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CMF Question

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Comments

  • mandy1313
    mandy1313 Member Posts: 978
    edited March 2010

    Marilee:  Adding my own healing thoughts to Lisa's beautiful flowers.

  • Merilee
    Merilee Member Posts: 734
    edited March 2010

    Thank you

  • Merilee
    Merilee Member Posts: 734
    edited March 2010

    Well # 4 was uneventful. I did meet a very nice Gal named Gloria who had her first treatment today. I will ask for your positive light to be directed at her as well.

    Blood counts could not have looked better.

    No neulasta shot planned at this time but will check my counts weekly.Smile

  • ritajean
    ritajean Member Posts: 4,042
    edited March 2010

    YEA Merilee!  You're just breezing right along through these treatments!  It's so fantastic that your counts remain up there.  You are doing something right!  Great news!  I'm so glad it's going well for you.

    Rita

  • Merilee
    Merilee Member Posts: 734
    edited March 2010

    Still standing LOL, I think I am getting better at managing this. 4 down 2 to go.

  • cabmom
    cabmom Member Posts: 291
    edited March 2010

    Way to go Merilee....you're on the downhill slide.  It will be over before you know it!

  • Merilee
    Merilee Member Posts: 734
    edited March 2010

    I feel strong. I think at this point , I now I know for sure, I can withstand a nuclear blast. Several in a row actually  LOL

  • ritajean
    ritajean Member Posts: 4,042
    edited March 2010

    Good goin' Merilee.  You've done fantastic!  Only 2 more.................  YEA!

  • Merilee
    Merilee Member Posts: 734
    edited March 2010

    Thanks. How is everyone else doing? Please say "good".

    Starting to think about reconstruction. Any tips?

  • katie11
    katie11 Member Posts: 7
    edited March 2010

    Just to let all you gals doing CMF know, my tumour counts have gone down from 760 to 100 during the time I have done this tx!!!!  Go, girls!

    Katie xxx

  • Merilee
    Merilee Member Posts: 734
    edited March 2010

    Katie

    Whoo hooo! That is wonderful

  • cabmom
    cabmom Member Posts: 291
    edited March 2010

    Katie......that is wonderful!  YEAH....YEAH....YEAH!

  • MaryNY
    MaryNY Member Posts: 486
    edited March 2010

    Katie, what do you mean by tumor counts? Do you mean the cancer antigens that are sometimes tested for.

  • Harley44
    Harley44 Member Posts: 2,126
    edited March 2010

    Hi everyone...

    Sorry I haven't been around for awhile... 

    Celebrating my THREE year cancerversary today!  On this day 3 years ago, the Ides of March, my surgeon took IT out!!! 


    Harley

  • kathylev
    kathylev Member Posts: 56
    edited March 2010

    Hello, Labby,

    I just finished six rounds of CMF last week and found it to be very tolerable.  The worst SE I had was constipation.  Not fun, but there are plenty of products available for relief.   Drink plenty of water and eat as many high fiber foods as you can.  I felt so good that after my 4th treatment I decided that I probably didn't need to take the kytril for nausea - big mistake!   Take the anti-nausea meds on schedule.   Good luck.

    Kathy

  • Janina
    Janina Member Posts: 23
    edited March 2010

    Hello everyone.  Haven't been on in a couple weeks...reading everything to catch up.

    This week finishes cycle 1 for me..so 5 more 28 day cycles do go :(

    So far, no side effects other than being tired the day after IV.  I have all my energy, still play on my soccer team.  No constipation at all, no nausea at all (which is good because I don't take the pills for it.  I have them on standby in case).  No steriods added to drip.  So all in all, unless I think "cancer", I don't feel as if I have/had it.

    I am told it will get worse as further into treatments.  Is this so?  Because if not, then this is VERY doable!!

    I am still worried about the hair thinning, but have been using Mediceuticals Hair Thinning  products..for "just in case".

    glad to see all of you ladies are doing good.  I hate to see when one of you are suffering from a SE.  I know this isn't easy, but seems easier having you all doing it along with me.

    God Bless ALL of us!!

  • Judy1973
    Judy1973 Member Posts: 51
    edited March 2010

    Hey there!  Laughing

    Been busy with playing nurse to my husband who had his bottom wisdom teeth yanked out (Ugh...I'm next with the top ones when all of this is behind me), work, kids and all that. Happy to hear good news from many of you on here!  Had round #4 of 8 today and just feel tired really.  Counts are still decent, but WBC granulocytes were down to 1.8 and need to stay above 1.5....so inching by there.  WBC was at 3.3, so a little below the reference range, too, but the onc nurse said my counts were fine, so hoping it all remains stable or goes up before my blood draw next week.  She had to find a new vein today and successfully used one about 2 inches up from my wrist (I'm too brain dead today to identify that vein-LOL).  Good thing I'm not working tonight!  The Decadron is now routine for me and is now a combo with the Zofran (so only 5 bags instead of 6...less time sitting there is always good).  Getting the Benadryl, too, and those continue to help my shortness of breath/cough thing.  Hoping that the Decadron has the same effect it had last time and today is my only sleepy day with progessively better energy as each day goes on.  That was such a nice surprise last time.  And NO nausea...NONE.  Haven't taken a compazine since the 3 I took after my 1st chemo.  No mouth sores, minimal hair shedding, and no constipation either.  Boo to SEs getting worse...I'm going to WILL it not to happen.  LOL!  

