CMF Question
Comments
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Beanius - Great, wonderful awesome! So happy for you! We all understand the stress before exams.
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Patty - I wrote about my SE's after the neulasta shot, but guess I didn't submit it. After the shot I have some bone pain, and then a week afterwards I get severe back spasms. I also get severe abdominal pain and diarrhea sometimes blood-stained. As I said before, it takes a good week to get back to normal. What are your SE's?
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Hi to all,
I just reached my 5 year mark last week!
when I was doing CMF, I couldn't drink water either. White grape juice did it for me and chamomile tea helped also.
I did cytoxan by mouth and the nausea was never truly under conrol. Zofran came close to making me feel better. I ate sour lemon drops that helped.
I fought constipation through it all, but I finally found a plan that worked. I made sure that I ate something "wet" with each meal. Mostly canned fruit..and took a colace everyday and that all seemed to do the trick.
My favorite things to eat were: macaroni and cheese and bologna and cheese sandwiches.I am just beginning to eat mac and cheese again now...lol.
Hi Socallisa and Ritajean..good to see you here.
good luck, girls...our good thoughts and prayers are with you
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Went for the ultrasound, they told me go wait for ghr Dr. To check the pictures. I had yo go back for more ultrasound of the liver. I was upset and the tech said maybe it was someghing you ate. Im like WHat? She i would probably hVe more ultrasounds during ghd chemo treatments. I couldnt eat anyghing for 6hpurs before the test not even water. Guess what my nerves are so bad i cant even sip water. Im going to lose it real soon i know.
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Hi Candie! Congrats on the 5 years! I'm about a half year behind you. I'm so glad that things are going well for you and that you stopped in to post. I think of you often. Were you taking Femara or Arimidex and if so, have they taken you off of it?
Beanius.....YEA!!! I'm so glad things went well for you, too. I don't think we ever get over that scared feeling as the check-ups roll around. One of my friends usually lets me know that they're just routine check-ups. Of course she hasn't experienced bc and doesn't understand that nothing seems to be routine anymore!
Patty, hang in there. I certainly understand your nervousness. It sounds like they are being very thorough with you and you do want them check out everything even if it makes you "freak out." Hugs! Keep us posted!
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Hi everyone, I just wanted to let you know my abdomen ultrasound came back ok!!! Thank God for BIG FAVORS... i still have to follow up with GI, i called today to make an appt. But there off... i hope you all have a feel good , happy weekend. I also want to thank everyone for the kind words that keep me going.
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Hi there
I was wondering if you guys ever heard of someone getting bladder cancer after getting CMF chemo? I've had CMF in 07, now I have all kinds of bladder problems...and Iam worried. I've read that the bladder should be checked regularly...no one ever told me about that. I'm hoping it's all just a side effect from Tamoxifen since it suppresses the estrogen.
Thanks....Jen
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Hi gals!
It's been quiet on here for a few days so I'm just bumping up our thread. I hope that everyone is doing well and enjoying the summer weather!
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Hi Ladies....well once again....I'm asking for prayers. I have a lump on the back on my neck and now my doctors are sending me to an ENT specialist tomorrow. Also, I have pain in my right ear and down the right side of my neck into top of shoulder. Have to tell you....I'm a little scared. All my tests were great in May and now this. Still can't believe that it's happening. I'm praying for the best.....
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Cabmom- easy to say stay positive. But it could be nothing or something like a b9 cyst. Could you have been bitten by something? Prayers for you, hoping it is nothing. Patty
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ritajean - Good to hear from you! Hope you're enjoying golf and the summer weather. Haven't played as much as I'd like, but am playing with the league and DH. Off to Myrtle Beach with the family week after next and we'll be playing golf down there. Can't wait! Am thinking about what kind of trip we should take after chemo. Nova Scotia sounds wonderful. Stopped there during a cruise and it was beautiful. Anyone been there?
Cabmom - You are in my prayers and am crossing my fingers that everything will be okay. Hugs.
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Hi Ladies had tx today, needless to say my back is killing me. I drank 30oz of water at 6am another 30oz on the way and 20 oz during chemo. Now im home and trying to force myself to drink. I dont ghik it is gonna happen. I may go to Micky Dees and get a berry smoothie, steak is out for dinner idk if i should try to eat it. Not feeling nausea yet, i dont know when yo start the zofran before feeling sick or when i really start yo feel nausea. Btw mh liver function tests were all within norm range.
Golfergrandma-i hAvent been but heard it was beautifil. When are hou planning? Are you finished with txs . Are you doing rads also?
Take care Patty0 -
Patty - I wouldn't wait to take the zofran after you feel nauseous -- take it now to prevent! Drinking the water will be so helpful to flush out the chemo. Hope you do okay the next few days. Hugs.
I have two more tx and will finish about July 20. Would like to go to Nova Scotia sometime in August if possible.
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Thanks golfergrandma going to take it now. Big hugs to you!
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cabmom- I'm thinking your doctors think you have a sinus or ear infection. It could be a swollen gland due to an infection. Also the ear pain makes me think that might be infection related. Praying for only good news!
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DesignerMom, I so HOPE you are right! I have already been on a 10 day cycle of high powered antibiotics but they didn't work so I think the doctor just wants to be 100% sure of what he's dealing with....and even though I am SCARED, I still need to know if something is wrong. Thank you so much for the prayers!
