Taxotere, Carboplatin and Herceptin
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SpecialK - I had a GI surgery in '95, too...and had IBS type sx since then as well! The probiotics really seemed to have helped that issue so far for me, too. I too wish I had known about them earlier. The only issue I have with them is I recently switched to a new brand (trying to find a less expensive option). I'm bloating since I'm on it...looked closely at the label and see it has a prebiotic. I had trouble with a prebiotic the last time I tried it - horrible diarrhea. It's not bad yet, I'm thinking maybe I should stick it out, this should be good for my system, right? Moonflower - have you read the label on your probiotic closely? Wondering if it might have a prebiotic in it, too.0
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I've been taking Nutra Flora ever since I was diagnosed with IBS prior to BC diagnosis. It was recommended by my gastroentinologist. It makes a difference when I don't take it. I also notice it works better when I eat yogurt too.0
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Lago - I tried that nutraflora prebiotic and unfortunately ended up in the bathroom with terrible diarrhea (after lots of bloating). And that was only 1/4 teaspoon! My GI system is ridiculously sensitive and difficult for me to manage at times - gah! I hope to try it again someday when I am further out from the chemo. This inulin prebiotic included in my new probiotic seems to be causing similar symptoms, but thankfully, not as severe.
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Sorry about that dance. Granted the issue I usually have is the big C not the D., even on chemo.
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No big deal Lago - there was no way to know until I tried it, and I do still want to try it again. I mean, fiber has got to be good for me, and I do eat a lot in my diet generally...but I guess those pills just are too concentrated for my f*d up system. LOL.
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Thanks for all the advice ladies. I will ask the mo and see what he recommends. It really helps that this is " normal" whatever that means ;-). So far today I am good. What really bothers is my bottom is so very tender( sorry if that's too much info). It really just feels like it's raw meat. Been using the cleansing wipes, hemroid cream, and desitin. Hopefully the diarrhea slows down and I have time to heal before the next round in August.
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Dance: I also struggled with IBS and had similar issues. I started taking the melaleuca womens gold pack vitamins which have probiotics and pre-biotics and it has worked wonders for me. And eating lots of Greek yogurt. Good luck!!
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mom24boyz - I had skin break down at one point as well - I found that daily baths really helped - actually twice a day at one point (not long hot baths - those are bad for your skin, maybe 10 minute warm baths). If you don't want to take a full bath, you might want to purchase one of those sitz baths. I liked the full bath, though - felt like I was treating myself and was very relaxing. A good feeling when you are going through chemo.
Also - you may want to check with your doc to see if you might have developed thrush of that area...it can happen - happened to me and one other gal on my chemo thread. Doc will give you a Nystatin powder to apply.
Dianefightslikeagirl - thanks!
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Momof2, I always used a big glob of aquaphor,worked better than desitan. And, so sorry you have this problem. DT, I will check out my probiotic for a prebiotic, I did not know about that. I think my issues may be at least partially, due to the magnesium I have had to take. I mean taking 2 of the 500 mg tablets 3 x daily is a lot of magnesium. I had cut it down to 2x daily, and now my MO says back to 1tablet 2x. We'll see. I hope it helps. It's not even the frequency that bothers me, its the absoulutly no notice part that sucks. I mean, even one cramp would at least send me to the restroom. But with no notice, its horrible, because if I try to do anything and lose it, it means a full change of clothing. Or if I stay in, it means I lose the chance to do anything. So I hate this. Momof2, I hope your guts settle down fast. To try the aquaphor, they have a lip balm tube. It's small and about four bucks, so you could try it before spending big bucks on a large jar. Much love.
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I take just one at night because that is when I take most of my meds/supplements/vitamins.
Interesting (and dramatic!) story - I have just returned from DC where I was for the vaccine trial. I was staying with my son and his girlfriend. She has a little beagle. My DS and I ran out to get Thai food and put gas in the car - not gone more than 30 min. and when we got home the doggy had found my old lady pill case and eaten everything in it! So scary - but fortunately my BIL is a veterinarian, so I called him and he told us what to do. The reason I told this story is that he ate all of my probiotics and I did not take any the last 4 days of the stay. Things have been a little off kilter since, but I am back on them as of last night. This dog will have low cholesterol, no estrogen, beautiful claws and fur, a clear mind, strong bones, and excellent energy! Sheesh!
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Special k, yep one tablet, compared to six, hmmm, might see the problem here, LOL.
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moonflower - yep, I definitely would be suspicious of the Mg. Even when I take a couple swigs of Mylanta (which has Mg in it), I get mild D train the next day. That really is tough the situation you are in. I hope you can get off the Mg soon and get back to enjoying your life more!
specialk, cracking up about the beagle and glad all turned out ok!
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Specialk, silly beagle, LOL. Glad it turned out ok.
