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Anyone starting Chemo in Feb?

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Comments

  • linnieva
    linnieva Member Posts: 80
    edited February 2007
    Welcome Angel and LindaDK!
    There's a wonderful group of women here to support you through this. Angel, my port is round and sits right below my clavical, which is fine most of the time; but if I lift my arm, it seems to come too close and is a little painful.

    Day #6! Yeah!!!!! Still feeling pretty good all things considered. I did have to crank up the Senekot.
    I hope I continue to feel like this. Karen, I had also looked in at the Jan site and it did seem like their 1st tx may have been easier than the 2nd. But I'm going to think positively.

    I'm still drinking lots and lots of water and trying to eat small portions and almost completely organic, simple foods. Organic choc chip cookies are ok, aren't they? ah... the simple pleasures.

    love to you all,
    Linnie
  • Pepper1073
    Pepper1073 Member Posts: 49
    edited February 2007
    It looks like you and I will be starting chemo on the same day. Feb 22nd. I start at 10:00 am and hope to be out of there by 2:00. I just want to get this over with. I am not going to get any special foods right now. Just going to wait and see what I Crave. Seems like everyone is different. I am doing dose dense. 4 rounds of AC every two weeks then 4 rounds of taxol.

    LuLu
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited February 2007
    Hi all:) I've updated out list. Please let me know if anyone else needs to be added, or if I got something wrong.-----Carynn

    Name User Name Location Chemo Info Special Thoughts
    1 Karen Sween Ohio Chemo start 2/15 - Port 2/15
    2 Hillary narberthmom Southeastern PA 4xT 2 weeks
    3 Marsha marshakb Florida Chemo 2/7
    4 Melody maj01 Texas 2/5 port 2/9 Chemo 4xAC
    5 Phyllis erinsgram Central PA 2/12 4xAC (2 weeks) 4 xP 2 Weeks
    6 Cynthia cynthis1962 California 2/16 - surgery and port
    7 Linnie was Linda #1 linnieva Virginia 2/6 Chemo 4xAC (2 weeks) 4xT
    8 Pat wayover20 Texas Chemo 2/8 big birthday on 2/11 and need for hugs!
    9 Catherine cahterineh Colorado Chemo 2/13
    10 Leah leahrc Massachusetts BX on 1/29 Chemo on 2/1 Our first + thoughts for March Surgery
    11 Linda lindasuzy Seattle 1/29 surgery Chemo late Feb
    12 Kim nynurse NY Start 2/1 (first of the group)
    13 Mary reggio113 South Jersey Port 2/5 Chemo 2/14 Happy Valentines!
    14 Jen horsegal Ohio Chemo 2/6 - 4xAC (3 weeks)
    15 laronson laronson Surgery the week of Feb 5th
    16 LuLu (Linda #3) piper Port 2/12 - Chemo 2/22
    17 Kay kaybeeson Port on 2/5 Chemo 2/13 12 weeks taxol - Then FAC
    18 Terry talbrig13 Altoona, PA MUGA 2/7 Chemo 2/9
    19 (Sheryl49) Sheryl49 Chemo 2/7 4xAC (3 weeks)
    20 Jan wildabouthorses Claremont, OK 4xAC (3 weeks), 4 xT 3 Weeks
    21 Nancy Nancy053` Chemo 2/8 4xAC (2 weeks) 3xT (2 weeks)
    22 (Joey85) Joey85 Boston, MA Chemo 2/9 4xAC (2 weeks) - 12 Wks Taxol 1 Yr Heceptin
    23 Sharon Misspell Chemo 2/19 or 2/22
    24 (KimberlyC) KimberlyC Ventura County Chemo 2/20 ACIV dose dense x4 - Taxol x4
    25 Julie for Mom (jch) jch Chemo 2/6 AC
    26 Tracy madoline Texas Chemo 2/8 ACx4
    27 Scott and Theresa lightphoto
    28 Carynn comandobarbie Arizona AC + T
    29 Jel hockeymomfl FL
    30 swimmingMOM
    31 Lynn maclean
    32 Steph TampaChick
    33 Angel
    34 LindaDK
  • freethought
    freethought Member Posts: 13
    edited February 2007
    Hi Ladies---

    Guess you can add me, too. I get the port put in on Tue 2/13, and start chemo on the 14th...a little extra emotion (on top of everything else) because it's the 18th anniversary of when we buried my half-brother (cancer, age 34). Hopefully he knows what's going down, and is sending healing energy though the twilight zone....

