Best Of
Re: Can we have a forum for "older" people with bc?
Looks like I missed several celebrations - Congratulations whether it was a birthday, anniversary, or canacerversary - I think that how you put it. Also, Happy Canadian Day, canary cat. Enjoy the fireworks.
Dogs still doing okay although I think they both think we give to much attention to the other. Bella discovered the toy box tonight but they each found something to make them happy. Bella is actually at least 10 lbs. lighter than Mutz but is emerging as the alpha dog. She rushes to get ahead if she falls behind on the walks.
Ken saw cardiologist today and he's putting him on another medication and asked him to consider a Watchman. Don't think he will. The last two times he had a stint put in, he arrested.
Heat is breaking. It will be under 110 for a high for the rest of the week!
Re: IBC lounge: roll call, support and just a good place to hang out
TT, glad to hear your cancers have not come back, I am sorry you developed that disease but glad that your new drug has you on the mend. In your pocket lending support and warm thoughts. I am still cancer free from the neck down, brain shows nothing either other than enhancement which is not indicative of new cancer and the silly blood pool in my head, that has been there a year. Oh well, nothing to worry about for me at this point.
Re: IBC lounge: roll call, support and just a good place to hang out
Hello all. I just thought I'd check in. I'm now 4.5 years out from my IBC adventure and so far, so good. I saw my oncologist last month and he has altered my checkup schedule to only once per year going forward. I'm struggling with joint pain and the never-ending muscle spasms/cramps, plus a dash of lymphedema… but I'm still standing.
TT—I'm sorry to hear of your latest (non-cancerous) diagnosis and I hope you manage OK.
Mara—it's nice to "see" you still doing well.
I hope all the IBCers are doing well. Last year I joined an IBC support group on Facebook that is active with a lot of participants and information. Sad that this place has become practically a ghost town since the "improvements" were made. This was a beacon of hope for me when I was diagnosed but wow, have things changed.
Re: Small breasts and lumpectomy
Thank you for your response. This sounds like a really interesting treatment, but as of yet it's not covered by my insurance. Hopefully more cancer centers will offer it and it will be covered.
Over it already!
At just 33 years old, this feels like a nightmare that won’t end. It’s been over a month since I first discovered the lump, and I’m completely drained, mentally and emotionally. The endless waiting, appointments, needle sticks. it’s all just so overwhelming.
I shared more details in another post, but to sum it up: there’s no history. No family history of breast cancer. No dense or fibrocystic breasts. No past scares. No inverted nipple, no discharge, no dimpling. I don’t smoke, I rarely drink, and I’ve lived a relatively healthy life. There was absolutely nothing that pointed to this happening. Just a girl who found a hard fixed lump and ever since, life has felt like it's spiraling out of control.
I feel like I’ve been dealt the worst possible hand. All the odds were supposedly in my favor: my age, my health history, even the breast reduction I had 12 years ago, which statistically was supposed to reduce my risk. And yet, here I am.
I keep thinking of my grandmother, who was diagnosed with colon cancer in her late 70s. I never saw her cry. She refused treatment and told me, “I’ve lived my life.” But I’m only in my early 30s. How does someone my age come to terms with this kind of diagnosis?
Right now, I’m in that awful waiting phase: trying to find out the type, the stage, the full picture. That part is excruciating. My biggest fear is the stage. The lump is 3.5 cm and located deep, you really have to press to feel it. If it was any smaller, I wouldn’t know it was there. My mind races with questions: How long has it been growing? Has it spread?
Every few days I notice a new symptom: leg cramps, shortness of breath, changes in bowel movements. It’s hard not to fear the worst. People keep telling me it’s unlikely to be stage 4, but I don’t find much comfort in statistics anymore because none of the odds have worked in my favor so far.
Part of me feels angry and devastated at the thought of being diagnosed at stage 4 and not being given a real fighting chance. But the other part is terrified that even if it’s early-stage, I’ll be stuck living in fear, panicking at every new ache or pain, always wondering if or when it will come back.
No matter what, my life has changed forever.
I know this post might come across as negative, and I’m sorry for that. I’m still trying to process everything. I just needed a place to vent, especially to a group of women who truly understand what I’m going through. Lately, I haven’t been getting much support from my family, and it’s been hard to carry this all on my own. I feel as if I’m not even living at this point. I’m waking up everyday just to get through the day and then do it all over again tomorrow.


