Anyone starting Chemo in Feb?
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Twink,
Thinking of you with your tests. Let us know ASAP...
Love.
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Hi all,
I wish you tons of good luck Twink. Let us know about the scans.
I think sometimes i should have a scan and then I think not. I missed my appt. with the local onc. I actually see the one at MD Anderson on a regular schedule. The local one would be more likely tohave a scan done if I ask. The onc. at MDA didn't seem to be i favor of PET/CT scans.
It is late and I am off to bed. Just stopping by to read posts.
I am getting ready for a dreaded yard sale. I swore off many years ago, but a friend talked me into it. She lives in the country and is moving and wanted an intown site. So I decided I might as well do it. Now I need to clean out closets and cabinets and rid myself of a lot of useless items. So that is what I will be up to for the next week. I am thinking about taking off a couple of days next week to get ready.
Love to all, Sammie Kay
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Hi everybody! Long time no see!
Well, I finished my antibiotics and saw the Dentist for the follow up. The antibiotics didn't help. I have a perforated root, and significant loss of bone. So, I met with the periodontist, and long story short I am scheduled for surgery (bone graph) and some other unpleasantries this Wednesday. Very very frustrating as both the Dentist and the Periodontist commented on how great my teeth and gums are. This is the result of a botched root canal done over 30 years ago. Both docs think that after chemo weakend my system, coupled with the RA auto immune suppresents I take, it just finally failed on me. So, got some running around done today and plan on just kicking back this weekend. DH is taking me to see Sex and the City tonite. What a trooper! I'm sure there's something else that he'd much rather see.
Alyson - Summer is here in Phoenix, AZ. We've already had 111 degree temperatures. Makes it very hard for me to fathom that you guys are rolling into winter!
Twink - Thinking of you and your upcoming surgery. Sending warm wishes that you'll not only love the results, but that you'll enjoy the speediest of recoveries.
Hillary - Still laughing about your having to pay $25.00 to be felt up. I think I'll be stealing that line from you very soon! Thanks for asking about me.
No, I'm not back on the RA meds yet. I'm hoping my Rheumatologist will let me start again the day after surgery.Terry - Tonite is prom! That's so cool that you made the dress. I do machine embroidery, but I don't sew. I'm very tempted to try it again in the near future. I do my makeup sort of vintage 40's pinup girl, but with a lighter hand for daytime. I've always been really into that whole look, but never bothered searching out vintage clothing. I ran across a website the other day that had a lot of 40's - 50's sundresses and the like and they were absolutely darling! And outrageously expensive! I started looking at patterns and found Simplicity has some that are almost identical. Might be a fun project for one of these upcoming hot summer weekends. We shall see.
Pat - Nice to see you! How are you feeling now? Is that nerve or muscle any better? Thinking of you! (((Pat)))
Leah - How the heck are you? It was nice to hear from you the other day. How's the job going? Are you enjoying anything less than 10 hour days now? Work has been crazy busy for us lately; especially with all the merger talk. It seems to be settling down some; but regardless, they'll just have to miss me for a few days next week.SammieKay - My Onc doesn't do scans as a rule either. Although she has told me that if I want one, she will order one. I see her again in June, and I'm about 99% sure that I'm NOT going to ask for one. I never thought I'd say that, but I'm thinking that for now, I'll just do the MRI this summer; then revisit the way I feel about it at my next checkup. Good luck with your yard sale. I hate having them too!
Catherine - How have you been? I've thought of you a lot lately. I just saw something not to long ago about an Avastin. Isnt that what you did? Anyway, thinking of you and hoping that your last surgery is nothing but a memory by now!
Melanie - I think I saw where you were out of town Memorial weekend? Did you get to enjoy any racing? I thoroughly enjoyed all 10 hours of it.
I love the Coca Cola 600, but there is no way I'd ever go see that race in person! Hopefully, I didn't miss anyone. Thinking of you all and hoping you are well. I'm likely to be scarce until I get this procedure behind me, but I hope to catch up with everyone again soon!
(((Hugs)))
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okay...computer literate girls....how do I insert one of the prom pics into this message??
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Terry:
1) place your pictures in an album to be created in photobucket (for instance), on-line (Google "photobucket)
2) resize your pictures so they are not too big (max. 1000 pixels). I do this opening each picture in Microsoft photo editor (Image>resize>choose pixels as the unit>change 1 dimension, the other one will be scaled accordingly).
3) still in MS photo editor, right-click on the picture, go to Properties and change the resolution to 96 (enough)
4) save picture with a name that makes it easier to find.
5) go to Photobucket and UPload your pictures. KEEP photobucket OPEN and
6) open our bc org thread and start a message
7) click the icone (tree) for inserting a picture
*) keep that window open and go back to photobucket and copy the URL of a picture to insert and paste it in the corresponding field of the Insert picture window in bc org...
submit... voilà!!... I hope... if I realize I made a mistake, I'll let you know (or others will... right, girls??)
Will be looking forward to seeing your pix...
