Illinois ladies facing bc
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Hi all,So glad that I am home at last on my own computer. I'm thrilled that they have one at the motel, but it drives me up the wall. It is high-speed, but when I'm typing there is a huge time lag ( or it sure seems that way ) while waiting for the four or five words I've just typed to appear on the page.
I sit there wondering just how badly I've butchered some of the words and how long it will take to fix them. You are to give up the machine in 15 minutes but I've never seen anyone waiting for it and I figure they owe me a handicap for having to wait so long for what I've typed.
Geesh....so sorry that so many couldn't get to the lunch and sure hope things resolve well for everyone.
Wendy, you are so sweet to get that box to me---it did arrive shortly before I got home. I certainly would have understood if you did not feel like it.
Two weeks of rads done...I'll be finished in no time if this keeps up. Thank goodness for books....sure feels in a lot of time for me. Have to admit, after having breakfast and getting ready to go to the hospital for rads, then out to the V.A. for lunch, then back to the motel, I have layed down on the bed reading and most days taken a nap. Something that I seldom could ever do before I got cancer. In fact, just trying before I had bc almost always just made me restless.
Hubby can go into a dose quicker than anyone I know, and he's one of the few men I know that often can take a couple of naps a day. Of course, he does not always sleep well at night....he would if he would listen to me. He drinks coffee too late and has a couple of glasses of wine right before bed. No matter how many times I tell him, or anyone else for that matter, or how many times he reads it in medical literature....he sees himself as among the few exceptions to the rule if not the only one---never mind the obvious of needing naps and being tired all day. Hmmmm
Becky, sweets, keep looking for something to drink because your body does need as much liquid as you can get in it. The Luigi's Italian Ices are really good and at the end I found they went down really well for me.
I even went back to drinking Pepsi which I had not had in years....since they started putting corn syrup in for sweetener, but any port in a storm....and I did a lot of ice tea with Splenda in it. I often took my medications ( something I formerly would not have dreamed of doing ) with the alternate liquids and am still doing it lots of time as I got out of the habit of putting water out even though I'm getting to where I can tolerate it now.
well, I'm going to run....hope you all have a fantastic week-end.
Jackie
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So, it seems like yesterday was a crazy day for everyone. Too bad about Maggiano's, I was looking forward to living vicariously through others and wanted to see the pictures:)
Becky, I am glad to hear that you are doing better. It seems from all of the posts that general recommendation is to have more lemon items, drink a variety of different things, and use some of the Crystal Lite to flavor drinks. I really liked water which is why this is driving me crazy. I am finding that I am less adverse to it now more than a week after tx. I have a little extra time between treatments (3 weeks) which I think helps me get back to normal tastes 2 weeks after treatments. I am going to try and bring sandwiches of foods that i don't really care for to treatment next time. I am also going to bring a variety of drinks so that I don't dislike the water so much after the next one. Hopefully that will help.
Jackie, glad to hear you got to go home for a bit. Only 2 weeks left right?
Laura, glad to hear that all is okay.
Wendy, re what bc has taught me.....I think to be ready for the unexpected and to put more faith in God so that I would be able to accept whatever comes my way (good and bad). I hope that makes sense.
To everyone...giving me ideas about food and drinks...thanks for all of the ideas and support. Have a great weekend to everyone!
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Hi everyone!
Wendy, I hope the back is improving as I type! Laura, I hope things worked out O.K. for you yesterday.
Wendy the Younger, I hope you're still feeling fine after your first chemo. I'll check in with you later.
Jackie, I am heading to the golf course if this rain passes over this morning. It's really rumbling now and I'm not playing in the rain! I will touch base with you this weekend sometime for "meeting instructions."
June 28th Starved Rock list: JanClare, Laura, Michele101, Kater, Rita, Becky, Ginny, Susan....Who else???? Any other changes to the list? It should be a fun day so join in if you can. I may talk Wendy the Younger into joining us if she's doing o.k. from the chemo. She should be pretty good by then. Kater will need to get some reservations made this week so please let us know if can go. How about you, Sharon? Can you join us again?
I'm off! Catch you all later.
Rita
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Good morning ladies -
Too bad we couldn't get to Maggiano's - hopefully something can be rescheduled soon.
JanClare -thanks again for calling me, I appreciate that.