    I've got tons of questions, a little fear, and need to read all the posts...cause the answers are probably there! Good luck and wishes to all....
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited February 2007
    Hi Freethought:) Welcome to the club that no one wants to join. Now that you're here tho, you will find much strength and sisterhood. Since I'm still online, I will update the list now.

    I'm sure your brother is with you and watching over you.

    Please dont hesitate to ask your questions. I was amazed by how much I learned in such a short time. Knowledge is power and with power you can do it! I have my MUGA scan tomorrow, then meet with my Onc on Wednesday to firm up my chemo start date. It may be the end of this week, first part of next. So see, I might have some questions for you;)

    Take good care.

    Carynn
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited February 2007
    Name User Name Location Chemo Info Special Thoughts
    1 Karen Sween Ohio Chemo start 2/15 - Port 2/15
    2 Hillary narberthmom Southeastern PA Start 2/13 4xT 2 wks
    3 Marsha marshakb Florida Chemo 2/7
    4 Melody maj01 Texas 2/5 port 2/9 Chemo 4xAC
    5 Phyllis erinsgram Central PA 2/12 4xAC (2 weeks) 4 xP 2 Weeks
    6 Cynthia cynthis1962 California 2/16 - surgery and port
    7 Linnie was Linda #1 linnieva Virginia 2/6 Chemo 4xAC (2 weeks) 4xT
    8 Pat wayover20 Texas Chemo 2/8 big birthday on 2/11 and need for hugs!
    9 Catherine cahterineh Colorado Chemo 2/13
    10 Leah leahrc Massachusetts BX on 1/29 Chemo on 2/1 Our first + thoughts for March Surgery
    11 Linda lindasuzy Seattle 1/29 surgery Chemo late Feb
    12 Kim nynurse NY Start 2/1 (first of the group)
    13 Mary reggio113 South Jersey Port 2/5 Chemo 2/14 Happy Valentines!
    14 Jen horsegal Ohio Chemo 2/6 - 4xAC (3 weeks)
    15 laronson laronson Surgery the week of Feb 5th
    16 LuLu (Linda #3) piper Port 2/12 - Chemo 2/22
    17 Kay kaybeeson Port on 2/5 Chemo 2/13 12 weeks taxol - Then FAC
    18 Terry talbrig13 Altoona, PA MUGA 2/7 Chemo 2/9
    19 (Sheryl49) Sheryl49 Chemo 2/7 4xAC (3 weeks)
    20 Jan wildabouthorses Claremont, OK 4xAC (3 weeks), 4 xT 3 Weeks
    21 Nancy Nancy053` Chemo 2/8 4xAC (2 weeks) 3xT (2 weeks)
    22 (Joey85) Joey85 Boston, MA Chemo 2/9 4xAC (2 weeks) - 12 Wks Taxol 1 Yr Heceptin
    23 Sharon Misspell Chemo 2/19 or 2/22
    24 (KimberlyC) KimberlyC Ventura County Chemo 2/20 ACIV dose dense x4 - Taxol x4
    25 Julie for Mom (jch) jch Chemo 2/6 AC
    26 Tracy madoline Texas Chemo 2/8 ACx4
    27 Scott and Theresa lightphoto
    28 Carynn comandobarbie Arizona AC + T
    29 Jel hockeymomfl FL
    30 swimmingMOM
    31 Lynn maclean
    32 Steph TampaChick
    33 Angel
    34 LindaDK
    35 FreeThought port 2/13, chemo 2/14
  • southtx
    southtx Member Posts: 17
    edited February 2007
    Hey Everyone!!
    Got chemo #1 Thursday, today is day #3 post chemo. I feel really good, considering the first day, which sucked. Eating a lot of 'caldo', which is Mexican soup, Chicken with big pieces of vegatables. We have a favorite rest. next door that serves it all day. Kind of a Mexican twist on an old Jewish dish!!!
    Hope tomorrow will be better, if the rain would clear out, I'd be down by the water for sure.
    Thinking I can almost see the end of this road, 1/4 the way through it!!! Thinking more about getting back to work.
    Yea~~~~
    Lulu, don't stress the mediport. Mine was just tender for a few days and pulled when I took my bra on and off. I've had worse through all this for sure. I have a mediport manufactured by Bard. It worked like a charm too for chemo. They can do blood draws as well. The skin has to be pierced to access it, but no big deal. So much better than digging around looking for a vein.
    Hugs to everyone, happy to answer any questions if I might be able to help.
    Love, Tracy
  • hockeymomfl
    hockeymomfl Member Posts: 73
    edited February 2007
    Hi Jel here,
    My start date for TC was 1/29/07, next one 2/19/07, 3/12/07 and last one 4/2/07
    Thanks for doing the list.:)
  • horsegal
    horsegal Member Posts: 72
    edited February 2007
    Hi all! I've been reading, but not saying much - still in shock that I belong here, I swear! I can't believe how long the "passenger" list is on this cruise already! I am more amazed every day how many of us are affected by this.