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Hi all, second tx - TCH - any suggestions for the metallic taste in the mouth? Thank you
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Deventi- drink lots of water. I mean a lot!! That helps flush things out of your system. You can also try a mouthwash that does not contain alcohol, like crest pro-health. Hope everything else is going well for you!
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I never had the metallic taste in my mouth, never lost sense of taste - I don't know for sure, but I think it may have been because I chewed on ice during the Taxotere...or I could just have been lucky to have never had this SE. Just thought I'd share, in case you might want to try chewing on ice for the next infusion (if you haven't already).
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I too never had metallic taste and sucked on ice during Taxotere infusion. I did have taste changes though but very minor. I sucked on ice to prevent mouth sores.
Here are some things I did read. There might be more but these are the ones I remember:
Use plastic utensils
add citrus to water (lemon, orange etc.) to get rid of the taste.0 -
Citrus, salt and sweets seemed to go down well. Nothing went great. Just had to get to week two before eating food I could taste.
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Moonflwr912
Me too on the two weeks after chemo before food tasted normal. I had this craving for tomato juice. The saltiness cut right through that awful taste. That t was my one indulgence in an otherwise low salt regime.0 -
I 've been thinking about our forum friend who got pregnant and had to stop treatments. I'm not even sure if she was on this thread. I looked for the posts but couldn't find them.
On the off chance you 're reading and not actively posting......just wanted you to know that I'm thinking of you and hoping that you and your baby are doing well.0 -
Did anyone have prolonged thrush that wasn't responsive to treatment PFC?
I am 6.5 weeks PFC. STILL have thrush. Nystatin became useless. I had one IV Diflucan, and it seemed to go about 80% away. Then it came back with a vengeance after my last Herceptin. I am now on oral Diflucan, once daily for 10 days. Today is my 6th pill, and I STILL have it.
I'm really frustrated and just want it to GO AWAY.
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Dance, have they checked your sugars? Also did you try Azo yeast tablets. Perhaps they would help.
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Dance there are some people that do have trouble getting this under control. Sorry I can't offer any help. I would stay away from eating anything with sugar (including fruits high in sugar, juices) and eat more yogurt with active cultures (without sugar or fruit). If you can handle fresh garlic in your food (not the powdered dried stuff) eat more of that. I don't think yeast likes garlic either. Cut down on foods with yeast (breads, pasta) or fermentation (soy sauce, any thing with vinegar, and alcohol).
There is an entire list but you could starve if you followed it. Eventually your body with get back it's old PH.
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moonflower - I was prediabetic when they ran my a1c at 3 weeks PFC. I just had a fasting blood sugar done Wed a.m., as I too am suspcious that my sugars may still be too high. I don't know the results yet.
Thanks Lago. I've been staying away from sweets but maybe not enough. I did look at those anti-thrush diets and felt the same way...dang, I'll starve! I've been brushing my teeth after each meal and sterlizing my toothbrushes. I'll try more garlic. Oh, and I eat yogurt every day plus take a probiotic.
I hope you are right that this will eventually right itself, b/c I'm really sick of chemo SE's.
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Dance I had chronic yeast infections for about a good year back in my late 20's. I was treating it every month. I saw this doctor that specializes in it. He put me on that diet. It was nuts. After several months he wanted to do a full allergy screening. I told him he told me that I wasn't an allergic person (I'm not except to some antibiotics). He started yelling at me. Went back to my gyno. She said the diet was ridiculous. No one can live that way… and she was the one who taught me to use the acidophilus capsules as depositories instead of the messy meds. She said my body will change eventually and the PH will right itself. She was right.0
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Dventi...I hated that metallic taste! One thing someone suggested to me that would give me temporary relief was frozen pineapples. The good news is I seem to remember the metallic taste not being as bad near the last couple of TCH treatments.
Ashla...not sure if you are talking about me...but I am pregnant and did have to stop herceptin. I have high fluid which is ironic since they stopped herceptin because one of its known side effects on pregnancy is low fluid. The baby seems to be doing well, however! The plan is to induce me at 37 weeks and then to restart my herceptin right away. I won't know how the cancer is doing until a few weeks later when I can have a pet scan. But I am feeling good, so I am hopeful. If that was me you were thinking of, thanks so much! ( ;0 -
Thanks again moonflower and Lago - I really appreciate the support and especially hearing your story Lago.0
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Jejik,
Yes it was you I was referring to! When are you due? So, so happy to hear you are both doing well!!
My thoughts are with you both!
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Dance, cinnamon and vinegar really fi help with the blood sugar. Vinegrette salad dressing slows glucose absortion, and cinnamon lowers sugars. So add them in to your diet, don't go crazy, just add when you can, although cinnamon capsules work too. I had the worst yeast infections when my sugars were wild. Good luck.
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Dance my story does apply to the other opening at the other end of the body though
Still both are yeast/candida 0