Jackie - glad that you are back home, week 2 is done, yahoo!
RitaJean - enjoy your day golfing (fingers crossed for good weather!)
WendyK - just wanna send some "feel good" vibes to you! Haven't chatted with ya in a while.Blackjack - you too! Enjoy your weekend.
Side note - I have decided to have a bi-lateral mast after all. BRCA came back negative (yay!) but - after much thought, I think it's the best choice for me. Surgery is scheduled for July 7th (8:30 SNB, 9:30 surgery)... sorry if that's a repeat. I don't have 'chemo brain' but i do have 'cancer brain', haha.
Just awaiting US results for my 'enlarged ovary' - hopefully it's just my cysts being extra crabby. Then - we are ready to go!
Everyone else - a big hello & hugs to you all!! I won't be able to make Starved Rock, I'll be seeing my Dad that day (belated Fathers Day).
Have a great weekend everyone - JulieR
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Morning! Too bad about lunch yesterday...but stuff happens!Laura....hope everything is OK with your family. And for heaven's sake, never worry about canceling something with us....family always wins out. If there is something we can do, please e-mail us. Just know that we all send you lots of hugs....
Jackie...glad the box arrived! Hope you enjoy the oil and spices...it's just done to my taste....dried parsley, basil and oregano, sea salt, red pepper flakes (not MY favorite so very little), freshly ground black pepper and dried minced garlic. I put in more basil than anything else as that is what I like. Make sure tho that your spices are very fresh...
JulieR...so glad that your testing came back negative. You have made a very difficult decision and you did a lot of research and soul-searching so I really feel that you made the perfect decision. What can we do? Some of us are extremely close to you. And good luck with that crabby ovary and have a great day with your Dad!
Blackjack...good luck with your Open House. BE nice if there could be a "sold" sign by this time next week. Enjoy your little vacay with your son.
Rita....hope you are able to sneak in some golf. Kinda cloudy and cool here.
Jule....you have a point about not taking foods you like to chemo as you will associate them with that dang infusion room! Good thinking!
Susan...are you still crazy-busy with those kids? Weather has been pretty good for their visit.
Pat...are your bathrooms done yet? We haven't heard from you lately so I assume your computer is still draped in plastic.
Leesa...how did chemo go this time?
Time to move around...the jury is still out for me re: this injection business altho the more I talk to people, the more I find that everyone seems to know someone who had these injections with some good results so I am hopeful. Maybe it's just that I really need to do some specific exercises which I will learn more about at PT. I would say that BC has taught me to be more patient...but obviously NOT. I want this back thingy....GONE, GONE, GONE. My fear is that by the time I am back to normal it will be fall and I will have missed another summer. Geesh...why couldn't this happen in January!!!! But I am getting on that plane to Florida on 7/17 come hell or high water!!! Mr. Beach, here I come!!!!!
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Good Morning,
Bright and sunny here this a.m. I have lots to do today, but am wondering just how much I will actually do. It's going to be a great day anyhow.
Talked to my friend Kay last night. She had her operation for the DCIS and is feeling quite well. Found so quickly I guess that she won't even require much for radiation or not as much as most seem to have to have. She trusts her Dr. and from all she has told me....I would too.
I read Wendy's post and I know from watching Denny ( hubby ) and a couple bil's that bad disc's and other back misfortunes often make you feel bad all over so it's no surprise to me to have impatience showing up. Especially when you don't want to spend long periods flooding your system with drugs. I have 1 bil who has a pharmacy going and has had for now close to three years. I cringe every time I'm there.....and he and his wife do too, but it really is that bad. We are hoping that his disability hearings and other avenues of remedies will bear fruit soon as it's dangerous to have to use so much medication.
You all are and will remain in my prayers for a good and hopefully fairly speedy resolution to these issues.
That as well goes for all those having or about to start chemo. I always looked back when I started to feel good again and thought to myself...wow, I did that and wasn't sure I could so I am being given strength....and so much of that came from this blog.
Well, before I get to flowery and kissy kissy about all that I'm going to go and really start my day.
As always...I'll be checkin' in.
Jackie
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Yes, Wendy, I sure wish I could dome SOMETHING to ease this pain for you. Nerve pain is the hardest. I know it sounds too simplistic on my part, but try so to relax (meditate) as the tension of the pain makes it worse. You mentioned muscle relaxants. I never had that with my disk but I did take a minor tranquilizer just to settle my wholeself down so I coul heal.
