Anyone starting Chemo in Feb?
Comments
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Twink -
I also stopped in to give you a hug and see how you're doing this morning.
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Twilah -- I woke up thinking about your abraxane and avastin molecules finding their way to kill the cancer cells. (I know, I'm such a geek!).
Hugs,
Hillary0 -
Just hoping the new day brings a sense of clarity and a "git er done" type mentality. I can't imagine breaking it to your children...life is so challenging...and I pray for continued strength and a clear vision for whatever's ahead for you and yours.
Pat
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Checking on news of Twilah.....................
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{{{{{{{{{Twyla}}}}}}}}}}}}} You remain in my thoughts and prayers.
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Twink - Stopping in after work to give you a hug. (((((Twink)))))
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Good morning all ...
I woke up thinking about Twilah and her situation. Not sure that my logic is totally correct, but here's my thoughts ...
Since she did neo-adjuvant chemo, we know that her tumor was responsive to chemotherapy, as it went from > 3.5 cm to virtually nothing. If I remember correctly, it was mostly the taxotere that shrank it. So, it could have been that she just needed more rounds of a taxane to completely eradicate it. (I remember when my mom went through bc over 25 years ago, she had chemo every two weeks for a year! I'm not sure why we only get such a short dose now.). So here's to wishing that the abraxane/avastin combo does the job!
Twilah -- Also thinking of you this morning during your axilla biopsy
Sending gentle hugs,
Hillary
P.S. Remembering advice from a podiatrist about potential neuropathy on a taxane ... remember to moisturize hands and feet well ... wear supportive shoes, especially if you are going to be on your feet a lot ... let your dh do the dishes (!) ... don't forget to drink those fluids ...0 -
I was thinking the same about the taxotere and its effect on the tumor. Maybe the abraxane will show promise. I'm woozy but I think I'm feeling a little better today. They cancelled my surgery because platelets were too low. I'm spaced out from sleeping or laying down so much. The morphine doesn't help on the 'clarity' front. Weight is the same for 3 days in a row...137 and holding. That's good. Drinking so much water I think I'll float away. I should've bought shares in Coca-Cola. I've been borderline nauseous for weeks now. Last night I thought I'd take a compazine and try a bowl of soup. Well, that didn't work very well. Marsha I may ask for something else.
Love you.
Twilah
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I was thinking the same about the taxotere and its effect on the tumor. Maybe the abraxane will show promise. I'm woozy but I think I'm feeling a little better today. They cancelled my surgery because platelets were too low. I'm spaced out from sleeping or laying down so much. The morphine doesn't help on the 'clarity' front. Weight is the same for 3 days in a row...137 and holding. That's good. Drinking so much water I think I'll float away. I should've bought shares in Coca-Cola. I've been borderline nauseous for weeks now. Last night I thought I'd take a compazine and try a bowl of soup. Well, that didn't work very well. Marsha I may ask for something else.
Love you.
Twilah
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I was just checking in on Twilah....I see you are online. Keep drinking even if you float away...
Love you,
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Hi guys,
Twyla good to hear from you. You sound a little better. I know you will be ready to fight. How is your family? Hope they are coping well. That's stupid, I know they are not, but you are all on my mind as you deal with this curve life as thrown at you
I am leaving in about an hour on a "sailing adventure". We will be out on the water until Friday night, without computers. So, I wanted to let you know. I won't be able to post or read until then.
Just know you are all on my mind and I will check in as soon as we get home this weekend.
Love and hugs to all,
Sammie Kay
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Hi guys,
Twyla good to hear from you. You sound a little better. I know you will be ready to fight. How is your family? Hope they are coping well. That's stupid, I know they are not, but you are all on my mind as you deal with this curve life as thrown at you
I am leaving in about an hour on a "sailing adventure". We will be out on the water until Friday night, without computers. So, I wanted to let you know. I won't be able to post or read until then.
Just know you are all on my mind and I will check in as soon as we get home this weekend.
Love and hugs to all,
Sammie Kay
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Twink,
Hope today went better. Sorry the biopsy was delayed, but better to be safe than sorry.
