Taxotere, Carboplatin and Herceptin
Comments
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Sharonann How are you feeling at this point? I hope the side effects are beginning to ease...
Marylou Welcome to our group. I hope your first chemo went well today. Are you receiving TCH including Herceptin i.e. are you HER2+?
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sewingnut-I have chemo envy-I go for #4 tomorrow. So happy for you!! Doing that happy dance thing!!! Lots of TCH girls have finished up here in the last 3 weeks. Hope this last one treats you well.
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Another TCH down. The end seems so much closer now that #4 is over and done with.
We have a chemo bell that people ring after their last infusion. I find that signal that someone is finished makes me emotional. I had my sis-in-law welling up along with me. I guess I just wish it was me ringing the bell.
I got my Carbo which was a relief. I was worried that I could be delayed or they would want to catch up the Carbo at the end. The shortage is still a problem but they're using what they have for those of us already on it and new people might get an alternative for the time being.0 -
Sewingnut - CONGRATULATIONS. What a wonderful day. You made it!!!
Pasmithx2 - congrats on #4 being behind you. Only 2 to go. My chemo room did not have a bell, but my rads office did. I also found it very emotional when I heard it ring. When it was my turn, I broke down and sobbed with relief, even though rads were not difficult at all for me. I think there was just so much pressure built up inside of me through the whole ordeal. In NO TIME at all it will be you ringing that bell. BE SURE to have someone there to take pictures. Or better yet, photos AND a video!
Amy
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And happy dance for b9 lymphy. Libraylil
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amylsStrong--I'm not sure I want pics, let alone video, of me melting into a puddle at the chemo bell. I imagine the DH will have the ever-present Blackberry and will make sure there's a pic or two.
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I am glad someone else's husband has an ever-present Crackberry and mine is not the only one!
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SpecialK--Mine is a Crackberry pusher. He brings them home for us to play with too.
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My office doesn't have a bell- but I can understand the emotion. It's all tough- that chemo room and chair and experience is gut wrenching emotionally for me each visit. Sometimes I can block that out more than others...
Definitely happy dance for those finished! So ready for TCH 6 to be done. Feel so much weaker overall. I went to the MO this week- and they said "you are still working? most people on this do not especially this far along."
Not up to par in anything in my opinion. I feel like a 90 year old and a 2 year old- 90 in my speed and 2 year old in that I have to have my rest/sleep/naps when I can to stay going...
Hanging in and hanging on by a thread.
Lisa
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pasmithx2 - DH just got a new one - I called and left him a crucial voicemail yesterday while I was out. He called me back from home (the message was to meet me downtown!) and tells me he has not yet figured out how to retrieve the voicemail! I wanted to kill him! Today he called me to ask if I left him a voicemail - he knows when he gets one, just can't listen to it! Arrggg!
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SpecialK--Do you have your own bberry? We use BlackberryMessenger all the time. I hardly ever call the DH or my kids. You can even see that, yes, they did read your message.
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Hi ladies.
I have been to Boston and to my Onc and we have decided that I will do herceptin, radiation and then do navelbine (mellow chemo) with the herceptin!! So so glad that it won't be tch!!!
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Great news karebear. Glad they won't be abusing your body too much and you'll get Herceptin. How long on chemo-lite?0
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Not exactly sure. Poss 12-16wks. It is given 1x week.
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Do you get to keep your hair?
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Just got home from #4 and I am really bummed out. I went from my feet not touching the ground because of great scan reports to total depression from the onc visit. He was extremely pleased with the scan results but then told me he was going straight to the phone to call my 3---three???-surgeons to schedule appointments. Breast, liver and lung. WTF??? My tumors shrank so dramatically I guess I just assumed we would melt them to death. Kind of always knew i would have the breast tumor out but didn't think I would need the other ones. he said I get 1 month to recover from chemo #6 and then he wants the surgeries done back to back. Breast first, then liver then the lung. He said they will go in the order of which are the easiest to tolerate. That would be Aug 8. He wants all surgical consults done in the next 2 weeks. I am not even going to listen to the answering machine toight. Bummer. Guess that fall beach vaction isn't going to happen.
Next great news-I have to go back for bloodwork next week. Dangerously close to transfusion level. Each tx my counts have come back up to almost pre-chemo level. This time they have dropped like a rock. I have never had to have a Neulasta or Neupagen =probably also wasn't pre-approved thru insurance togo get 1 tomorrow. They want me on house arrest til I go back. I feel fine so I will probably ignore that. I am notlanning on a rock concert or anything other than friends and family.
OK enough of that-anyone want cheese with my whine? Have a happy 3 day weekend.
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lilylady I know you don't thing it's good news but I think it's great that they are going to surgically removal all that cancer and so quickly. More cancer removed less likely cells will get lose and hang out somewhere else.