Patty and golfergrandma, thanks to both of you for the prayers. No I don't think that I've been bitten but I'm sure they will be doing a battery of tests to find out what's going on. I'll just be so thankful when it's over....thanks again.
Not sure what I would do without this board and the wonderful ladies that I talk to her. You guys are all ANGELS to me. THANKS!!!
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Hi Ladies:
I haven't checked into this thread or even BCO for a long time. It's now over a year since I finished my treatments and I feel great except for all the weight I gained. But in the scheme of things that's minor.
Hi Patty:
I was treated at MSKCC too and I do know they monitor everyone very closely and will always err on the side of caution. Elevated ALT and AST is not uncommon. My liver enzymes became elevated a couple of weeks after my last chemo treatment. I was worried and thought that the chemo drugs had damaged my liver, but the levels did return to normal after a few weeks. I started a thread on the topic and found that others had similar issues. See Elevated liver enzymes after chemo.
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Thank you Mary, and you are right my onc wants to be very cautious. I have to say it is al little scary at times.
Patty0 -
Patty: keep drinking the liquids, esp given the high temperatures we're having today. When I lost my taste for ordinary water, I found that Perrier and other naturally sparkling waters were palatable. Someone else mentioned Aranciata too.
Cabmom: I think you see the specialist today. Hope all goes well.
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Hi Rita, good to see you. I am still on arimidex. I should be off next January but some oncs keep you on forever which I wouldn't mind. I will talk to my onc in July when I go.
Patty, take zofran to prevent. Never wait!
Cabmom, you are in my prayers. Good luck at the ent.
hugs to all
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Patty, was that treatment #2? How many are you scheduled to have?
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Mary-That was treatment 3 of 8. I took the zofran at 5:30 and an ativan at 10:pm fell asleep at 12:00 and slept until 4am. I also take claritin to ease the se oc neulasta.
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Hey all....thank you all so much for the prayers. Well there's good news and bad news. First, the good news is he didn't feel that the lymph node was cancerous but I do have a very bad infection and he's also concerned about my thyroid, he said it felt lumpy and bumpy. He ordered blood work and also once my infection is cleared wants to do an ultrasound on my thyroid just to be sure that it's okay. Not sure how to feel about that but thankful that he was not concerned about the lymph node.
Hope everyone is doing good and everyone is in my prayers.
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Mary...so glad to hear from you! I'm so glad that you're feeling good and doing well! We like those success stories.
Cabmom, I sent you a PM and am so glad that the "doc" wasn't worried about the lymph node. Whew! I know how scary that was for you!
Patty...3 down! Yea! You just keep marking those treatments right off your calendar and before you know it, you'll be doing the 'no mo' chemo dance!' I agree with the other gals. Take the anti-nausea meds BEFORE you get sick feeling. It's much easier to head it off than it is to correct the problem once the nausea hits.
Candie, I have mixed feelings about the arimidex. It's a good security blanket for me, but I've had some joint problems with it and wonder if they will go away once I get off it. I still have another year so I guess I'm worrying long before I need to worry about it.
Golfergrandma.....enjoy your trip to Myrtle Beach. I love that area and there are so many different courses to play there. I remember one that was right in the middle of town called Possum Trot. It was a fun course but the not the most luxurious one in the area! Let me know which courses you play.
Well, I'm loving these summer days! I hope everyone is doing well. Hugs to all of you!
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Ritajean- Yes 3 down. I took the neulasta yesterday and im feeling it today. Ughhh
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Patty: you won't believe who I saw dancing tonight while you are home nursing your Neulasta aches.
Ah well, this time next year, you'll be the one on the dance floor! I've PM'd you.
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Ritajean - We've played Possom Trot many times, but really like Crow Creek (by the same owner). Also like The Pearl and Myrtlewood. I think there are about 100 courses around Myrtle. Was supposed to play yesterday with the league, but it was 95 so I declined. Thought I shouldn't play in that kind of heat during chemo?
Patty - How are your SE's with the neulasta shot? Hope they're not too bad.
Cabmom - So happy for your good news. Keep us informed about any further tests. Are you in NC now?
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Golfergrandma- Ty. I feel better today. Still have a bit of pain. Took the claritin this a.m. I don't blame you for sitting out golf in 95 degrees. Enjoy yourself . Patty
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Ritajean, thanks for the PM.
Patty, hope you're doing okay today. I was fortunate and never had to have the shots but I heard they could be really tough. Hope you're doing okay today.
golfergrandma, how are you doing today? Enjoy your trip to Myrtle. We love it there and have a trip planned for the week after the 4th. Looking forward to relaxing a few days. Won't get to enjoy golf, we're just planning on relaxing with our little guy
and having family time. I am in NC and plan to be here until school starts back up. Nice to be in the mtns. They had terrible storms in KS last night so I'm praying that all is okay back there. Are you planning to play golf while you're there? MaryNY, Beanius and DesignerMom, I hope you're all doing great! It always makes me so happy to see your posts and to find out how each of you are doing.
Hugs to everyone
and I hope it's a great FRIDAY!0 -
Just stopping by to say hi to everyone. I was in London for ten days visiting friends but the best part was that I got to spend the time with my older daughter who lives over on the West Coast. Now I am having "mommy withdrawal" symptoms...I miss my kids so much even though they are grown.
I hope you gals in treatment are ok and can take courage knowing that chemo soon will be behind you.
(((((cyber hugs))))))
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