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Cyst like lesion
Hi! I had some imaging done today because I’ve had pain on my left side. The report came back with this comment - “Unusual 2.1cm thick walled peripherally enhancing possible cyst in the left adnexa.” Not sure what that means other than there is some kind of mass/maybe cyst on or near my left ovary. I know tamoxifen can…
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Zoladex shot and Tamoxifen
I have been receiving Zoladex (gorselin) shot for 5 months now and have been taking tamoxifen daily for 4 months. Does anyone have any advise on just having ovaries removed instead of continuing the shot? I meet with an OB/GYN surgeon in May to discuss this
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How Many are doing 10 years on Aromatase Inhibitors
When I started on Femara, I was told I would need to take it for 5 years. Now that I have finally reached the 5 years (and having experienced many side affects from the drug along the way), many oncologists are now saying that it is best to extend treatment up to 10 years. How many out there, are being told to continue…
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Starting Zoladex advice
I've been on Tamoxifen for nearly a month, now. Had a telephone appointment with one of the Oncology team today and they're going to start me on Zoladex as well next Monday. Does anyone have any advice or can tell me what to expect from a patient's perspective, please?
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How many of you are taking Tamoxifen indefinitely?
I'm going into year 8 of my BC diagnosis. I've always handled Tamoxifen well, it's like a sugar pill to me… minus the fact I have zero sex drive now. :) In any case, I'm still in my 40s and my oncologist wants me to just stay on Tamoxifen indefinitely. I plan to readdress at the 10 year mark, which would make me 50. I'm…
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Half and quarter doses of letrozole
I quit the letrozole because of the horrible sise effects. Exemestane was awful and lost 3/4 of my hair and had to use a walker to get around. I started the baby Tam (tamoxifen)and had to quit after 3 weeks the side effects were so bad. I then started the 1/4 tab of letrozole and the side effects were tolerable so I tried…
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Going off of Arimidex due to side effects
So about my appt…Basically dr. doesn't want me to go off medication and wants me to try another drug. I told her I won't take the ones that have the same side effects as the one I'm on. Have reduced bone density, joint pain, don’t sleep well, hair is thinning, etc. The only other one is tamoxifen which can cause blood…
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Uterine Thickening after D&C
Good Evening, I have been on tamoxifen for almost three years. I have had one D&C for thick uterine lining now a year later, I am here again waiting on biopsy results from endometrial biopsy. Have any tamoxifen users been through this? What was the outcome?? Thanks
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Orilissa?
Hi Found this drug on another thread under this topic. Wondering if anyone is currently on this drug instead of Lupron or Zoladex to reduce the amount of estrogen being produced? If you are on it, what side effects you are experiencing? Are you also taking tamoxifen as well? Thanks
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Lupron plus tamoxifen
I have just started this combination after recovering from radiation. My onco gave me a Lupron shot to see how I felt first, and now I am on both. We are thinking two years on this protocol, and then switch to an AI. Does anyone else do this?
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Hormone therapy, osteoporosis, and cholesterol
my oncologist is prescribing hormone therapy (AI). I’m kind of opposed for 2 reasons. One of the reasons is that it can weaken bones, and I am already opteopenic. The second is that it can impact cholesterol, and I am already taking meds for cholesterol. Can anyone comment on their experiences? I am 76, just had a…
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Breast Cancer Index - Mixed Results
Hello all - Wondering if any of you can share any of your experiences regarding your BCI and what your oncologists have advised based on your results. I am nearing my 5 year mark next year for endocrine therapy and recently found out that my oncologist had run the Breast Cancer Index test on my original tumor. I am…
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Lipedema after tamoxifen
I was on Tamoxifen for 5 years. I noticed horrible cellulite on my legs weeks after starting, it forgot somewhat better after a year or so. ibe been off tamo for almost a year, and the cellulite and fluid retention is still there. I can’t even place my purse on my lap for a minute without it leaving prints on my skin like…
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Am I imagining it??? Switching Tamoxifen generic & SEs
Hi everyone - I have been on Tamoxifen for 2 years and have tried a few of the generics. Teva was the one that really gave me very few side effects, and as many of you know, it is now discontinued. From what I've been able to figure out, Teva bought Activis and is now selling their Tamoxifen. At the same time, Teva sold…
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Switching AI's - side effects
53yo, chemically induced menopause (monthly Zolodex shots); 1st diagnosis 1A 2010 on Tamoxifen for 5 years; 2nd diagnosis 1A other breast 2020 - 3 years on Arimidex (with Zolodex to put into meno), just switched to Aromasin (3 months ago). I switched because of fatigue and stiffness/joint issues - but I think now that I'm…
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Rejecting hormone therapy
I had a lumpectomy last month with clean margins, no lymph involvement and an Oncotype of 17. I start radiation next week and it has been suggested by my MO that I start a 5 yr course of Tamoxifen upon completion of my 21 radiation treatments. The Tamoxifen side effects I've read about seem real quality of life destroying,…
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1 year Scan after almost year on letrozole
There may have been a better place to post this. I have my 1 year Dx mammogram scan next Monday. I had Dx scan of the R breast at 6 months and this one will be both breasts. I am feeling anxious on and off since I noticed this appointment is coming up. I have been taking my letrozole daily except when they didn't let me…
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Quit AI drugs - how long to wait before osteo arthritis interventions like PRP?