Yes, yesterday was confusing. I was ready to go to Woodfield but then the news came in that I could be sitting at the bar alone. My husband had to do some work in Kankakee and so I went to keep him company. I love road trips! We stopped off at the state park on the Kankakee River. A family was fishing.
Nice!
Laura, do not be hard on yourself. I hope the fam is okay and that all has been resolved as best as it can be.
Susan
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Morning! Just poured here for about 2 minutes and that was that....but just enough so that I can't sit on the deck as everything is sopping wet. Looks like another nice day tho.Laura...went up to Dockers yesterday for lunch on the spur of the moment. Their entire dock is under water....way under water. And of course no boats. Place was pretty empty. I did see a pic of Blarney's Island on TV yesterday on the news...it's way under water. But it was a beautiful day.
Susan...I'm actually not taking any muscle relaxants this year. I don't think I need them. I did pick up a book about Pilates and back pain yesterday at the library and I skimmed thru it last night...very simple but logical exercises/stretches and I tried just learning the basic "neutral" back positions...it felt so nice! This might be worth looking into for the future as I am sure there are some Pilates classes around. Gosh...I thought you weren't going to be able to make it to lunch! I'm so glad you checked first! Guess we need our reservation gal...she keeps the list of who's going!!! Sorry about that...
Jackie....glad your friend Kay is doing well and so far her news/treatment is going well. Is it nice being in your own bed? I bet it is!
Jan...on our way up to Fox Lake yesterday I noticed Bull Valley Road...wow that is quite the ride for my sleeve! But as I think my sleeve will be off the shelf it's only one trip and a good fitter is so important! I'm going to see what my PT schedule is and then call...Kathy Boll...correct? I think I've got her name right! How are your foobs by the way? Did you take them out for dinner yet?
Everyone...have a wonderful, happy day!
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Good morning gals!
It looks pretty dark outside right now so we're probably going to get some rain, too. I hope it quits this morning as we are going to a yard party this afternoon which won't be very much fun in the rain.
Jackie, Mary Jane and I will see you tomorrow sometime around noon. We'll be dressed casually...probably shorts or capris so we're comfortable. I'm really looking forward to meeting you.
I hope that everyone is having a good weekend. We've waited a long time for this warm, sunny weather!
More later...
Rita
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Is life worth living?
Aye, with the best of us,
Heights of us, depths of us -
Life is the test of us! Corinne Roosevelt Robinson0 -
Good Morning all,
Wendy, sounds like you had the pop-up showers we had yesterday and I hope that is all anyone gets today--if any rain at all. Too nice a day to spoil it with rain. Not sure what we may have as I got up late...about in time for my Meet The Press. Got hooked on that long time ago and even w/o Tim Russert I will probably continue to watch every week.
Something of note....the double rainbow after his memorial service at the Kennedy Center. This too, after the closing song used at the memorial..."Somewhere Over The Rainbow". 'There are more things under heaven and earth' and if we watch and keep an open mind we will see them and know just what they are.
Rita and Mary Jane....I am so looking forward to meeting both of you tomorrow. The one thing that has been a bit of a barrier since I joined this thread was having to be satisfied with the somewhat long distance of this relationship and feeling and knowing I would just have to wait til' my own condition was much better. Never in my dreams did I imagine that anyone would come this way.
I did though ( since I see it as a burden to a degree ) want to leave you an option of not doing this since it does incur a long distance drive for you and Mary Jane.
It's definitely my pleasure that you have chosen to come ahead and I hope you are not disappointed at some other time later that you did.
I only take casual clothing with me to Marion so I will fit right in that way.
It is wonderful to come home for two days. My mattress here at home is rather firm with a two inch memory foam topper on it. I hate to say, but probably most hotel/motels have lousy mattresses. Firm is usually not for the masses and these things have been used/sat on in the same spots for so long it's like sleeping in mush. To be able to reach the light I stayed nearer the edge while awake, but when sleep was near I moved over a bit to avoid the sinking feeling you have while there.
The books, thank you Wendy and Blackjack are and continue to be a real blessing. I also have crossword and find a word books when I need a little break from reading. I can manage but glad I am starting week #3. The first two have gone fairly fast and if the rest continue at this pace I'll be done in no time.