    I am just starting day 6 post tx - having had my 1st last Tuesday. It's 4:25am - and I am wide awake darn it~! I have not had it bad, the first day - just tired from all the nausea meds. Honestly, I just wanted to sleep until this whole ordeal of chemo was over! But I do feel differently now thank goodness! The days following have not been bad - only queaziness I really had was when I was ON the nausea meds. Yesterday - my best day yet! DH actually "let" me drive to my barn so I could play with my horse - what a treat! Yes, thanks to treats, he still remembers me! (Haven't seen him in a week)

    My head has been kind of numb for a couple of days, and last night when I took my shower, yes - a few hair are now starting to come out! OMG! I think that is the hardest right now for me - realizing that it really IS going to come out! Yikes! I do have a wig, but honestly, I don't know HOW I am actually going to WEAR it in public! My DH and good friend went with me to get it out and they love it, so hopefully I can do it!

    I am not a homebody - I am lucky that I only have to work a couple of days a week for my DH, but I am a very busy gal. This week however, as long as I feel as good as I did Sunday, I will be cleaning and preparing the house to go on the market next week!

    Thanks for letting me vent - thanks for all who are here and sharing - it means a lot to share this with others!

    Good luck to all this coming week! Jen
  • NarberthMom
    NarberthMom Member Posts: 382
    edited February 2007
    Carynn --

    Thanks for the updating the list ...
    I start chemo on 2/13 (this Tuesday!) and I'm doing 4XAC (every two weeks) then 4XT (every two weeks).

    -- Hillary
  • marshakb
    marshakb Member Posts: 796
    edited February 2007
    Good morning fellow chemo cruisers.....starting to feel like my old self. Had spagetti and meatballs yesterday, yummmmm. Really I think the first few days (4-5) are the icky ones with nothing sounding appetizing and cravings for certain type foods.

    Good luck to all those starting their chemo this week. And welcome to all those just joining us, Freethought, Linda DK, Angel, Steph, and Lynn.

    Carynn thanks for keeping the list up for us. swimminMOM is actually Karen (Sween) and Linnie changed her name to VAgirl. There is some concern about googling our screen names and all our posts coming up. I left mine since it is my first name and middle and last initial.

    Tracy, I have the power port also and it is great. And LuLu you will be relieved when that is put in and used, so much easier than arm sticks. I have small veins and seems like they always had to stick me twice.

