CMF Question
Comments
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An early Happy New Year to everyone as well. Hoping for my 4th treatment on January 2nd!
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I want to take this time to wish everyone on this thread a very HAPPY and HEALTHY NEW YEAR! We are leaving on Jan. 3rd for sunny skies in the south. We are waiting until the 3rd to take off because I have my mammo and other tests on the 2nd. Please send up good vibes for me. No matter how far out I get from diagnosis, my nerves always get flared up when this time of year rolls around. Let's hope that 2015 is a good year for all of us!
Nice to hear from you softness. Hope all is going well for you.
Hugs to all of you...
Rita
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Echoing a wish for a healthy happy New Year for all of us! Rita look forward to meeting you! Mandy, had my second last Friday:
Hugs to all
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Wishing all of my CMF sisters a new year of health, happiness and serenity.
Hugs,
Mandy1313
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Hey Mandy(va beach), I too am scheduled for my 4 th month of infusions on Friday. After that 2 more months ( or 4 more infusions). Since being changed from pills to capsules, I have had no problems. So waiting for this to be over and life to return to normal!
Have had to cut back on our holiday activities, due to flu, it's really bad here. Everyone around me has had it, but so far I'm OK! Hopkins keep telling me how bad it would be to get sick, so I am almost afraid to go anywhere.
Praying you are able to get your next chemo, good thoughts! Wishing us ALL, a Healthy, Happy New Year!
Diane
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Diane - Hoping for chemo #4 this Friday. I do the infusions, no pills. I will have 4 more as well after this one.
Flu is pretty bad around here. I just limit my time out of the house (have to work), wash hands/use antibacterial soap often, make visitors use antibac upon entering the house. Trying to stay healthy.
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Mandy, had first acupuncture today: I don't really notice a difference yet: will keep you posted!
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Hi Tobycc
Hope that you wil get some relief from your side effects with the acupuncture. It helped me but I went once a week and the week of a txI'd go the day before chemo and then at the end of the week. So give it some time to work its magic. :-)
Mandy1313
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Mandy (va beach). How did you make out today, did you get your Infusion? They started my IV then decided my wbc was too low to give the treatment. On call Dr suggested another blood count, since the last one was on Weds. due to the holiday. So they did another wbc and it had come up enough in 48 hrs. to do my treatment, so one more down! Hope you were able to get your treatment, we all want to get it over with! Diane
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thanks, Diane!
Glad they did a repeat blood count and you were able to get the treatment. Do you have four more treatments like me or are you just doing six?
I was able to have treatment today and am so glad I am halfway through. There were some issues with the port, but it wasn't my normal nurse so I guess that was it. My WBC and RBC counts are still low, but they were high enough to have treatment.
Taking my anti-nausea meds and planning to rest, watch TV, and read this weekend in hopes that I can go to work on Monday.
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Mandy so glad you were able to have tx today
I had my second acupuncture: going two times a week for two week then once a week. I was so very relaxed in there today: he did explain that he thinks my edema won't go away completely until after chemo: but I am feeling overall much better from the tx and the herb I am taking. Thanks so much for the encouragement to go0 -
Mandy ( Va beach). Yes, I have four more to go. I think we are about on the same schedule. My counts are low, but they said my red cells were hanging in there. So glad you were able to get your treatment, we just want this to be over with! My nausea has been better since they switched me to Compazine.
Have pretty much been staying inside due to so much flu, yesterday was going to go out to the store, stepped off my porch and slipped on icy steps. Knew right away I had done some real damage, my L thumb and right ankle. So, just what I didn't need, had to spend hours in the emergency room with all the sick people( I did wear a mask). And sure enough I broke my thumb and did soft tissue damage to my ankle. Today foot feels better, but hand really hurts. They said I have to see an orthopedic surgeon next week. Not what I want to do!! Diane
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Diane - I am so sorry you hurt yourself. Sounds like you are in for some PT with the thumb and ankle. I'm glad you didn't catch anything while in the ED.
The nausea after chemo on Friday has been rough this time. I even kept ahead with Zofran and had to use Compazine once or twice for breakthrough nausea. I stayed home from work yesterday, but am out of hours so am at work today. Sipping on gingerale and trying to get a saltine or two down. My husband and kids have been really great all weekend and yesterday. They take good care of me.
Take care of yourself!
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Mandy, Sorry your nausea has been so bad. Compazine works better for me than the Zofran, I read that Zofran does not work for a lot of people. Maybe they will let you do the Compazine 1st.
Ankle is much better, have appt with an ortho tomorrow for the hand. Concerned abouth lymph edema since they told me not to use the surgery side for anything, and now I am pretty much casted almost to my elbow. Hopefully they will reduce the size of the dressing tomorrow.
Had my husband drive me to work today in the snow, they really needed help after the holidays, and I felt like I could work if I could get there. Then the poor guy had to come back and get me, he has been great thru all of this!
Feel better! Diane
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I have heard from a few people that they were instructed to take Compazine first and Zofran second. I will talk with my doctor about it when I see him next because I don't want to go through this again.
Do you have a lymphedema clinic associated with the hospital you go to? If so, you should give them a call about your wrist and see what they say. Heading lymphedema off at the pass is a good idea, if you can.
