Illinois ladies facing bc
Comments
-
Afternoon! Wow...am I ever exhausted! That group of Prostate CA survivors really showed me a good time after you all left. WoooooHooooo!OK...Laura...stop with the photoshop! Lisa and Leesa look like floating heads! And I didn't know you decided to move up to a C! OK girlfriend....we need to meet next week for lunch! I want to get a look at the new you! So funny when Boobette slipped down by your waist and that man came out, asking if he could you find whatever you were looking for!!!!!
Lisamed....so nice to meet you last night! Can't believe that your hair is growing in so evenly! Wow! How long did it take you to get back to Palos last night?
Connie...your hair looks so wonderful!!!! Careful with that flat iron tho....I really burned the life out of my hair.
Leesa...you looked so "gelatinous"!
Pat, Blackjack, Jan...so good to see you again! When's the next lunch!
JulieChicago...you looked so tired last night, but good too! Great to meet you and hopefully all this soon will be a distant memory for you.
Pizza last night, out to a new Italian rest. in Elgin today with my exercise ladies....good thing that I haven't missed a day at the gym so far this week! Too much Italian food makes for too much Wendy!
I hope your day is going well....and you are happy and all is right with your world. Hugs!
0 -
Good afternoon ladies! What a lovely group of gals! It looks like you had a great time! Sure wish I could have joined you. Julie B....I think you're looking pretty darn good for all the problems that you've had. I'm so glad that you all had the chance to get together and especially glad that they kidnapped you, Laura and brought you along! LOL
I'm off to practice my presentation for tomorrow. I took a break and had lunch with Ginny, who had her enlarged lymph node removed yesterday and is awaiting test results today. She looked pretty good for somebody who just had surgery yesterday. I was hoping that they'd call and give her a good report while we were eating so we could celebrate in style, but no such luck so she has to play the waiting game for a few more hours.
Hugs to all of you on this dreary afternoon in Central Illinois.
Rita
0 -
I been gone a while. Trying to figure out what to do with my life now that I've had all my rads & done with that. Talk about a life change. You get used to one thing, and then you have to find something new. Anyway, I wanted to share an e-mail I received today with you guys & spread the word.......
==================================
Today we are notifying you of a clinical trial that is currently enrolling patients with triple negative breast cancer. Triple negative breast cancer is defined as breast cancer that is estrogen receptor-negative, progesterone receptor-negative and HER2-negative. This study is being conducted at numerous sites throughout the United States and worldwide.
If you answer "yes" to all of the questions below, you may qualify for this study.- Are you 18 years of age or older?
- Have you had invasive cancer of the breast?
- Have you been diagnosed as having triple negative breast cancer (breast cancer that is estrogen receptor-negative, progesterone receptor-negative and HER2-negative)?
- Has your surgery been completed for early breast cancer (lumpectomy or mastectomy)?
To learn more about this study and to find out whether you may be eligible to participate, please call toll-free, 1-800-338-9910.
======================================
Hope it helps someone!
0 -
Hello everyone! My first ever post!
I live in McHenry Co. and I having a unilateral (rt. side) mast w/o reconstruction on 11/3. My Drs. and surgery, treatments etc. are at Good Shepard Hospital. I was dx'd on 9/18, with a lumpectomy and SNB on 9/22. The lump was over 4 cm, and 6 of the 10 nodes removed were affected. They have found more cancer in the nipple, so I have elected to have the mastectomy.
I'm doing OK with the surgery. I will miss my breast though. My mom is coming to help me. My family and friends are wonderful and all very supportive. I need people who are going through this BC journey to talk with. I read the the posts and I start to cry, because someone is feeling the very same way I do.
