Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@eleanora Glad to see ya and glad you’re feeling better! Hmm I’m not on a clinical trial must be a mixup. Thanks for asking, I’m ok. Trying to enjoy the summer since here we are in August!May you continue to improve and never deal with diverticulitis again!
@goldensrbest Happy belated birthday to you! Hope you had a nice day celebrating you. I know what ya mean about mixed emotions with each birthday and milestone. Hugs
@irishlove I’m speechless that your sister would act this way. I’m sorry that must have really broke your heart. With you dealing with the effects of two diseases I have no idea how she came to her conclusions. Keep on doing you and focus on getting some pain relief. In your pocket for MR this week.❤️
@intolight @threetree Agree with meds and various therapies our eyes take a beating too. So far hasn’t happened again, fingers crossed.
@mara51506 I hope you get back to walking its so good for our mental health too. Since the humidity has dropped I have been trying to take advantage of it to walk.Looking forward to walking in the Fall.
Hi to all here, thinking of many here❌⭕️
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove I am so sorry that your sister has withdrawn her support, that is so hard to hear. To say you are on opiods getting relief means she does not understand. Hugging you from here and in your pocket. I am glad you got out and glad you are enjoying the FACTOR meals, may need to look at the recipes and replicate some of those.
I am debating a walk, want to start training to walk at least one way to the mall, I miss the long distance walking I was doing even from the start of this disease, used to walk while my brain was swollen as well. I could probably start with the walk to my favourite burger joint, sit down for lunch or dinner and get home well, bring my neck fan and other cooling supplies though it is not that hot. The burger joint is about a half hour each way. The mall will need to be a different route due to road construction for a bus rapid transit system. I just have to actually get around to doing it.
Laundry is on the agenda, decided to get rid of the skorts I purchased as I hate them. Another purchase not needed, sticking with the stretchy yoga points. I do like the Tshirts I purchased, pink and light blue which is great and I have both pair of black capris. I have an older pair of black capris as well.
Budget boosting through mobile games is profitable as well, will be ordering 10.97 peanut butter for 1.97 with the gift cards earned on various sites. This may be the way to get stuff that is wanted vs needed and save some money too. I ordered some kraft caesar dressing with bacon, both from Amazon, both less expensive which is good. Paid 4.00 for two bottles of dressing and the peanut butter as well, coming tomorrow.
I don't know what I am having yet, need beans and rice, might throw in eggs as well but not too sure. I know I plan to add some of the garlic mayo or garlic parm while water heating up, give some flavour, option two could be queso with the rice.
Decided on an easy one, made up 1/3 cup of rice which I added garlic and parm mayo, will chop 1\3 cup black beans and cheese dump in the frypan, was debating baking cheese on top but decided to just chop cheese into beans, add some queso to the frypan, heat a couple of minutes and turn it off. Quicker and they taste just as good. It is heavily garlic and will use some sour cream in there as well. Used up mcdonalds garlic mayo style sauce in there as well. Will let it sit on a burner that was high but turned off with lid for all flavours to get in there. I don't think there is anything else to add but a little sour cream to give some zing and salt. The rice and beans with cheese done up as above was delicious by the way. I also crumbled some queso flavoured chips as well, filled me up and I had a chocolate bar. Yummy.
Other than that, earn some more on the games if I want to buy other stuff. I hope all have a good day, for those struggling, I am in your pocket if you need me and in everyone's pocket as well.
