-
Catch Up on the Latest MBC Research!
If you or a loved one has MBC, take a look at the summary of cutting-edge MBC research disclosed at the San Antonio Breast Cancer Symposium (SABCS) in Dec. 2021! There's encouraging news for individuals with each subtype of MBC, and all information has been incorporated into my book, "The Insider's Guide to Metastatic…
-
Ladies in their 30s?
Hi! I'm 33, just looking to see who else is out there that's Stage IV and in their 30s. I don't know anyone locally in the same age group as me who is also going through this so I thought I would reach out here. :)
-
I know people mean well . . .
So I know people mean well when they approach me and ask me how I'm doing. I have had people say everything from "hopefully this will all be gone soon and your treatments will be over and you can put this behind you". I've also been told "early detection is the best thing" - maybe, well my initial cancer was detected early…
-
Pericardial effusion
On Friday, my oncologist told me I had a pericardial effusion. I am due to have ecohocardiogram in 10 days. I was wondering if anyone here has any experience with this. I am really concerned after reading about it. Thanks for any help.
-
Shoulder metastisis
I will be having radiation on both shoulders and both clavicles soon. I'm dealing with the pain until then. Is it normal to have neck pain from this? The pain seems to go from shoulder to shoulder in the back (including the neck in the middle)
-
Podcast: Experimental Elacestrant for Pre-Treated HR+, HER2- MBC
Experimental Elacestrant: A Standard of Care for Pre-Treated, Metastatic, Hormone Receptor-Positive, HER2-Negative Breast Cancer? December 11, 2021 Dr. Aditya Bardia is associate professor of medicine at Harvard Medical School and director of the breast cancer research program at Massachusetts General Hospital Cancer…
-
Exp. Elacestrant Promising for Pre-Treated HR+, HER2- MBC
Experimental Elacestrant Shows Promise for Pre-Treated Metastatic, Hormone Receptor-Positive, HER2-Negative Breast Cancer December 8, 2021 Experimental elacestrant offered better progression-free survival than standard hormonal therapy for post-menopausal women and men diagnosed with metastatic, hormone receptor-positive,…
-
BCO Memorial Day—Remembering So Many Women Who Mattered
Over the last week or so I’ve been thinking about a “BCO Memorial Day.” Various people came to mind, accompanied by memories of how they shared themselves through their posts and how their posts had an impact on me. One of the many things I remembered: Chickadee and I agreed that we all want to know that we matter, that we…
-
Piqray
Hi Started Piqray 4 months age. 200 for 2 months with tumor markers down by 48 and then12. Upped the dose to 250 tumor marker went up, up again on 300. and tumor marker Tumor marker surge? Cytolysis? Anyone have this experience.
-
Would you share your Stage IV story with us?
We are constantly updating our content on metastatic breast cancer on our site and would really like to add your personal stories to help others who come here and have a more personal experience, with real member stories. Would you write or video your story for us? Tell us: What has been the hardest part? What helps you…
-
Me Too: A Decade Living With Mbc
In the past few months, it's been amazing to see a number of women on this forum post that they've been living with metastatic breast cancer for 10, 12, 14......even 19 years and still going! I wanted to also go on record to say that this past December, 2020, marked 10 years for me, stage iv from the start. Ten years and…
-
Virtual Meetup for MBC Caregivers!
First and Third Tuesdays, 4pm, ET Register in advance for this meeting HERE. After registering, you will receive a confirmation email containing information about joining the meeting.
-
LBCA Educational Webinar on FES PET, Thursday 12/2, 12pm EST
This pre-recorded, educational webinar, moderated by Lobular Breast Cancer Alliance (LBCA) Executive Director Laurie Hutcheson, will feature radiologist and LBCA Scientific Advisory Board Member Dr Gary Ulaner, oncologist Dr Hannah Linden, and a patient with metastatic ILC who all have experience with Fluoroestradiol (FES)…
-
Stage IV: How do you define curative intent?
On another thread, the topic of curative intent came up. This is a phrase that has always baffled and intrigued me given that stage IV is not curable. Additionally, I tend to think of a cure as a prescribed regimen or treatment protocol that consistently yields the same results. What we currently have are lots of treatment…
-
Stage 4
anybody else had opposite axillary involvement and is being treated as stage 4? My oncologist said some research hospitals treat it as stage 3C but she’s recognizing it as 4 because her current guidelines but will be treating it as 3c as her colleague in another facility says to. So aggressive Adriamycin/cytoxan for 4…
-
Dont Miss this Webinar on Quality of Life!