I'm starting to think ( the rads Onc. might have said- not sure ) that the extra 3 days he tacked on may be for those heavy-duty rads that come at the end. Forgot what they call those too. Don't know if that is the dreaded chemo brain or just my brain on nothing.
I need to get my day started since I am starting late....ah, but it was nice to sleep in, and so I'll be checking back in later.
Jackie
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Julie R.
It sounds like you are ready after much thought regarding what to do. I think that I will be having a bilateral masc in October after chemo and so I am interested in knowing how all of this goes for you.
On a side note, I did have the sentinel node biopsy already, and it does hurt a bit so be prepared. That was one thing I wish that I had known before I went in. I also listened to my ipod during the test which helped me get through it. At the time I was worried about the surgery and I was also having the port put in, and I think that listening to music saved my sanity a bit. Just a thought if this is something that might work for you.
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Hi - just checking in...crazy weekend...thanks for thinking bout me. It's ALWAYS SOMETHING! Geesh...
Wendy - Glad you were able to get into the Z! Too bad it was flooded...I feel sad for all those along the river whose houses are flooded! Famous Freddy's was flooded last weekend...Maybe, just maybe...we'll be able to meet this summer. Hope your back is better.
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On Friday morning I called JanC to let her know I couldn't make it...she was at work, but called me back on my cell phone...I was already at the ER room (not for me) when she called, so she offered to go Maggianos just in case some of you showed up...thanks JC - for that! But seems as though she got a hold of each of you by phone instead. This is a perfect example of why our Illinois Addy List is necessary!
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Have a great day everyone! Gotta run...
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Good Morning!
We watch Meet The Press every Sunday too. The discussion right now is a bit disturbing. So much tension in the news! Now the news with Israel and Iran....very scary.
Have a safe trip Mary Jane, Rita, and Jackie! On my trip to Kankakee I studied the map of Illinois. I located where you are going Jackie.
I have to go to the endodontist to do that deep cleaning tomorrow and I am worried. Funny how we can face a life or death disease and then worry about a dental procedure.
Glad to hear that Jule and Julie R are hanging in there. We need tohear from Leesa. Laura, it sounds like things have calm down.
Have a happy Sunday!
Susan
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Normally, I would not do this ( takes up a lot of space ) but thought you might enjoy this poem from Corinne Roosevelt Robinson.
She was a poet and lecturer, the younger sister of one of our Presidents, Theodore Roosevelt.
THE PATH THAT LEADS TO NOWHERE
Corinne Roosevelt Robinson
There's a path that leads to Nowhere
In a meadow that I know,
Where an inland island rises
And the stream is still and slow;
There it wanders under willows
And beneath the silver green
Of the birches silent shadows
Where the early violets lean.
Other pathways lead to Somewhere,
But the one I love so well
Had no end and no beginning---
Just the beauty of the dell,
Just the windflowers and the lilies
Yellow striped as adder's tongue,
Seem to satisfy my pathway
As it winds their sweets among.
There I go to meet the Springtime,
When the meadow is aglow,
Marigolds amid the marches,---
And the stream is still and slow.----
There I find my fair oasis,
And with care-free feet I tread
For the pathway leads to Nowhere,
And the blue is overhead!
All the ways that lead to Somewhere
Echo with the hurrying feet
Of the Struggling and the Striving,
But the way I find so sweet
Bids me dream and bids me linger,
Joy and Beauty are its goal,---
On the path that leads to Nowhere
I have sometimes found my soul!
Ok. I hoped you liked this as much as I did. In my quite younger years and being related to William Jennings Bryan, I often attemptedwriting poetry. My mother ( naturally ) and a few other people enjoyed them, but for the most part they I think were pretty juvenile if heartfelt. They are all gone.....the way of file 13, but now and then I grab a book of poetry---even if I understand little of it because I can still find pleasure in it. I won't put in more in here as it's mainly too long and this isn't a poetry blog.
This one just touched me.
Jackie
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Okay, Jackie and I are not going to turn this thread into an open mike poetry forum. I just love that poem, Jackie, and so I wish to share another favorite of mine by Mary Oliver. It almost like a prayer and gives a great deal of comfort.
Wild Geese
Susan
You do not have to be good.
