CMF Question
Comments
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Hey Tobycc...sorry to hear about your Nausea. I am about to leave for a dinner but I did want to get back to you on that. Zofran never worked for me and it does not work for many people...it is very complicated why but if you want to know private message me...it has to do with your genes. What did work was a combination of kytril and emend. I think I started the kytril the day before the infusion and the emend the morning of the infusion (tx). The emend was one pill a day--very expensive and worth every penny. But it took a combination of those two. With them I was able to eat almost anything though I tended to crave creamy food. As your onc about emend which is probably what Robin had that began with an E. Another cmfer had suggested that combo to me and I raised it with my onc--and it did help alot.
I had a red rash on my forehead from the last two doses of methotrexate. Unfortunately it was the beginning of some kind of neuropathy. But there was a person about when I had chemo who had a rash that was just that--a rash--they gave her benedryl IV and she did not have the problem again
I'll take a look at this post later on but hope it is of some help.
Hugs to all
Mandy1313
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Ladies, my rash is just red, no itching and not spreading. Zofran helps some with the nausea , but now since on the capsules, I seem to be getting break through nausea. I will talk to them on Thurs when I go. My WBCs were real low last time, so I hope I am able to get this infusion. Hope all of you in treatment hang in there, ladies that are done, Thanks for all your support! Diane
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Yes! Emend!!! And Sancuso was the patch!! LOL My memory comes and goes (but your post helped Mandy) The patch was on from tues to sat and it was so helpful.0 -
thanks
Thanks all! DH picked up the patch yesterday. Today I have been able to manage with Zofran and not use it yet. Now the edema.....AARRGGH. Have lasix, hoping it starts to work more. I am fine in mornings, bad when I get home from work. I don't stand, and trying to put up
What is the normal course of CMF in terms of total tx?
Diane, glad the rash is not worsening. That's why I had to switch to CMF....
Blessings
Kath
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my treatment lasted for 6 months
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when I needed compozine. I found the suppotories worked better than the pills
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Hi Tobycc: When I had chemo, the standard was 8 TX every three weeks but in the UK they only had 6 tx every 3 weeks. When I asked my onc about this, she said it was possible that 6 would be fine (and some of the gals on this board had 6 tx) but that there were no studies with 6, only with 8 so she was more comfortable with 8. Of course everything has changed in the 6 years since I had chemo so you might do some research on your own. About edema--I had terrible edema from my tx. My legs would be raw and red they were so swollen. The onc prescribed a diuretic and while I went to the bathroom every 10 seconds, my legs still got swollen after treatments. So, I did a few things--first, I did not let them run a saline drip after they put the IV in--had a fight with a nurse over this but having saline was not helpful. Second, I went for acupuncture the day before I had chemo and once a week for the duration of my chemo. The first acupuncture really worked wonders on reducing the edema. After that, I never had edema again. So I am a believer in acupuncture. I hope this info is of some help to you.
You gals who work through chemo are nothing short of amazing!
Hugs to everyone.
Mandy1313
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My story remains complicated as Tuesday my stomach was bothering me and I left work a little early thinking it was something related to chemo. On the subway ride home I found I could not sit down comfortably and was having 7-8/10 pelvic pain centered on my uterus, cramps and constant and I felt like i was going to explode. Went to urgent care and yesterday to gyn. I had free fluid and debris, fluid in my cervix and left ovary was inflamed--best guess was an ovarian cyst rupture. Was in agony but its calmed now and I must take round the clock NSAIDS until the fluid is resorbed.
I imagine no one is going to give me anything, not even Tamoxifen, until i have a repeat ultrasound that shows all looks well again.
FWIW, there are four reports of ovarian cyst rupture following Methotrexate. Is it possible I had one and the chemo's affect on those cells let it blow? I can't see how its not at least possible or how anyone could be sure it was unrelated.
Anyway I am going to see a new MO today for a second opinion.
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Fourminor - so sorry you are having such a hard time. I hope you will be feeling better soon.
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Four minor: I hope you soon feel better. There probably will be no way to know for certain whether this was a methotrexate reaction. I hope that your consulting onc can come up with a treatment that will be the best for you (and I am someone who saw 3 oncs, 4 surgeons, and 3 rads oncs so I am a great believer in other opinions). Take care and lots of hugs. Mandy1313
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hey everyone! Four, sure hope you are feeling better!!!!!
