STEAM ROOM FOR ANGER

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  • gailmary
    gailmary Posts: 619

    I need to vent. Im pretty pissed at my sister. Im always the bigger person, biting my tongue and she doesnt even know it. Grrr.

    8 yrs ago when dx w stage 4, she sounded strangely excited and said she was going to take notes when we talked so she could better follow along. A few months later and I was feeling overwhelmed, imagine that! She asked me how i was doing on 3 occasions and i didnt reply. (She is long distance) then she announced she would never ask me again. Some rule she made. And she hasnt. Insane. She will wish me well, hope I'm not in pain, send cards etc. Everything but ask directly. So stupid.

    She called yesterday but I didnt answer w company here. Again she didnt ask in the message she left. Twist the words in so many ways, but wont ask. Stupid game. I'm planning to text her and tell her I'm too busy to talk. Try next month. All I have to talk about is how miserable everyone here is. Then maybe ask if im playing her game the right way cause i never got a set of the rules. UGH.

    Thanks for listening.

  • ctmbsikia
    ctmbsikia Posts: 783

    I think it's Ok that you are making your own rules by not answering her. Long distance relationships are hard. It does break my heart a little whenever I read about a challenging sister relationship. Lost my younger sister last Aug. to this crap. It was horrible. I still haven't processed it, and I really miss her. Please take care as to what you really want from her.

  • meow13
    meow13 Posts: 1,370

    Hello everybody, checking in. Still no recurrence on 14th year. Refused chemo with a oncodx of 34, did 4 years AI drugs. I'm ok how are you guys? Loved ready articles like bee venom kills BC no surgery required hmm really?

  • bcincolorado
    bcincolorado Posts: 4,830

    cancer means taking care of your own mental health so the family drama has to go the wayside. I decided to not deal with anyone not willing to be respectful and was not worth it. Helps to not live right by those relatives so they were more long distance ones we would see a few times a year. Stil not worth the drama.

  • bcincolorado
    bcincolorado Posts: 4,830
  • kks_11
    kks_11 Posts: 189

    Quick vent for the day:

    A family member gave me a "birthday gift" entirely centered around my having cancer. Highlighted articles from questionable sources about how to beat my cancer with "metabolic health" approaches. Gee 🙄 all I can say is thanks for the time and care put into it, even though it COMPLETELY missed the mark.

    I'm thankful to have here as a safe place to post this though.

  • bcincolorado
    bcincolorado Posts: 4,830

    What a thoughtless gift. Someitmes some one who has not had cancer has no clue it seems. They just need to be there and sometimes and help out and say nothing. Keep their mouth shut about things they do not understand how you are feeling.

    I hope you were able to enjoy your birthday though and happy birthday!

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    I am so fricken ticked off! Going without dinner tonight as my dimwit moron of a hubby thought i was going to have dinner at 2:30 in the afternoon! I told him to eat by himself as I don't eat dinner that early and he knows it. So tonight I am going to bed when I am darned good and ready only having had two pieces of toast for breakfast and a handful of popcorn all day.

  • bcincolorado
    bcincolorado Posts: 4,830

    Well as we are older now we often have dinner at 3;30 now and often by 4 I am ready to go to bed for the night. seems does not matter what time go to sleep get up at 3;30 in the morning so usually by 4 am tired out from being awake and trying to get through a day. /Hope you got a good a dinner at some point mommyof3. You deserve to have a nice meal sometimes that you are not doing all the work to fix.

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    Its a leftover night here. Too fricken tired to cook since I have been doing reorganizing the rental we are in a little. Was feeling a bit cramped

  • bcincolorado
    bcincolorado Posts: 4,830

    So hot to really cook so doing crock pot or food on the stove a lot here. Food to heat over in t he microwave for leftovers. Easier without kids here so even if it is sandwiches it is food. Sometimes even doing something on the grill is too much work. Going out for food is hard as well since means going to get it and deciding what to get is another chore. usually try to just do a few meals a week we and we off them for a few days. Some of the casseroles do in smaller dishes can microwave now. Kind prefer it too be winter when do not mind using the oven so much.

    Trying not to worry about things feeling in my arm pit with swollen nodes on my cancer side. They never seem to scan that when I have been going and worry . See doc next week so maybe she can check it out. Have implant in there and did reconstruction on that side but of course lopsided now. PS said he could reduce and life other side at the same time but was tired of surgery at that point. Did not want more.

    At this point kind of wondering if it is cancer again how much could I endure again?

  • My toes are like ice cubes! And they feel like the Sahara desert no matter how much moisturizer I use. One single infusion of Taxol was interrupted by an idiot smoking in a hospital bathroom and I get this for life? I suffered through hours of ice baths during infusion to avoid this and one hour of waiting for the fire drill to end resulted in this condition for life.
    Gabapentin makes me a little psycho, so that’s not an option. Heating pads help but can be a problem if they result in burns. Socks don’t help all that much. Lidocaine and Voltaren help some, but being more numb has its drawbacks too. So what do we do?

  • bcincolorado
    bcincolorado Posts: 4,830

    Talk to your MO and maybe they have some good options for your feet. I know DH has issues with his and they gave him some kind of cream to put on them that helps with the things he feels in there like needles stabbing him on the bottom.

  • @bcincolorado thanks for the advice. I’ll definitely ask my MO.