    Everyone have a great day.....we can do this.....one day at a time...........Hugs all around, Marsha
  • tampachick
    tampachick Member Posts: 12
    edited February 2007
    HI Guys,
    Well, I start chemo this Thurs 2/15 - what a great Valentines gift, huh? I am going back to work today after being off for 3 weeks. I was diganosed on 1/24 and had my lumpectomy on 1/30. Nodes and margins were clear! I am doing A/C X 4 then 6 weeks radiation. Meeting the onc today to discuss details and questions. Good luck to all those that start this week - keep me updated!
    Steph
  • tampachick
    tampachick Member Posts: 12
    edited February 2007
    Oh - and the port is nothing! One of the worst parts of my treatment was the shot of radioactive dye in my nipple! I still don't have feeling there and getting a bit nervous - anyone feel the same?
    Steph
  • wayover20
    wayover20 Member Posts: 191
    edited February 2007
    4th day post 1st "tea party" and really feeling good this morning. No need for senokot today (if you know what I mean). Yesterday I did not have to take anything but the morning dose of protonix and maybe a tums or two throughout the day for heartburn. I didn't need any compazine or kytril and only took 1 dose of tylenol for a very slight headache. Fatigue off and on was my friend and by that I mean I woke up intending to clean out our computer room and within 30 minutes I was so tired I had to go lie down for a while. Then I would get up and start again. That went on all day. But considering what our bodies are going thru I continue to pamper myself and lie down when I have to. This morning I feel much more like myself energy wise so let's see if if lasts.

    Marsha--about the hair loss, yea, I was told 2 weeks but maybe she meant unil it's all gone? I know I'm losing alot with each brush stroke and this morning I looked in the mirror and it looks like a much thinner head of hair, and I have thick hair.
    Hugs Breast Friends, Pat
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited February 2007
    Here's another update. Removed duplicate names and added new treatment dates. Hope everyone is doing well today.

    Name User Name Location Chemo Info Special Thoughts
    1 Karen Sween Ohio Chemo start 2/15 - Port 2/15
    2 Hillary narberthmom Southeastern PA Chemo 2/13 4XAC (every 2 wks) then 4XT (every 2 wks)
    3 Marsha marshakb Florida Chemo 2/7
    4 Melody maj01 Texas 2/5 port 2/9 Chemo 4xAC
    5 Phyllis erinsgram Central PA 2/12 4xAC (2 weeks) 4 xP 2 Weeks
    6 Cynthia cynthis1962 California 2/16 - surgery and port
    7 Linnie was Linda #1 linnieva Virginia 2/6 Chemo 4xAC (2 weeks) 4xT
    8 Pat wayover20 Texas Chemo 2/8 big birthday on 2/11 and need for hugs!
    9 Catherine cahterineh Colorado Chemo 2/13
    10 Leah leahrc Massachusetts BX on 1/29 Chemo on 2/1 Our first + thoughts for March Surgery
    11 Linda lindasuzy Seattle 1/29 surgery Chemo late Feb
    12 Kim nynurse NY Start 2/1 (first of the group)
    13 Mary reggio113 South Jersey Port 2/5 Chemo 2/14 Happy Valentines!
    14 Jen horsegal Ohio Chemo 2/6 - 4xAC (3 weeks)
    15 laronson laronson Surgery the week of Feb 5th
    16 LuLu (Linda #3) piper Port 2/12 - Chemo 2/22
    17 Kay kaybeeson Port on 2/5 Chemo 2/13 12 weeks taxol - Then FAC
    18 Terry talbrig13 Altoona, PA MUGA 2/7 Chemo 2/9
    19 (Sheryl49) Sheryl49 Chemo 2/7 4xAC (3 weeks)
    20 Jan wildabouthorses Claremont, OK 4xAC (3 weeks), 4 xT 3 Weeks
    21 Nancy Nancy053` Chemo 2/8 4xAC (2 weeks) 3xT (2 weeks)
    22 (Joey85) Joey85 Boston, MA Chemo 2/9 4xAC (2 weeks) - 12 Wks Taxol 1 Yr Heceptin
    23 Sharon Misspell Chemo 2/19 or 2/22
    24 (KimberlyC) KimberlyC Ventura County Chemo 2/20 ACIV dose dense x4 - Taxol x4
    25 Julie for Mom (jch) jch Chemo 2/6 AC
    26 Tracy madoline Texas Chemo 2/8 ACx4
    27 Scott and Theresa lightphoto
    28 Carynn comandobarbie Arizona AC + T
    29 Jel hockeymomfl FL
    30 Lynn maclean
    31 Steph TampaChick - A/C X 4 then 6 weeks radiation
    32 Angel
    33 LindaDK
    34 FreeThought port 2/13, chemo 2/14
  • ronnee07
    ronnee07 Member Posts: 5
    edited February 2007

