Illinois ladies facing bc
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Our DD had a college roommate who was Fong Dong.
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Good thing they didn't name him LONG Dong!
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Drive-by post here. I feel like I haven't been able to keep up with things lately. RL has been busier than usual, but I'm not sure why! Just one of those times when lots of things seem to be happening at the same time.
Anyway, I hope all are well. Happy belated Birthdays to BJ and Jan Clare. Sorry I missed them. Mak, glad to hear you're doing well with your study and that your counts are going back up. Welcome to the new ladies!
I've seen a lot of funny names over the years of working with patients. The prize winner is from waaay back in '78 or '79 when I was still a student working in the hospital. There was an older man who was a regular patient, and he must have been in his 80's, so you can imagine when he was born the name he was given might not have been as ... amusing, as it was in later years. His name: Oral Sexton.
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just a drive-by myself
Had a TE put in on my left side - and a Latissimus Flap (w/TE) on my right, last Wednesday.
I got out of the hospital that Saturday. Was sore, but everything looks great!
Went to pizza with my family Saturday evening.
Pedicures with my daughter on Sunday.
Lunch with girlfriends on Monday.
Check-up with plastic surgeon and two (of four) drains out on Tuesday.
Nails done, oil changed & got groceries today........
No, I am not super-woman. I have napped each day and gotten 9 hours of sleep each night. I feel fantastic and PS says everything looks great!
I will have saline fills starting next Tuesday - yaaay!
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Hi Rita,
We totally missed the Macys and Von Maur area of downtown! I'm P.O'ed cuz I wanted to see if my husband gets the offer and we accept it I'll let you know. What's your favorite steak house or "nice restaurant"? Rosies? Or that Italian one in Normal?
hi everyone - hope all is well
I almost forgot my friend had a sister who went to school with Harry Blueballs. Sadistic parents if you ask me. LOL
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Our "Rainbows and Butterflies" are the small miracles of our life - the little things that are so easy to overlook, yet so awe inspiring when we take a moment to notice and to pay attention. Give thanks for the rainbows, for the butterflies, for all God's creatures - large and small, for the bright blue sky and the soft fog and the gentle rain, for the tree veiled in the season's first frost, for the baby's laugh, for the touch of a hand and the whispered "I love you."
- Jonathan Lockwood Huie0 -
Friday funnies. Just checking out information regarding that colonoscopy I need to get. (One of those 49+1 birthday presents I haven't received yet). Came across this informational PDF. The cover cracks me up:
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Valgal...I sent you a PM but my computer did some funny things at the end, so let me know if you don't get it.
The sun is out!!!! I have to moderate a scholastic bowl match this afternoon so I need to hurry out in the yard and do a little work while I have the chance.
Susan, that Connie is ahead of us again in JJ this week. LOL
Catch you later this evening. Enjoy this lovely day!
Rita
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Any of you need a good, healthy laugh? If so...turn up the volume and laugh your butts off:
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We drive by an insurance company on the way to our MI home - Harry Johnson Insurance
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Laura....that was a scream. Hate to admit this, but Connie,,,I don't want to tell you how many times I read the name of the Insurance Co. before I got it. By the way.....I'm so glad I'm not old.
Jackie
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Hi everybody. I have been away for several days and had so many pages to catch up! First let me say a big thank you for the Hysterical funny names that you have posted. I have been laughing and snorting and having tears rolling down my face. Geez, who would have thought that something could so VERY funny.
I just got home from seeing Navyson and his family. My sweet little grandson is about to start walking. It is always so difficult to leave them. But I am greatful that we get to visit so often.
Happy birthday to those I missed and congrats to those that are finishing TX and making it through surgery.
Navy
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Wealth Poem
Wealth is not the things we own-
A stately house upon a hill,
Paintings, rugs and tapestries,
Or servants taught to do one's will.
In luxury, a man may dwell,
As lonely as in a prison cell.Wealth is not a plenteous purse,
The bonds that one has stored away,
A boastful balance in a bank,
Or jewelled baubles that fools display.
