Best Of
Re: ER-, PR-, Her2+ Roll call
hey! Not yet. I have a cheaper one from Amazon that I bought to wear with my ice mitts, way back when, but I have no clue if it’s the correct size. The PT I visited suggested I get a referral from her to be properly measured. She gave me a few online resources, should I go that route, and I remember one of them was lymphadivas, because I looked it up and they had fun tattoo sleeve designs 😃 But they were pricier. I need to find my notes and share the others.
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Never was his style and it's not now. Of course he hasn't.
Re: My Husband, My Life, My Love, My Family, My Cancer
Carol, still in your pocket today, hoping you are comfortable and surrounded by love, we all love you here too.
It has been chilly lately, yesterday turned off both of the AC units. Doing the budget boosting and will be doing laundry. Got garbage to take out, more than 3 because I wimped out of the last garbage day, cannot store any more. We are a multidwelling building so the 3 bag limit does not really apply and it has been more than 4 weeks since I put anything out. I am also testing out the salad spinner on a pair of socks to see if it is capable of getting them clean, just bored I guess. Also
Dealing with those pesky little black bugs, started pouring boiled water down kitchen and bathroom drains and plugging them up to keep stuff in there to a minimum, got apple cider vinegar for the traps to catch the others and smashing the ones that are near me. I don't have a lot but more than 0 are too many, normally see 2 to 3 a day. Making sure all food stuff is in a container and anything being disposed of put in a container until garbage day. Clean and disinfect containers and rinse and repeat.
Edited I got lazy with breakfast, had the tortilla, melted some cheez whiz and added taco seasoning, put that on first and then put some of the canned ham and sour cream. It was a very messy eat and upon opening the ham, cats assumed it was for them. I fed them after I finsished eating. I need to be careful of how much stuff I put in a tortilla though, it all came out the sides. I still enjoyed it though.
Our thoughts are with Carol as well, she should be comfortable and with loved ones as well. We are in her pockets as well sending our love. I am in everyone's pocket as well sending love to everyone here. Have a good day.
Re: Second mass found...reconsidering treatment plan
In 1981- there are now many more genes (in addition to BRCA mutations) that are associated with increased breast cancer risk. Have you been tested for more than the BRCA mutation? A good source of information is www.facingourrisk.org
Even with across the board current negative genetic testing results, "new" genetic mutation are being found as research continues.
I think a good genetic counselor can step you through all of this and help guide you by potentially giving you more info. For me, more info makes the decision making less stressful and easier.
Also my understanding is that if you decide on lumpectomy now you can still re-evaluate later and go back for mastectomy. (Check with surgeon to be sure) These are difficult and personal decisions.
Looking at this from my vantage point the question for me would be - should I be evaluating the lumpectomy vs mastectomy question as a person with average risk of a second primary? Or -should I (based on family and personal history and genetic results ) be evaluating this decision as a woman with high risk of a second primary breast cancer?
besa
Re: Can we have a forum for "older" people with bc?
If religion commands universal charity, to love our neighbors as ourselves, to forgive and pray for all our enemies without any reserve; it is because all degrees of love are degrees of happiness, that strengthen and support the Divine life of the soul, and are as necessary to its health and happiness, as proper food is necessary to the health and happiness of the body.
William Law
Re: PASH
After my MRI for two cancerous tumors in my left breast, I was told I also had a suspicious area in my right breast that needed to be biopsied. This was ultimately determined to be PASH. My surgeon told me that PASH is benign and wouldn't cause any problems, but I had already decided to have BMX at that point. I'm glad it's gone, benign or not.
Re: Any stage IV surviving 5+ years ?
This is simply amazing! Thank you so much for sharing, it is helping.
Here is hoping for many, many more years of NEAD/ stable!
Re: Any stage IV surviving 5+ years ?
I’m still on first line of treatment since de novo dx in Dec 2015. August scans still show that I’m stable. So very grateful
jensgotthis
Re: Traveling with MBC - Inspire others with your vacation experiences and tips!
I have taken two trips to Italy since diagnosis. The first was almost a year into MBC. I decided to enjoy the money previously put aside for retirement and made it a luxury trip. Upgraded to business class flights to put as much space between me and other people as possible. Lots of hand sanitizer and took a mask in case anyone around me was coughing. Stayed in 3 different places in Italy with first class train travel and private car transfers to get from one to the other. Took omeprazole to handle the acid reflux and enjoyed eating and drinking like normal! Booked restaurants in advance with outdoor seating and avoided indoor crowds.
Trip was so great and I was still on same line of treatment a year later, so I managed to go again. I booked everything refundable and spent a lot on travel insurance that covered pre-existing conditions. Not sure I will make it next year as a treatment change is coming, but will do if I can get stable again.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
@rlschaller Thank you. I’ve requested to move to 80%, and my Georgia doc has approved that. So happy. Also, I think she’s already gotten a port approved. I am going to learn about them since I’ve never had one.
kbl