Best Of
Re: De Novo Stage IV
Hi Everyone! I had to write to the mods to figure out how to get to our thread. I couldn't remember the title of this thread!
How is everyone and I hope that you can find your way back here.
denny123
Re: Can we have a forum for "older" people with bc?
Cindy, what a frightful thing to come home to. I am thankful for the FD and all they do. Here's hoping your insurance company can get your neighbors to pay.
You all have encouraged me to wear my fitbit and check on my sleep which I am sure is poor, but I probably need proof.
I have a PCP appointment this afternoon. It is with a new doctor. The funny thing is, this is our first originally scheduled "get acquainted" appointment that took four months to get, but I have already seen her twice for quick med checks thanks to my oncologist' request. Strange way of doing things!
Re: Triple Negative Stage IV
@cookie54 I read in another thread your eye issue has resolved itself, but you are going for more tests. Just wanted to send you a great big hug, and lots of light to surround your way forward. ❤️🤗 I know it’s hard when one more thing needs to be looked at, ugh. It’s just the way of it, wishing you trust and patience, and kindness for yourself along the way. We are in your pockets for support.
@scgal08 i know the comments box disappeared for you on this thread.. but thought I’d give it a bump and see if it reappears for you lol.
Navelbine seems to be working, have had 2 of 3 infusions on cycle 1 - yeah team. The Mets are all shrinking a bit, the skin seems to be drying around and on the nodules, which I believe is the healing process . Will see what MOs say, as I see both of them this week, Northwell on Wednesday and then MSK on Friday.
I will miss the Aug 6 zoom though as I will be at infusion, I will be there in spirit. Love to all -Rhonda
Re: Mucinous Carcinoma of the breast
sonia…so there is no confusion….in the body of my post, I explain my primary was 90% ER positive and the recurrence is 100% ER positive. The primary was 50% PR positive. Recurrence, PR negative.
i also had PT for cording following my lumpectomy. I also had a procedure that released my frozen shoulder caused by another, unrelated issue.
Moving forward, I will not be addressing anything else regarding mucinous breast cancer. The reason being, is, as I mentioned before, there are so many gaps with respect to understanding its treatment. As Obsolete suggests, Mucinous should be looked at, as, on a spectrum. And then, there is data. Dealing with a rare subtype, often times, the only way to understand treatments is through meta analysis because there are too few diagnoses to establish statistical significance through randomized studies.
i have discussed at length with my team, my concern regarding the PR negativity, the micropapillary features, and the change from pure mucinous to IDC with Mucinous features. Have I read about the potential negative consequences of being PR negative? Of course. That said, most of the data specifically addresses the traditional types of breast cancer. There is, here and there, very small studies regarding PR negativity and Mucinous breast cancers. Most data is not statistically significant. Recently, I zeroed in on Korean study of mucinous breast cancer recurrences. If I remember correctly, I was scratching my head because two of the four were Luminal A. While the other two, were Luminal B. Again, the data is so sparse, it would be difficult to draw any conclusions….
i will repeat what I have said from the beginning of my journey, for many of us, breast cancer is a very treatable disease. Yesterday, I met with my local medical oncologist. She said, “You had a very small tumor. You had surgery to remove it. You will do well, just like before.”
Hope springs eternal.
carpe diem.
Re: I’m on hospice - anyone else?
Thank you all. I’m sorry I can’t answer each individually. My energy is pretty much nonexistent. You have made me feel like I’ve made a difference. I love you all.
Kris
kbl
Re: I’m on hospice - anyone else?
Thank you for the beautiful picture of family, Kris. I will keep it in my heart.
Re: I’m on hospice - anyone else?
I echo all of the sentiments so beautifully expressed above and I'm holding you in my heart as you take the next
steps in the journey you have so generously shared.
💕
eleanora
Re: I’m on hospice - anyone else?
@kbl Love and peace to you Kris. I read far more than I post, but I hold you all close to my heart. ❤️
vixielyn
Re: I’m on hospice - anyone else?
beautiful photo. You have created a wonderful memory for him. May the rest of your journey be peaceful. ❤️
eleanora
Re: I’m on hospice - anyone else?
Dear Kris @kbl you have always been such a strong source of support for all of us here. your creativity in starting new threads and generously sharing helpful information has meant so much to this community. I’m deeply thankful for you ❤️ even now, in this moment, you continue to share your experience with such honesty and grace. you are an extraordinary person. I admire your strength, your courage, and your generous heart. I will carry you in my thoughts and in my heart ❤️
Thank you for sharing the beautiful photo of your lovely family. your grandson is adorable and I do remember how much joy he brought you, both your grandson and your daughter have your warm beautiful smile.
I wish I could change the world for you.
With love and deep respect.
Julia
(my apologies I haven't been in contact sooner I wasn’t aware of everything that’s been happening been away from the forum for a while dealing with we know ie this C/ monster in my liver and a lot of se.)