The things that really gratify
Are things that money cannot buy.Wealth is health, and a cheerful heart,
An ear that hears the robin's song,
A mind content, some treasured friends,
And fragrant memories lingering on.
Living is an inward art-
All lasting wealth is in the heart!-Alfred Grant Walton
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Good morning everyone as I look out on rain and listen to it hitting the roof. I think it will be with us in varying amts. until tomorrow morning. A bit cooler too......drat. At least the leaves are starting to spring out and hide the houses around us and soon we will feel almost alone where we live. I am so fortunate and so grateful that I can live in an almost natural setting.
Navy....seems just yesterday almost that we were all waiting with bated breath for your grandson to come into this world.....and now walking. Hide the car keys --- he's growing fast. Ok, we do love those milestones, but they do come fast.
I did not pay much attention to the weather for elsewhere.....like to think this is missing most of you, but don't know. Well then, just have to keep some sunshine inside till the real thing gets back.
See you all later.
Hugs, Jackie
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Hi all,
Still laughing at the names too.
Ok- so here's a question. Received a call day from patient coordinator from pl. surgeon's office and going over my records, she asked if I had ever had the BRCA testing done. I did- three years ago and it was negative. When you have a first line relative (mother in my case) with bc and then two new primaries as I've had-- a genetic connection is suspected. She indicated that since I was originally tested, there are new tests that are now being conducted-- something called BART testing- and if I was interested, I should check back with the dept where I had it first done. (Having a daughter....I will likely do this.) She also-- and this is where the question comes in-- indicated I might want to consider having my ovaries out at some point. This took me a bit by surprise, but I admit, beyond knowing about the BRCA connection and risk, I've never done much research into the whole ovary connection. (I'm triple neg-- so have not been attempting to remove estrogen) . Just wondering a couple things-- Is the risk for developing oc much higher after bc? I know that I've seen news of new screening techniques. Beyond the yearly oby visit, are there any new protocols for screening if you have a higher risk having had bc?
I'm actually not going to deal with this right now-- one thing at a time. (And the gyn/onc she referred me to was the one I saw years ago for a different issue-turned out to be benign paratubal cyst-who told me "I was lucky enough to have one child after bc/chemo. I should be happy enough with this and have everything removed." shudder. Um no. Last guy on earth) But just wondering. In meantime, have a slew of pre-op appts next week to be nervous for.
Yukky weather this weekend. Last Sunday was such a tease.
-julie
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Julie a good person to ask I DonnaDio. She's triple negative, stage I (actually you two look like you have the exact same diagnosis) and was recently oophed. --------------------------------------------------------
I saw my BS today. First time since 6 weeks after surgery. Of course a very different visit from the previous ones. He was quite cheery and very please with my progress. Very surprised that I have LE. Right now I schedule to see him in 6 months but he said I may not have to see him for another year. Next time I see my onc she will make the call. Amazing that it's been almost 8 months since surgery. Before you know it, it will be a year!
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Julie -- I'm mulling over the same thing. My grandmother passed away from ovarian cancer at the age of 60. She had breast cancer when she was in her twenties. She was very likely BRCA positive as ALL of my first cousins are BRCA positive, but I'm not, even when we went the extra mile and did the BART testing, still negative. So while technically I'm not at increased risk for ovarian cancer, because of the miserable family history.... my dad passed away from pancreatic cancer in his early 60s, my mom passed away from lung cancer in her late 60s, both of my mother's sisters AND one of my father's sisters have had BC... well I feel compelled to remove any and all body parts that I can part with that put me at risk. As my MO put it, "well your family history is so complicated, that it's hard to rule out ovarian cancer as a risk, AND it's hard to detect, AND you have finished building your family, so if you want them out, that is rational and I would support it". So won't do it immediately, but am likely to do it within the year.... I feel high risk even if it's not rational.
I'm a bit angry that I'm NOT BRCA positive (though I'm so relieved for my girls.....) only because I was tested years ago, and had already decided to do a prophylactic mastectomy if it came back positive.... so I would have avoided this BC experience. Not that you all aren't wonderful, but you all know what I'm talking about.