You do not have to walk on your knees
for a hundred miles through the desert, repenting.
You only have to let the soft animal of your body
love what it loves.
Tell me about despair, yours, and I will tell you mine.
Meanwhile the world goes on.
Meanwhile the sun and the clear pebbles of the rain
are moving across the landscapes,
over the prairies and the deep trees,
the mountains and the rivers.
Meanwhile the wild geese, high in the clean blue air,
are heading home again.
Whoever you are, no matter how lonely,
the world offers itself to your imagination,
calls to you like the wild geese, harsh and exciting--
over and over announcing your place
in the family of things.
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starved rock june 28
I made reservations for 8 people at the Starved Rock Lodge, but have no idea how many because for one thing, I think Ginny's family is coming? Or will they hike while we lunch? Not clear....
Also, there is a one hour boat ride available with lunch, 32 dollars,?? but perhaps we do not want to do that...since we can walk around the lodge area. I have not gotten the times available yet as I called late last night.
What is the latest on head count? I said 11 a.m. when they open....since some said they were leaving 8 a.m. Any input on that? Later so you can stop at Value City or anything?
To get to the lodge you go through Utica (from rte 80 and 178) and follow the signs after you cross the river on the large bridge. Route 71 is winding, I never liked going that way.....
We should make sure we all have our mobile numbers handy.
There is a spa available, but it also seems like we could do that anywhere....and that if the weather is okay, the main drift is what....?
How can we chat the most? After lunch we can go and sit in the lounge area and chat at the lodge if that's still available.
????? Fill me in here...After head count we need to know WHAT you want to do the most!
Thanks!
Becky, your input would be the most helpful about your wishes...
Kater
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Good Morning Girls,
I am so sorry about lunch Friday...I have had a terrible week from h*ll. Two furnerals...leaky pond..sick dog..crabby dh..complaing mom... oh the list goes on and on. Thank you Jan for making the calls to everyone about lunch. We tried to take the boat out yesterday but the rain came with lighting..so no boat ride.
Today is sunny but cool..so maybe later we will try again. Oh I do need to chill on the water today..so hopefully we can.
Jackie and Susan I loved your poems...thank you for sharing them.
Wendy..I hope your back is feeling better..Remember to bend thoses knees and keep your back straight..good body machanics lol
Laura..I hope all is well with your family issues..Remember we are here for you...Get out and race and you will feel better. Let off a little steam.
Rita.. I hope you have a nice visit with Jackie..give her a big hug from me. Have fun at Strave Rock and take lots of pics. I will be thinking of you.
JuleR..glad to see that things are moving in the right direction for you ..tx decsions are always the hardest to make..but once made things fall into place.
JanC..how is your remodeling project going..and those new boobs of yours. I really wanted to see and feel those million dollars babies.lol
Leesa..how are you girl...keeping busy...chemo this week..hang in there
Smerf..how is the remodeling going..are we done yet.
To everyone else I missed I hope you are all doing well and having
a great weekend.
I hope this week is better for me..leaving Weds to see my son for a few days..Looking forward to his great cooking.. yum
Gotta run will ck back later..
Remember be healthy..be happy
Blackjack
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Kater....I am bringing Wendy the Younger to Starved Rock with me if she is feeling o.k. Put us down for 2 on the head count. I'd rather have more room than not enough. As for Ginny, I think her family will be exploring, etc. while she joins us.....if I understood her when I talked with her.
More later....gotta run!
Rita
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Jule - thanks so much for the warning about the SNB. Nobody warned me that it would hurt... all they said was that they'd put some type of numbing cream on me prior to the test. I'm glad I had somebody to tell me more - I'll def. bring some music along, like you did.
Hugs, JulieR
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Sentinel Node Biopsy
JulieR,
Someone told me it would hurt a LOT and I was so scared for two whole weeks because the Rush nurses (2 separately explained it to me) told me I would indeed have an SNB...turns out the night before my surgery (after trying to get hold of tylenol 3 which i was told would help.....later i found i had a ton of it for my uncle in the cupboard, go figure!)..the surgeon finally called me 1030 the night before and said YOU ARENT HAVING AN SNB....
because the lumps tell us where the cancer shot out to....(not his words)
1. I wish a friend would not have told me it hurt a lot because everyone has different thresholds of pain.
2. I worried for 2 weeks for NOTHING.
3. Some people said their doctor did the hurting part while they were under....it all depends on what doctor you choose, which doctor did you choose? BTW?
