Oligometastatic Prognosis

JCSLibrarian

I was diagnosed with lung mets in Dec 2018. Have been NED since February 2020. I was able to talk the Oncologist into treating me with curative intent. I did a year of Abraxane, had a lumpectomy and SBRT to the lung tumor. I am currently taking a break from chemo. After some scans the end of March we will decide if the chemo needs to restart. Hope things are going well for you

B-A-P

not necessarily true Jen.:) I was being treated with palliative intent at first. The treatment of their choice was FEC. Due to complete response I was able to avail of every other option (rads surgery , tamox , letrozole , and zometa (as a preventative) ) and my chart changed to curative internet. Though it is quite true that palliative treatment is a lot less aggressive and you can’t get access to much more. I wonder where the line is drawn though.

foxanne

I was treated curative intent with local therapy only .my oncologist as well as my second opinion said no chemo . I did have chemo 5 years ago at Stage 2 . I was ER PR positive. My lung Mets were triple negative and slow growing so the oncologist don’t believe chemo will work on slow dividing cells .

I hope the best decisions were made for me .

Betty80

Hi

Your diagnosis sounds very similar to mine, I just wanted to check to see howyou're coping so far. Here's my diagnosis to compare:

Oct 2013 2.5cm IDC left breast

Nov 2013 FEC-T

Mar 2014 Tamoxifen

April 2014 Mastectomy & recon (told no rads needed)

Nov 2015 Axilla nodes x 3 detected and removed

Jan 2016 EC & T

June 2016 15 x Rads left breast & axilla

Oct 2016 Oopharectomy

Nov 2016 Letrazole

Jan 2020 solitary lung lesion 1.9cm upper right lung

(Jan/Feb/Mar 2020 numerous scans, biopsy, breathing test etc)

Seeing Consultant next Thur. have no idea of treatment plan but haven't stopped researching and edging towards asking for surgery. I'm usually quite vocal when it comes to treatment and would rather equip myself with as much info as possible. I can't seem to findmany solitary lung diagnosis on here?

Hope you're doing well and coping? X

foxanne

Feel free to message me .

kitkit

My sternal met lit up brighty for a year. You might want to see if they'll do a biopsy, because my biopsy turned out negative. The sternal met was not cancer. My doctor said it was very unusual, but it happens.

flo80

hi Ladies did anyone have a solitary lung met. What was your treatment plan?

illimae

@flo80 I had a single bone met but my friend had two lungs mets. She had radiation to them and continued on ibrance. She recently celebrated her 10 year cancerversary and has been NED for many years now.

jaboo

Hello, wondering whether there are people who could chime in on oligometastatic status and/or their treatment approach (and results!)

I was diagnosed with MBC this past week and my onco used the word oligometastatic on several occasions. The cancer is regional (axilla, supraclavicular, under muscle, nithing in "breast" = implants after bmx) and a single node in hilar (spelling?) area of the lung, also some other suspected, but "likely just reactive" as per PET-CT.

lgp1111

Hi there,

After my original diagnosis of Stage III BC in 2013, I was re-diagnosed Stage IV in 2021. The finding (from a bone scan, PET scan and ultimately a bone biopsy) was a single lesion in my left sacral ala. Only one oncologist used the word "oligometastatic" while most others did not, so I was never quite clear on how it was viewed, the prognosis, etc. Maybe they didn't want to offer false hope? Anyway, I had radiation to the bone lesion in 2022, and I've been relatively stable ever since, with occasional suspicious activity (mostly in spine/ribs) that needs further imaging. After Ibrance caused neutropenia (even at lowest dose), I switched to Kisqali (lowest dose) in 2022. I've been on that, plus Letrozole, ever since. I have Zometa infusions every 6 months. I am eternally grateful to feel well, stay active and watch my boys continue to grow (they were 9 and 11 when I was first diagnosed; now they're 22 and 24!!!!).

I wish you peace, comfort and hope as you move forward.

cookie54

@jaboo Hi, I am also considered to be OGM at this point also. When I was diagnosed Stage IV I had lung mets , a couple on each lung. My onc didn’t mention oligo right away really until a year or so after treatment. I had immuno and chemo, then SBRT to one nodule that didn’t respond to treatment (8/2023) . So far nothing else has popped up. I have had a couple questions regarding some areas on my spine but nothing progressed. I am Triple Negative and now continue on Xeloda. I scanned every 3 months for the first 2 years and now feel comfortable scanning every 6 months. Since I’m on oral chemo I have labs and Onc visit every 4 weeks. I am beyond grateful to be stable for 3 years now! When first diagnosed Stage IV I remember that sinking feeling and it took me a good year to accept and adjust to life. So give yourself time and grace to adapt to your diagnosis as it is certainly a tough one! But here we are still here and thriving as we wish the same for you!