Best Of

The lymph specialist was amazing and also does home visits. I may go for the full month decongestion to get this down once and for all because the pain has been cut down to almost nothing this afternoon. He really knew his stuff and told me I should have been fitted for tights soon as they decided to radiate anywhere near the pelvis last November. Also, the lymph gal at the hospital lymph clinic should have known to go with tights first and not maintenance wraps given I have swelling in my hip (which I told her about twice). Now to chase down that bureaucratic nightmare (I was like look can I not just order some and get this done three times as fast?).

Had to call hotline due to ongoing explosive watery D which I maintain is due to this awful antibiotic. Got told I need to do the whole 2 loperamide after first, one after each and then they would reassess tomorrow since it 'could be a side effect of Enhertu'. Yeah it COULD be but Im finding that hard to reconcile. But whatever, fine, well play that game and meanwhile I can struggle to keep my hydration and potassium up and drop more weight because whatever small amount I do manage to eat comes rocketing right back out. What a terrible weekend.

gailmary - my antidepressants work so well that I can’t remember the last time I cried. I feel like they almost make me numb. Maybe that’s not so bad. Who knows anymore.

My DH cries all the time. He cries when he's happy and he cries when he's sad. He tears up whenever he's touched by something. He wants me to cry more because he thinks it is a great pleasure and all about being fully human. Here's the pooch in the kayak, just to cheer everyone up. He's a simple fellow: just enjoys the cranes, the ducks, the turtles and the minnows as he sits upon the bow. A fisherman laughed when he saw this and said, "We don't own dogs. We are their staff."

@irishlove Hey there my girl I’ll be in your pocket for your MRI. I hope it goes well for you….hate those darn noisy things. I’m glad you found a nice tech,Tony🥰

@mara51506 Awww I just love you. 🥰 The way you get to all the details about your breakfasts, laundry working on fixing things. You are just so awesome and a blessing to this group. You are so loved here my girl 💕🩵

I'm seeing a therapist to get help with overwhelming feelings because there are a lot things going on in my life. in our last session, she told me to allow myself to grieve and not hold back my tears, of course she brought some scientific facts about it. since then, I've been crying from time to time.

I have a liver biopsy (my second, in less than a year) scheduled for next Monday. I had a virtual meeting with my manager to request a week off, and suddenly I decided to let him know what's really going on (lesson learned from my previous job- I did not disclose my prognosis for this job). his response was "if I were close enough, I'd drive over and give you a hug right now" he said he would pray for me and ask his family to join him in praying for me too. I started crying (very unusual for me), not because of stupid cancer growing or the fear of the procedure or what the result would be- those things are always with me/us- but because I felt understood after such a looong flipping time.

Sunshine and Sondra, I shared this story to support you and I wrap both of you in a big gentle hug. crying is a good thing, I have to get used to it though…

cookie, congrats on your DD's engagement.

Mara I too thought your screen name was your real name. your recipes are inspirational.

Shana, I love love, beautiful bride in stunning gown, and beautiful MOB.

79 post since last checked-in…….. hugs to all

@gailmary ohhhh! I don’t like the way they describe suspicious lump behind your nipple. That brings so many flashbacks of my original diagnosis of a large tumor hidden in dense breast behind my nipple in my original diagnoses in 2009. But I believe they knew right away it was not benign as my nipple had become inverted and was leaking. I don’t know how this was missed after yearly mammograms, but when they. Did a needle biopsy they knew It was malignant. Turns out it ended up being 5.2 cm large tumor when the BS removed it. Im in you pocket girl as you. Wait it out.🩵

@micmel Hey ther my girl. It’s always so good to see you and it makes me aware that you are always checking on everyone in your living room.. You’re never MIA. So. Glad. To see you💕

@cookie54 Hey there Jersey🥰. Very kool you are going to be MOB. I had so much fun planning my first daughter’s wedding.My DH & I gave her the fairy tail wedding she always dreamed of. It was a beautiful wedding at the Molly Pitcher Inn on the Navesink river in Redbank, NJ. That was over 30 yeas ago. Wow. Our second daughter, the baby. I regret I didn’t have the involvement I had with my older daughter. Their wedding was 7 years ago, and they bothe wanted to do all the planning themselves. I wasnt’t well, and was not physically up to all the MOB running around., but her wedding was beautiful and her wedding gown beautiful too.

here she is with DH and her new DH and me MOB (mother of bride)🩵

Hallelujah a local certified decongestive therapist will see me Sunday (you read that right!) At 11 am to assess and work on my swollen lymphatic leg and come up with a comprehensive treatment plan. I contacted a different provider this morning who pointed me his way instead and I called at 5 pm thinking no way hell pick up the phone and he did! Oh man this takes so much stress away, here I thought I'd have to wait until mid next week, this is causing all sorts of nerve problems and pain. The lymphadema is my biggest issue right now I'd say, so to hopefully finally be on the right track with it...so much anxiety relieved.

Glad I didn't listen to my inner 'everyone stops work at 5 on Friday 'voice and just called. Only have to survive tomorrow and I can do that with a light hopefully at the end of this dark tunnel. If this gets under control I'll be better able to cope with the cancer stuff and have a more positive, patient mindset.

@sondraf I’m sorry you had a rough time but glad you have some great nurses. I just wanted to say that I hope Enhertu works well for you and understand how it feels moving on to the next medication with decreasing optimism. However, Enhertu is different, this is my 3rd line and it’s worked the best so far, that still blows my mind. Give it some time and give yourself a break.

Wishing everyone a lovely weekend.