If there is anything any one of can do.....
Love and many hugs...
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Twilah --
Glad to see that great minds think alike - LOL!
Sorry to hear that surgery was cancelled, but - like Leah - I'm glad that they're being cautious.
Will you be getting abraxane/avastin every week or are you on some kind of alternative chemo regimen?
FYI, compazine made me dizzy (dropped my blood pressure too low) and Lexapro takes a couple of weeks to kick in, and can take up to six weeks till you feel the full effects.
Hugs,
Hillary
P.S. SammieKay - have fun on your "sailing adventure" ...0 -
Twilah, thinking of you!!!!! Love ya
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OMG - I'm speechless. Twink - I'm thinking of you. Hugs!
and hugs to all!
Phyl
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Twink,
Haven't been on the board for a while, just read your posts. I am so sorry to hear the report, I will pray hard for you. You are a survivor and have lots of support.
God Bless You
Sandy
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Twilah...you are on my mind today as always. You are stronger than you even know. Can I tell you a little secret? Since our FL get together and seeing you so at ease in those heels...I have been wearing them also! I even bought a bright red pair...shocking. Shhhhh.
Love
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Ha. Don't buy anymore shoes! I have a closet-full for you Melanie.
Today wasn't too bad, spent most of the day sleeping. The morphine isn't very effective for keeping the bone pain under a dull roar so I'll be talking to the onc about that on Monday. Otherwise, just waiting for some miraculous intervention here to make me feel better and give me a sign that the chemo is working. Back for round #2 on Monday. I can't remember the tx cycle Hillary but it does alternate -- Avastin and Abraxane Week #1, Avastin Week #2, Smaller dose of Avastin and Abraxane Week#3, nothing Week #4... I think.
Love.
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OK, sweetie (as Leah would say), let me know if you want company on Monday ... Also, you should phone the onc today and get a prescription called in for some other pain pill. Some folks don't respond as well to morphine as others.
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Please do what our Dr. Hillary says. You should not be in pain. I am hoping beyond hope that this chemo does exactly what it is meant to do. I have read that it works for so many.
And...you are the only one that I have ever known who could look fabulous in yellow patent leather!
Love ya...
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Twilah --
I hope that you've been proactive and phoned about getting a different pain pill.
I just found that information on the web:
If Lexapro is taken with certain other drugs, the effects of either could be increased, decreased, or altered. It is especially important to check with your doctor before combining Lexapro with the following:
Narcotic painkillers
Nonsteroidal anti-inflammatory drugs such as ibuprofen
Hugs,
Hillary0 -
Thinking of you Twilah....
Yellow patent leather?? Wow! I don't have the guts.
Have a good day, all.
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Hiya Twink! Just stopped by to check on you and send you a hug. (((Twink)))
Ok, I'll join in - yellow patent leather?? Alright, actually I have a suit that it'd probably look great with! Oohhh, how I miss heels!
Take care of you girl, let us know how you're doing when you can. And dont forget to drink that water!
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Twilah, I just got back on the computer last night after my surgery, only to find this terrible news! I know there is nothing to say, really, but please know that I'm sending healing thoughts your way. You are totally strong enough to beat this - I know that for sure. I'm just so very sorry you have to go through this.
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(((((((((((((((((((TWINK))))))))))))))))))))))), hugs from Victoria (BC)... very few wi-fi in campgrounds, but thinking of you a lot... if you remember, I had 4 abraxane dose dense (every 2 weeks) last year and 18 avastine infusions. Abraxane made me achy for a few days after tx plus taste issues and slight neuropathy, but avastine was uneventful (runny nose/nose bleeding a bit, that's all). I was not given anything for nausea, but ativan was great to sleep. HOPE THE PAIN WILL SUBSIDE. Take care, sweetie.love to all of you,Catherine0
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Just a quick daily check in. Sorry for no PM responses, I'm only good for a few sentences girls. Thanks for thinking about me. Here I am thinking the aching is bone mets (which it likely is) but it could be the abraxane. I upped the morphine with the onc's permission and now that I have permission I don't seem to need it as often. Go figure. I'm sleeping too much. You know when it takes you 10 mins to figure out which day it is, they've all started to blur together. Eating massive (well maybe not massive) quantities of fruit and drinking gallons of water when I am awake. Back to bed for me now though. Hugs.