    Well, it looks like I will be joining you ladies this month. MUGA scan scheduled for Wednesday 02/14, Port Placement Thursday 02/15. Meet with Oncologist on Thursday 02/22 to discuss chemo regimen and expect to start the last week of February. Bilateral Mast on 01/30/07. ILC 5.1 cm, 1 node micromets, clear margins, Stage IIIa.

  • marshakb
    marshakb Member Posts: 796
    edited February 2007

    Phyllis.......holding your virtual hand today!! Hugs to you..........Marsha

  • marshakb
    marshakb Member Posts: 796
    edited February 2007

    Just got home from seeing my primary. I have lost 6 pounds since I saw him a month ago. Got a big lecture about eating, as much as possible, anything I can. He actually said he didn't care what it was, but to make sure it was fattening! Jeeezzzz Luckily, the naseau is gone today, so gonna head out and get a shake I guess. I know there are alot of you worried about gaining weight, but trust me this can be just as bad if not worse considering nothing sounds good to me. Any suggestions? Marsha

  • NarberthMom
    NarberthMom Member Posts: 382
    edited February 2007

    Phyllis -- I'm holding your other virtual hand!

    I've got a stupid question. When folks talk about symptoms on a particular day of the treatment (say, day 4), does that mean counting the day of the chemo or counting the days post-chemo?

    Thanks ...

    -- Hillary

    P.S. Marsha -- your updates are priceless!
  • marshakb
    marshakb Member Posts: 796
    edited February 2007

    Hillary.......my chemo nurse said the first day is the day you get chemo. So I started last Wednesday, I am on day 6. Marsha

  • linnieva
    linnieva Member Posts: 80
    edited February 2007
    I'm not sure but I think we're missing at least two from the list. Tonimad9 and Sallyann.

    Marsha, I'm having the opposite problem which I guess is good. Although my stomach is sometimes queasy, it feels alot better when I eat small meals. I had lost about 15lbs after my dx because I couldn't eat a thing. Now, I'm quickly gaining it back. I guess we're never satisfied.

    Phyl - wishing you lots of luck today.

    Linnie
  • linnieva
    linnieva Member Posts: 80
    edited February 2007

    Also, Welcome Freethought, Ronnee, and Steph to our chemo cruisin' group. It's hard to believe how many of us there are now. How incredibly sad......

  • hockeymomfl
    hockeymomfl Member Posts: 73
    edited February 2007
    Hi Ladies,
    Day 14 for me and I notice strands of hair falling, but not the clumps yet.
    Just attended the LGFG session and It was nice to meet other women in the same situation and also get some nice makeup tips.
    Glad you all seem to be doing well and welcome to our new members:)
  • tampachick
    tampachick Member Posts: 12
    edited February 2007

    I forgot to mention, I start chemo this Thurs 2/15.

  • freethought
    freethought Member Posts: 13
    edited February 2007
    Hey Marsha---

    First, I'm sending you (virtually, of course) some of my extra weight...I need to take off a bunch, so just let me know how much you want.

    There is a prescription drug called "Marinol" for appetite enhancement...and it's used primarily for chemo and AIDS patients...I've included the link:
    http://www.dea.gov/ongoing/marinol.html

    I'm craving cheese (brie in particular right now) and cheesecake....since I'm trying to go low fat, would you have some for me?