The surgery is not what scares me as much as the CHEMO! I was born 51 yrs ago with a patent ductus and pulmonary stenosis, that I had 2 surgeries for at Rush, when I was 2 yrs old and 5 yrs. old Since then I had a normal healthy life. I have 3 adult children, and they are all doing well. My oncologist and I have been discussing my options for chemo because doxorubicin is hard on your heart. I had an echocardiogram a few weeks ago to see if my heart can handle the medication. I have heard of people having strokes and other bad reactions to chemo, and I'm truly frightened!
This entire thing has been so surreal so far....I have a "breast" to wear, and a wig, so I'm ready for that. I cannot sleep for more than a few hours at a time, I just lay there or get up and watch TV. I am a quilter, but it seems that my "muse" has left me for a little while...that's OK...it's happened before. Work put me on short term disability, for the lumpectomy, so I have not been working. I used to be at work and think "Jeez, I wish I did not have to work. I could just stay home and quilt" Careful what you wish for, huh!?
Anyway, I am just a basketcase these days! Thanks for listening. I hope that there is someone near my going through this that I can talk to.
Hugs, Carol
0 -
Carol Welcome to the club!! Sorry you had to join us!
I too had a PDA when I was young @ childrens memorial In Chicago.!!!! I had my 1st BC in 2002 just a mast. then in 2006 it came back!! So I did the whole chemo and rads. I did 4 DD ( every other week) of AC then 4 DD of taxol. Top it off with 38 rads all on the LEFT side!! My 2 year will be November 1st!!!!
you can PM me and we can exchange e-mail ( PM = private message top of the page)
Got to run
((((HUGS))))
0 -
Carol Welcome to the club!! Sorry you had to join us!
I too had a PDA when I was young @ childrens memorial In Chicago.!!!! I had my 1st BC in 2002 just a mast. then in 2006 it came back!! So I did the whole chemo and rads. I did 4 DD ( every other week) of AC then 4 DD of taxol. Top it off with 38 rads all on the LEFT side!! My 2 year will be November 1st!!!!
you can PM me and we can exchange e-mail ( PM = private message top of the page)
Got to run
((((HUGS))))
0 -
berrypatchCarol, welcome to the club we dont want anyone to have to join (that never gets old) 8-)
sorry to hear it........... if you or any other newbies want to get on our internal email list as well (sometimes easier for some of us)....pm to laura .... please.... LauraGTO
dont be so scared about chemo
My favorite from a 2 year survivor husband, she was 37....he said,
"you'd never know she's been through chemo by looking at her now"
That really hit home.
Now after chemo and radiation I go to a naturapath and try to be more smart about varying my diet and taking supplements if I cant eat right all the time.
Surely you'll get lots of support here and also maybe you can make some of our get togethers.
THE BIG BONUS OF BEING OVER 50
over 50 people USUALLY have much less trouble with chemo. I am living proof. I watched my 72 year old mother go through chemo four times now (third recurrence ovarian cancer) and she never was sick. _I_ got really sick........... the first time especially because I cut my de lymph noded hand cutting frozen fish apart at 5 a.m (stupid...)
She had her 15th since december 2007 and she has never had a bad reaction to her chemos.
I have read it in chemo papers and on line, so it is not just an assumption.
I didnt want doxy cause of heart but they gave it to me anyway......no choice actually. Kind of made me mad but oh well. I do not want to live in a rest home.....ever.........I have seen what it's like 12 hours a day watching over my alzheimer uncle the couple months we had to succumb to rest homes.
Down the road, study the BRCA testing that has been around about 8 years, if you haven't already, for your kids' sake.... my Mom was tested and was negative. It indicates if you have a bad gene and ovarian cancer might be an issue, too. If she would have been positive I would have probably had both breasts removed. I DID have ovaries removed the same year as the March 2007 surgery.
hugs, kater
The naturapath is: www.drmitchellnd.com and for my dogs and cats: www.drkarenbecker.com
I like them both a lot. I also have a naturapath chiro for two dogs, too, now, Dr. Dena Jersild from Winfield, IL.