I'm delighted to share the news that Dr. Stephanie Graff, Director of Breast Oncology at Lifespan Cancer Institute, and I will be presenting on Dec. 3 at 1PM ET at Dr. Susan Love Foundation's webinar "Taking Aim at Collateral Damage." Below is the registration link, and I hope to see you there! With good wishes,…
-
Metastasis to bones ONLY, no other organs
When I was diagnosed with breast cancer I was already stage IV. I have metastasis to my spine, pelvis. Sternum and some ribs. I have invasive lobular carcinoma. My oncologist told me that "with women who present with bone only metastasis, they live for years with ibrance and letrozole ". This is as near a quote as I recall…
-
PROTOCEL - Alternative treatment for STAGE IV People...
Hi...so the other day I met a gentleman that came to our house to buy our pool table...and we got to talking. His wife and mom had both had breast cancer. They both took this stuff called Protocel. To make a long story short both of them had a major reduction in tumor size before even beginning any treatment. The guy drove…
-
Her2 Climb
Has anyone tried the Her2 Climb?
-
Her2 Climb
Has anyone tried the Her2 Climb?
-
Has anyone here with mbc/stage iv had Covid?
I'm going for a test this morning (Monday). On Saturday, I had chills and started coughing, then Sunday started running a fever. I don't really feel bad. I've really been good about not being around people, hand washing, mask wearing, ect., but the symptoms are enough to make me want the test. Results come back in about 2…
-
Does bone pain mean progression
I have cancer in my hip and spine. I was diagnosed in June. I’ve had four treatments and just had first pet scan since treatment. Has anyone had progression after only four rounds of chemo? My chemo is kadcyla. Thereason I ask is I have pain in my waist and upper thoracic area. It’s worse when I stand. I go to oncologist…
-
< EBUS and new RLL Nodhle>
Good morning! I had a biopsy. The EBUS procedure was performed on me yesterday afternoon. Their impression was that the area and nodes were fine, despite the PET/CT showing a lot of hypermetabolism in that area. The report then went on to read they biopsied #7 and # 11 as they were present for lymphocytic activity. Now we…
-
Surviving with brain mets
Hello all, I keep lurking randomly and still feel I am coping my situation best with denial which works until something new shows up like last week :( I was diagnosed 4years ago with Stage 4 to my brain where a big met has been found with a lot of swelling and a midline shift of 4 cm to the left. Had surgery, radiation and…
-
Remission for stage 4 - SUV levels
Hello everyone- while I have been reading these boards daily, this is my first post. Thank you to this wonderful community for lifting me up when I needed it most, your kindness and support and stories have meant a lot during this process. I was diagnosed in January of this year as stage 2b (er+,pr+, her2-) at the age of…
-
To save or to spend
Right now, things are going well and I'm thinking about traveling to Alaska this summer. However, a trip would be pretty expensive. It's definitely an individual decision, but how do you balance spending now and making memories versus saving for future disability If I put money away now while I'm working, it will be easier…
-
To treat or not to treat
I have recently been diagnosed with stage IV mbc (lungs). I’m not sure if I even want to undergo treatment, given that it won’t cure me. I’m 68 with co- morbitities. Just not sure it’s worth it. Anyone else feel this way, just letting the disease run itsnatural course?
-
Keytruda+Chemo Improves Survival for PD-L1+, TNBC Mets
Adding Keytruda to Chemotherapy Improves Overall Survival in Metastatic, Strongly PD-L1-Positive Triple-Negative Breast Cancer October 5, 2021 Adding the immunotherapy medicine Keytruda to chemotherapy improved overall survival more than chemotherapy alone in people diagnosed with metastatic triple-negative, strongly…
-
Experimental Med Vs Drs Choice for Pre-treated Advanced HER2+
Experimental Vic-Trastuzumab Duocarmazine Better Than Doctors' Treatment Choices for Pre-treated Advanced-Stage HER2-Positive Breast Cancer October 5, 2021 The experimental targeted therapy medicine vic-trastuzumab duocarmazine improved progression-free survival and overall survival more than doctors' treatment choice for…
-
Kisqali + Femara Ups Survival for Postmeno Advanced HR+ HER2-
Adding Kisqali to Femara Improves Overall Survival for Postmenopausal Women With Advanced-Stage Hormone-Receptor-Positive HER2-Negative Breast Cancer October 5, 2021 Adding Kisqali to Femara as a first treatment for advanced-stage hormone-receptor-positive HER2-negative breast cancer in postmenopausal women improved…