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Faslodex
Just wondering if anyone has experienced this. I have been on faslodex (and Ibrance) for 3 and a half years. I am so fortunate that his combo is still working and don't want to change it. I have always had a couple of side effect days after shots but bearable. Though recently my side effects seem worse. Anyone experience this? It's as if my body (and mind) are just crying out enough is enough!!!!
sorella
Re: Starting Chemo April 2024 Support Thread
@chickenlovva Ugh. I’m so sorry to hear about your diagnosis and upcoming procedure. I can’t imagine how scary this must feel. I’ll be thinking of you and praying lots for minimal pain and anxiety. I hope the treatment goes smoothly and effectively! {{{{Big hugs}}}}
I’m with you all— I love being able to share info, ask questions, and get real answers. And if I just want to talk, I know you all understand. It’s nice to feel not so alone.
I’m waiting for the director of my local breast cancer foundation to call me with a time and place to meet up today. Planning to raid her wig stash and see if I can find something workable. She’s working hard to stand up a chapter in our local area, and what she’s doing is amazing…. I don’t know how she’s doing it all! I’m hoping to somehow volunteer when I’m finished with treatment. I’m sure there are easier ways, but I’ve been wanting to meet some local ladies and make some friends since I moved here a couple of yrs back, but I’m always too busy with work.
Re: foods to get in grocery store
tim tams - a chocolate covered biscuit/cookie loved by most Australians - although there is hot debate about the best way to eat them.😀
Re: My Husband, My Life, My Love, My Family, My Cancer
Good morning all you night owls or early risers. The double lot next door that is not developed has morning glories growing on a vine. Sure wish I could "borrow" a vine and transplant it, but it's a bit too far off the road and into the woods. Worry about spiders and other critters.
In pockets for threetree and intothelight and emac, and all that are in need for support. My pet/ct is June 10th. Not nervous just yet, but I'm sure it'll come over me. The best thing I believe I have advocated for that has helped since diagnosis is the pallative care to work with pain/pain meds. I am not able to do much and as soon as the pain meds kick in, I feel mostly like my old self and have been cleaning and cooking (for others). Still can't shake the GI stuff however, it was not nearly as bad today. Of course all I ate was applesauce, corn flakes with lactose free milk and some home made chicken noodle soup and an apple and small amount of watermelon. I'm with you gals on drinking lots of water. With lots of ice. Man what I'd give for a steak, even if it's just to smell it. lol
Re: My Husband, My Life, My Love, My Family, My Cancer
There were gobblers in my garden wild turkeys... I might have to put up a fence! I put up some hummingbird feeders and they have found it.
I have radiation all next week and then start new med everolimus. I'm nervous about the med side effects. Already started exemestane. I think radiation might be making me tired but it's hard to tell with everything else.
Shanagirl, Irish and everyone else I hope you feel better today.
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl and @threetree We are alike this morning. I am enjoing my morning coffee, reading through these notes, and struggling through my morning SEs of Faslodex. This time my shot site swelled up and was very painful on one side, but not bad on the other. The nurse pushed the meds way too fast! When she was done with the first side and I realized this, I tried to tactfully tell her I do better if she slowed the shot way down, but she only slowed it marginally. She told me beforehand she warmed it up, but that is not enough. Why won't they listen! Next time I am telling the nurse what happened and being very vocal beforehand. I had to change appointment times and got a different nurse than usual… I should have known but it shouldn't matter! Arghh!
Today is supposed to hit the mid-eighties…warm for Colorado, but happens every year. Had a lovely visit with BIL's family yesterday and even went out to lunch. It is nice to have good days even in the midst of the pain.
Thinking of everyone here and the challenges next week brings.
Re: My Husband, My Life, My Love, My Family, My Cancer
Oh thats really lovely view there @intolight. What a beautiful place to sit and read or watch the world go by. And Ill take some of that bacon if you don't mind :)
@shanagirl do you think a visit with pallative care services at your hospital would be helpful to manage all the side effects? Seeing everyone else's success I think I may ask for referral tomorrow myself as I am struggling to manage GI, fatigue, and aches and pains, especially as the good anti nausea pill gives me D just like everything else. Ive got pain management but Im not sure the difference, so perhaps a new perspective would be good. Its just tough to be miserable every 12 hours waiting for this or that pill combination to kick in, surely there must be a better way!
I woke up craving a lamb samosa (I know I know…) so sent hubs to the Tube station newsagent to pick one +a veg up and the new Tatler issue. It sounds weird but the shop owner's mom makes them and biriyanis and other Indian options fresh and packages them up in the chiller section so they are gen-u-wine Indian food and so good. That + an entire Coke (it was sunny and warm today finally) = bad bad BAD idea. I think it made me more achy the rest of the day but it was tasty going down! Im now having fruit and yogurt for dinner and packing carrot stix and hummous, maybe half a pb&j for the hospital tomorrow. I can't eat another damn hospital sandwich.
Infusion 4/6 tomorrow and another Phesgo. Im going to have to ask for a better anti-D than Immodium, does one even exist?
Big cheers /fluffy pom pom action waving around from a seated position for everyone nervously heading in for scans this week. You can do it!
sondraf
Re: FAST Foward radiation treatment schedule option
@pearlyeve I hope you're doing well and you have likely finished your treatments by now. My last one is this Monday, it's gone really well - so far 😀 I'm off work right now and am grateful for the daily routine the hospital visits bring and am indulging in lots of rest.
I too am a bit worried about the swelling that comes and goes in my hand and lower arm, I'm trying to figure out what brings it on. Cording seems to be lessening but is now stubbornly in my hand.
Yes, I totally love birds and have spent many hours in my backyard (in the city) enjoying the spring migration. Take good care, would love to hear how you're doing.
birdlife
Re: Ibrance (Palbociclib)
Aprilgirl, so sorry to hear that you have covid! Glad that your team got you the paxlovid, I think with our systems dealing with all the meds we're on, particularly the hit that Ibrance gives to our WBC, paxlovid is a very good idea. Hope you continue to recover ❤️
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
Sf-cakes sorry to read of your latest struggles. DH cooked bacon and eggs on the outdoor grill this morning and we ate our first meal on the new deck. I will pay for the rich food soon I'm sure, but we really enjoyed it. Sorry for those who are struggling with food issues...and no, I couldn't finish it…
The second pic is our viewfrom the deck.