My nausea and bone/ pain with CMF is actually worse. Work is really busy but I AM calling for acupuncture. I gave the patch but I want to see if it gets better with tone. Tomorrow will be 7 days since first infusion.
Edema also bad. BUT I count my blessings. Hair loss with CMF? Mine is sprouting like a baby chick but not sure if I will lose it again
Blessings
Kath
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I feel better. New MO said she would not give me CMF again. Concerned that I had such trouble with the easier of chemo. Thinks I need a third opinion too. Unfortunately SOFT didn't show much benefit with OS added to Tamoxifen. So there's no easy fall back.
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oops. Saw my typos. I only use iPad at home. ...need a keyboard. I hot the patch, but want to see if it gets better with time...
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happy for you Four!!!!
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Four....please let us know what type of treatment you do next. Hugs to you, dear.
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Hi Ritajean,
Well, both of the first two MO's agree they would not give me CMF again, and both would are very hesitant to proceed with any chemo at this point as I would have to go to a more toxic regimen. I must admit that my intuition al along was that it was not the right path for me, and have spend a lot of time this weekend thinking about what lifestyle changes I could make to make my body as inhospitable as possible to cancer cells. I was discouraged that SOFT trials did not show a large benefit of ovarian suppression in my risk profile. This weekend I have been planning to give up all meat and dairy products in addition to restricting sugar and simple carbohydrates and upping my physical activity. I need to get back to the yoga I was doing prior to diagnosis and finally start meditating regularly.
That feels intuitively like the path for me.
Thanks for your concern!
4
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We all are faced with so many decisions...it is hard to make them and then to live with them and not
look back...but in the end it is our decision not someone else's
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ritaJean, we. Can meet! I am in Estero....work in Naples
Kath
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Oh Kath, I am so excited! I really hope we can get together when we are down there. I will contact you when we get down there and get settled. We won't be that far apart!
Four....I'm firmly convinced that diet plays a large part in this. I really try to limit sugar. I did pretty good until the holidays arrived and now I have cheated more than I like so I need to get back into my eating routine. I have read alot about the alkaline versus acidic pH, too and it's been proven that cancer cells can not survive in an alkaline environment. There are many different avenues to explore!
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Wishing everyone a holiday season of health, happiness and serenity.
Hugs,
Mandy1313
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Mandy, I finally made an appointment with doctor for acupuncture next Wednesday: will keep you posted! I
hope everyone had a joyous, peaceful Christmas, if that is what you celebrate--- and for all a few days of minimal SEs surrounded by loved ones
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Just a bit disappointed...couldn't have chemo today. White counts too low and too anemic. MO said he didn't want to do more harm than good. It's going to be good though...next Friday will be the charm.
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What were your numbers? My WBC was low, 2.7 but I got mine with no neulasta: maybe cause my MO was out of town?
Are you getting shot? Sending healing thoughts your way
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1.90 was my white count and he said that was too low. His cut off is 2.0. He said it was iffy, but he said combined with the anemia, he didn't recommend it. He didn't give me the Neulasta shot though. My count came up 0.40 from last Friday, so I guess he is seeing how much more it will come up? I guess I should have asked that.
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ml....I know you are disappointed about postponing the chemo because you just WANT IT DONE but your doctor is being cautious and that is good. Chemo usually takes the counts lower and extremely low counts can cause a multitude of different problems. Hang in there! Sending hugs and healing vibes your way!
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ml: I know you want to get the chemo over with. But in the long run, waiting until your blood has bounced back is going to be a good idea. I had to postpone twice during my CMF--and the most important thing is that it will end soon enough. And 6 years post CMF I can hardly remember the delay.
Hugs to all you gals in treatment and to all you gals who have finished treatment.
Mandy1313
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Mandy, so grateful for the input as I sit here in robe nauseated after round 2!!! Hugs
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Have you tried compazine. Suppositories
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They bypass the stomach to get into the blood stream.
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Happy Holidays Everyone,
I haven't been in here in a while, but I just wanted to stop by and wish everyone a happy and HEALTHY New Year!!!!
Ann
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