BTW I felt great too but my immune system was weakened by chemo and that's why I got shingles. I would listen to your doctor and don't expose yourself to crap.
Just found out about this stuff today (speaking of whine/wine)
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We did not have a bell at my chemo place BUT I did do 2 cartwheels down the hall after my last Herceptin. You cannot keep an old gymnast down...
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Lilylady. I know you are bummed. Whining is accepted here, you are entitled. I went into whine mode over my re excision in feb. It seems that your onco is slapping the krap out of your cancer and being very aggressive. Let this all sink.in. You were sort of blindsided with your diagnosis and have had a load to deal with recently.
My levels always rebounded well until about 4. Ended up having neupogen 3 times. That was all I needed to kick it and they rebounded for the next chemo. I did not have any SE from the neupogen.
Keep us posted on the surgery info. Try to relax and think they will be taking sout the cancer and that you are kicking butt. You can enjoy the beach a little later. We have good weather at the nc beaches on up until sept. Libraylil
PS. I am going outlet,junk, thrift shopping today!0 -
Ang7--I will have to be satisfied with the chemo bell. I'd likely end up in traction if I attempted a cartwheel! But it sounds like it would be more fun.
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Lily - reschedule that fall vacation for spring. I agree with the others, while surgery is never really a good thing, ridding your body of cancer IS. And the sooner, the better!
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Dear girls, thanks for your encouraging words. am over it now. it was just such a total shock. All i have heard from the beginning is at stage IV you are not curable. The BS and the liver guy both called me at home last night after 7pm.Pretty awesome to do that on a Fri night before a holiday weekend. they both said my onc is so passionate about my case that they wanted to touch base with me and not leave me worrying over a long weekend.
The BS said i have fallen into a very small category for Stage IV people (less than 2 %) that are curable. She said the name but I was too out of it to ask her to spell it. I have tried numerous spellings but can't get anything to pop. I am going to ask a couple of the ladies that seem like cancer PHDs to see if they know it. it sounded like oglimentary or aulimentary or something like that. I had a real good talk with her. Will save that for later. I will want to hear how you guys did after your Mx. I have lurked on the April and May Sx threads-doesn't seem all that bad. (Easy to say if it isn't you with drains hanging out of you)
Liver guy just talked briefly but also said my Onc was very excited and really wants to move forward so they will call me tues to set an appt. he said he has my records but I have to get him copies of the scans. he said judging by what he sees I would be in for a minimally invasive procedure. Maybe RFA where they stick a probe in and burn it or possibly laproscopic. All good to hear. he would be the second surgery.
I did not hear from the lung doc but that is OK. That is the one am worried about. My mom had some histoplasmosis in her lung and when they tried to remove it they ruptured her pulmonary artery and she ended up in a coma for a month. it was a hellish 1 1/2 yrs getting her back on her feet. They had to rip out the entire lung to save her life. I know the odds are small for that happening. that surgery won't probably happen til Oct anyway.
I am curable-who the hell would have thought that and how could that not be the focus instead of worrying about throwing up from anesthesia. What a butthead.
Well,its outside to cut the grass-and PRAISE GOD I am woman enough to do it.
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Lilylady Wow!!! Stage IV and curable-now that's some great news. I know you are facing a lot of surgery but being in that 2% will be so worth it:)0
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Lily that totally rules. The Docs are total babes to call you. My bs called to tell me the re excision margins were clear so I would not have to wait. At that point i felt like he was an really awesome human being as well as a dr. Cute little butt as an added bonus...in scrubs:) Sorry I am encouraging all of you to misbehave and check out the Docs rear view. Libraylil
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TCH #6 - I'm in the chair and finishing today-hooray! Even though I'm facing my usual 10 days of side effects, it's the last time!!! On to rads on June 20th and or course the Herceptin will continue. I'm celebrating by going skydiving on my Birthday on June 18th. I'll post a video to share the experience afterwards:) Congrats to others who are finishing soon as well. I know LisaGH and SpecialK are finishing in the next two days...
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Yay!!! Congratulations Dragonfly! I am thrilled for you !
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Yay Dragonfly!!!!!!!! Can't believe it!!! I am in the chair too with herceptin number 14. You'll be here before you know it!
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Congratulations Dragonfly. And congratulations-to-come for Lisa and SpecialK.
Can't wait to see the skydiving video. You really know how to mark an occasion!
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Congrats Dragonfly1!! May the last 10 days surprise you and be easy.
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Congrats Dragonfly-.hope the SEs are kind
Have you done the skydive thing before? Coolest (scariest) thing ever to celebrate with. Can't wait to see the video. Seems like it would be the ultimate cure for the Big C-standing in the door of a perfectly good airplane and jumping out.
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