Best Of
Starting my 24th year of MBC de novo!
Yay! Today is the start of my 24th year after my dx of Stage 4 MBC de novo. Still hanging in here! Here's my history.....Dx’d in December, 2002. ER+, Pr-, Her2+++ Metaplastic BC. Had A/C & Taxotere. Left side was DCIS and Her2+++, but right side was tubular and Her2-.In 2004 my liver was filled with tumors. I had a liver resection, and then a clinical trial of then “New” Gemzar & Herceptin, which cleared out the mets in 9 months. Stayed on only Herceptin for 7 years, but had a chest node recurrence in 2012. Gemzar, Aromacin didn’t work. 3 years of Kadcyla along with Faslodex. When Kadcyla quit working, I had a Foundation One test which showed that my mets had turned to Her2- Somatic. Clinical trial of Poziotinib that got rid of the nodes in 8 days. But Poziotinib was so nasty and toxic that the trial has been ended.Now NED and have been on Xeloda and Herceptin for 8 years.
denny123
Re: My Husband, My Life, My Love, My Family, My Cancer
In need of positive vibes and prayers. DH has a colonoscopy tomorrow after having an abnormal cologuard test. Just cant shake the idea that something is wrong. Thank you.
goldensrbest
Please help me to make right choice
Going to do DMX soon. ( Diagnosed with IDC grade 2 , ER PR POSITIVE AND HER-2 NEGATIVE.
age is 46 not have any children.
Very concerned about reconstruction .
What’s kind of reconstruction heal soon . I totally agree it depends on person but generally what’s best option ?
Is this good idea to do during first surgery?
Please share your experiences
also I want to know is it easier to catch recurrence when we are flat ?
Many thanks
zohra
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Glad they are really moving this along. Yikes that's really early, I'm sure you'll come home and crash. In your pocket and sending good vibes your way💕
cookie54
Re: how about drinking?
Good Morning, Loungettes! Happy Saturday!
I took Mom to her hearing evaluation yesterday and she is getting new hearing aids. I didn't realize how much she was missing, 57% of conversation around her according to the testing. We go back and she gets the new hearing aids next Wednesday.
I got an email this ayem from the facility, another room in the Assisted Living wing has opened up and looks like it's bigger than the one she has now by quite a bit. Mom is on the list for a bigger room when one opens up, and it would be a bonus if it also had an ocean view. It would be really nice for Mom if it is both bigger and has an ocean view.
Carole--Mom is better off. And now that I'm not having to make the drive almost every day I am better off, too. I underestimated how much of an adjustment this move would be for me, but now that things are settling I can see the good in it.
A Partridge in a Pear Tree
A Partridge in a Pear Tree
Ingredients
- 2 oz - Gin
- 1 oz - Pear Nectar
- .5oz - Elderflower Liqueur
- .5oz - Lemon Juice
- Topped - Club Soda
- Garnish: Mint Sprig, (Elderflower and Pear Optional)
- Glassware: Wine
Preparation
- Add all ingredients besides the club soda to a shaker tin without ice.
- Add ice and shake for 8 seconds.
- Strain cocktail into glass over fresh ice and top with club soda.
- Garnish and enjoy.
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight It's difficult to give control of meal planning to someone else. On a good day, I make use of the crock pot. On a bad, it's Factor food or a lovely gently fried egg with sourdough toast. With your testament attached to your bio., I can feel your deep devotion and love of the Lord. Thank you for sharing and inspiring me and I'm sure, others. We need hope and faith on this journey.
@mara51506 Sure wish that the oncologist would see to it that you are taken care of before they take a leave in Jan. It'll be good to get back into the routine of exercising, in your home safely. Wish I was more inclined to do that.
@eleanora Oh we must have cross posted around the same time. What a terribly long time to heal from colitis and diverticulitis. Having a compromised immune system takes it toll on us. I love the idea of Chinese food for the holidays. Nothing like left overs, so no worry the next day.
DH found a chewable Kaopectate and it did the job. 4 days non-stop and I felt so drained. Made a pot of chicken, broth and boiled white rice and I just couldn't eat any of it. I did get some broth down. Well the 4 others in the family wiped it out tonight. Sure wish they'd learn how to cook to help me out. DH does try some things, and he makes sure I am well taken care of. He's just not a seasoned chef, lol. It sure has been a difficult time since the first of October. Hoping things settle soon so we can have a lovely Christmas. So many viruses and respiratory ailments going around, no wonder I had pneumonia. Ok, on towards better healthy days for all of us.
In pockets for all my sweet friends.
Irishlove
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 So glad your scan went well. I thought of you as I lay there struggling to sleep last night. I had to get a new phone yesterday and they had a special on that also gave me a new smart watch free. I added the emergency phone feature for a few dollars a month because of you. I think it is time even though I have not been falling, but the way I have been feeling lately tells me it is time.
@irishlove Thinking of you as you struggle through all of your antibiotics and issues. I am quietly relieved I won't need to cook for Christmas as I also don't feel reliable. I am slowly putting the cooking on my family…it is time.
Re: So...whats for dinner?
Tuna melt. I wasn't very hungry. DH's labs are not good and the drug is not working. We see his provider on Wed.
I'm so mad at D'artagnan ….they cancelled the order because they screwed up and are throwing out $200 worth of duck breasts. And there are starving people. Furious.
wallycat
Re: So...whats for dinner?
Thanks all - your words bring me comfort. I felt like I had been holding my breath until his appt with the oncologist, and when the less bad news was spoken into the universe I relaxed a little. I thought I was keeping it together on the outside, but I realize now that I was not. DH and I didn't discuss the situation too much, I think in part because we both thought if we talk about it our resolve will crack. Ugh! I was actually driving to the airport to fly to California to take care of my BFF who was having back surgery when DS was leaving the onc appt. and was able to give us the staging and treatment plan so I was able to get on the plane to help and at least be calm and know I could focus on her. It was such a relief. I knew I was glad I never had to tell my parents I had cancer, and I will never forget my in-laws faces (doctor and nurse) when we told them. As a parent you just want to lift the stress off your child, but you can't. Frustrating. The good news is that he is managing and has a committed wife and pets that provide comic relief and unconditional love. We are hoping to be able to go see them soon.
wally - DS is 37 - there is no right age for cancer, but it seems unfair when one is that young. It always breaks my heart when I read on this site that someone is young. My neighbor's granddaughter - who is 9 - was diagnosed with a rare version of leukemia earlier this year. Thankfully she was enrolled in a trial at St. Jude's and is NED at the moment.
When at the doctor I feel like I am one of those cars that is making the weird noise that magically goes away when it is being checked…
specialk