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I know some of you ladies are a lot younger than I am, but I had my ovaries, uterus and cervix removed laparscopically last oct and I am glad. I had polyps in uterus and they could just have done a D & C but could not guarantee they would not come back, and this way we removed three possible kinds of cancer, cervical, uterine and ovarian. I was only off work 2 weeks and just had 3 tiny incisions. Annette
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"There are two types of pain in this life;that of discipline, which lasts a short while... and that of regret, which can last a life time."
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Speaking of colonoscopies... I had mine on Friday. This was my third time, so no worries.. right? I know the prep is a pain (literally), but I've done fine with the anesthesia for my previous procedures and that's usually my biggest issue.
I asked my GI doc (who I love) if she was using the same drugs that I had for my endoscopy and she said yes. I had absolutely no issues after my endoscopy. For whatever reason, I came out of my colonoscopy feeling like I'd had general anesthesia. I can hardly remember most of yesterday. I tried eating soup and that was a BAD idea. Finally feeling less scrambled today, and eating some rice, which is the first solid food I've had since the broth and jello on Thursday. Very weird. The colonoscopy was all negative, thankfully. Glad to put this one behind me, at least for another 5 years.
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Hey did anyone have their sentinel node biopsy before their surgery, and if so, how long did it hurt? I'm day 8 and it still hurts quite a bit. Reallly sick of it!
Rene they give you something to "forget" during a colonoscopy. My husband asked the nurse post-colonoscopy the same question about 4 times. And he didn't even remember asking her anything the next day.
Continuing on the name game: A surgeon named Dr. Hatchett. He must have been good because who would pick him out of the yellow pages?
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There's a nurse Ratchett and a Dr. Hatchett! If they got married...her name would be nurse Ratchett Hatchett! LOL
GOOD MORNING ALL! Hope you have a nice Sunday.Julie - I had one ovary removed - years ago - due to a cyst the size of a baseball. The surgery was a breeze, but I had a problem with lingering gas pain. Hang in there!
TwoHobbies - I had severe pain from my node biopsy (pre-surgery). I finally ended up having pain blocker injections and that helped. Best wishes.
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"Courtesies of a small and trivial character are the ones which strike deepest in the grateful and appreciating heart."
Henry Clay
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Thank goodness it is a sunny day today and I am ready, willing and able to take lots of joy and pleasure from that.
Rene', after Two Hobbies said it I recalled my hubby having that procedure and not recalling much -- other than their having told him beforehand that he wouldn't.
Laura....too funny about the marriage. I think there is somewhere ( isn't the Internet great ) where you can look up this sort of thing with the funny names....but you didn't have too.
I hope you are all going to have a most wonderful Sunday. I think about all of you and always hope that everything that happens to and for you turns out well.
Hugs, Jackie
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Happy Monday to all....Ok were did this snow and cold weather come from????? I thought it was spring. aarrggg Chicago weather just gotta love it. Yesterday I did the 3.5 mile walk /run for the March of Dimes Baby Walk around Grant Park. There were 8,000 people there all walking for a cure. Lots of really cute babies there. My dd was a preemie baby so this is near and dear to my heart to do this. Took lots of great pics, the sun was out but brrrr it was cold. Not like to today. lol I met some wonderful people, babies and dogs who were dressed up to for the walk. In all it was a picture perfect day.
Rene....glad to see things went well for your coloy. Neg is good news!!
Rita...no golf or top down today. sniff sniff.
Julie...thinking of you and hope all is well. Hugs to you.
Zap...the walk is the same time every year. So do come and join us. It will be fun.
Jackie...how are you , Maggie, dh doing. Try to stay warm and dry.
Twohobbies...I had my sential node removed when I had my surgery same day. If you are having lots of pain please call your md. You have many nerves under your arm that may have been cut , so they are healing. Stretching it out and massage worked for me.
Lisa....chemo grad yah for you. Busy is good for us. Hope to see you soon.
Lago... missed seeing you yesterday.
To everyone else I missed hope you are having a wonderful week. I know I am only 4 days for school. yeah!!!