     Have a great night ladies!  Stay well!

  • Aussiemumof2
    Aussiemumof2 Member Posts: 13
    edited March 2010

    Glad to hear that some of you are doing so well on the nausea front. I had my 2nd treatment (day 8 of the 28 day cycle) & didn't go as well as the week before, which hardly knocked me at all.  I felt slight nausea on a few days with the tablets, but nothing I couldn't handle.  But this time I felt a strangeness in my upper arm as the injection was pushed thru, going down my chest thru to my stomach.  I apparently went very white, & asked the nurse to stop & she wanted to know if my vein was stinging or was it feeling cold (which could indicate that the drip was too cool).  I couldn't figure out what I was feeling but was quite scared. She indicated that it also could have been anticipatory nausea or anxiety happening.  All I know is the discomfort was real, whether caused by an anticipatory reaction or not.I was very sick that night with vomiting (first time yet).  

    I am now scared to go back for next treatment 31st March, for fear of same reaction. My Onc has said he will change the anit- nausea meds. I currently take Stemetil before the treatment & the tablets each am.  Has anyone else experienced this sort of reaction & how have you talked yourself around this.  I have so far handled the AC treatment positively but this has really thrown me. Vicki

  • labarbera2006
    labarbera2006 Member Posts: 22
    edited March 2010

    I am hoping someone can help me.  I have had 1 tx of CMF about 2 weeks, and this weekend I started having the chemo itch.  It is from my head to my feet.  Has anyone else had this se, if so how did you treat it.  Hope everyone is doing.

     Hugs

    Labby

  • Aussiemumof2
    Aussiemumof2 Member Posts: 13
    edited March 2010

    This itch must be driving you mad Labby. I'm not sure this will help, but I've found certain flavours & preservatives in particular have brought on itching for about 24 hours at times while on chemo. I've been aware of the foods & avoiding them has been helpful for me.Hope you find a way around it quickly. Vicki

  • ritajean
    ritajean Member Posts: 4,042
    edited March 2010

    CONGRATS Harley!!!!!!!!!   Three years!!!!!  Remember when we first started this?????  Way to go.  Be sure to celebrate and KEEP celebrating.  Love ya!

    Rita 

  • Harley44
    Harley44 Member Posts: 2,126
    edited March 2010

    Awww... Thanks, Rita! 

    How are you doing?? 

    Harley

  • ritajean
    ritajean Member Posts: 4,042
    edited March 2010

    Hey, I'm doing pretty good.  I'm really looking forward to summer and the heat!  My last check-up went o.k. but I've had some lower back problems lately that I'm keeping an eye on.  There always seems to be something to be concerned about.  You avatar is really a good picture.  You look just great!  Keep doing whatever you've been doing.  It seems to work for you!

    Hugs,

    Rita

  • socallisa
    socallisa Member Posts: 10,184
    edited March 2010

    Hi all, just wanted to respond to Aussiemom

    I asked the nurse to slow down the push going in to really slow and it helped

  • Harley44
    Harley44 Member Posts: 2,126
    edited March 2010

    Thanks, Rita!

    You are so nice!!  I'm looking forward to Summer, too!!  It has been a cold Winter!

    Be careful and take care of your back!  I have a herniated disc, in the L1/L2 region.  Sometimes, especially when I am standing for too long, it gets painful. 

    HUGS
    Harley

  • Judy1973
    Judy1973 Member Posts: 51
    edited March 2010
    Well, darn, so much for the Decadron saving me from nausea.  I've felt pretty exhausted and nauseous days #2 and #3 after chemo #4...bummer.  I actually had to take the Compazine they gave me both days (but I managed with just one dose yesterday...didn't have to take it all day).  Guess this might be the cumulative effects I've been hearing about.  Just makes me want this over with even more...4 more for me....ugh.  Hope everyone else is hanging in!  Undecided
  • ritajean
    ritajean Member Posts: 4,042
    edited March 2010

    Judy, although I know you don't want to take more meds than needed, I really found that if I started taking the compazine as soon as I walked out the door from the chemo and continued to take if regularly for four days after, I had little or no nausea.  If I let the nausea sneak in and then tried to get rid of it, I had problems.  You might give that a try just once and see if it helps you.  I do so remember that "I want this over with" feeling.  Hugs to you, hon!

    Rita

  • Judy1973
    Judy1973 Member Posts: 51
    edited March 2010
    Rita, I may just have to do that.  I felt so great after chemo #3 when they had to add the Decadron, so I was kind-of expirementing this time to see if I'd feel that good again, but no such luck.  Next time, I will have to make compazine my friend right away.  I'm not crazy about meds on top of meds, but sitting around all day feeling like I have morning sickness is no fun.  Smile
  • cabmom
    cabmom Member Posts: 291
    edited March 2010

    Judy, I understand how you feel about not wanting to take more med's than you have to and definitely the wanting it over with feeling but I agree with Rita.  I did what Rita suggested and it actually helped ALOT......good luck, I hope it works for you too.  Feeling sick is NO FUN!

  • Merilee
    Merilee Member Posts: 734
    edited March 2010

    Well more good news. Blood counts yesterday were good.

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