That was one of the worst parts the fear of that SNB, so I for one would NOT say how awful it would feel to someone, firstly because I didnt experience it...
Other parts were kinda pricky, but it goes away fast (the pain!)
Kater
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June 28 luncheon at starved rock lodge
sign in again please
1. Rita 2. Wendy Younger 3. Ginny 4. Jan Clare
5. Michele 101 6. Laura to GO 7. Kater
8. ___________ 9. _________
_____ vote 11 a.m. lunch? and whatever? Not on one bill
____ $32 each 11 am to 2:30, soup and salad bar, trolley and one hour boat ride? all one price? hurry, as one 930 deal is booked already
keep copying and paste this please, it might make it easier.
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Just a real quick note here as I'm knee deep in laundry and kitchen cleaning, but I must have missed something. My SNB was done at the time of surgery. I had dye injected beforehand ( first thing before anything else --- early a.m. quite a while before surgery ) and the dye showed which nodes actually drained the breast....and those 3 were removed and studied while I was still under.....they all came back clean.
So I'm thinking......if nodes are clean you would not have to have them removed---but how would you be sure you actually had the Sentinel nodes---would you inject dye to the breast but leave the nodes in place.
This should be clearer to me but I'm just not getting it......the way mine were done seemed so easy and obviously painless since I was completely out.
Jackie
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jUNE 28 STARVED ROCK LUNCHEON
1. Rita 2. Wendy Younger 3. Ginny 4. Jan Clare
5. Michele 101 6. Laura to GO 7. Kater
8. BECKY 9. SUSAN ZAP 10. _________________
_____ vote 11 a.m. lunch? and whatever? INDIVIDUALLY PAY. (so you can feel free to have a "drink" if you want!)
____ $32 each 11 am to 2:30, soup and salad bar, trolley and one hour boat ride? all one price? hurry, as one 930 deal is booked already
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Hi: Count me in for Starved Rock. I think lunch would be just fine, along with a walk. I will go along, however, with whatever the majority wants. Kater, thank you for planning all this. I will be there!
My husband is coming with me and he will be quite happy to have some time on his own while I have lunch with you. We ride our bikes along the MI Canal.
Jackie, I too had the sentinel node thing at surgery time, so I never knew about the dye or the pain or anything else. I was confused about that too as it sounds like some have it separated from the surgery experience.
Another nice place to one day meet is the Botanic Gardens. I am about ten minutes from it and we rode our bikes and attended a cooking class there today. We learned how to make eclairs! I couldn't eat one because I am trying to lose 20 pounds before I see you at Starved Rock (ah, the irony of that name!!!). Of course I am kidding. I will not even lose a pound, but I did speak with a woman who has great suggestions on eating healthy, so maybe there is hope.
Have a DRY evening.
susan
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SNB talk
I found it very strange, one nurse for the surgeon said some hair brained reason why it would not be easy for the doctor to see the dye if it was injected at such and such a time, yet others said they did not have to feel the pain that my friend had experienced (her husband told me she had very low pain tolerance, probably to make me feel better!!)
That is a reason why I probably would not go back to RUSH, that and the recovery room paying more attention to the guy next to me, telling him all about things and ignoring my blood pressure getting higher and higher .... smile. I am glad I had the excellent surgeon, but his support group was much to be desired. I did not even get to talk to him about the surgery after the initial day of the funeral procession it seemed like when I first went there for consultation and all the doctors prodded and poked...
they had such solemn faces, it was like a nightmare come true, someone wake me up!!
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1. Rita 2. Wendy Younger 3. Ginny 4. Jan Clare
5. Michele 101 6. Laura to GO 7. Kater
8. BECKY 9. SUSAN ZAP
Kater: Lunch/walk or lunch/boat ride : either works for me. I believe that I will be driving down with Jan and Laura, so whatever their time schedule allows is fine with me!
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11:00 lunch sounds good to me Kater and I love the individual payment plan...good idea!
I will go along with the majority on the other plans. The menu in the lodge is quite varied...something for everyone! Maybe the walk this time and if we come back in the fall do more??? I really don't care.
Rita
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Walt Whitman 