Dr. Karyn Mitchell 603 Geneva Rd t. Charles, IL 60174 630-443-9930 or 815-732-7150
0 -
JUst a quick update....I DO NOT HAVE CANCER!!!!!!!!!!!!!!! What a big relief...
Ginny
0 -
Hi girls,
Train problems tonight and I am already in my jams and heading upstairs to read - I am exhausted.
Just wanted to say I am soooo glad that I met up with the group last night. I had a great time and hope to be able to do it again some time soon. It took me about 50 minutes to get home, lots of cops on 355.
Have a great night everyone.
Lisa
0 -
YEA GINNY!!!!! 0 -
Hi again...
Ginny....yay. Just yay. I am so frickin' happy for you. Just yay. yay.yay.yay. And..
I told you it was a big fat nothin"...when are you girls gonna realize that Mama Winnie knows all????? (Only kidding Ginny....we were all talking about you last night, and hoping the best...you are dearly loved up here, in case you didn't know!)
berrypatch...please let us know how we can help! McHenry County not far from most of us...just need to know a bit more, direction-wise! Kater is correct...we PM our add, phone # etc to Laura GTO and then she forwards out the whole list of us...who knows...one of us could be blocks away! But..if you are not comfortable with that...that is so OK! I am triple + so did chemo that would not add to any heart damage that the Herceptin might cause..I did carboplatin and taxotere which for me was "doable", a word you will come to hate! But...actually...I was the lucky girl here. For the most part, outside of the hair evacuation....no side effects. Really! Just need to remember to take ALL your anti-nausea drugs even if you are feeling great. It is SOOOOOO much easier to prevent nausea that to treat it. Would you like a "sit-down" with a few of us who have been thru what is up-coming for you? Just let us know....I like to think that the gals on this thread have saved each one of us, at one point in this whole ungodly ride...and I think we could help you too...if you want us to that is....
Lisamed....glad you made it home and I personally think 50 minutes is outstanding! Next time I am going to sit next to you...you are warned!!!!! And your hair is too cute! OK...you don't like the color...but...mine grew back like I had stuck my finger in a light socket!
OK.....gotta run....GA starting soon! Hugs!
(PS: Pouring here but they took snow outa the forecast for next week..gotta love that)
0 -
Just checking on Ginny - yay- I am so happy for you too!!!!!
And welcome to Carol. I live in McHenry County too. I had uni-mast. with immed recon (at Good Shepherd also). Then chemo (Adriamycin and Cytoxin then Taxol and Herceptin) and also radiation. Keep checking in and let us know how you are doing. (PS-my 2 yr since dx was this past week!!!!)
0 -
LOOKING GOOD!
Laura, can you post names? Work and/or distance keeps some of us out of these get-togethers and I would like to connect a name to face.
Such lovely ladies!
Susan
0 -
Wow! I cannot believe all the posts. Went to dinner with a friend, came home, logged in, and here you all are!
Karin - I am whining, but you have gone through this BC hell x2. I got your message and will email you tomorrow.
kater - Yes, I am looking into changing my diet and taking supplements. I am BRCA negative. My older daughter has phyloides (sp?) cysts, but Dr's don't think that it is related. I did PM LauraGTO my info.
Wendy - a sit down would be awesome! I did not know that you get anti-nausea drugs with this. That's good cause I HATE to throw up! Yes please! I do need help. I am so scared. But I don't think that I am alone any longer.
Michele - PM me. Let me know where you live. Did you go to Dr. Compagnoni? She's wonderful!
Goodnight all! Carol
0 -
berry patch carol
THEY SAY dont take supplements though during chemo, make sure to take notes and or tape the oncologist when he tells you what to do. ours said green tea was okay.....i dont recall much else.
i mean AFTER chemo and radiation...
