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As we enter October and Breast Cancer Awareness Month, you'll hear a lot of words used to talk about breast cancer and people who have it. Some of these words might make you feel strong and supported, while others might make you feel worried or left out. Words like "fight" and "battle" can inspire some people — they can…
Select the answer below that best matches your emotions and expand your thoughts in the thread below.
Below are two emails sent by myself and my awesome wife to the HHS team. If you arent aware, HHS has introduced a new program called the Commissioner’s National Priority Voucher (CNPV) which includes a number of terminal illnesses but not MBC at this time. Please send them a message and urge everyone to make MBC a national…
Advocates’ Thoughts on SABCS 2024 Dec 13, 2024 What are patient advocates excited about at SABCS 2024? Five tell us. Five patient advocates share what they like and what they’re excited about at the 2024 San Antonio Breast Cancer Symposium. The advocates are: Antoinette Greer, of My Sister My Friend Breast Cancer Support…
Alamo Breast Cancer Foundation Scholarships Dec 11, 2024 What does it take to be an Alamo Breast Cancer Scholar? Andrea Hans explains. Andrea Hans was diagnosed with stage II triple-negative breast cancer when she was 28. With expertise in public health and health policy, she began working as an advocate to empower young…
Male breast cancer advocacy strategiesI Over the past 10 years, so much has changed for me personally. Fortunately, the message that breast cancer is a genderless disease has grown significantly, and community awareness is much more widespread. To assist those looking to advocate, here are some of the strategies I've found…
Know a guy at risk please pass this on. https://advancedbreastcancer.net/living/men-cancer-risks
I think that many of us want a way to advocate for breast cancer and health care related causes. Sometimes we aren't sure where to begin. Sometimes the cause is ...or is not...a good fit. Recognizing that our time, energy, interests and other available resources vary, I thought it might be beneficial to start a thread that…
GRASP: Helping Advocates Understand Research, Helping Researchers Understand Patients Dec 14, 2022 Patient advocates and researchers who are part of GRASP talk about what they've learned from the program. GRASP – Guiding Researchers and Advocates to Scientific Partnership – connects patients, doctors, and researchers to…
Helping Patients Advocate for Themselves Dec 2, 2022 Dr. Jennifer Griggs explains her research into how "activated" patients can get more equitable care from their doctors. We know that disparities exist in healthcare, including in breast cancer outcomes and in general care before someone is diagnosed. Evidence suggests…
I started my "journey" a little less than a year ago. Through my "ordeal'" as another woman graciously posted on the boards, I have found that breast cancer patients tend to get dismissed in their so-called "journeys" for scanning or a diagnosis. I, too, am not a fan of the word "journey" in my cancer dx. I'd say my…
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