Happy Passover to all of you who celebrate it.
Off to school......only 39 more days to summer.vacation. but who is counting.
Remember to be heathy....be happy and enjoy life!!
BJ
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If we have no peace, it is because we have forgotten that we belong to each other.
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Top of the morning here but they say storms will be coming tonight and tomorrow. Not liking that but I feel sad there is snow in Chicago just now. We are looking of course at the possibility of tornadoes which is always a concern this time of yr.
All else is well. I am still taking Dh to work. He continues working to get the MGB running so he can use it. I think it is one of those things that happen with older cars....fix one thing and it creates too much strain and burden on another part. You keep fixing until nothing strains any more. When we get the income tax check back a new motor is going into the truck and at that point the two little white cars ( MGB being worked on now ) and the Midget Sprite will be sold. I asked Dh what he was thinking? At my age and on Arimidex I have to fall and crawl out of those cars....and that is assuming that I actually mange to contort myself enough to get in one. At ( 72 ) in May Dh does not need cars so difficult to enter and exit and he is quite willing to part with them. Hooray!!!!
Hmm, Maggie. I felt so bad for her a couple days ago. She stayed out too long and used up all her energy reserves and could not get up the one step to her stoop. I had to pull her up......all 80 pounds of her. There is a lesson in this.....first hand I see what my benefits ( although I am quite a bit younger right now ) are to wt. bearing exercises for the rest of my life. I always wondered just why I would need them.....but you don't realize that when you get to a certain point....you need to keep your body well supported at the core all the time and you probably do downhill at runaway speed at a certain point....not saying I'm too old yet....but hey just 'cause' I'm trying not to own up to it.
I hope you all have a great day. It's going to be nice here until tonight I think.....so a day to enjoy hopefully here as well. See you all later.
Hugs, Jackie
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Good morning!! This snow is driving us crazy.. now that I'm on baby duty, we LOVE playing outside.. otherwise the day is very long with a bored little one...
Tomorrow is Prom dress shopping for me.. I'm so excited.. though bitter sweet.. I keep having bad thoughts in my head about not getting to go wedding dress shopping with my girls.. HOW do I get that out of my head.. I think it's because scans are around the corner.. Or because of this horrid disease.. Got to get out of this funk.. Where is spring!!
Having our Passover dinner tomorrow with my parents.. so that's always interesting and hectic.. wish me luck!!
To those still in treatment, it goes so fast!! Hope your day is SE free!!
Marina
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Good Passover to all who celebrate. The Sunset in Northbrook was jammed with people picking up their prepared Passover dishes.
Today was my last full day of work. It was good to prepare the classroom for the returning teacher. She has some appointment on Thursday afternoon so I am working the half day. That is actually good as I did not have to say good-bye to staff and kids today It has been a challenge, but a good one in the end. I feel I accomplished some good things. Just so happy to have my freedom back again!
Blackjack, I would love to do that walk next year. My dd just got her Masters in early childhood intervention and she works with high risk infants born at Rush and other places. She sets up the therapy for kids/families. There is a walk for kids with autism coming up. What with the economy being in the state it is in, people need to keep at these fundraisers as private donations are down overall. I know I have sure had to cut back.
Yes, the snow was a shocker. I am so hoping that weather across the country gets tamed.....too much going on with that.
Rita, I am ahead of you (last look) at JJ. I would be mortified to admit to you how much time I spent trying to get ahead of you.
Think golf, tops down on cars, beach attire and sandals......and even an Easter bonnet for this weekend. Easter is so late this year and I am worried I will be wearing a winter coat.
Susan
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Hello everyone....I have a question...I had Vitamin D test and it came back as 21...I'm not sure what that means but it is "flagged" on my health fair blood work. I take 2 - 400 mg supplement tablets each evening before bed. I faxed info to my Dr so I will see what they say..I have just never had vitamin d levels tested before.
Hope the weather does not get too bad here...I hear the thunder rolling outside...I detest storms ...makes me very anxious...
Hoping everyone haves a good day tomorrow!
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