Illinois ladies facing bc
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I could probably meet for dinner in July. Let's stay in touch and see what develops. I live close to the city, so no problem getting to the area you are staying in.
My daughter went "off the path" at muir woods. But not far. That is a great story
. I am the sort who would love to leave the path but I would never venture too far!0 -
I was afraid to go off path, fear of getting lost! I would need to leave markers to find my way back.
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I love that one of the blessins of this BC journey is the connections and opportunities to meet and develop friendships with INCREDIBLE WOMEN that we never would have met otherwise! I won't be able to join you lovely ladies from Canada in July as I will be recovering from EX surgery (June 25). Have a great time!
Leah0 -
Leah you are so right ... The one good thing of all of this is the new friendships that we have all made and I have to say that I am very grateful for BCO.
Maybe sometime you will come to Toronto/Niagara falls and we can get together.
Joanne0 -
Catey I'm glad u got u'r date for surgery--it'll be such a relief to get it over with.
What a great idea for coming to Chicago, I live a little further than that area so I have no idea if I can make it, but if there's a way, I'll try.
Just wanted to say Hi to everyone and wishing all a beautiful Sunday.
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Peace and love
Jackie
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Wishing a Happy Mother's Day to all of you wonderful women. I sure hope you are doing something to enjoy our beautiful weather.
My next door neighbor has her whole family outside planting flowers. What a great idea...three kids and DH all doing manual labor. Of course, she is pitching in too, and supervising. They're having fun together too!
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Hi ladies -
Happy mothers day to all of you!We just got back from a much needed vacation in Vegas. If you can believe it, it was warmer here than it was there. Temps went up to 90's the day we left & we came home to 50's. Ick! I'm am a warm weather gal so I was not happy. It is amazing to see how green things got in 5 days!
Everything is set for my surgery - NS-BMX/SNB/TE on June 4th. Apparently the SNB might be a little challenging since I already had it done with the first surgery but they feel they need to with the small IDC again. After much debate & consultation with other surgeons (Dr. Kinney is awesome) I will be going with my original surgeon (Rosen) and Madry for PS at GSH in Barrington. Madry is one of the few local PS certified to use the Allergan 410 Gummy Bear implants and he thinks with my petite frame I will be a perfect candidate for them. I am also going to see a podiatrist on Tues to see if he will do bunyon surgery at the same time. I know, I am a glutton for punishment but I might as well get all of it out of the way if I can. The only concern is if I will need crutches, then I won't be able to do that.
I asked to delay surgery so that we could take our vacation (everything was already booked by the time I got my DX) and so that I could participate in the Avon Walk for Breast Cancer the first weekend in June. I have been involved with the walk for 10 years and I couldn't imagine passing it up this year (http://info.avonfoundation.org/goto/jsandstrom)! I walked my first year and then I have been a crew member every year since It is one of the most amazing experiences - if you ever get a chance, go down to Soldier Field to welcome walkers at the end & watch closing ceremonies.
Have a wonderful day!
Jenn0 -
Jenn lucky you on the Allergan 410 Gummy Bear. I think they would have been perfect for me too but they weren't approved back in 2010. Good luck! BTW I might volunteer for the Avon walk for the day. I already do the Chicago Strides Walk (team of Illinois Ladies if you want to join us this October) so I don't really want to bug my friends 2X a year for the same cause but I know they might need some help for the day.
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Happy Mothers Day to all you wonderful ladies!!
JENN- My surgery is scheduled with DR Kinney on 5/31, Im also having nipple/skin BMX with TEs with Dr Madry. Have my presurgery meeting with him on the 22nd. We havent yet discussed which type of implant but the 410 was one of the ones Ive been reading about so Im happy to hear Madry is approved for them. Guess Ill find out more at my appt.
LAGO- I have also registered to be a volunteer crew member for the Avon walk, waiting to get more information, may see you there
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Team Lorac kicked cancer's butt yesterday as the leader in raising $7,357 for the ACS at the Sole Burner in Appleton, WI..., woohoo!!!
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Uh-oh.., How do I get the (team) picture in the post?
HELP!!0 -
C-squared Good for the team--wonderful news---but I can't help u with the picture that's for sure.
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C-Square....I know little about pictures either but do notice that after jpg up there is a question-mark and I think they do have to be ????? sized or formatted for jpg....if memory serves and a lot of time it doesn't. Proud of you and the team though.....way to go.
Love and peace,
Jackie
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I had a wonderful time yesterday at the walk. Both my kids came down from Chicago, and another lady I met from Gilman, IL on BCO came down and we walked he race.
Spunky: Check your PM's from me. I would love to get together with you.
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KJ I'm so glad u had a good day and with u'r DD's too.
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May have put tis in before -- the good ones just keep speaking to me:
There are six principles of abundant living which, when woven together,
produce a tapestry of contentment that wraps us in inner peace,
well-being, happiness, and a sense of security. First there is gratitude.
When we do a mental and spiritual inventory of all that we have, we realize
that we are very rich indeed. Gratitude gives way to simplicity--the desire
to clear out, pare down, and realize the essentials of what we need to live
truly well. Simplicity brings with it order, both internally and externally.