    Bon Appetit!
  • hockeymomfl
    hockeymomfl Member Posts: 73
    edited February 2007
    Question for you ladies, Is there any issue with eating yogurt while doing chemo treatments? I know it might seem like a strange question, but is'nt there some active bacteria in yogurt?
    It's Ok to tell me I am getting too picky here....:)
  • hockeymomfl
    hockeymomfl Member Posts: 73
    edited February 2007

    Good luck Steph on the 15th. The wait is worse than the transfusion itself. I'll be following you on the 19th for my second TC.

  • leahrc
    leahrc Member Posts: 384
    edited February 2007

    hooray!

  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited February 2007
    Hi all:) I got a couple of requests to update the list, so here tis. I dont mind doing it at, but I also dont want to step on any toes - anyone can cut and paste it. I do have it on an excel spreadsheet (geek that I am) so whatever is easiest.

    Name User Name Location Chemo Info Special Thoughts
    1 Karen Sween Ohio Chemo start 2/15 - Port 2/15
    2 Hillary narberthmom Southeastern PA Chemo 2/13 4XAC (every 2 wks) then 4XT (every 2 wks)
    3 Marsha marshakb Florida Chemo 2/7
    4 Melody maj01 Texas 2/5 port 2/9 Chemo 4xAC
    5 Phyllis erinsgram Central PA 2/12 4xAC (2 weeks) 4 xP 2 Weeks
    6 Cynthia cynthis1962 California 2/16 - surgery and port
    7 Linnie was Linda #1 linnieva Virginia 2/6 Chemo 4xAC (2 weeks) 4xT
    8 Pat wayover20 Texas Chemo 2/8 big birthday on 2/11 and need for hugs!
    9 Catherine cahterineh Colorado Chemo 2/13
    10 Leah leahrc Massachusetts BX on 1/29 Chemo on 2/1 Our first + thoughts for March Surgery
    11 Linda lindasuzy Seattle 1/29 surgery Chemo late Feb
    12 Kim nynurse NY Start 2/1 (first of the group)
    13 Mary reggio113 South Jersey Port 2/5 Chemo 2/14 Happy Valentines!
    14 Jen horsegal Ohio Chemo 2/6 - 4xAC (3 weeks)
    15 laronson laronson Surgery the week of Feb 5th
    16 LuLu (Linda #3) piper Port 2/12 - Chemo 2/22
    17 Kay kaybeeson Port on 2/5 Chemo 2/13 12 weeks taxol - Then FAC
    18 Terry talbrig13 Altoona, PA MUGA 2/7 Chemo 2/9
    19 (Sheryl49) Sheryl49 Chemo 2/7 4xAC (3 weeks)
    20 Jan wildabouthorses Claremont, OK 4xAC (3 weeks), 4 xT 3 Weeks
    21 Nancy Nancy053` Chemo 2/8 4xAC (2 weeks) 3xT (2 weeks)
    22 (Joey85) Joey85 Boston, MA Chemo 2/9 4xAC (2 weeks) - 12 Wks Taxol 1 Yr Heceptin
    23 Sharon Misspell Chemo 2/19 or 2/22
    24 (KimberlyC) KimberlyC Ventura County Chemo 2/20 ACIV dose dense x4 - Taxol x4
    25 Julie for Mom (jch) jch Chemo 2/6 AC
    26 Tracy madoline Texas Chemo 2/8 ACx4
    27 Scott and Theresa lightphoto
    28 Carynn comandobarbie Arizona AC + T
    29 Jel hockeymomfl FL Chemo 2/19
    30 Lynn maclean
    31 Steph TampaChick - A/C X 4 then 6 weeks radiation
    32 Angel
    33 LindaDK
    34 FreeThought port 2/13, chemo 2/14
    35 ronnee07 port 2/15
    36 Tonimad9
    37 Sallyann
  • nynurse
    nynurse Member Posts: 17
    edited February 2007
    I have a question. I had my first dose of A/C on 2/1. My next dose is this thursday. When will my hair start to fall out? I cut it short about 3 weeks ago. I want to shave my head to keep some control. I just don't want to do it too soon.


    Thanks Everyone
    Kim

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