Best Of
Re: For Arimidex (Anastrozole) users, new, past, and ongoing
Lew died this afternoon. He fell off our roof Wednesday morning and landed on his face on the concrete sidewalk, severe bleeding in his brain. Had surgery, was on a respirator. He was worse again this morning, the doctors had a conference with the whole family and explained the poor prognosis and we were all in agreement to stop the respirator, which we did. We were all with him and his sister had a video on her phone of her and his mother singing Jesus Loves Me that they played by his ear, there wasn't a dry eye in the room. We had hoped he'd be able to donate his corneas but his eyes were so swollen that wasn't possible. We're hoping to have a Mar 25 (Good Friday) memorial service, but need to see if that works for the funeral home. My cousin picked up my dad and brought him here for a visit, at 89 I didn't want him driving here alone.
I'm in such a fog. I held together pretty well most of the time at the hospital where I could be in "nurse mode" as his advocate, but can break into sobs at the least thing here at home.
Re: Just diagnosed with ILC mets
Hi Laguna, I took was dx with ILC mets after nearly 13 years. I was infuriated, to say the least. The thing I hate about ILC is it tends to recur in soft tissue-mine did. Right now I'm on 150 mg Verzenio daily and injections of Fulvestrant every month. So far (it's been since Nov. 23) things have been okay. I hope you are doing well considering. PM me if you like. I'm always looking for long term survivors but I haven't found a lot of information that's been helpful on the ILC mets thread. I just try to hope for the best and exercise a lot so I don't have energy to spend on anxiety, which I suffer from.
Claire in AZ
Re: Just diagnosed with ILC mets
Thank you so much for your support. Feeling so lonely with this new development.
laguna24
Re: ER-, PR-, Her2+ Roll call
That’s wonderful news!! ❤️ I hope all chemo side effects go away now that it’s done the job so well!
I go in for round 2 on Thursday. It’s my first round since learning I’m actually stage 3, and your post is a great reminder that side effects just mean it’s working, and all the better if a little TOO well 😊
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 Thanks for asking thoughtful questions. No, liver mets are not new for me. I had several with my first denovo diagnosis, but they have been "quiet" for many years with only a minor speck here and there over my past eight years of treatment. I had numerous bone lesions originally too. What is a shock for me is that the rest of my body is NEAD so right now I have liver only mets. Yes, I will ask my onc about possible changes in estrogen status and whether a biopsy is warranted. I have never had my liver biopsied as the lesions were always too small before. The tech said I have "at least ten" lesions now spread all over the liver including both lobes. The picture that I can see shows spots everywhere. My tumor markers have never been reliable for me and they still register very low—like 8 and 10. I have an onc appt scheduled in two weeks but I know my onc will call me soon and either move it up or start the change discussion now. She is good about that.
Re: ER-, PR-, Her2+ Roll call
@grammie2 I totally get it, it seems that might be part of the process, i got down on things at the third dose and kinda stayed there for a bit (got down after the last one too). I hate that for you as this is tough stuff. You are climbing a mountain for sure. Sending love. 💕 and hugs
Re: HER2+ Recurrence
Hello. Im sorry aboit your recurrance. I don’t come on here much anymore but I wanted to chime in that I am a 15 year survivor of our subtype of breast cancer (er-or-her2+). There was only herceptin with chemo and radiation when I was treated. I had 4 positive lymph nodes with visible cancer in two of them at surgery. I also had lvi invasion and pagets disease of the lymph node with 7.5 centimeters of DCIS and numerous small invasive tumors, the largest being 1.6cm. I was a stage IIIa. There was an 11 year old survivor of her2- metastatic cancer in my support group. Herceptin only was keeping her stable. Don’t loose hope.
Re: My Husband, My Life, My Love, My Family, My Cancer
I got the results of my MRI today (within four hours.) …there are numerous lesions on both lobes of my liver. Everything else is clear. My oncologist hasn't discussed this with me yet but it usually means a change of treatment. I have been here before but I didn't expect it since my CT scan was clear everywhere else. I appreciate your prayers.
Re: Stage III Cancer Survivors...15+ years and out
Thank you @homemom for your kind message ❤️
I’ve been freaking out today as I got my path report which mentions LVI and extranodal spread, so I feel doomed to die of this disease 😢
Hearing from you has been great. I wish you many more decades of good health x
clars