Best Of
Re: Can we have a forum for "older" people with bc?
A bit of an update here. While we had a few brief hours of no rain (all the gray stayed though) by slightly after mid-afternoon it started raining again and far as I know (it's dark outside now) it hasn't really let up. I still have yet to look at a long range report since it seems to me predictions for our little area can so easily be way off which translates to usually better.
The furnace has come on several times today so it has remained on the coolish side out of doors. It is set at 71 which would be too warm for a lot of people but at our age it is pretty much better for the hours when we are moving slow. My room is cooler because I keep the door closed. I still have my comforter on my bed. Here's hoping we soon get to dry out a bit. I can deal with rain itself, but would be nice if it were spread out a bit better.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
I do believe she was at the meeting on April 14th, so definitely extremely quickly.
kbl
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
Oh, Evelyn, we'll miss you! Thank you for sharing @kbl !
Re: My Husband, My Life, My Love, My Family, My Cancer
Personally I am grateful for the US health system. Sometimes it takes efforts to deal with insurance companies and we often have co-payments but from what I've observed on these cancer boards, we have more access to drugs and treatments than any other country of which I am aware. Every single time I go to the doctor's or the hospital, I am asked if I need help paying for the treatments. I know many individuals who are poor yet have access to the top hospitals in my city and treatments. I am grateful that I am not in a country where I would get only 1 chance at a targeted therapy or had to travel hundreds of miles for radiation treatment or get encouraged to "end my life" to save the govt money.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Well kudos to you for always trying to make the best out of any situation upon you. It is a great feeling to overcome and improvise, yap way!!!
@shanagirl Sorry to hear it was kinda frustrating appointment but glad to hear you left there pleased. Great to hear he sounds very thorough and you will get scans done and back next week for follow up. You know we'll all be there in your pocket as you navigate this process. You're so sweet looking out for the baby birds. Nature is amazing for sure.
@irishlove Good to see ya but of course we understand needing a break. You always sound positive and have a good outlook regardless of multiple issues you deal with. Hugs.
@candy-678 Oh for goodness sakes I can't believe you're still waiting! That's sweet of you to be so considerate of what everyone here is dealing with but your vision matters too. I hope the wait is not to much longer, fingers crossed.
All ok here was at MO visit today for labs etc. She ordered a port check to be done as they have had intermittent issues drawing from it. It was fine today but the last visit I had like an electrical shock pain all around and under it for about a week. I think it's probably fine now but she's just being cautious so I agreed to go to err on the cautious side. Otherwise another beautiful day here today. We are going to take Buster for a play date tonight with another golden retriever in my neighborhood. He has never met this beauty but she seems like a sweetheart. Have to keep the dog happy too lol.
Thinking of many here who are having rough days and hoping the rough seas calm soon. Hugs
cookie54
Re: All about Xeloda
@gigil I haven't researched that type of information but for me, it has kept the cancer mostly stable in my bones and liver and knocked back cancer in my lymph nodes so I think it's possible.
dulcea
Re: All about Xeloda
@gigil I take 2 pills in the morning and 3 in the evening. If you have problems with 3,000, you might be able to go lower. I did quite well at only 2,000 except for what I ate. It did keep me at NED.
And now at 2,500 a day, I have been NED for 5 years. Will have a CT scan soon and I am worried a bit since I was off chemo for 2 months since my 23-year-old chest port gave me sepsis.
And yes, Xeloda definitely can knock back cancer in most areas.
denny123
Re: My Husband, My Life, My Love, My Family, My Cancer
SoI’ve been focusing on making a list in my mind each evening on what goals I want to accomplish The following day. So far I’ve been Getting things done and felt Pretty good about it, trying not to focus on the constant pain. My first goal this week was walking the block with the two pugs. I really miss walking them. never got to it because DH wanted me to walk with him around BJ’s food shopping, then. The Garden , and then walking around shop rite more food shopping. Came home did some laundry and changed the water of my container of my Sprouting lotus seeds…all putting out one roots and stems with small leaf buds.
Then yesterday DH wanted to work the on th aquarium vacuuming and doing a water change and replacing some green algae coated rocks with Clean ones. This. Is all a big job and I’ve been trying to talk him into getting an aquarium mainainance service to come in once every few months, but he insists he wants o do it himself. Since our whole married life we’ve always done this together as it’s always been a love of ours keeping aquariums over the years, We’ve always had 2 or 3 tanks going and always loved decorating and maintaining the myself when the kids were growing up whe they were 20 & 50 gallon tanks. Then in the 90’s when we bought our big dream house on the water, he got two huge aquariums. One was 150 gallon in my Art room and one was a huge. 350 gallon Saltwater tank in the living room. He paid a maintenance service because we never kept saltwater 🐠 fish, only fresh water tropical and then the colorful African Cichlids which are also fresh water fish. Over the years we eventually downsized and now only have the one 180 gallon aquarium of African cichlids. So yesterday not wanting him to do all himself, I helped him, which took all afternoon. So I felt good that i was busy getting this done. Then around 3:30 I put on a pot roast quickly, which came out delicious 😋. That was my accomplishment yesterday.
Last night I decided my goal was going to to be strengthening chair exercises hoping it would help my lumbar pain and neck issues. So this morning I accomplished that for 20 minutes of some arm weights and leg lifts and stretches, and neck stretching trying to touch my shoulders with my ears on each side…..didn’t do so well with that stretch. Now just hanging out in my room with my iPad.
Saying hi to @candy-678 hoping your glasses issue resolve soon. I don’t know how you’ve survived without them my girl🩵 @chicagoan hey there girl.🌷I hope you got over your cold. I’ve started up coughing again with all the pollen triggering my asthma.
@mara51506 you inspire me so it’s helping to make new goals each day🥰
@rlschaller sending you loving hugs and wishing you a good day today🌷
@threetree , @tanya_djamila @micmel @intolight @irishlove @mkestrel @tougholdcrow @emac877 lot’s of (((((((hugs)))))))😊🌷
@moderators I was wondering how to post a video of my aquarium, not long maybe 29 seconds.🩵🐠
Re: The long wait for tests is emotionally exhausting
Hello @arabrab22. You have had such an unusually long waiting period. I’m so sorry to hear you are still waiting! I really hope the MRI sheds some light on things and you can move forward. What an ordeal! Hang in there a little longer. I’ll be thinking of you.