Re: Ibrance (Palbociclib)
@brutersmom you're absolutely right. My Oncologist just repeating over and over again how the PET-SCAN didn't find anything, and for that reason we've nothing to worry about. How, "You know, Cancer never comes noisily, it comes quietly. So i dont think theres anything to worry about. This is most likely something else." But I just wasn't buying it. And, here we are. You're definitely my kind of girl when it comes to switching doctors because I feel they aren't meeting my needs. Thanks so much for your moral boosting words. I'm still mulling on how to deal with all this but I'll keep y'all posted. Love, hugs and blessings to you ❤️ 🤗
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
My Oncologist just repeating over and over again how the PET-SCAN didn't find anything, and for that reason we've nothing to worry about. How, "You know, Cancer never comes noisily, it comes quietly. So i dont think theres anything to worry about. This is most likely something else." But I just wasn't buying it.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
After persistently telling my Oncologist I was feeling some activity in my left breast, where my tumours were found at metastatis in 2020, I opted to get a breast surgeon to give me a referral for a mammogram and Ultrasound. I was right coz they discovered a 0.5cm lesion. Upon further investigation via an MRI, three more wre seen, in the same breast, plus the original 3 metastases lesions originally seen in the liver, and which PET-SCANS of 2024, and April 2025 did not see. So I guess a biopsy is next. I'll know for sure when I discuss this outcome with the Oncologist plus a second opinion.
The moral of my story......always follow your gut instinct. And if the doctor of whatever specialisation isn't listening, go to someone who will listen. Having said that, I really wonder if doctors ever stop to listen to their patients?? Do they know how to listen when the patient, the owner of the body they are treating, actually opens their mouth to speak? Is there any part of their training that teaches them to listen? Or do they all have tunnel vision? Too often, they outrightly dismiss a development that cannot be explained by their book learning or personal experience with other patients. FYI, im good, I'm moving on to the next treatment step. I've no anger because this happens anyway. Medications do stop being effective at some point.
@kbl Many thanks to you. It was from your story of 6 years missed diagnosis where I learnt that PET-SCANS are not the be all and end all in breast cancer diagnosis. That sometimes the PET-SCAN will actually miss to see the cancer and then the MRI spots what the PET-SCAN missed. Your cancer journey is a testimoney and learning point for all of us. Sending my love prayers and hugs to you.💖💖🫂🫂🙏🏻🙏🏻
Re: Stage IV MBC Fitness
@olma61 - I absolutely love the story about your grandson! So sweet. I wish I had something similar in my life. I've never tried machines except for a treadmill once in a blue moon. Your Gazelle Glider sounds interesting and very useful. So do the hand buoys in the water. It's so good that you just really stay on all of this.
@gailmary - So glad to read that you got a good walk in. That's the kind I think are good too, those ones that are a good 2-3 miles.
@tougholdcrow - Thanks so much for the sympathies - they are very appreciated. I think things are finally improving. It will be a week tomorrow since they "did the deed". I tried walking that day after, but it didn't go well at all, so I've stayed in for days. Just yesterday, I did venture over to the grocery store, as it's only 1.5 blocks. That worked out so well yesterday morning that I went back again in the afternoon. I figure it gave me 1/2 mile total for the day 😉. When I get done here with my tea and reading, I am going to go out and try a real walk again. There's an almost totally flat area in the residential neighborhood nearby that makes for a good 1.5 - 2.0 mile loop, and I think I'll give that a go. I normally find it "too easy" and not as long as I like, but it's perfect for times when I'm not feeling quite up to my normal self. If this goes well, I'll try a bit more tomorrow.
So many swimmers here! Good for you. I just can't get myself to go through all the finding a bathing suit, driving to a pool, clothing changes, showers, etc. that seems to go along with a pool visit. I'm glad that it might be unique to me, and that most people aren't bothered by it. I think actually being in the water is great. If I could just snap my fingers and have that part of it, I'd do it too.
Re: Can we have a forum for "older" people with bc?
Betrayal, beautiful flowers and pictures. They show your dedication. My watch showed me 5.5 hours of deep sleep, 1.5 hours light sleep and 18 min of Rem. Of course I took a sleeping pill first. It is a whole different story with no help.
Re: Birads 5 with calcification
@scaredme I just wanted to check in and share an update with my girls. I got a call from my radiation oncologist today, and I’m so relieved and grateful to say that the PET scan results were good. The cancer hasn’t spread beyond my breast. On top of that, my genetic test also came back clear, it’s not hereditary.
I truly can’t thank you all enough for keeping me in your thoughts. Your support means more to me than words can express.
Let the fight begin 🥊