0 -
berr patch
chemo brain....comes from the anti nausea drugs or the chemo or both, not sure if they know which, but it makes sense, block nausea, block some brain cells?
well at any rate, i wish i would have written down the UN age like memory loss i got.....it's a different kind of forgetting.....
one i remember was taking wrapper off food and throwing away the food in the garbage...that's not quite good enough example, seems i might have done that before, but it was worse after chemo. i never got truly nauseated, which is my greatest fear probably, i hate nausea.
kater
0 -
neuropathy
i read to take l-glutamine, my mom had lot of neuropathy with her ovca chemo.
i took that, her dr. now says l-gluthione, not sure the difference.
that supplement is okay....i thought there was only powder but i found out later you can buy pills, ie walmart. walgreens never came up with the quality baxter powder i had been told to request.
0 -
No, I won't take any supplements or do anything different unless approved. Oncologist said not to take ANYTHING w/o his approval, especially anything herbal. I plan to follow his instructions to the letter!
0 -
Good Morning Girls,
Welcome to all the new girls here..Lisamed is was so nice to meet you. Glad you joined us for some laughter and fun. Hope you had a good time. As you see we are an entertaining group.
Berrypatch..welcome and do post often. There are alot us here that can help you throught this journey. Each of us as being there and are here to help support you. We meet once a month for a get together and all new girls are welcome. Next one is Nov. for lunch..known as the Lunch Bunch.
Kater...thought you were come to have fun with us....where were you?????
Karin...how are you. I am closing down my pond today rain and all. My fish have grown soo big this year and I have lots of new toddlers in there. I hope they do make it through winter. They are so cute..lots of color one's ..I will miss the running sound of the water fall. Need to have summer back ASAP!!
Connie.. It was so good to see you again and your hair is adorable with the curls. You are just way to cute !!! I hope your kids enjoyed the pumpkins and candy.
Laura...I am so glad that Smerf and I came and got you.. No more of this pity party do you here!! This is not allowed. We need to have fun....lol
Wendy.. you are the Kohl's girl..love the outfit.. and thanks for the coupon. I did you it and saved a lot. I do love to shop. Got a jump start for Xmas which you know is right around the corner.
Smerf..so glad to see you and always we have soo much to chat about. lol Looking gorgeous as ever.
Juliechicago...so glad you made it and you are looking so good after all you have been through. Sending you healing hugs your way.
Leesa...please keep in touch and tell Vic he is a great guy !!
Ginny...congrats on your good news..way to go girl hey !!!!! BC be gone...
Zap..how is school going...just think Thanksgiving break is almost here yeah !!!! Then its time for a vacation.
Rita..how was your presentation..I am sure you were great.
To everyone else in tx sending you all healing hugs your way.
As for me I am off to the shower and then to get ready for tailgating party. My dd wants lots of food so I am baking brownies and cookies now..My kitchen smells so good...
Have a great day everyone...
Remember to be healthy..be happy..have fun and enjoy your life.....
Blackjack
0 -
Morning All!Carol/Berrypatch....nope. You are so not alone in this fight. I see you are not working at the moment. Would you like to have lunch next week and meet some of us? We are very supportive, have all different types of BC and have all had different types of tx (treatment) and surgeries so you will get a feel of what is to come. And truth be told...we are also a bit wacky, but that's OK too! And you are not whining. This is what we are here for....you get to come on this board and whine and yell and scream and cry....and it is always ok and we are always here to listen and we have very big shoulders and we give great hugs!
Girls.....if Carol wants to, how about a lunch next week to extend a hand to her?
Blackjack...glad you put the Kohl's coupon to good use!
Well....I am off to exercise and numerous sundry errands. Hope you all have a wonderful, happy, healthy day! Life is so short....and we don't get any do-overs...so make today count. I think Laura said a few days ago that we will never have today again and she' so right....why not do something today that your heart wants but that you just haven't bothered doing recently....let's all go to bed tonight with a smile on our faces, knowing that today we did something that mattered!
0 -
GINNY - THAT'S WONDERFUL NEWS! Isn't NED GREAT! I just love him!