Snow! I wish we had gotten snow here in Virginia Beach, but alas...no snow. It has gotten cold, real cold for us, but that is to be expected. Our chickens are feeling cold for the first time really. They were born last March. We have 9 hens and 1 rooster. They make me happy.
Hope your appointment will go well and your pain will subside soon.
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Mandy, Bet the chickens are fun, I would like to have some, but the dogs would chase them!
Seeing onc tomorrow will ask him about the lymph edema, so far ok.
Hope the Compazine will help you, it made all the difference for me. Take care. Diane
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Compazine worked the best for me. I learned to take it right after I left the chemo room and continue as directed for about 4 days instead of waiting until the nausea appeared and then trying to get rid of it. That sure worked for me and once I learned how to "ward off the nausea before it started, " I didn't have any major problems. I also sucked on Brach's lemon drops.
You gals are getting near the "down hill slide" now! YAY!
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Not me, mine got postponed due to the hand surgery next week! They were afraid my counts would be too low and they would not be able to do the surgery, and that needs to be done ASAP! Of course its probably going to push me into April, but maybe it's ok, I feel like I need a break, this is all so very stressful!
Rita, Compazine works better for me too! Diane
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Diane, I'm sorry to hear that your chemo has been postponed, but maybe it is for the best. I had three chemo treatments and then they broke the chemo cycle to give me radiation because I had two surgeries before starting the chemo and they were afraid to go that long without radiation. Although I hated to go back and finish the chemo after I completed the radiation, it did give my body a rest from the drugs and I did make it through all the chemo treatments in an unorthodox schedule. We are all different and our bodies handle this journey differently. Just take it one day at a time and remember that this detour in your life is temporary and that there is good life waiting for you when your treatment plan is finished. Hugs to you!
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Diane: sorry that you have had the injury to your hand and ankle. In the end, you won't even notice that you postponed a chemo and it may give your body time to rebound. I had a chemo postponed in December 2008 due to bronchitis. I felt so badly at the time that I was relieved they postponed. Take care and let us know how the surgery goes. Hugs.
Mandy1313
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Diane: Sorry to hear you have to have surgery, but I pray that it will go well and recovery will be smooth. I have had to skip two chemo treatments and have them the following week. My doctor said they were both good calls and won't affect treatment or prognosis.
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Mandy just wanted to say thanks again for encouraging acupuncture. I do feel better. Swelling down a LOT: more energy. Taking an herb for circulation too
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CMF is a strange one to me: Two weeks since last tx: patch has been working well, it is a lot easier on me than the taxotere family: but today bam! nausea back out of nowwhere. anyone else experience this? Along with sweats
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Ladies, Thank you all for your concerns. Surg is next Friday. I am feeling better about the chemo being postponed, I do think I needed a break, ( lol ) feel like my body needs to reboot. Saw my new onc and he will restart chemo the end of Jan, he and my surgeon set up the treatment plan. I will let you know how it goes, thanks again, Diane
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Diane, we will be thinking about you on Friday and sending good vibes for a sucessful surgery and fast healing. Hugs!
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Just a quick question...Did anyone really start to shed hair after treatment #4? I noticed that after treatment #4 that there is way more hair when I shampoo than before. My husband said he noticed the hair in the shower drain but said he can't tell a difference when looking at me.
I have to admit that when talking with him about it, I started to cry. I haven't cried at all during treatments and I am okay with losing my hair if that is the case (I have a bunch of cute hats), but I guess it was just a shock. I have noticed that my hair is much softer than it was before treatments. My hair dresser said this is totally normal as the hair takes a lot of abuse during chemo.
I have very short hair anyway so I'm not sure what to expect from here on out. I only have 4 treatments left! My next treatment is on 1/23.
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Hi Mandy!
Yes, I lost so much hair after tx4 that I thought that was it! I looked at the shower drain and it looked as if a mouse was there--but it was not a mouse, it was my shedded hair. I was ready to order a wig and then one of the ladies from this thread told me to calm down. I began to shampoo less frequently after that--every 3rd or 4th day instead of every day. So the gist of it is, that nothing much more happened. I shed some hair, I used nioxin products and I never needed a wig or scarf for my hair. Only I noticed. the hair loss. So try to stay calm and let us know how you do.
Hugs
Mandy1313
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Mandy, I think we've all felt that panic when we notice more hair than normal in the shower. Use the nioxin products. Follow Mandy's advice to shampoo a little less often and allow your hair to dry naturally instead of blow-drying it whenever possible. Hugs! Hang in there.
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Tobycc: glad that the acupuncture has made a difference. They now use it at the cancer center I went to; in 2008 when I was treated they did not so I went out on my own.
Diane: good luck with your surgery Friday and let us know how you do.
other Mandy: how are things going?
And I wish everyone else a good day!
Hugs.
Mandy1313
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Good morning!
It seems like we have always been "on the go" since we've been here so I'm taking a quick break before we head out to fish this afternoon. I need to put in a load of laundry, too before we go. It seems like I just did that yesterday!
Tobycc, Hope all is going well for you. We have friends from home coming down on Monday for a week. I will contact you when they are gone and I'm back to being settled. We are going to be here until April 1st so I'm sure we'll be able to find a time to get together.
I hope all of you in treatment are having a good day. Please keep us updated.
Rita
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