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Twilah:
Keeping you in my thoughts and prayers.. I woke up this morning thinking of you..KEEP fighting... DONT give up.. My love to your famiy as well.. Praying for them as well... for strength, Please email any time hun
Donna.
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{{{{{{{{Twyla}}}}}}} I will put in my 2 cents about pain medication. Definitely different strokes for different folks. I give a lot of morphine in the recovery room and it just doesn't work on some people. Then we switch to Dilaudid. It seems to work real well for some. Some news came out a few years ago about Demerol not working and they were discouraging us from using it. We still have docs who prescribe it and it works for some people. Also, depending on your kidney function there is Toradol. We use it in conjunction with narcotics. It isn't a narcotic, but a good adjunct.
When I had my mastectomies, they gave me Oxycontin and it did nothing for my pain. When they switched me to hydrocodone I got some relief and was able to move around. Hope you get some relief and start feeling better soon.
The sailing trip was more of an adventure than a pleasant trip. It had its moments of blissfully sailing in light winds. I napped a few times. The first night was a "nightmare". We got away later than we wanted to and ran out of daylight before we reached the campsite of the other sailors. So we were being tossed about by high winds and couldn't see were we were. Plus, we ran aground in shallow water. We slept anchored near some little island near the Intra-coastal Waterway, which hugs the coast of south Texas. Our boat was tossed up and down all night long. We had to brace ourselves to keep on a bed to sleep. Mike got seasick, which has NEVER happened before. I was wearing my scopalamine patch and didn't get sick. I finally put one on him around midnight and gave him a Zofran tablet. He finally got some relief and we slept some.
Thurs as we took our 2nd leg of the trip, we ran aground 3 times and the line to the rudder broke each time. Something to do with a new cleat he put on the tiller that was adjusted too tight. We got to Port O'Conner about 5:30 pm on Thurs. Found a boat slip and motel and spent the night in a room(weenies aren't we?).
The last leg was uneventful, except, Mike couldn't find our car. His friend went with us, launched us and then took our car and trailer up the coast to the finish line. We brought the boat up to the dock at the boat ramp and tied it up. I sat on board and read my book while he walked up and down the streets of this tiny coastal town called Magnolia Beach. He finally hitched a ride on the back of a golf cart driven by a drunk man and woman. Then he found Charlie who was able to take Mike to the parking lot where the care was.
I will never go on a trip planned by two guys. Where were the little maps they drew to show where the car was? Don't have one. Where are the list of contact people if we have trouble? Didn't have one. So as you can see, not very well planned. And of course the male "I don't ask for help or information" gene was going strong.
Anyway I mostly sat and watched Mike almost kill himself trying to move a heavy boat off sand bars and restarting the outboard. That is another whole story. Outboard just came back from 350 dollars worth of repairs and oh glory, it would die at the drop of a hat. I can't even start it because the rope is so hard to pull.
Well, "stop the insanity" LOL. So much for Beeson's sailing adventures. Hope it gave someone a chuckle.
Hugs and love to all, especially Twyla. Still praying for you and loving you as always. Love, Sammie Kay
P.S. We do have a fine GPS system and we have a new ship to shore radio, so we were never really in danger and I was never afraid. It was more of an inconvenience and shouldn't have happened if DH had planned better. LOL
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Well, that got a laugh...the Beesons Go Sailing. Thanks for sharing Kay. I'll find out what the new pain recommendations are on Monday but my codeine allergy make the Oxycontin not an option. I'll bring the others though. I haven't taken anything today -- I don't feel like I need it today and I'm....um...stopped up. Trying to give the Senekote a chance to work it's magic. I'm embarassed to say how many days it's been....ummmmmm....4?
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