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    Another night I am not eating. Hubby did it again. My dinner was a glass of Crystal Light drink.

  • @m0mmyof3 I like a vanilla protein drink when I don’t feel like eating something more substantial. You can get 30 grams of protein with Premiere Protein at Sam’s Club.

  • bcincolorado
    bcincolorado Posts: 4,830

    kathrynw1thasea good luck to you and hope you get answers.

    You can also get protein with some other easy sources as well if you do not feel up to eating a regular dinner. There are even some other bars and things that contain them since they have nuts in there. Even some cereals if you can take a bowl of cereal.

  • kks_11
    kks_11 Posts: 189

    @kathrynw1thasea I just wanted to say that it's shitty that all your icing was seemingly undone when that fire alarm happened... I'd be upset too. I have heard from some survivors that neuropathy can fade over time? No idea under what circumstances. I'm starting to feel neuropathy symptoms, which is really scary to me.

    Today's vent is hearing about all these coworkers who get to use their paid time off for travel... I have to use mine for treatment days,I am scared to use any more than I have to until I'm done with active treatment. I can't even call in sick if I'm having a bad chemo side effects day, like today. Just feeling sorry for myself, I guess.

  • bcincolorado
    bcincolorado Posts: 4,830

    Agree. If you work and it is for sick days and not a vacation day different. When I worked and someone was going all the time or treatment you could donate your time off even to someone. Most of us did it but worked with all women who got it. For a male boss he may not understand unless had a spouse or other relative with cancer. It is hard when you are working.

  • gailmary
    gailmary Posts: 619

    Yeah, that kinda stinks Elenora. My guy often just doesn't know what to say either. Maybe keep the hearing aids and get a hair topper. You could be around quite a while yet. 9 years for me.

    I expect one day I'll need both. My hair is about 1 1/4" now since chemo but was thinning on top before chemo.

  • eleanora
    eleanora Posts: 472

    @gailmary

    Wow! 9 years is awesome. Thanks for the empathy. This latest cruel remark is added to a long line of indifference and bad behavior on his part since my initial diagnosis. He does nothing to make this easier for me and goes out of his way to make things more difficult. I had considered a topper, but the strands of hair are so fine (in addition to being sparse) that it would never blend.

    Have been trying hard to go out into the world and participate in activities, but the days when my courage fails me are becoming more common. Sorry for the negative post. I do have a therapist and access to prescription meds if I want/need them, but I prefer to face the reality of my situation. As with everyone else, some days are just more difficult than others.

    Take care,

    Eleanora

  • bcincolorado
    bcincolorado Posts: 4,830

    hearing issues are bad even without other health issues going on and can make people isolate. Your family needs to be more supportive of both and the hair comment was plain rude!

  • bcincolorado
    bcincolorado Posts: 4,830
  • betrayal
    betrayal Posts: 5,560

    eleanora: Keep your hearing aids so you can hear what is going on and because loss of hearing can contribute to lack of socialization plus dementia. Ignore your husband's poor response. I don't know either of you but if her were balding what would you say to him? He seems to be clueless as to what you you are enduring and lacks compassion.

    So what if people can see your hearing aids? It is better for them to see this than to think you ignore them because you didn't hear them. My DH has not heard well for years, lied about it (mostly to himself because we were all aware) and I finally forced him to see an audiologist. He now realizes how much he has missed out on in the past 10 years. Pride goeth before a fall and I also had to get them after a bout of severe soughing caused by a virus left me with loss of hearing in my left ear. When the hearing returned, it was accompanied by tinnitus which I can squelch somewhat with my hearing aids. They are a blessing in my eyes because the tinnitus is so distracting and I don't relish dementia.

    If your hair loss is distressing and contributing to your not wanting to socialize, then consider getting a wig. My hair has really thinned from AI's and I no longer try to style it like I did in the past. If I were to go short again, I would have not enough to style it.

    I don't think your DIL meant to make you sad. She was honest and if it wasn't said cruelly, than I would be thankful she mentioned that she saw what she felt was something to help you. Please place yourself first here.

  • chicagoan
    chicagoan Posts: 1,383

    @eleanora-Sorry you had such a distressing encounter yesterday. I echo the thought that I hope you consider keeping your hearing aids-for your sake-no one else's. My hair thinned quite a bit on Ibrance. However, I've been taking MSM for over 5 years and my hair regained a lot of thickness. It's not cheap but worth it to me. It's frustrating because no one really gets what we are going through.

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  • m0mmyof3
    m0mmyof3 Posts: 10,061

    elenora, if that had been my hubby I would have kicked him right where God split him!

  • bcincolorado
    bcincolorado Posts: 4,830

    Went to schedule my mamo and ultrasound on my non cancer side and they said they only got the order for the mamo only. then had to go and contact the doc to get a new order sent before scheduling or go do one and then have to go back again later. Told her would wait and then call back next week. Can no one do their jobs anymore and you realize how important this stuff is to get right???

  • gailmary
    gailmary Posts: 619

    No they can't! After last years mamo the radiologist was pissed cause it was a screening mamo when I should only be getting a diagnostic mamogram. Had to do another one. I guess we should all be getting diagnostic since breast cancer once. Who knew? Good for her. She found another cancer!

    I've also had 2 MRIs to the wrong area. Grrrr.