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Twink, I'll be thinking of you on the 5th, and hope all goes well! That should be the day I come home from the hospital, so I'll check in and hope someone has news of you. Take care.
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Hello, all!
This week is the big 54! Interestingly enough, all I remember from my birthday last year was the cake pic from Phyl here... I remember absolutely nothing else. Isn't that weird? But I am so happy to be here, and relatively well and happy!
Twink, all my best for an outcome that makes you happy. WIll be in touch. I would be happy to be the poster if your family wants to call me.
Love to you all!
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Happy 54 Leah! I hope you have a wonderful day and remember every enjoyable moment. I'll get somebody to give you a call once I'm out of surgery. I'm having major second thoughts about the surgery given how crappy I'm feeling. I believe adding surgery to the mix right now is just going to further muddy the waters. I'm waiting for the PET/CT scan results but don't want to hear the news. What a problem. My onc appointment is on June 18th and, if I don't get up the nerve to pressure for verbal results, I may wait until then to hear what's up. It would be nice if they'd call proactively to tell me all is well but... if they don't call will that mean all is not well? Ack. I'm a mess. Cancelled my trip to Dallas this week to stay home and mope.
Hugs all.
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Awwwwhhh Twink, so sorry you are not feeling well. I know what you mean. I don't have any energy. My legs feel weak like they don't want to support my body. I am either crazy or something is wrong. My pain doc had muscle and nerve studies done and they were pretty normal. Maybe residual neuropathy?? I don't know.
Are you having your surgery? I have postponed mine until Aug. I may go up to Houston and see LuckyMel's plastic surgeon for a second opinion in the meantime.
Be sure and let us know what happens with your schedule.
Happy, Happy Birthday Leah!!!!! CELEBRATE !!
Terry, so glad you finished the prom dress. I know it was beautiful. Can't wait to see the pics.
Late, bed beckons.
{{{{{{{{{{{{{{{{Feb.chemocruisers}}}}}}}}}}} Love to all, Sammie Kay
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Awwwwhhh Twink, so sorry you are not feeling well. I know what you mean. I don't have any energy. My legs feel weak like they don't want to support my body. I am either crazy or something is wrong. My pain doc had muscle and nerve studies done and they were pretty normal. Maybe residual neuropathy?? I don't know.
Are you having your surgery? I have postponed mine until Aug. I may go up to Houston and see LuckyMel's plastic surgeon for a second opinion in the meantime.
Be sure and let us know what happens with your schedule.
Happy, Happy Birthday Leah!!!!! CELEBRATE !!
Terry, so glad you finished the prom dress. I know it was beautiful. Can't wait to see the pics.
Late, bed beckons.
{{{{{{{{{{{{{{{{Feb.chemocruisers}}}}}}}}}}} Love to all, Sammie Kay
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Okay, Catherine, I am following your instructions....
Rachel - The dress has 20 buttons down the back!
Rachel & Patrick ...getting ready to leave.
Here is Rachel at her Senior Dance Recital....
Hope this works....looks like it is going to. Enjoy!
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Twink, I am sorry you are feeling bad. Maybe you just need a vacation. I know I am feeling soooo much better not working. Work was dragging me down. And I feel so much better about myself since the surgery. My clothes fit better already. But I know what you mean about the worry. I think we are all second guessing every little thing. I would press the onc for an answer. The waiting is torture!
Catherine, thank you for those instructions. They were very easy to follow, although I think I should have made the pictures smaller. But then, I don't know why one of them was tiny!
Happy Birthday Leah! Hope this one is memorable! I don't think I remember mine last year either. Chemo brain can be blamed!
Have a happy day, everyone!
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Prom day with Mom & Dad and the dog's hind end!
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Leah -- Happy 54! Isn't funny how these large number birthdays are now more appealing. I'm much less hesitant to divulge my age now.
Terry -- I can't believe that you made that dress ... it's gorgeous! Plus, I got a great laugh over your last photo ... sure to be the one that you'll show someday at your daughter's wedding!!
Sammiekay -- Why did you postpone your surgery?
Twilah -- We're all worried about you ... please let us know how you're doing ...
Hugs,
Hillary0 -
Hi girls. I'm off to my pre-op appointment even though I haven't completely decided to go ahead with the surgery tomorrow. One part of me wants the nurses to tell me that I can't proceed given all the other issues I'm experiencing right now. The other part of me knows that if I delay this then it'll be delayed for quite some time as the relocation will kick in and I'll be shopping for a new PS in TX. Ack. On the other hand, how much worse could I possibly feel? Stopping the Chantix hasn't seemed to have much of an effect, other than making me want to ramp up on the smoking. I'm still nauseous much of the time, my ears are plugged all of the time, I walk around in a daze, like a slug on the energy front and worse yet, like a doorknob on the mental acuity front. I'm praying this is all allergies or something non-BC related. My back problems persist and I feel like I'm 100 years old (but that's not new). Interesting though that I've noticed my hands aren't as creaky and stiff as they had been! I wonder what's up with that? I'm just miserable and tired of being miserable. Bear with me please...
