your hanging in there.
BUNKIE I'll be thinking of you next week.
April congrats on the shortened Rads.
My nipple is becoming inverted due to Rads .I asked to see the Doctor today because it's getting a little white film in the crevices of my nipple .The skin seems to be a little raw too.The nurse of course had to intercede first though and told me to use a nipple shield and coat it with this cream.I never got to see the Doc .Kind of made me mad I didn't ask to see the darned nurse.
josie123
Re: Just diagnosed with invasive Lobular Cancer
My surgery date is 11/7/25. Bilateral is a go. I'm feeling quite up and down and trying to fill my days as if they were my last….
Do you think its best to stay overnight in hospital after bilateral mastectomy or just outpatient will be ok. All my home Nurse options are fizzling out. But my husband and 23 yo niece will be on hand. Scared of the sjjjj hitting the fan….
Re: Bone Mets Thread
@radiation_cinderella
Thank you for responding to my questions. I truly appreciate any reply from someone who has been through the same experience.
Thank God, I’m now at home continuing my treatment and keeping up with the antibiotics, but I won’t hide it from you — I’m very worried and keep wondering whether my lungs will return to how they were and if I will truly recover.
Bilateral versus Unilateral Mastectomy!! Please help me decide
Please help! I am unable to decide between bilateral and unilateral Mastectomy. I am flip flopping between the decision everyday. It is an extremely hard decision and one that is completely irreversible. While i want peace of mind, i am also unsure if i want a numb chest for the rest of my life and not be able to feel hugs:(
Diagnosis- Right Breast -DCIS stage 0 with possible invasion. Grade 1 and 2. ER PR positive.