Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Shitty start to the day, when I got up, the fridge door was open, freezer works but fridge is not working at all. I know I did not leave it open but the seal must've broke. Phoned property manager but am forced to toss out everything in the fridge, it is all warm and the butter was gross. Have to wait for repairs and toss everything in the garbage. Freezer does work. Will need to subside with what was in the freezer and wait to shop until I know when they coming. I am disappointed but what can I do, had a few tears and then shut them off. I hope the PM is coming today.
Other thing bothering me, won't be seeing DB or SIL in the near future due to OT and then they are going away. I have to let it go, they are not obliged to make plans to include me. I will need to take care of myself which I can do. We don't talk on the phone either so it will be just me.
Thinking best stuff I can make from freezer are ramen and peppers, use dry seasonings with them. I still have garlic mayo and garlic parm mayo but not opening until I have a fridge that works.
Anyway, hope all have a good day, I will be sulking a bit. Oh, I did pull out a leftover from the freezer of a burger, it was not very good even after baking it.
Re: Birads 5 with calcification
Pet scan results are on the portal 😭😭 I’m soooooo scared to look at them. I’m panicking so bad. Idk what to do. I don’t want to know. This is so hard. Lord, why me.
Re: How are people with liver mets doing?
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
Hi. My grandson came right out and asked my daughter today if I’m going to die. This little human is the most smart boy. He knows he’s coming back for a few days and is excited. He is handling it well right now, but that he asked makes me so amazed. He can ask me anything. My heart is full. 💕
kbl
Re: My Husband, My Life, My Love, My Family, My Cancer
@chicagoan, I have not seen them in over a month. If DB is working 12 hour days, I can definitely understand just being too tired and their anniversary is coming up in August. Though I am disappointed it is what it is, same as the fridge. Tossing everything out that was in the fridge, triple bagging and keeping in the container out back. No point whining, the building will repair when they choose too I guess. I cannot keep worrying about that. Tonight going to order the McDouble and Junior Chicken and decide how to handle other meals as you lose alot without the mayo or sour cream etc and unable to open queso either. Ramen will have to do.
Re: HIgh ALP and very concerned. Please help
Hi Rsviigs! Technically letrozole doesn't cause bone loss. It's the lack of estrogen that letrozole causes that can cause bone loss :) So, you're right. This is probably menopause. In fact, since I have made the original post I have seen numerous people talking about high ALP. None of them have had bone mets. It's been just aging bones every time. Some facts to keep you calm as you figure out with your doctor how you want to proceed is looking at your first dexa scan before you started taking letrozole. How were your bones then? Mine said I would have had osteopenia if I had been over 50. Secondly, is your calcium normal and not elevated? Bone loss caused by mets will lots of time cause elevated calcium levels. Thirdly how elevated is your ALP? If it's not two times the normal limit (for my hospital that would be above 220) then my doctor doesn't worry about it. Anyway I'm so sorry about this but I have learned that the one constant thing it seems after cancer is for everyone to jump at every little thing in our blood work. And a lot of time we have little things because we're still human and the body can be quirky occasionally. But the vast majority of the time there is nothing to worry about.
Re: I was just now dx with skin mets
@rlschaller Hi Rhonda. It is the case of the disappeared comments box over in the other group. Still not resolved.
I had a CT yesterday and completed the fourth Trodelvy cycle this morning. Will see what happens next when I see my MO next week. I'm worried that it will already be the end of Trodelvy as the skin mets just keep on coming. A familiar scenario for you! The CT results are not up yet on the patient portal. The latter is a blessing and a curse, given that you can see your results well ahead of getting the doctor's take on them.
Let's hope that Navelbine does what it's supposed to do, and treats you gently. My skin mets did not break the skin so haven't had to dry up. Thank heaven for small mercies(?).
How are you doing overall? Are you still going about daily life much as before? It's quite admirable that you are able to continue working throughout this time.
@tbos805 Hello and welcome. Wishing you all the best, especially in regard to your ongoing skin situation. I have bone mets too, one of BC's favourite tricks.
scgal08
Re: Birads 5 with calcification
@scaredme I’ve been trying to remind myself that worrying won’t change the outcome, it just adds more stress to everything else I’m already dealing with. Easier said than done, though.
The mental rabbit holes are brutal, especially at night. I’ve convinced myself I have every type of metastasis imaginable. Breathing issues? Must be lung mets. Leg pain? Femur mets. Headaches? Brain mets. Back pain? Spine. Nausea? Liver. 😭😭
Honestly, I feel like if the PET scan comes back clean, half these symptoms might just vanish. I even convinced myself I was losing weight… then I stepped on the scale and turns out, I’d gained. Just like you said, it’s wild how powerful the mind is.
Cancer messes with everything, even normal emotions. It’s like it rewires your instincts. And I know that even if I beat this, life won’t go back to what it was. A simple cold will probably send me into panic mode.
I also feel like if I had the energy to actually get out of bed, I wouldn’t be spiraling this badly. The fatigue is unreal, like my ankles are shackled to the bedposts or something. lol.