Love
t
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Terry, the pics are gorgeous. What a dress and what a beautiful daughter!
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Onc called. PET/CT shows uptake in mediastinal nodes, lungs and spine and a questionable spot on liver. Can't say much right now but she's pretty certain in the big C and not some other little anomaly. MRI tomorrow, biopsy of lung, chemo starting next week.. Avastin/Abraxane likely this time.
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Twi...I am in tears right now. And mad as hell. I don't have any words that even seem close to right. I just want you to be okay.
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I'm just checking in after my surgery and I saw Twilah's news. Twink my heart is breaking for you, but I am hoping with all my might that this is a false positive due to some rogue infection.
I'm sending up lots of prayers for you and yours. Please let us know if you hear anything tommorow. Also, as you know, I post at Gina's board as well. Gina has a dear friend (Edge) who is a bc researcher and is available to answer any and all questions about both bc and tx. He's very knowledable, kind and worth his weight in gold. Please use him to answer any questions. He's much more accurate than "Dr. Google.";) Please let me know if you need the link.
Love and (((Hugs))) to you.
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Twilah,
I am so incredibly sad and stunned. If there is anything I can do, please call. We love you so! {{{{{{{{Twink}}}}}}}}}}}}
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Twilah, I don't know what to say....... I left you a voice mail last night. Please let me know if you need to talk........... I love you........ ((((((((TWINK))))))))
Thanks Leah for the call...
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Twilah -- Are you doing chemo at home or at HUP ... Let me know what I can do to help ...
Mega-hugs,
Hillary0 -
Oh Twilah, I am so devastated to hear your news. Maybe Carynn is right...it is an anomoly. Will be praying for you. Did you not have your surgery then?
We love you (((((((Twilah))))))
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Just read your post Twink and words cannot express my feelings for what you're going through now. Sad but MAD and at the same time glad in this day and time they have the weapons to fight this monster.
My prayers and well wishes with you.
Pat
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Hi girls. Thanks for all the words of support. As you can well imagine this is a very solitary crisis and, despite my friends and family, I feel very alone. I wish I felt confident about the treatment options and outcome but I'm pretty well feeling hopeless right now. I just found out that the right axilla area is also suspicious (onc didn't mention that area last night) and we're trying to schedule a biopsy quickly to confirm that this is a recurrence. I go for a brain/sinus cavity MRI at 2:30 this afternoon and a spine MRI tomorrow evening. I'm sure they'll come back with positive findings on the brain because that would explain the plugged ears and lousy tasting mouth issues that I've been complaining about. Right now, I may have to wait until the middle of next week for the biopsy unless we can get somebody to make room for me sooner. I know I can wait if I have to but I honestly can't imagine being in this state through next week. I'll keep you posted. F**K! I said to Phillip last night, this is the worst possible news imaginable. I am our worst nightmare and I just want to crawl into a corner and speed of this process of dying. I can't imagine 'fighting' this thing for the rest of my life. Pray it'll be a short fight but not so short that I don't have time to get my affairs in order for my family.
Through tears.
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HUP Hillary. I think I'll be in there next week but don't know for certain yet.
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Twilah -- If you're still on ... let me know if the MRIs are at HUP. I can try to be there for you ...0 -
Well, I just read the PET/CT report. How depressing. I'd say there's no need to confirm recurrence just confirm receptor status is unchanged.
Focal uptake in several right axillary nodes, largest measuring 1.5 cm. Uptake within multiple mediastinal nodes including 1 cm superior right paratracheal, 1 cm left paratracheal node, 1.7 cm right precarinal node, 2.5 cm left prevascular node, bilateral hilar nodes and small right peribronchial node. Multiple pulmonary nodes, largest of which measures 1.4 cm adjacent to right hilum which is mildly hypermetabolic most likely metastatic in nature. That's the nodes.... a few words about a 2 cm area suspicious for hepatic metastases. Focal uptake to mulitple osseous structures including multiple areas in the cervical thoracic and lumbar spine, sternum, bilateral proximal humeri, bilateral scapulae, multiple ribs bilaterally, sacrum, both iliac bones, both acetabula, both inferior and superior pubic rami and both proximal femurs. Seems this is no 'small' recurrence. The report is capped off with 'Findings are consistent with marked progression of metabolically active visceral and osseous metastatic disease as described above.'
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Twilah -
I am so, so sorry to hear the results from the report. Please get a hold of Edge and get his opinion. There have been a lot of people on the board printing out his opinions and taking them to their Oncs for review, like a 2nd opinion. One man's Onc actually changed his original tx plan to be more in line with Edge's suggestion. There are several people on G's board with mets that Edge has helped immensely. His wisdom has helped many plan and hone their battle plan.
You are in my thoughts and prayers. (((Twink)))
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SHIT SHIT SHIT...........
I'm crying for you Twilah..... I'm praying for you too....
I love you...........
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