I was on AI drugs 15 months (Letrozole 11 months, transition 1 month, Anastrozole 3 months). I was unable to tolerate the joint pain and now take Tamoxifen 20 mg (1 month). My knee osteo arthritis advanced during last year. Symptoms were lack of range of motion, pain when moving, and loss of strength to stand (likely…
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Did Fosamax/alendronate slow/stop your bone loss
At the decision making point of whether to continue Aromatase Inhibitor. Just began alendronate a few months ago. Next DEXA due in July. Did Fosamax/alendronate pump the brakes on your bone loss while you continued with Aromatase Inhibitor? Or did your scores continue to decline at the same rate? Or did you see improvement…
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Breast Cancer Index
I am near the 5-year mark of my endocrine therapy. I am meeting with my MO next month. She ordered the Breast Cancer Index test; the result is that I am not likely to benefit from extended endocrine therapy. Does it mean I do not have to continue with my monthly Lupron injection and letrozole beyond 5 years? How do…
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Oophorectomy & hysterectomy experiences
Hello! I'm due to have a hysterectomy and oophorectomy due to the damage 7 years on Tamoxifen has done. I'm 48 so not quite hit menopause yet although the Tamoxifen has given some sort of menopause. My question is has anyone else had the procedure and how did they get on? I made the mistake of googling ...I'll never learn!…
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Tamoxifen - encouragment to keep going?
I know there are a lot of posts around tamoxifen. I've been on it for a year and I feel like I should feel lucky because I don't have a lot of the long list of side effects. However, I do have severe depression that started after maybe a month of being on it. I went off after 3 months to see if it really was the tamoxifen…
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ART Doesn’t Increase Hormone Receptor-Positive Breast Cancer Recurrence Risk
ART Doesn’t Increase Hormone Receptor-Positive Breast Cancer Recurrence Risk Dec 7, 2023 Dr. Hatem Azim explains his new analysis of data from the POSITIVE trial. At the 2023 San Antonio Breast Cancer Symposium, Dr. Hatem Azim presented a new analysis of information from the POSITIVE trial, which found that younger women…
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Lupron plus AI
I gave chosen to go the aggressive route of monthly lupron shots plus an AI rather than tamoxifen. I was 38 at diagnosis and 39 now. I have just read that it is possible to have incomplete ovarian suppression which would make my estrogen levels too high for the AI. Anyone else doing this course concerned? My MO says she is…
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Eagle Pharmacy for the brand name Arimidex
Does anyone know if Eagle Pharmacy online is a reputable pharmacy for brand name hormonal medications? I'm going to give the treatment one more try with the brand name Arimidex and not the generic anastrozole. My oncologist agreed to monitor me if I decide not to do the hormonal treatment due to the awful side effects I…
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Tamoxifen
I was told I would need to take this after surgery for 5 years. I took it on two separate days (2 pills) and refused to take this medication, at the advice of my breast surgeon. I have to take a statin for high cholesterol and gabapentin for pain and currently was approved for short-term disability due to pain in my right…
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Obesity Ups Recurrence Risk in Women Treated With Aromatase Inhibitors
Obesity Ups Recurrence Risk in Women Treated With Aromatase Inhibitors Nov 24, 2023 The risk of breast cancer recurrence is higher in women with obesity treated with an aromatase inhibitor. Read more…
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Vaginal Estrogen Safe for Women With Breast Cancer
Vaginal Estrogen Safe for Women With Breast Cancer Nov 21, 2023 Women with breast cancer can safely use vaginal estrogen to treat certain menopausal symptoms. Read more…
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Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen
Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen Nov 21, 2023 Ovarian suppression plus tamoxifen lowers recurrence risk. Read more…
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arimidex and carpal tunnel
My wrists are SO jacked up! Arimidex has caused such pain w Carpal Tunnel... both hands are completely numb alternating with shooting pains. Has anyone else experienced this? And if you have, what treatment avenues have you pursued? Outcome? Thanks in advance