RITA - That is awesome that you met w/Ginny! I am sure she truly appreciated your company. Thanks for sharing! I wish you lived closer to us!
Jackie - Just wondering about you and your family! Hope all is going well...we miss you!
---------------------------------------------------
OH CRIPE! Where do I begin to say how thankful I am to each and everyone of you! You girls pulled me out of my "funk" last night...the laughter, etc... I don't know what I would do without you. Okay - I will tell the story about my prosthetic... I discretely took it out of my bra at the table and handed it under the table to show some of the girls what a small prosth looked and felt like, just in case they wanted to get one. I bent down and slipped it back under my shirt, thought I had put it back into my bra, but instead I put it just in my shirt. We got up to leave and by the time I made it to the front door of the restaurant, it had fallen down to my waist. It was sticking out - behind my blouse just above my belt. I looked down and LOL...I pointed it out to some of the girls...we were all laughing - and then this guy was walking out and he heard us and he looked at my lump and started laughing... I think he said something, but can't remember what! It was so funny! AND EMBARASSING!
------------------------------------------------
For the new girls... I am so happy you found us... it's an incredible thing to be able to relate and converse with those who TOTALLY understand you and your DX! Sorry you are in a position to join us, but your journey will be an easier one knowing we are all here for you.
Little C - Glad you checked in... maybe you can get together with us next time we meet!
Carol - I had all my treatment and one of my 2 Masts at Good Shepherd. Who are your Dr's? When is your Mast.?
Wendrew/Carol - I will meet with you girls next week...maybe we could meet by Michele's work so she could join us. Could it be on Monday, Tuesday or Friday? Hey...you didn't like my face lifts! LOL - That's why I'M PRACTISING! LOL LOL I thought you turned out pretty good! LOL
Susan - From left to right -
bottom row - Julie (Chicago) & blackjack
top row - me, (behind me), Connie, Wendy, Pat, JanC, Leesa, Lisa
------------------------------------------
Girls - have a great day!
0 -
Morning everyone!
Laura - the face lifts were tooo funny! We all looked so weird.
Welcome Carol - sorry you are going through this. I too was not scared about the surgery, but very scared about the chemo. I made it through. As long as I took my meds, I didn't have any nausea. I had other side effects like throat sores and constipation. It wasn't a piece of cake, but I made it and am doing ok. This group is a great bunch of girls.
Ginny - so happy for you!! We have all been thinking about you and can feel your relief!
0 -
Wow: We seem to be having a wave of better news. Ginny, so happy. I truly was worried. I did not know what to expect, but thank heavens you are okay. Isn't that moment just amazing....when you hear it is NOT!!!!!! It feels like a load of wet cement has been washed away from your spirit.
Carol, I am glad you came to this thread. This is all scary stuff. I am very bad about following rules.....very bad.......but I laid those pills out to prepare for chemo like I was a regular pharmacist. I never once had nausea. I had other stuff, but I got through it all. I understand that your concern is different in that you are worried about the heart/chemo connection. It sounds like your doctors are on it. Just know that on surgery day all of us will be routing for you.
Oh man, I need a break. I have had 73 parent conferences in the last two days (they are five minutes long). I still teach during the day and then do 4-8 pm conferences. I am just so beat and I know I am ready for retirement next year. I am just lacking in the stamina; although I did get through them without too much drama. Took half day off today (teacher institute day). It was two year ago today that my hair fell out.It kinda laid on my head and I got through conferences. Then I stayed home on the Friday and I just pulled it out. I was in such shell shock from the conferences that it just seemed natural that another dramtic thing should follow. When my husband called and I told him I could hear the sadness in his voice and then it hit me that this was a day I would never forget.....and I never will. Carol, I wore my wig on the following Monday and everyone thought it looked even better than my own (mixed compliment, I know). I had warned my students (8th grade) and they stood and clapped for me. I tried not to cry, but I did. Kids are amazing and come through when you need them. They can be jerks quite often too! God, it does take courage to get through cancer.
