Best Of
Re: Starting Chemo August 2025 support thread
Hi kks-rd,
I’m sorry about your setbacks so frustrating I didn’t have any last time but at 58, I could see it happening now.
I agree with you about my misdiagnosis. It was really hard to get anyone to take me seriously I never go to the doctor It’s a lesson in we know our bodies and we know when something isn’t right. I started keynote 522 today, then mastectomy, radiation, 9 rounds of immunotherapy.
I'm also using the penguin cold cap but not sold on it. I’ll post my experience. I would love to read about your experience with chemo. Thank you again for engaging.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Hey there How’s your day going? Your beef bean mix sounds delicious, glad you’re enjoying it! No worries we all get mixed up on our days sometimes . That was sweet of you to call back to say you made a mistake. Most people wouldn’t have, your a sweetheart and thoughtful. Busy week ahead for you with appointments and we will be in your pocket for stable results. Ugh sorry humidity has returned, we are still enjoying some beautiful days in NJ.
Hi to all here , hope your Monday has been smooth so far.
cookie54
Re: I was just now dx with skin mets
RLS, I'm with you, no more looking at those scans on the portal, after ten years MBC I have PTSD about opening any kind of test result with my name on it!!! I just make sure I know what I want to ask, in case the therapy has stopped working.. And thanks for the laugh, Carlin was a clever and kind spirit
Re: Abemaciclib Verzenio for Stage IV
The doctors don’t answer because they honestly don’t know. We are all different. My grandmother was metastatic after almost 30 years of no evidence of disease. She was given 2 years but lasted almost 7. She was on a test drug and took it with Zometa infusions every few months. Sound familiar?
Nobody in the family knows what the pill was, but when she developed dead jaw syndrome from the Zometa, they terminated the pills too. That was about 5 years into her treatment. She had been doing really well up to that point. But the loss of all but 2 teeth and the pain from the necrosis got to be too much for her.
My point is that it wasn’t the cancer that killed her. My hope is that it was an early version of Verzenio or one of the other similar drugs that gave her those 5 good years. I’m grateful for every minute of those days and I hope that it’s doing the same for me. Thankfully I know to be careful about dental work, but it does terrify me and I am looking forward to that last infusion.
Re: Cats, cats, cats
My daughter had a cat that liked bread. She could not leave it on the counter. He would chew through the plastic to eat it. I have only one cat who is interest in my food. He only want meat. Preferably chicken.
Tuna is growing. He and Zorro have become the most unlike pair.
Re: Can we have a forum for "older" people with bc?
Harley, I see it in this neighborhood, too. Their electric wheels are too fast, and they do not wear helmets. Fifteen mph makes me feel so vulnerable and unprotected, even with a helmet.
mcbaker
Re: My Husband, My Life, My Love, My Family, My Cancer
Hey everyone reading, I know it is busy out there. Still going to post. Am in pockets for tests etc and hope to hear results of different tests and treatments going on. I have a CT scan on Saturday afternoon, need to consult about results appointment
I slept pretty well, up earlier which is good. It is very hot and humid but want to don the had and fans and do some walks around a small block later, just need to move my body I think without being too reckless. Use the cooling tools and it should be fine.
I have a bit of laundry to do, will blow dust out of where it is hiding and get it vacuumed up as well. Boring but needs to be done. I left the greasy towel which had been soaked in baking powder first to absorb the grease and then put in the wash with a microscopic amount of dish soap. I will rinse that out and just do a normal laundry on it. I have a washer going and the smallest washer going after clearing some dirt, the cloth needs a wash. Tigger my cat is overseeing the wash, he loves sitting on the washer since it is warm. I decided to move the bulk of the small washers in the tub, I keep them flattened and the connector flipped up and it makes the linen closet look neater.
Food today will feature the wonderful bean, rice and beef mix I made up yesterday but involve eggs along the way or quesadilla of the mix. I am thinking a good amount of cheese added to it would be good. I am happy to have discovered other beans that came with shili sauce, it gives the flavour I am enjoying. The beef is good too but far too greasy, may have to eat the cost of the beefless ground because the grease is something else from the ground beef. I will see about that or buy something that is more lean next time I shop. The mild bean fiesta with mild chipotle is a thing of the past BUT no problem using the spicy stuff and mix it in some sour cream to mild it out. I will post later what I decide to eat.
I do hope people have a good day and in pockets for anyone who needs me.
Edit, just dug out my hospital schedule, busy month or so, echo and CT scan this week. Normal chemo next week then a doctor appointment for results of the CT scan. MO must be confident in my results being normal as well since it is more than a month after the CT. Not going to worry about it because neck down has been stable or NED since 2015 with Herceptin and rads. Then will have my MRI later and see RO, I am not concerned about that either, nothing feels off so I don't the the blood pool is being an issue and brain seems to be fine.. I will be concerned if I am given bad results. I am aware of changes that could happen, sticking with how I feel instead. Cannot afford to add scanxiety for myself because I have to really work at not being so highly strung over stuff. Like today when I checked my mail, I noticed my trash had not been picked up, phoned the city but something told me to double check the schedule. Yesterday I thought was monday. I wondered why my soap was not on so when I saw garbage not picked up and my street was clear, I phoned the city. Once I checked the schedule and date, I felt silly but phoned the city back and admitted my mistake. I did not bring the bags back, leaving them out for the day as it was already a real effort to get them out.
Re: Is it my fault?
Thank you. I am trying to remain positive but on the other hand I'm afraid to be positive because I need to be prepared for the worse. I lost both my parents to cancer so I have seen first hand what this awful thing does to you and I have never been the same since watching that let alone going through it. I can already feel myself appreciating more the simple things and I tell myself that I am thankful for that so there are positives through this if I learn to look at it differently. I am sorry that you to are going through this and yes 50 is young it's not nice at any age it really isn't I think I would just like to feel that I at least got a chance to live most my life. I am still in the waiting for test stage but as of Monday coming now that part will be over thank god it's been hell waiting i really believe like you said when I am having treatment I will feel a bit better more proactive like I'm actually fighting this thing instead of being a sitting duck diagnosing myself with every form of cancer under the sun. Thank you for your kind words and sharing some of your experience with me I am really grateful xx
Re: How long have you been Stage IV?
@livinglifenow Pam, thank you for thinking of me. I did hear back from the NP I see at the cancer center when I don’t see the Doctor. She said she didn’t see anything to worry about but I am waiting until next Tuesday until I see the Doctor to confirm. I’ll let you all know
ssales13