Best Of
Re: Contemplative practices - Affirmations, white light visualizations, healing meditations
Happy Friday to all ❤️
Artist. Purr.in.ink
Re: Contemplative practices - Affirmations, white light visualizations, healing meditations
wishing everyone a happy new year ❤️
Re: All about Xeloda
@meja…I have my CBC & CMP drawn every 3 weeks. Typically, one doesn't get Herceptin and Xeloda here, unless we are Her2+. I started out at Her2+++, but when I had a chest node recurrence 12 years ago, I am now Her2-. But since the combo has been working, I can stay on it.
denny123
Re: All about Xeloda
@bigred62 ..beautiful pictures! I live in Pennsylvania, USA and would love to escape to Canada…. We are now having the worst snowfall in 16 years with a predicted 18 inches of snow. So I am definitely hibernating.
@meja I have been on Herceptin every 3 weeks and Xeloda at 7/7 for 8 years. It has kept me at NED at 8 years. Are you PR-?
denny123
Re: Are you currently (or have you been) in a Clinical Trial?
Hi Just4Her! Well,, to venture a guess, based on some of the folks here, its because Elascestrant can work for quite a long time, so people haven't needed to switch up yet? I've been on Elascestrant since summer 2024, following progression on Faslodex-Verzenio, and it worked for six months as monotherapy (which is about what can be expected if the cancer has a PIK3CA mutation, which causes early resistance to Elascestrant and a number of other drugs) and continued taking it in a clinical trial with a new mutation-specific PIk3CA inhibitor. Data coming out of the ELEVATE trial indicates that Elascestrant also works great with a CDK4,6i, tho that combo is not yet FDA-approved. Apparently Imlunestrant and Giredestrant are stronger than Elascestrant, and can work without the ESR1 mutation, so I'm sure it will pop up everywhere shortly, given that it just got approved. Are you taking it?
Re: Can we have a forum for "older" people with bc?
Wherever there is a human being, there is an opportunity for a kindness.
betrayal
Re: Can we have a forum for "older" people with bc?
@wren44 I haven't seen you posting here for a while, but good that you are still active in the threads. I was wondering if you ever did chemo or surgery when you were first diagnosed?
Re: Can we have a forum for "older" people with bc?
chrisandy, sounds like N O is not treating you very special this year. Hopefully things will improve. My one and only time there was just about the same timing. We arrived during the pre-parade and our hotel was on the other side of the street where we couldn't cross, but the taxi wouldn't drive around. So we ran around on foot until we finally found a break in the street where we could cross dragging our suitcases behond us. I was struggling from my cancer med and kept having to sit down so it was not fun. My DG had a conference and I was on my own for the next two days fully expecting to take it easy. I had fun touring, listening to the music, walking the quarters, and we did enjoy all the food. Ah, memories!
Re: My Husband, My Life, My Love, My Family, My Cancer
I must say having the heater out here is very helpful, just need to turn it off when using something else there. For now it is very helpful and warm. Plan to turn off at night though. It is really very cold.
Anyone affected by the storm they are calling for are in my pockets as well, that is a wide swath for the snowstorm to affect.
Re: Can we have a forum for "older" people with bc?
Chris, your BC was ER-, so lactating or lack thereof had no bearing on your risk.
Not a very productive day. Bob let me sleep till noon. He came back up about 1pm after brunching at Cafe Beignet (didn’t bring back beignets, as he had a crawfish omelette with grits). I had the leftover shrimp (peeled off the batter coating), lettuce & tomato from yesterday’s shrimp po-boy as my brunch. He went to take a walk down Bourbon, had a couple of Hurricanes at Pat O’Brien’s and wisely decided to forgo the casino due to that. He is searching for a set of scrubs he saw yesterday in Mardi Gras colors. I never got to the panels or exhibit hall, as I had to deal with a bazillion texts from our helper back home, and preregistration (including 3 annoying surveys) for my Medicare Wellness visit Tues. Also spent some time writing a song for tonight’s circle—not easy without an instrument. (And memorizing it is harder still—have to keep repeating it). Went downstairs for a cafe au lait and beignets (got through only one of three, and wisely deployed lots of napkins to protect against the powdered sugar). Came back up to drop off the leftovers—and found the Exhibit Hall closed. No big loss—this year there were no instrument or accessory vendors and certainly no swag as in years past (former conferences were my main sources of free strings, capos, picks, etc.).
Now it’s pouring & thundering. Trying to reach Bob to tell him to come back to the room—not answering my texts and his phone goes to voicemail (bet he forgot to charge it). He wants to go to Redfish Grill tonight, but I don’t know when to make the reservation.
chisandy