Thanks for the names Laura.
Well, have a great weekend. We may do the Illinois Michigan Canal bike ride if I have strength. I am married to a man who never quits, so I have to retire just to keep up with him
susan
0 -
Good Morning!
Blackjack - Thanks for the welcome! I'd love to meet you ladies. Even tho this is a club that I did not want to join, this might be the best thing that has ever happened to me. (Meeting you all, I mean)
Wendy - Lunch would be terrific! My days are pretty empty right now, so you ladies decide when and where, and I'll be there! I am pretty wacky myself, although you wouldn't know it by my posts right now, but trust me...I am.
Laura - LMAO about the prosthetic! They look so real now, nipple and all, that would be pretty embarassing/funny for that to fall out in public! My mast is 11/3 at Good Shepard. My surgeon is Compagnoni and my onco is Sobel. I really like both of them. They both keep offices in McHenry as well, so I will be going there for treatments and follow up, as it is closer to me than Barrington. I had my lumpectomy at Good Shepard.
Connie - Thanks for the welcome! This does seem to be a great group, and I look forward to meeting you all!
kater - Yeah, I've heard some talk of "chemo brain" Yikes! I think that my brain has turned to mush already just because I'm not working now, so I'm not really using it. Maybe I need to take up Sudoko until I can start quilting again!
All - OK, I have 2 things that must be done today. Call insurance co. and be on hold for awhile. Then I must get a start on the guest room, because my Mom will be here next Sat., 11/1. That room has turned into a dump spot, and I want it to be nice for her. Mom is coming from Bellingham, WA just to stay with me during and help after surgery. She will certainly will keep me from being bored.
I am so looking forward to meeting you ladies! I hope that we can get together next week! Thank you all for being so kind and supportive.
Hugs all around, Carol
0 -
Hi, I wasn't quite sure what forum to post this on...
Has anyone had problems with doctors or nurses being "curious" and wanting to see your mastectomy/ reconstruction when you are seeking medical help for something unrelated?
I went to the doctor yesterday (an internal medicine doc) in order to get a podiatrist referral and also to ask about my hand, which has become quite stiff.
The doctor knew I'd had a mastectomy, and asked me to take off my shirt. I was trying to be positive, and said 'It turned out well, you can't tell in a bra", and the doctor said "But the top (pointing to my reconstructed breast) looks different from the other one...". The woman was criticizing my body, after I'd had a mastectomy! Then she touched my reconstructed breast and asked me what it felt like. It was horribly insensitive. I'm a person, not a circus act.
Obviously, I'll retrieve my records and find a different doc for general med problems.
Thanks for letting me vent. It was upsetting. I wonder if anyone else has had to deal with "curious" medical people. The next time anyone wants to "look", I'm going to say "Absolutely not. Only my gyn and my breast surgeon. Period." I was just so taken by surprise at the time it happened. It didn't occur to me that I'd need to protect myself from the doctor!
Everyone take care. I usually "lurk", but I appreciate everyone's posts.
Reader
0 -
Holy cow, you all have been posting like wildfire! Sorry I missed u all at Pizza, love the pics
Ginny - YAY!!!!!! YAY!!!!! YAY!!!!!
And I want to say hello to Carol as well.
Reader - I've never had anything like that happen to me - at least not yet. That doc was very insensitive and crude. What a jerk. I hope you are able to find a more compassionate general m.d.
- - - - - - - - - - - - - - - -
Went for my pre-op tests today - they didn't do much since they had such recent bloodwork from my bmx.
But this was interesting - the DX on the surgery order said "Acquired Breast Deformity"!! Not Breast Cancer!!! The nurse said "okay, you are having your tissue expanders removed & implants placed due to breast deformity...." I was like "uhhhhhh noooooo - I had a double mx due to cancer." She then started marking in red, stamping stuff - I could tell she wasn't happy that the paperwork was incorrect. Makes you wonder - and worry - sometimes!!! We all have to be so diligent at all times, huh?