A sense of order in our life brings us harmony. Harmony provides us with the
inner peace we need to appreciate the beauty that surrounds us each day,
and beauty opens us to joy. But just as with any beautiful needlepoint
tapestry, it is difficult to see where one stitch ends and another beings.
Sarah Ban Breathnach0 -
Thanks, Cami!
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Whatever it is probably won't go away, so we might as well live and
laugh through it. When we double over laughing, we're bending so we
won't break. If you think your particular troubles are too heavy and
too traumatic to laugh about, remember that laughing is like changing
a baby's diaper. It doesn't solve any problems permanently, but it
makes things more acceptable for awhile.
Barbara Johnson0 -
KJ- Looks like we'll be your way the end of July. I will pm you once we get exact dates confirmed. (c:
Good afternoon all.
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Oh....... and Joanne, I will keep an eye out for the date and be there if possible!
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Adey: Sounds like a plan. Spunky and I are getting together tomorrow for a drink. Yay!
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Hi. New to the boards though I have been reading a lot the last few weeks. Does anyone they have a MO they LOVE?
I have seen 3 - one at CDH, one at Elmhurst and one at Glendale Oaks and I really don't totally trust any of them. My oncotype Dx came back at 18 and the last few days have been almost as bad as when I was diagnosed since there are competing opinions between MOs. I am 44 which seems to be swaying (though she says it is totally my choice) my primary MO towards chemo despite her nurse calling me last week and telling me no chemo! I was happy till she told me the score was 18.
1.6 cm IDC + Grade 2 + Oncotype Dx of 18 + no LVI + no node involvement + a 3yr and 9yr old DD = decision that I cannot make!
Besides finding some treatment guidance that I trust (does anyone know of an MO with a crystal ball?!?) I am looking for an MO that I can trust beyond treatment. My primary just seemed too flippant about everything today when I was questioning her about the coming years.
TIA!
Pam
(had a right mx, 90% ER+, 80% PR+, HER-)
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Purplelilac I sent you a PM
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purplelillacs, So sorry you have to be here with us, but welcome anyway. You are in the tough spot of Oncotype score, the gray, gray zone. The good thing is that you have high ER and PR which is reliably treated with Tamoxifen or AIs. Also no node involvement and smaller tumor. So chemo isn't the most important part of your treatment. But you probably know all this. I doubt you will find MOs who agree on whether or not to do chemo and in the end it is totally your decision.
Posting the Stage I and II forum and Stage I, Grade I, pre-meno thread may help. I'd guess there are women there with Oncotypes of 18 or more and closer to your age. The determination of grade is somewhat subjective.
If you opt for chemo, CMF is a lighter versions that is effective and given when chemo is less certain. I had TC which is tougher, but not as difficult as AC or ACT.
I don't have an MO to suggest in the suburbs. Mine is in Chicago. My treatment was so straight forward (onco of 30) that I didn't get a 2nd opinion, so I cannot compare him to others.
I'm sure someone else will chime in.
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Welcome Pam! Sorry you had to join us but I am glad you found these boards. This group is a great place to hang out while going through everything. This is also a very fun group of ladies!
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Hi ladies, I just wanted to say hi. I just don't get on here much. Life doesn't slow down with cancer! Spring is here, kids are crazy with activities and the school year is winding down.
Catez: welcome. I will tell you, my husband lives in a world of denial I think. We got past the first battle. Had a lot of outside support! He didn't understand it all, but figured if it helped me, then let it be. He just started a new job driving to the city every day so he is more tired etc. his own problems. But I do know he loves me, he just doesn't know how to deal with my issues. It is hard sometimes.
Purplelilacs: welcome too. I was thrown into my situation pretty fast and di not have time to shop around at time of dx. But good you are getting additional opinions. I liked my onc enough, then had a crummy appointment Monday. Who ever you see, try to learn as much as you can, take your list of questions, and be you own advocate as much as possible!
Lago: hi, you are a great solid here. Always good info from you and many others who are here regularly.
Beautiful day expected today. So nice to see the sun shine!!0 -
Laugh at yourself and at life.
Not in the spirit of derision or whining
self-pity,
but as a remedy, a miracle drug, that will ease your pain,
cure
your depression, and help you to put in perspective
that seemingly terrible
defeat and worry
with laughter at your predicaments,
thus freeing your
mind to think clearly toward the solution
that is certain to come. Never take
yourself too seriously.
- Og Mandino0 -
Purplelilacs......so glad you found us. These women have a lot of wisdom. I think for the most part....I'm almost too far back to be of help. With that in mind, I think all I can add is I think some feel going at what is going on with you should be hit as hard as you can from the first. There is that and if the onco score is low enough....but you are on the teeter mark.
This is the disease that often has more questions than answers. Everyone reacts differently to things. I always went with my gut feeling. I have to admit that I was treated at the V.A. ( Veterans Administration ) and did not have some of the choices others did. Still, what I did do always gave me the inner nudge that it was a good thing for me.
Sincerely hoping you find what you need. This is not always an easy path -- and obviously often not very clear cut. Sounds like you mainly need a Dr./Oncologist you can feel a connection too.
I hope you all have a gorgeous day. Another one at 90 here.....whew !!!! Hope we are not headed into a sweltering non-rainy summer. Time will tell.
Peace and love
Jackie
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