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Do you think MBC will be truly chronic in the next 5 years??
Since my diagnosis few months ago, i spent so much times reseaching to find hope & interested in your opions on this topic. Thanks in advance
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FDA Approves Clinical Testing of CAR T-cell Therapy for MBC
https://breastcancer-news.com/2019/07/26/fda-approves-clinical-testing-minervas-car-t-cell-therapy-metastatic-breast-cancer/
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Rectal issues
Well if you've opened this thread you either have them too, have nothing better to do, or maybe you're just curious. Amidst all the sadness on here lately and the sisters with serious issues i am hesitant to post this comparatively trivial complaint. But being as I am in bed on my iPad with a painful hemmoroid I have…
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Leptomeningeal Metastases or Carcinomatous meningitis in Brain
Hi there, I would like to know who has been diagnosed with Leptomeningeal Metastases (also known as Carcinomatous Meningitis) in the brain. What treatments are they receiving and how long since you were diagnosed. I have read through the discussion boards but information is very limited. Thanking you in advance. Mandy
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Another Navelbine Success Story....
I walked into the onc office this morning and my onc was speaking with the receptionist and I said good morning and his words back wre Good News!!! I asked "how good is good news?" and he said it was excellent and better than he expected. Apparently all the nodules that were lighting up last time no longer light up. Those…
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Horrible pain after faslodex injections
I have had my 3 loading doses plus 2 monthly but this past injection was horrible. Not sure if the nurse hit a nerve or what but its day 3 and I cant sleep or hardly walk my legs hurt so bad. Anyone else experience this and what did you do
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Afinitor and Faslodex combo
Hello Lovely Sisters, Both Moissy and I have recently started this combination, I think it's a fairly new combo. I'm hoping to find others who are on it, or going on it, so we can discuss outcomes and side effects. Please join us,
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Big Lump on Butt from Faslodex Shot
Has anyone had a big lump from the shot. It has been several weeks since I have had the shot. There is a big Lump and it looks brusied.
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How high is high for the CA27/29?
I know there is a lot of controversy re tumor markers....some of you don't have the test done, some oncos don't use it as a test because it is not always an accurate diagnostic tool However, in my case, they have ALWAYS been very accurate and when they go up, I have always had either an increase in tumor size or a new…
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Oligometastatic Mets
I am looking for anyone who is oligometastatic, specifically her2+? interested in treatment plans.
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Verzinia $0 copay
Forgive me if this is old news. Just wanted to share that I signed up for Verzineo savings plan. Zero dollars copay first three months, ten dollar copay from then on.
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Her2+ stage IV: What´s ahead?
Hello everybody, Recently diagnosed stage IV/metastatic shortly after finishing treatment. My cancer is either extremely aggressive and/or I´m resistant to Herceptin. I´m single, 56 years old, live alone and have a full time job that I love (worked through treatment), and (still) fit. I would really appreciate if other…
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Unfortunately things are going downhill
Funny how this crap can change so quickly. Up until September, I had one lonely bone met. Since then, it seems to be on the run. I had several new bone mets in September with one liver met. I was switched to Afinitor and Aromasin. For 2 months my markers were dropping and we were all excited. At the end of December I had a…
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What do bone mets feel like?
Ladies- I really need your help here . I'm driving myself crazy by my aches and pains that I'm having this fall. I'm walking around in pain and not sharing this with my family since I don't want to drive them crazy too. Lately my mid back is bothering me at times( I have had this issue prior to diagnosis), left hip (my…
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Ibrance side effects after 5 months
I am 87 years old and diagnosed with Stage 4 breast cancer in breast lymph nodes and lymph nodes in lungs. I am very active still Drive, cut my grass with riding tractor, run errands, attend church, etc. started treatment 5 months ago of IBRANCE + Letrozole. Did very well on meds with tumors shrinking and not in lymph…
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Hair loss and Kisqali
I have been recently diagnosed with Stage IV metastatic breast cancer after a year being stage II. I started Kisqali last week and was told I would only have hair thinning. I am loosing chunks of hair. Would love to hear if anyone has experienced this? My oncologist told me none of her patients had to get wigs and only had…
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Vernizio
I just ended Ibrance after an almost 2 year good run. After I went NED for 6 months, I just had 2 scans and they found progression to the neck. I'm going on Vernizio. Anyone else on this?
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Letrozole-False positive drug test?
i just took a drug test for an employer and it is being sent for further testing. I have not smoked any mmj for weeks and when I looked up letrozole, it is a type of steroid. I am wondering if anyone knows if this will cause a false positive???
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SEX - Very Raw Post
Sex. Why does it have to be so complicated? After 13 years of marriage plus 7 more years of dating, one would think we would have it down. But add cancer, chemotherapy and a hysterectomy to the equation and we are fucked. Did I mention I am only 39? When I first met my husband we had sex all the time. It was great for both…
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Who has CA27.29 Values returned to normal? What happened after?
I happened to read this: "Tumour marker values return to normal may indicate cure despite radiographic evidence of persistent disease.(2) In this circumstance, the residual tumour is often non-viable." ( https://patient.info/doctor/tumour-markers#ref-2) This statement is not referring to CA 27.29 in particular, nor about…
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STAVE IV METASTATIC BREAST CANCER LONG SURVIVORS
Just diagnosed with bone mets. Soooo scared. Is there any long met survivors around?
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Ixempra (Ixabepilone)
This is a very hard chemo ifusion every 3 weeks. I am on infusion #4 at the end I will post what I have gone through Today I had Ixempra infusion #4. I'm on full dose once every 3 weeks. I do have a lot of bone pain the only thing that helped is fentynal patches 50mg nauseous quite regularly only thing that helps is zofran…
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Quote of the day...☺️
Worrying doesn't take away tomorrow's troubles...it takes away today's peace.. Dr. Wayne W. Dyer
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Amy one take Turmeric
Friend is taking it and also getting Misletoe shots said it was containing her cancer. Last yea no hope for her but now she is contained
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Vertigo? Brain mets? Afraid to know
About 10 days ago, I experienced some crazy vertigo. It happened when I was working out. I bent over to do a burpee and the whole floor kind of went sideways on me. Then I felt like I could feel my whole sinuses move around during push ups. I thought maybe I was having sinus issues so I called in to Tel-a-doc and got…
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Anyone doing Opdivo?
After now failing Havalen going to try Opdivo. Not a lot of info on it being used for breast cancer. Any other BC sisters using this line of treatment?
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Float tank....is it safe during treatment?
Has anyone been to a float tank while in treatment? I am on H & P, Faslodex and Xgeva. Would love to give it a try. Definitely plan to ask my MO in February.
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A fix for those awful leg cramps.
This post might make me sound like the crackpot of the year, but I think I have stumbled on a fix for those wretched nighttime leg cramps that plague some of us. Since starting herceptin/perjeta/navelbine over a year ago, I have been awakened repeatedly, sometimes several times a night, by "charley horse" type cramps in…
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Sharp pain under left breast
I have mets in my right lower lung lobe and had fluid buildup. They placed a Pleurex catheter and I've been draining since July and it has gone from a liter a day to 150ml every 2 days. 2 days ago I started having a sharp pain under my left breast, this is also my mastectomy side and I have an implant but haven't had any…
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Question about the shingles vaccine
Have any of you gotten a shingles vaccination? I have always been extremely anti adult flu vaccinations, believing they're a crapshoot at best. But someone I know (who does not have mbc) now has a severe case of the shingles, and she is urging everyone to get the shingles vaccine. I'm going to email my onc about this, but…