Have a fabulous Friday night girls!! Love, JulieA
0 -
Lissa,
My surgeon is Dr. Nora Hansen at Northwestern in downtown Chicago. She was very highly recommended and very highly acclaimed, you should google her if you are willing to make the trip to Chicago. She is listed in my most recent Women's Health magazine as one of the best in the country. I did not have to wait long at all, they only want any prior records sent to them before they make an appointment.
Rainy night here, I am relaxing tomorrow, maybe get a new jigsaw puzzle to do. Sunday I am going to a town hall meeting at Northwestern called "The Promises and Myths of Breat Cancer Research". My onc and radiation onc are participating, along with other drs. I personally want to know about triple negs. I may call the number someone listed yesterday about the clinical trial for triple negs and wee what it is about.
Berry, the anxiety about both chemo and hair loss is bigger than the actual events. I finished this past July.
I hope no one minds, I posted the picture on the April chemo group thread that I post on so the ladies there could see my hair progress.
Good night!
Lisa
0 -
Morning! I can just guess what type of day I amgoing to be having when my coffeemaker dies. But at least I got a half-cup out of it first. But don't be too sad....I have my Kohl's coupon!Berrypatch...I sent you a PM. Let me know!
Lisa....I will have to check out your pics! Still cannot believe how evenly your hair is growing back. And you are so right...the anticipation of being bald was much worse than being bald. Once it was gone....I stopped crying. And I have to be somewhat truthful here....I loved my wigs, thought they looked great. And it was just so fast in the morning. And no more bad hair days.
JulieA....okay, that is so wrong that they didn't even get the "cancer part" right on your paperwork. Just another example of how careful we all have to be!
Reader...nope, never had anything like that happen. And with my big mouth I would have said "You want to see my scar? Whatever for? And, no." A new doc sounds like a good idea to me.
Hope you all have a wonderful Saturday. I am off to shower and then to Starbucks for coffee and then to Kohl's. DH has a party/dance at school tonight so I will have the house and the TV to myself from 4-9...thinking scary movies might be in order!
Oops...Lissa....I too went ot Northwestern. Yep...they just wanted all my records. I called on a Friday and they saw me one week later. But be warned....I don't think they read them until I was sitting, waiting! It was worth the trip...their cancer center is nationally rated as one of the VERY best.
0 -
stop to say GOOD MORNING
Ladies, you are all so beautiful!!!
0 -
I had a terrible clerical error too. The primary had the report on the mammogram. I told him that the cancer did not show on the mammogram, as I was told by the BS. He said that was not what the report showed and he showed me the report. It said that the tumor showed on the mammogram and the location was not where it actually was found on an MRI. I read it in horror. Then he said it looked like a clerical mistake (a bad cut and paste job from someone else's report to mine). he called the radiologist and the radiologist said he would look it up and send another copy. I called the BS office and I was mad! They never would never admit to me it was a mistake and just gave all these silly excuses as to how to interpret it....like my primary and I were fricking idiots.That got me even angrier so I went back to the primary and told him. He said it was a mistake and it was not my report. He gave a copy of it to bring in to their office and then gave me the right on which was sent with no explanation of the error. I actually would have felt better if they just said it was an honest mistake and sorry. I no longer have that doctor as she moved her practice out East. Long (very long ) story short, Wendy is right. We must be vigilant.
Sorry to dump all this on you. I can feel my blood pressure rising just remembering this. I remember I said "what the shit" and I never use that language publicly, to the doctor and he wasn't even fazed as he understood how bad this situation was for both of us. He thought I was in denial and needed to show me the report.
Gosh, I feel better finally getting that off my mind (notice I don't say chest). I never said anything to you because I was worried you would think I had a bad doctor and that worried me that I might.
Susan
Susan
0
