Best Of

Hi everyone, it’s been awhile, not sure how long but I just realized I haven’t logged in for some time, I somehow forgot.

Micmel, I love an occasional root beer but I have trouble with the bubbles too and often can’t finish it.

Several months ago I bought tickets to a music festival in California and it’s finally almost here. I’m driving to El Paso for treatment on Thursday, then flying out immediately after. The fest is on Saturday, then my bff and I are spending Sunday in our hometown of Huntington Beach with another friend from school. Looking forward to the fest, my favorite foods and a dip in the cold Pacific Ocean.

You all already know I can pack like a champ and this time is no exception, I even found room for a hat, crossbody purse, water bottle and travel cocktail kit in addition to the clothes, swimsuit and sandals in my backpack.

Good morning all you night owls or early risers. The double lot next door that is not developed has morning glories growing on a vine. Sure wish I could "borrow" a vine and transplant it, but it's a bit too far off the road and into the woods. Worry about spiders and other critters.

In pockets for threetree and intothelight and emac, and all that are in need for support. My pet/ct is June 10th. Not nervous just yet, but I'm sure it'll come over me. The best thing I believe I have advocated for that has helped since diagnosis is the pallative care to work with pain/pain meds. I am not able to do much and as soon as the pain meds kick in, I feel mostly like my old self and have been cleaning and cooking (for others). Still can't shake the GI stuff however, it was not nearly as bad today. Of course all I ate was applesauce, corn flakes with lactose free milk and some home made chicken noodle soup and an apple and small amount of watermelon. I'm with you gals on drinking lots of water. With lots of ice. Man what I'd give for a steak, even if it's just to smell it. lol

There were gobblers in my garden wild turkeys... I might have to put up a fence! I put up some hummingbird feeders and they have found it.

I have radiation all next week and then start new med everolimus. I'm nervous about the med side effects. Already started exemestane. I think radiation might be making me tired but it's hard to tell with everything else.

Shanagirl, Irish and everyone else I hope you feel better today.

@shanagirl and @threetree We are alike this morning. I am enjoing my morning coffee, reading through these notes, and struggling through my morning SEs of Faslodex. This time my shot site swelled up and was very painful on one side, but not bad on the other. The nurse pushed the meds way too fast! When she was done with the first side and I realized this, I tried to tactfully tell her I do better if she slowed the shot way down, but she only slowed it marginally. She told me beforehand she warmed it up, but that is not enough. Why won't they listen! Next time I am telling the nurse what happened and being very vocal beforehand. I had to change appointment times and got a different nurse than usual… I should have known but it shouldn't matter! Arghh!

Today is supposed to hit the mid-eighties…warm for Colorado, but happens every year. Had a lovely visit with BIL's family yesterday and even went out to lunch. It is nice to have good days even in the midst of the pain.

Thinking of everyone here and the challenges next week brings.

Oh thats really lovely view there @intolight. What a beautiful place to sit and read or watch the world go by. And Ill take some of that bacon if you don't mind :)

@shanagirl do you think a visit with pallative care services at your hospital would be helpful to manage all the side effects? Seeing everyone else's success I think I may ask for referral tomorrow myself as I am struggling to manage GI, fatigue, and aches and pains, especially as the good anti nausea pill gives me D just like everything else. Ive got pain management but Im not sure the difference, so perhaps a new perspective would be good. Its just tough to be miserable every 12 hours waiting for this or that pill combination to kick in, surely there must be a better way!

I woke up craving a lamb samosa (I know I know…) so sent hubs to the Tube station newsagent to pick one +a veg up and the new Tatler issue. It sounds weird but the shop owner's mom makes them and biriyanis and other Indian options fresh and packages them up in the chiller section so they are gen-u-wine Indian food and so good. That + an entire Coke (it was sunny and warm today finally) = bad bad BAD idea. I think it made me more achy the rest of the day but it was tasty going down! Im now having fruit and yogurt for dinner and packing carrot stix and hummous, maybe half a pb&j for the hospital tomorrow. I can't eat another damn hospital sandwich.

Infusion 4/6 tomorrow and another Phesgo. Im going to have to ask for a better anti-D than Immodium, does one even exist?

Big cheers /fluffy pom pom action waving around from a seated position for everyone nervously heading in for scans this week. You can do it!